Imajin se yu de fil pen ɔltɛm na yu bak ɔ sayd, ɔ di dɔktɔ se yu blɔd prɛshɔn go ɔp smɔl. Bɔku tɛm wi kin fɔgɛt bɔt dɛn tin ya, ɛn tink se na nɔmal tin. Bɔt sɔmtɛm wetin ayd biɛn dɛn tin ya na prɔblɛm we gɛt fɔ du wit di kidni dɛn we nid sɔm atɛnshɔn. Tide wi de tɔk bɔt dis kayn tin, we pɔsin kin kɔntrol fayn fayn wan if dɛn de manej am fayn.
Fɔ tɔk am simpul wan, wetin na ADPKD?
Wi kin kɔl dis Autosomal Dominant Polycystic Kidney Disease , ɔ ADPKD fɔ shɔt tɛm. Wetin kin apin na dat insay yu kidni, bɔku smɔl smɔl sak dɛn de we ful-ɔp wit wata we dɛn kɔl sist . As dɛn sist ya bigin fɔ gro, di kidni dɛn nɔ kin ebul fɔ du dɛn nɔmal wok fɔ klin di blɔd fayn fayn wan.
Dis kin mek yu gɛt wɛl bɔdi prɔblɛm lɛk ay blɔd prɛshɔn , urinary tract infection , ɛn kidni ston. Na sɔm pipul dɛm, dis sik kin wɔs as tɛm de go, ɛn dis kin ivin mek dɛn kidni nɔ wok fayn. Bɔt i nɔ kin apin to ɔlman.
Bɔrku tɛm, pipul dɛn kin liv fɔ lɔng lɔng tɛm ɛn nɔr no se dɛn gɛt dis sik. di simptom dεm kin bigin fכ sho bitwin di ej dεm 30 εn 40. Na dat mek dεn kin kכl am bak "adult PKD."
Pan ɔl we no kɔmplit mɛrɛsin nɔ de fɔ dis, if yu kɔntinyu fɔ liv fayn layf, tek di mɛrɛsin we yu dɔktɔ tɛl yu fɔ du, ɛn mɔ kɔntrol yu blɔd prɛshɔn, yu kin ridyus di damej we yu kidni dɛn gɛt bad bad wan.
Wetin na di sayn dɛm fɔ dis sik? Aw wi de fil?
Nɔto ɔlman we gɛt ADPKD go gɛt di sik. Sɔm pipul dɛn nɔ kin no se dɛn gɛt dɛn fɔ lɔng lɔng tɛm. Di sayn dɛm wae kin kam pan pipul dɛm wae gɛt dis sik na wae dɛn kin gɛt ay blɔd prɛshɔn , dɛn kin gɛt infekshɔn na dɛn urinary tract ɔltɛm , ɛn dɛn kin gɛt ston na dɛn kidni . Lɛ wi brok dɛn sayn ya dɔŋ.
| Di kɔmɔn sayn dɛm | |
|---|---|
| Pen na di bak ɔ na ɔl tu di say dɛn na di spayna | Bɔrku tɛm, dis pen kin apin we sist bɔs, kidni ston fɔm, ɔr yurinary tract infection. |
| Blɔd we de na di urine | Dis kin apin wantɛm wantɛm. Di urine kin tan lɛk pink ɔ brawn. |
| Di bɛlɛ we de mek di bɔdi big | As di sist dεm de gro, di kidni dεm kin swel εn fil lεk se dεn de kכmכt na di bεlε. |
As tɛm de go, dɛn sist ya kin gro big ɛn pwɛl di kidni dɛn, we kin mek sɔm pipul dɛn kidni nɔ wok fayn. If dis apin, sɔm sayn dɛm lɛk:
- Fɔ fil taya ɛn taya ( Taya ) .
- Nid fɔ pis bɔku tɛm
- Menstrual saykl we nɔ de ɔltɛm na uman dɛn
- Nɔs ɛn vɔmit
- I nɔ kin izi fɔ yu fɔ blo
- Di anklɛ, an, ɛn fut kin swel
- Erectile dysfunction na man dɛn
Wetin mek dis kayn sik kin apin? Yu tink se na frɔm dɛn gret gret granpa dɛn?
Yɛs, dis na sik we pɔsin kin gɛt frɔm in mama ɛn papa . Fɔ tɔk am simpul wan, dis sik kin kam bikɔs di jin dɛn we de na wi bɔdi nɔ fayn. fכ bi prεsis, i de kכz fכ wan difεkt na wan pan di tu jin dεm we dεn kכl `PKD1` εn `PKD2`. dis jin dεm na di wan dεm we de gi di kidni sεl dεm di signal "we fכ gro". So we wan pan dɛn jin ya nɔ fayn, di kidni sɛl dɛn kin gro we wi nɔ ebul fɔ kɔntrol ɛn di sist dɛn we wi bin tɔk bɔt kin bigin fɔ mek.
Fɔ mek bɔku pan di sik dɛn we pɔsin kin gɛt frɔm yu mama ɛn papa kin gɛt di jin we nɔ fayn. Bɔt di spɛshal tin bɔt ADPKD na dat if yu gɛt dis jin we nɔ fayn frɔm jɔs wan mama ɔ papa, yu mama ɔ yu papa , yu pikin go gɛt di sik.
Dat min se, if yu mama ɔr papa gɛt dis sik, yu gɛt 50% chans fɔ gɛt am bak.
Na smɔl tɛm nɔmɔ pɔsin kin gɛt dis sik ilɛksɛf in mama ɛn papa nɔ gɛt di sik, bɔt i kin kam bak bikɔs ɔf nyu tin we nɔ fayn na wan jin na in bɔdi. Bɔt, dis nɔ kin apin so ɔltɛm.
Aw di dɔktɔ kin no bɔt dis sik?
If yu dɔktɔ tink se yu kin gɛt prɔblɛm wit yu kidni bikɔs ɔf di sayn dɛn we yu gɛt, i kin sɛn yu to dɔktɔ we de mɛn yu kidni . I go aks yu kwɛstyɔn dɛn lɛk:
- Wetin na yu sayn dɛm? Ustɛm dɛn bigin?
- Yu no yu blɔd prɛshɔn?
- Yu tink se pen de ɛnisay? If na so i bi, usay i de?
- Yu tink se ɛnibɔdi na yu famili gɛt kidni sik?
- Yu dɔn du tɛst fɔ yu jɛnɛtiks bifo?
Dɔn, dɛn kin du bɔku tɛst dɛn fɔ si if ɛni sist de na di kidni dɛn.
- Ultrasound Scan: Dis de yuz sawnd wev fɔ mek wan pikchɔ fɔ di kidni dɛn. Bɔku tɛm, dis na di fɔs tɛst we dɛn kin du.
- MRI Scan ɔ CT Scan: Dɛn kin yuz dɛn mɔ kɔmpleks skan ya fɔ fɛn sist dɛn we tu smɔl fɔ si wit ɔltra saund.
apat frכm dat, dεn kin tεst yu DNA fכ si if yu gεt difεkt na di `PKD1` כ `PKD2` jin dεm. Bɔt pan ɔl we dis tɛst kin no if yu gɛt di sik ɔ yu nɔ gɛt am, i nɔ kin ebul fɔ no ustɛm di sayn dɛn go sho ɔ aw i go tranga.
Wetin wi fɔ du we wi de trit wi ɛn we wi de na os?
No mɛrɛsin nɔ de fɔ ADPKD. Bɔt dɛn kin trit di wɛlbɔdi prɔblɛm dɛn we di sik kin kam wit ɛn dɛn kin mek di kidni nɔ wok ɔ i kin te. Yu kin nid tritmɛnt dɛn lɛk:
- Mεdikeshכn dεm we de slo di progrεs fכ di kidni fεil: Mεdikeshכn dεm lεk Tolvaptan (Jynarque) kin εp fכ kכntrכl di dכn dכn pan di kidni fכnshכn pan big pipul dεm we de pan risk fכ gεt di sik kwik kwik wan.
- Mɛrɛsin fɔ ay blɔd prɛshɔn: Fɔ kɔntrol blɔd prɛshɔn rili impɔtant.
- Antibayɔtik fɔ urinary tract infɛkshɔn
- Di tin dɛn we dɛn kin yuz fɔ mek pɔsin fil pen
If yu kidni dɛn nɔ wok, yu go nid fɔ du dayalaysis . Dis min se yu fɔ klin yu blɔd wit mashin. Yu kin fit bak fɔ gɛt kidni transplant . Yu fɔ tɔk bɔt dis wit yu dɔktɔ fɔ no if dis fayn fɔ yu.
Abit dɛn we wi fɔ fala fɔ gɛt wɛlbɔdi
Fɔ protɛkt yu kidni ɛn fɔ mek dɛn wok fayn fɔ lɔng tɛm, i rili impɔtant fɔ mek yu kɔntinyu fɔ liv fayn layf.
- It rayt: It balans it we nɔ gɛt bɔku sɔl. Sɔl kin mek yu blɔd prɛshɔn go ɔp.
- Stay aktif:Ɛksesaiz kin ɛp fɔ kɔntrol yu wet ɛn blɔd prɛshɔn, bɔt nɔ du kɔntakt spɔt we kin pwɛl yu kidni.
- Nɔ smok: If yu smok, i kin pwɛl di blɔd vesel dɛn na di kidni ɛn i kin mek yu gɛt sist.
- Drink bɔku wata: If yu nɔ gɛt wata na yu bɔdi, dat kin mek yu gɛt mɔ sist.
Wetin wi go ɛkspɛkt fɔ go bifo? Ɛni ɔda prɔblɛm dɛn de we kin apin?
Bɔku tɛm, di sist dɛn kin gro sloslo. If yu kɔntrol yu blɔd prɛshɔn ɛn liv fayn layf, yu go ebul fɔ kɔntrol dis growth. Bɔt as di ia dɛn de go, dɛn kin gro big ɛn pwɛl yu kidni dɛn.
di rεt we di sik de go bifo de dipכnt bak pan us jin yu gεt (PKD1 כ PKD2). in jεnarכl, pipul dεm we gεt di PKD1 jin dεfekt de pan hכy risk fכ divεlכp di kidni fεil pas dεn wan dεm we gεt di PKD2 jin dεfekt.
ADPKD kin gɛt risk bak fɔ gɛt ɔda wɛlbɔdi prɔblɛm dɛn.
| Sɔm prɔblɛm we kin apin | Simpul ɛksplen |
|---|---|
| Aneurysm (we di wɔl na di blɔd vesel na di bren wik ɛn bulg) . | Dis na tin we rili denja. If ɛnibɔdi na di famili dɔn gɛt dis sik, i impɔtant fɔ tɛl di dɔktɔ. |
| Sist na di liva ɛn pankrias | apat frכm di kidni dεm, sist kin apin bak na dεn כgan dεm ya. |
| Di sik dɛn we kin mek pɔsin gɛt at valv | di risk fכ divεlכp kכndishכn dεm lεk mitral valv prolaps kin inkrεs. |
| di ay blɔd prɛshɔn we uman gɛt bɛlɛ (Preeclampsia) . | Dis risk kin pas fɔ mama dɛn we gɛt bɛlɛ we gɛt ADPKD. |
| Ɛnia ɛn Divɛrtikulɔs | di kכndishכn dεm we di bכdi in wכl dεm εn di big intestכn wik. |
E fayn fɔ de na yu maynd strɔng wae yu de liv wit sik lɛk dis. Tɔk to yu fambul ɛn padi dɛn bɔt dis. Dɔn bak, kɔntinyu fɔ tɔk to yu dɔktɔ ɛn fala in advays dɛn gud gud wan.
Mɛsej we dɛn kin kɛr go na os
- ADPKD na wan sik we pɔsin kin gɛt frɔm in mama ɛn papa we kin mek sist dɛn fɔm na di kidni dɛn.
- Ay blɔd prɛshɔn na wan sayn we kin rili kɔmɔn ɛn we kin sho dis sik kwik kwik wan.
- If wan mama ɔ papa gɛt dis sik, 50% chans de fɔ mek pikin gɛt am.
- Pan ɔl we no kɔmplit mɛrɛsin nɔ de fɔ dis, dɛn kin kɔntrol aw di sik bad bay we dɛn kɔntrol di blɔd prɛshɔn ɛn liv fayn layf.
- I rili impɔtant fɔ de tɔk to yu dɔktɔ ɔltɛm ɛn fala in advays.
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