We yu dɔktɔ tɛl yu ɔ yu pikin se yu gɛt wan sik we dɛn kɔl Hypophosphatasia (HPP), dɛn kin tɛl yu fɔ yuz wan vaysin we dɛn kɔl Asfotase alfa (Strensiq) as tritmɛnt. Na nɔmal tin fɔ fil smɔl fɔ fred ɛn fil bad we yu yɛri bɔt vaysin ɛn aw fɔ tek am ɛvride. Bɔt nɔ wɔri. Insay dis atikul, wi go tɔk bɔt dis mɛrɛsin, aw fɔ yuz am, ɛn wetin fɔ tek tɛm wit.
Wetin na Asfotase alfa (Strensiq) rili?
Fɔ tɔk am simpul wan, dis nɔ tan lɛk di mɛrɛsin we wi kin yuz. insay wan kכndyushכn we dεn kכl Hypophosphatasia (HPP), wan εnzym we implεnt fכ di hεlty divεlכpmεnt fכ di bon dεm εn tit dεm na wi bכdi de dכn כ lכs. So, Asfotase alfa na tritmεnt we de gi di bכdi da εnzym we dεn dכn dכn frכm כdasay. Dis na tritmɛnt wae de kɔntrol de sik ɛn ɛp yu fɔ liv wɛl bɔdi layf, pas fɔ mɛn de sik ɔltogɛda. In ɔda wɔd, dis na tritmɛnt we de kɔntrol di sik, nɔto fɔ mɛn am.
Tin dɛm fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Bifo yu bigin dis tritmɛnt, yu fɔ rili tɔk bɔt dɛn tin ya wit yu dɔktɔ.
- If yu gɛt ston na yu kidni ɔ ɔda tin dɛn we gɛt fɔ du wit yu kidni.
- If yu gɛt alɛji to Asfotase alfa ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ ɔ yu de op fɔ bɔn pikin .
- If yu na mama we de gi pikin in bɛlɛ .
Dis infɔmeshɔn rili impɔtant fɔ mek di dɔktɔ gi yu di tritmɛnt we fit ɛn we sef.
Aw fɔ yuz di vaysin kɔrɛkt wan?
Dɛn kin gi dis vaysin as injɛkshɔn we dɛn kin put ɔnda di bɔdi. Nɔ mek yu fred fɔ dis. Dɔktɔ ɔ nɔs we tren go ɛksplen klia wan di kɔrɛkt we fɔ gi yu dis. So yu go gɛt di trenin we yu nid te yu ebul fɔ du am yusɛf.
- Tek di rayt doz, di rayt tɛm: Tek di rayt doz, di rayt tɛm, lɛk aw yu dɔktɔ tɛl yu. Nɔ ɛva inkrisayz di doz ɔ yuz am mɔ pas aw dɛn tɛl yu.
- Nidul ɛn sirinj dɛn we dɛn dɔn yuz: Dɛn tin ya rili impɔtant. Nɔ ɛva trowe nidul ɛn sirinj dɛn we yu dɔn yuz na di dɔti. Wan spɛshal kɔntena de fɔ dɛn, we dɛn kɔl ‘shap kɔntena.’ If yu nɔ gɛt wan, aks yu dɔktɔ ɔ nɔs fɔ wan.
- Yuz fɔ pikin dɛn:Dɛn kin yuz dis mɛrɛsin fɔ yɔŋ pikin ɛn bebi dɛn we dɔktɔ tɛl dɛn. Bɔt, spɛshal tin dɛn de we wi fɔ tek tɛm wit. Tɔk to yu dɔktɔ we de mɛn pikin dɛn bɔt am.
- Wetin yu go du if yu tek di mɛrɛsin pasmak? If yu aksidɛntli tek mɔ mɛrɛsin pas aw yu tink se yu fɔ tek, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
- Wetin yu go du if yu mis wan doz? If yu mis wan doz, tek am jɔs afta yu mɛmba. Bɔt if i dɔn lɛf smɔl fɔ lɛ yu tek yu nɛks doz, skip di doz we yu mis ɛn tek yu nɛks doz di tɛm we yu dɔn sɛtul. Nɔ ɛva tek tu dos di sem tɛm.
Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ ɛva sheb am wit ɛni ɔda pɔsin.
Wetin na di sayd ɛfɛkt dɛn we pɔsin kin gɛt we i tek di mɛrɛsin?
Lɛk ɛni mɛrɛsin, Asfotase alfa kin mek sɔm sayd ɛfɛkt. Sɔm pan dɛn tin ya siriɔs, ɛn ɔda wan dɛn kin kɔmɔn. I impɔtant fɔ no bɔt dɛn tin ya.
| Sayd ɛfɛkt we pɔsin kin gɛt | Tɔk bɔt |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Sɔm sayn dɛm lɛk wae yu skin de rɔsh, yu de it, yu fes, yu lip, ɔr yu tɔng de swel. |
| Blɔd we de na di urine | Yu bɛlɛ we de dɔŋ ɔ yu bak kin at, yu kin fil pen we yu de pis, ɛn blɔd we yu de pis. |
| Vishɔn kin chenj | Blɔr vishɔn ɔ ɛni ɔda chenj. |
| Fiva ɔ kol kol | Fiva ɔ kol fɔ natin. |
| Fɔ vɔmit | We yu de vɔmit ɔltɛm. |
| Sayd ɛfɛkt dɛm wae nɔr kin siriɔs (bɔt dɛn fɔ ripɔt to dɔktɔ if dɛn kɔntinyu fɔ de) . | |
| Ed pen, nɔs, nɔ de rɛst | Bɔku tɛm, dɛn tin ya kin kam ɛn go. |
| Pen/rɛdnɛs na di say we dɛn injɛkshɔn | Pen, brus, rɛd, ɔ swel na di say we dɛn injekt. |
| Tik ɔ pit na di skin | If yu injekt di sem say we yu injekt bɔku tɛm, dat kin mek di skin tik ɔ mek pit. So, rɔta di say we di injɛkshɔn de. |
Aw fɔ kip di mɛrɛsin kɔrɛkt wan?
I rili impɔtant fɔ kip dis mɛrɛsin kɔrɛkt wan.
- Stɔ am na frij: Ɔltɛm kip di vayl dɛn we nɔ opin wit mɛrɛsin we di tɛmpracha de bitwin 2 ɛn 8 digri sɛlshiɔs, dat na, na di nɔmal pat na di frij.
- Nɔ friz: Nɔ kip am na friza. Nɔ alaw di mɛrɛsin fɔ friz.
- Nɔ shek: Nɔ shek di bɔtul bifo yu yuz am.
- Protɛkt frɔm layt: Kip di mɛrɛsin vayl insay in bɔks te i rich di tɛm fɔ yuz am ɛn protɛkt am frɔm layt.
- Afta yu dɔn yuz am: Dɛn fɔ yuz am insay wan awa afta yu dɔn pul am na frij.
- If ɛni mɛrɛsin lɛf: If ɛni mɛrɛsin lɛf frɔm bɔtul we dɛn opin, trowe am. Dɔn bak, trowe mɛrɛsin bɔtul dɛn we dɔn pas ɛn yu nɔ yuz dɛn.
Mɛsej we dɛn kin kɛr go na os
- Asfotase alfa na spɛshal ɛnzaym tritmɛnt fɔ Hypophosphatasia (HPP). I kin kɔntrol di sik, bɔt i nɔ kin mɛn am ɔltogɛda.
- Fɔ fala yu dɔktɔ in instrɔkshɔn dɛn di rayt we. Tek di kɔrɛkt doz na di kɔrɛkt tɛm.
- Nɔ skip fɔ go to dɔktɔ ɛn tin dɛn lɛk blɔd tɛst, kidni tɛst, ɛn yay ɛgzam.
- Yu fɔ no bɔt di siriɔs sayd ɛfɛkt dɛm (alɛji, chenj we yu de si, blɔd na di urine). If yu notis ɛni wan pan dɛn sayn ya, tɛl yu dɔktɔ wantɛm wantɛm.
- Ɔltɛm, kip di mɛrɛsin na frij, fayn fayn wan. Nɔ ɛva sheb dis mɛrɛsin wit ɔda pɔsin.
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