Ankylosing Spondylitis, as wi kin kɔl am pan mɛrɛsin, kin kɔmplikt smɔl fɔ yu. Fɔ tɔk am simpul wan, na wan patikyula kayn at at sik we kin afɛkt di spayna ɛn di jɔyn dɛn we gɛt fɔ du wit am. Wae yu de liv wit dis sik wae de teik lɔng tɛm, sɔmtɛm yu kin fil lɛk na yu wan de gɛt dis pen ɛn diskɔmfɔt. Bɔt nɔto yu wangren de. Bɔrku ples ɛn we de fɔ ɛp yu fɔ du dis waka, gi yu di rayt infɔmeshɔn, ɛn mit pipul dɛm wae dɔn gɛt di sem kayn ɛkspiriɛns lɛk yu. Na dat wi de tɔk bɔt na dis atikul tide.
Fɔs, wetin na Ankylosing Spondylitis (AS)?
Bifo wi go insay dis dip, lɛ wi ɔndastand fɔs wetin na dis kɔndishɔn. Ankylosing Spondylitis (AS) na wan kayn at at sik we de mek pɔsin fil bad. "Inflammatory" min se i de mek inflammation insay di bɔdi. I kin mɔs afɛkt di jɔyn dɛn na yu spayna .
Tink bɔt am, wi spayna gɛt smɔl smɔl bon dɛn (vɛrbra) we dɛn dɔn stak pan dɛnsɛf. Di jɔyn dɛn we de bitwin dɛn bon ya de ɛp wi fɔ bɛn, ɛkstɛnd, ɛn twist. insay AS, di bכdi in imyun sistεm de mistek atak dεn hεlty joyn dεm ya. Dis kin mek dɛn jɔyn dɛn ya kin swel, dɛn kin fil pen, ɛn dɛn kin stif. as tεm de go, dis inflameshn kin mek nyu bon dεm gro na di spayna, fכ fכs di vεrbra dεm togeda, εn ivin lכs di abiliti fכ bεnd kכmplit wan. Dis kin bigin wit we yu spayna stif we yu fɔs wek na mɔnin, ɛn as tɛm de go, i kin afɛkt ɔda jɔyn dɛn lɛk di hip ɛn sholda.
Usay yu kin gɛt sɔpɔt ɛn infɔmeshɔn
We yu de liv wit dis kayn tin, di trɛnk we de kɔmɔt frɔm di rayt infɔmeshɔn ɛn sɔpɔt pan aw pɔsin de fil, nɔ gɛt wan valyu. Lɛ wi tek tɛm luk sɔm pan di men ples dɛn we yu kin gɛt ɛp.
Fɔs, yu dɔktɔ.
Yu bɛst padi ɛn gayd fɔ dis joyn fɔ bi yu dɔktɔ we de trit yu. Ilɛksɛf yu lan bɔku tin frɔm di intanɛt ɛn padi dɛn, na in nɔmɔ no gud gud wan wetin na yu sik, di rayt tritmɛnt dɛn, nyu mɛrɛsin dɛn, ɛn ɛksesaiz dɛn we yu fɔ du.
- Nɔ fred fɔ aks di dɔktɔ ɛni kwɛstyɔn ɔ dawt we yu go gɛt.
- Bifo yu tray sɔntin we yu si na di intanɛt, tɔk to yu dɔktɔ bɔt am.
- If chenj de pan yu sayn dɛm, if yu gɛt nyu pen, tɛl am ɔltin bɔt am.
Wetin na Sɔpɔt Grup dɛn?
Sɔpɔt grup na ples usay ɔda pipul dɛn we gɛt AS lɛk yu kin kam togɛda. Dɛn kin ɔganayz dɛn tin ya na di ɔspitul lɛvul ɔ dɛn kin de na di intanɛt. Insay Sri Lanka, i izi fɔ fɛn grup dɛn na di Intanɛt.
Us bɛnifit yu kin gɛt frɔm grup lɛk dis?
- Nɔ fil se yu de yu wan:Di filin fɔ "nɔto mi wan de fes dis" na big sɔs fɔ trɛnk.
- Yu kin sheb ɛkspiriɛns: Yu kin lan bak de smɔl smɔl trik dɛm wae ɔda pipul dɛm kin yuse fɔ kɔntrol pen ɛn mek i izi fɔ du ɛvride.
- Fɔ fil fri: We yu tɔk to pɔsin we ɔndastand yu prɔblɛm dɛn, dat kin mek yu fil fayn.
Impɔtant: Mɛmba se pipul dɛn we de na dɛn grup ya de tɔk bɔt dɛn yon ɛkspiriɛns. Nɔ tek ɛni wan pan dɛn tin ya as dɔktɔ advays. Ɔltɛm, go to yu dɔktɔ bifo yu tray ɛnitin.
Tink tu tɛm we yu de luk fɔ infɔmeshɔn na di Intanɛt!
Naw, di Intanɛt na bɔku bɔku tin dɛn fɔ no bɔt. Bɔt insay da si de, pal dɛn de ɛn bak dɔti ɛn ivin tin dɛn we denja. We yu de luk fɔ infɔmeshɔn bɔt AS, bɔku tɛm yu go tɔn to blɔk, ɔnlayn fɔm, ɛn soshal midia. Yu nid fɔ rili tek tɛm de.
Bifo yu abop pan wɛbsayt ɔ kɔmyuniti we de na di Intanɛt, aks yusɛf dɛn kwɛstyɔn ya.
| Matter of concern | Aks yusɛf. |
|---|---|
| Wɛbsayt ɔna/ɔda pɔsin | Udat de rul dis wɛbsayt ɔ pej? Na mɛdikal ɔganayzeshɔn we dɛn no, ɔspitul, ɔ na jɔs wan pɔsin? |
| Di tin dɛn we pɔsin want fɔ du fɔ sɛl | Yu de tray fɔ sɛl sɔm kayn "miracle cure", divays, ɔ buk tru dis wɛbsayt? |
| Prɔmis dɛn we pɔsin nɔ go biliv | Dɛn kin mek prɔmis we tu gud fɔ bi tru, lɛk "hɛl insay 7 dez" ɔ "di sikrit fɔ 100% mɛn?" Bɔku tɛm, dɛn kayn tin ya kin bi lay. |
| Validiti fɔ di infɔmeshɔn | Yu tink se di infɔmeshɔn we dɛn gi na nyu tin? Yu tink se i kɔmɔt frɔm sayɛns risach? Yu tink se dɔktɔ dɛn dɔn kɔnfyus am? |
Intanɛshɔnal wɛbsayt ɛn institiushɔn dɛn we dɛn kin abop pan
Pan ɔl we no big ɔganayzeshɔn nɔ de we de du AS na Sri Lanka, bɔku institiushɔn dɛn de we dɛn no na di wɔl we de gi sayɛns infɔmeshɔn. Pan ɔl we di tin dɛn we de insay dɛn tin ya na Inglish, i rili valyu.
- Spondylitis Association of America (SAA): Dis na di big ɔganayzeshɔn na Amɛrika we de du AS ɛn ɔda tin dɛn we gɛt fɔ du wit am. Dɛn wɛbsayt gɛt bɔku tin dɛn bɔt dis sik, aw fɔ mɛn am, ɛn aw fɔ du ɛksɛsayz.
- Atraytis Fɔdayshɔn: Dis na big ɔganayzeshɔn we de gi infɔmeshɔn bɔt at at sik in jɔnaral. I gɛt wan sɛpret pat bɔt AS.
- Nashɔnal Instityut fɔ Atraytis ɛn Mɔskuloskel ɛn Skin Diziz (NIAMS): Dis na wan Amɛrika gɔvmɛnt wɛlbɔdi ɛjɛnsy. Di infɔmeshɔn we dɛn de gi na tin we pɔsin kin rili abop pan.
Di tin we impɔtant pas ɔl: I impɔtant fɔ tɔk ɔltɛm bɔt di infɔmeshɔn we yu lan frɔm dɛn wɛbsayt dɛn ya wit yu dɔktɔ fɔ mek shɔ se i fayn fɔ di tin we de apin na Sri Lanka ɛn i fayn fɔ yu.
Lɛ wi no bak bɔt soshal midia lɛk Fɛsbuk ɛn Rɛdit.
Lokal ɛn intanashɔnal grup dɛn de we de gi AS pasɛnt dɛn na soshal midia pletfɔm dɛn lɛk Fɛsbuk. Dis na fayn ples fɔ sheb ɛkspiriɛns ɛn aks kwɛstyɔn. Bɔt di kɔt we wi dɔn tɔk bɔt, impɔtant bak na ya.
- Akt pan yu gut filin: If yu si grup, pej, ɔ post we tan lɛk se yu de sɔprayz ɔ lay, i go mɔs bi se na so i bi. Avɔyd dɛn kayn ples dɛn de.
- Nɔ kɔnfyus yu yon ɛkspiriɛns wit mɛrɛsin advays: Jɔs bikɔs sɔmbɔdi se, "A tek dis mɛrɛsin ɛn a fil fayn," nɔ min se i rayt fɔ yu. I kin ivin denja fɔ yu. Ɔltɛm fala yu dɔktɔ in advays fɔ ɛnitin.
- Luk fɔ Verified Accounts: Fɛsbuk pej dɛn fɔ big ɔganayzeshɔn dɛn we gɛt gud nem gɛt blu chɛk mak pan dɛn. Dis min se na dɛn ɔfishal pej. Infɔmeshɔn frɔm dɛn kayn ples dɛn de, na tin we pɔsin kin abop pan mɔ.
Fɔ liv wit AS na prɔblɛm. Bɔt yu nɔ nid fɔ fes am yu wan. Fɔ gɛt di rayt infɔmeshɔn ɛn sɔpɔt frɔm di rayt pipul dɛn kin mek dis joyn izi fɔ yu.
Mɛsej we dɛn kin kɛr go na os
- Ankylosing Spondylitis (AS) na wan sik wae de kam fɔ lɔng tɛm. Yu praymar sɔpɔt ɛn gayd fɔ dis joyn fɔ bi yu dɔktɔ we de trit yu .
- Di intanɛt ɛn soshal midia kin bi fayn ples fɔ gɛt infɔmeshɔn ɛn lan frɔm ɔda pipul dɛn ɛkspiriɛns, bɔt dɛn nɔ fɔ ɛva tek dɛn as ples fɔ fɛn dɔktɔ advays.
- Bifo yu abop pan di infɔmeshɔn we de na di Intanɛt, chɛk ɔltɛm udat de gi am, wetin mek dɛn de gi am, ɛn if sayɛns dɔn pruv di infɔmeshɔn.
- Yu nɔ nid fɔ go tru dis waka yu wan. Bɔku bɔku pipul dɛn de ɔlsay na di wɔl we de go tru di sem tin lɛk yu. Fɔ kɔnɛkt wit dɛn tru sɔpɔt grup kin bi big tin fɔ mek yu gɛt trɛnk.
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