Yu want fɔ no bɔt Amniotic Band Syndrome, we na wan denja kɔndishɔn usay band dɛn kin rap rawnd yu pikin?

Yu kin tink ɔltɛm bɔt aw yu pikin go wɛl we i gɛt bɛlɛ, nɔto so? Sɔntɛnde, we yu si smɔl tin we dɛn de skan, yu kin rili fred. Na so bɔku mama dɛn kin wɔri, bɔt if dɛn tɛl yu fayn fayn wan, dis sik we dɛn kɔl amniotic band syndrome kin bi we pɔsin kin ebul fɔ kɔntrol. Lɛ wi tɔk bɔt am simpul wan, di we we yu go ɔndastand.

Wetin na di Amniotic Band Syndrome?

fכ sכmtεm, dis kin apin we di tכn bכnd dεm fכ wata we de kכmכt na di amniotic sak (we wi kכl ``Amniotic Sac'') we de rawnd di pikin insay di bεlε de rap rawnd di pikin in bכdi. Tink bɔt di pikin lɛk se i tan lɛk balyɔn we ful-ɔp wit wata. if di dilik mεmbran we de insay di amnion dεn dכn pwεl eni we, i kin brok כf to tכd כ lεk bכnd εn fכt rawnd insay di amniotic sak. Dis na wetin wi de kɔl ``Amniotic Bands''. Dɛn band dɛn ya we de flɔt, lɛk bɔl we dɛn mek wit trɛd, kin tandul rawnd in an, in leg, finga, ɔ ɔda pat pan di pikin in bɔdi na di bɛlɛ. If dɛn band dɛn ya tang tayt, di blɔd we de go na da pat de nɔ go de igen, ɛn sɔntɛnde i kin ivin stɔp kpatakpata. Dɔn da pat de nɔ de divɛlɔp fayn. sכmtεm dis kin afekt di pikin in insay כgan dεm εn ivin di כmbilik kכd. Dis kin mek dɛn bɔn pikin dɛn we nɔ fayn (Congenital Disorders) ɛn if i bad, dɛn kin kɔt dɛn an. di kayn we aw di sik kin tranga de dipכnt pan aw dεn rap di bכnd dεm tayt εn usay dεn rap dεm na di pikin in bכdi. Sɔm pikin dɛn kin jɔs gɛt smɔl smɔl tayt skin tag dɛn we dɛn bɔn dɛn. Bɔt sɔm pikin dɛn kin bɔn we dɛn nɔ gɛt an, fut, ɔ finga. if dεn bכnd dεm ya kכt di pikin in bכdi we de kכmכt na di plasεnta, i kin mek i day. Sɔntɛnde, dɔktɔ dɛn kin no di sik wit ɔltra saund skan we uman gɛt bɛlɛ. כltu, bכku tεm, dεn nכ kin kכnfכm dis te afta dεn bכn di pikin. Dis sik nɔr kin bɔrku. I kin apin pan lɛk 1 pan ɛvri 1,200 to 15,000 pikin dɛn we dɛn bɔn layf layf wan. Dɛn kin kɔl am bak:

• Amniotic Band Sikyɔn
• Kɔnstrikshɔn Band/Rings Sindrom
• Amniotic Band Disrupshɔn Kɔmpleks
• Di Band/Ring dɛn we dɛn kin bɔn wit
• ADAM Komplex `(ADAM Komplex - Amniotik Difכmiti/ Adheshon /Mutilεshכn)`
• Anomali we de na di strit

Wetin na di sayn dɛm fɔ dis? Aw fɔ no am?

di sayn dεm fכ dis kכndyush כn de dipכnt bכku pan usay di pikin in bכdi di kכd tכn εn aw i tayt.Na lɛk 80 pasɛnt pan di sik dɛn kin afɛkt di an ɛn leg. Bɔt dɛn band ya kin tandul bak na di ed, nɛk, ɛn bɛlɛ. Sɔntɛnde, dis nɔ kin rili siriɔs. I de jɔs ridyus di blɔd we de flɔ na di say we di skin de. Dɔn we dɛn bɔn di pikin, tin dɛn kin de lɛk kɔnstrikshɔn ring na di skin, ɔ smɔl smɔl tin dɛn we nɔ fayn na di an ɛn fut dɛn. Bɔt sɔntɛnde dɛn band ya kin tandul so tayt ɛn dip dat di blɔd we de flɔ to da ɔgan ɔ bɔdi pat de kin kɔt kpatakpata. Dɔn da pat de kin lɔs, di blɔd kin lɔs, ɛn sɔntɛnde prɔblɛm dɛn kin apin we kin mek pɔsin in layf de pan denja. Ɔda sayn dɛm wae yu kin si pan dis sik na:

• Fɔ bɔn pɔsin we nɔ gɛt an, fut, ɔ finga.
• Finga dɛn we dɔn stɔp togɛda (Syndactyly). Skin kin de bitwin di finga dɛn, lɛk dɔk in yon.
• di limb dεm sכt εn dεn nכ de divεlכp fayn.
• Swɛlin usay di strap dɛn tandul.
• Klɔbfut .
• Klɛft Lip ɛn Klɛft Palate .
• Bɔn dɛn we nɔ fayn, lɛk skɔliosis.
• Choanal Atresia (divεlכpmεnt we nכ kכmplit na di nos dεm). Dis kin mek i nɔ izi fɔ di pikin fɔ blo.
• di yay dεm we rili sכm כ we nכ de divεlכp fayn (Microphthalmia).

Us prɔblɛm dɛn dis kin mek?

Amniotic band syndrome kin mek yu gɛt bɔku prɔblɛm dɛn, sɔm pan dɛn kin de fɔ ɔl yu layf. Sɔm prɔblɛm dɛn kin rili siriɔs ɛn ivin kin mek pɔsin in layf de pan denja. Fɔ ɛgzampul:

• Ol dɛn na di skel (Encephalocele). If na so i bi, pat pan di bren kin kɔmɔt na di skel.
• Ol ɔ difɔmiti na di bɛlɛ ɔ chɛst wɔl.
• damej to imכtant sistεm dεm lεk di gεstrointestinal sistεm כ di jεnitourinary sistεm.
• di kכmplikεshכn dεm we kin apin if dεn kכd dεm ya tכn insay di כmbilikal kכd εn blכk di pikin in bכdi fכ fכlכ .

Bɔku tɛm dis sik kin mek dɛn bɔn di pikin bifo tɛm. Fɔ bɔn pikin bifo tɛm gɛt in yon prɔblɛm dɛn. Risk de bak fɔ mek di bɛlɛ bɔn ɔ bɔn pikin we dɔn day. Pikin dɛn we gɛt dis sik kin nid fɔ gɛt fizik tritmɛnt ɛn ɔkupeshɔn tɛrapi fɔ lɔng tɛm, ɔ te dɛn ajɔst to di prɔblɛm dɛn we kin apin we dɛn nɔ gɛt dɛn an ɛn fut ɔ we nɔ kin gro fayn.

Wetin mek amniotic band syndrome (ABS) kin apin? Wetin na di tin dɛn we kin mek i apin?

Bɔku stɔdi dɛn dɔn sho se no klia, patikyula rizin nɔ de fɔ dis.di mכtalman tink se i kin kכz fכ di damej we di insay layεr na di amnion (di sak wata we de rawnd di pikin). Sɔm pan di tin dɛn we kin mek dis sak wata pwɛl na:

• sכm tεst dεm dεn kin du we uman bεlε , lεk Chorionic Villus Sampling (CVS) כ Amniocentesis. Dis min se yu fɔ chuk di bag we gɛt wata wit nidul ɛn tek wan sɛmpul pan wata ɔ tisu frɔm di pikin. Bɔt, i nɔ kin izi fɔ mek dɛn tɛst ya kɔz bad.
• Open Fetal Surgery: Dɛn kin du dis nɔmɔ pan kes dɛm we rili siriɔs, we kin mek pɔsin in layf de pan denja.

Bɔt pan sɔm kes dɛm we dɛn gɛt amniotic band syndrome, di bag we gɛt wata nɔ kin pwɛl atɔl. So, sɔm masta sabi bukman dɛn biliv se dis na bikɔs ɔf prɔblɛm we de wit di blɔd we de go na di pikin in bɔdi. Sɔntɛm sɔm pikin dɛn kin gɛt bɛtɛ blɔd sakulayshɔn bikɔs ɔf di jɛnɛtik inflɔwɛns.

Udat de pan denja pas ɔl fɔ gɛt dis sik?

Yu chans fɔ bɔn pikin wit dis sik kin bɔku smɔl if yu:

• If yu gɛt ɔda prɔblɛm dɛn we yu gɛt bɛlɛ.
• If yu gɛt wan sik we dɛn kɔl `(Vascular Ehlers-Danlos Syndrome)`.
• If yu smok we yu gɛt bɛlɛ.
• If yu de yuz mɛrɛsin we dɛn nɔ bin gi yu we yu nɔ gɛt advays, ɔ if yu de tek sɔm mɛrɛsin dɛn we yu gɛt bɛlɛ.

Aw yu kin no dis ɛksaktɔli?

Bɔku tɛm, dɔktɔ kin no dis sik afta dɛn bɔn di pikin, we i de chɛk di pikin. bכt sכmtεm, dεn kin si sayn dεm fכ dis bak we dεn de du כltra saund skan we uman bεlε. Di skan kin sho layn dɛn we di tayt band dɛn mek. Bɔt bɔku tɛm, di skan de sho se di an ɛn fut dɛn nɔ de, ɔ di pat dɛn na di bɔdi nɔ de divɛlɔp fayn.

Aw kwik dɛn kin si dis pan skan?

sכmtεm dεn kin si di simptom dεm fכ amniotic band syndrome as ali as 12 wiks insay di bεlε, bכt i rili at. Bɔrku tɛm, yu dɔktɔ go si di sayn dɛm fɔ dis we dɛn de du di anatomy skan, we dɛn kin du arawnd 20 wik. If ɛni dawt de, yu dɔktɔ kin ɔda fɔ mek dɛn du ɔda tɛst dɛn lɛk MRI (Magnetic Resonance Imaging).

Wetin na di tritmɛnt dɛm fɔ dis?

Bɔku tɛm, dɛn kin du di tritmɛnt afta dɛn dɔn bɔn yu pikin. Di kayn tritmɛnt dipen pan usay di tep bin de ɛn aw i bin tayt. If i nɔ izi fɔ du, na fɔ lɛ dɔktɔ wach am gud gud wan.Bɔt if di sik bad bad wan fɔ afɛkt di pikin in sɛns, dɛn nid fɔ trit am kwik kwik wan. Sɔntɛnde, ɔpreshɔn kin kɔrɛkt prɔblɛm dɛn lɛk klɔb fut, lip ɛn palata we skata, ɛn sindakti. Bebi ɛn pikin dɛn we gɛt an ɛn fut we nɔ de ɔ we dɔn shɔt kin bɛnifit if dɛn yuz prɔstɛtik. Fyzikal tritmɛnt ɛn ɔkupeshɔn tɛrapi kin ɛp dɛn fɔ yuz dɛn atifishal limb ya ɛn mek dɛn ɔl wok fayn.

na sכm tεm we dכkta kin du wan prכsidכm we dεn kכl fetoskopi fכ pul di amniotic sak we di pikin stil de na di bεlε. Di gol fɔ dis ɔpreshɔn na fɔ fri di tayt sak ɛn fɔ mek i nɔ pwɛl mɔ. Bɔt dis we aw dɛn kin du am kin mek di mama ɛn di pikin gɛt bɔku prɔblɛm wit dɛn wɛlbɔdi. Bɔku tɛm, dɛn kin jɔs du dis we di sak tayt so dat i kin mek pɔsin in layf de pan denja.

Yu tink se di pikin go ebul fɔ liv wit dis sik?

Yɛs, bɔku pikin dɛn kin liv wit dis sik. If dɛn de liv ɔ nɔ de liv, i dipen pan tin dɛn lɛk usay di strap dɛn bin de ɛn aw dɛn bin tayt.

Dɛn amniotic band ya de go?

Nɔ, bɔku tɛm , di indent ɔ skata dɛn we di amniotic band dɛn kin mek nɔ kin go. dis dipכnt pan aw dip di bכnd dεm dכn go insay di skin. Aks yu dɔktɔ bɔt di tritmɛnt dɛn we pɔsin kin gɛt fɔ dɛn kayn skata ya.

Yu tink se we de fɔ mek dis nɔ apin?

Fɔ tru , nɔ patikyula we nɔ de fɔ mek dɛn nɔ gɛt amniotic band syndrome. Dɔktɔ dɛn biliv se bɔku tɛm i kin apin randomly, witout ɛni rizin.

Wetin wi kin tink bɔt dis sityueshɔn fɔ go bifo? (Autluk) .

Fɔ bebi dɛn we gɛt mild ABS, di lukin-grɔn fayn. di pikin dεm we dεn bכn wit sכm limb abnכmaliti dεm kin adap fayn fayn wan to prosthεtik εn rihabiliteshכn program dεm. Bɔt di pikin dɛn we gɛt siriɔs ɔgan dɛn we dɔn pwɛl ɛn we nɔ gɛt bɛtɛ blɔd fɔ pas na di ɔmbilik kɔd nɔ kin liv. Na lɛk 1 pan ɛvri 70 pikin dɛn we dɛn bɔn we dɔn day, na bikɔs ɔf di sik we dɛn kɔl amniotic band syndrome.

Wetin fɔ du if yu pikin gɛt amniotic band syndrome?

Pikin dɛn we gɛt dis sik nid strɔng sɔpɔt ɛn kia fɔ lɔng tɛm.Mama ɛn papa, famili, ɛn dɔktɔ dɛn ɔl nid fɔ wok togɛda fɔ ɛp yu pikin fɔ ajɔst to di chenj dɛn we dis sik kin briŋ kam pan aw i luk ɛn aw i kin wok. Yu pikin kin nid fɔ go to difrɛn spɛshal dɔktɔ dɛn. Fɔ ɛgzampul, ɔtpidik ɔspitul ɛn nyurolɔjis (dipen pan us pat na di bɔdi afɛkt). Fambul dɛm ɛn brɔda ɛn sista dɛm kin fɛn sɔpɔt bak na sɔpɔt grup fɔ famili dɛm wae gɛt pikin dɛm wae gɛt dis sik. We yu kam fɔ no se yu pikin gɛt amniotic band syndrome, yu kin gɛt bɔku kwɛstyɔn ɛn fred. Fɔs, mɛmba se yu mɛdikal tim de fɔ ɛp yu ɛn yu pikin, fɔ kia fɔ yu gud gud wan. Di rayt we aw yu sik go dipen pan aw di band dɛn tayt ɛn usay dɛn de. Dis kin min se yu go nid fɔ du ɔltra saund skan ɔltɛm we yu gɛt bɛlɛ. Ɔ yu kin nid fɔ gɛt ɔpreshɔn afta dɛn bɔn di pikin, fɔ mek dɛn gɛt wɛlbɔdi fɔ lɔng tɛm, ɔ fɔ yuz atifishal an ɛn fut dɛn fɔ mek i wok bak. Nɔ fred fɔ tɔk to yu dɔktɔ we de na di klinik bifo yu bɔn pikin ɔ yu pikin in mɛdikal tim bɔt dis diagnosis ɛn aw i go afɛkt yu famili.

Faynal Mɛsej fɔ Tek-Hom

Amniotic Band Syndrome na tin we rili de mek yu fred, bɔt i rili impɔtant fɔ no bɔt am.

• Dis na tin we nɔ kin apin so ɔltɛm.
• Bɔku tɛm, dis kin apin randomly, we min se nɔto ɛnibɔdi in fɔlt.
• Bɔku pikin dɛn we dɛn bɔn wit dis sik kin liv fayn if dɛn gɛt gud mɛrɛsin ɛn dɛn famili sɔpɔt dɛn.
• if dεn kin no dis we uman bεlε, i go εp fכ plan di tritmεnt we dεn nid fכ di pikin.
• If yu gɛt ɛni dawt ɔ kwɛstyɔn, mek shɔ se yu tɔk to yu dɔktɔ. Dɛn go gi yu ɔl di infɔmeshɔn ɛn sɔpɔt we yu nid. Nɔ wɔri, nɔto yu wan de.