If yu ɔ yu pikin gɛt Beta Thalassemia, wi no aw layf kin tranga. Fɔ gɛt fɔ tek blɔd ɔltɛm ɛn fɔ liv wit di prɔblɛm dɛn we kin kam wit am nɔ kin izi. Bɔt tide, wit di advans we di mɛdikal sayɛns dɔn go bifo, wi go tɔk bɔt wan tritmɛnt we go ebul fɔ mɛn dis sik kpatakpata. dat na stεm sεl transplant, כ as bכku pipul dεn no am, ``Stem Sεl Transplant''.
Fɔ tɔk am simpul wan, wetin na stem sɛl transplant?
Lɛ wi ɔndastand dis simpul wan. Imajin se wi bɔdi gɛt faktri we de mek blɔd. Wi kin kɔl dis bon mɛro . Dis na di pat we tan lɛk spɔnj insay wi big bon dɛn. pan thalassemia, wetin kin apin na dat sכm pan di mashin dεm (sεl dεm) na dis fכktri, dat na, na di bon mכro, nכ de wok fayn. So, nɔto inof gud, wɛlbɔdi rɛd blɔd sɛl dɛn de mek.
insay stεm sεl transplant, dεn kin pul di bכn mכro sεl dεm we nכ de wok fayn na yu bכ di εn put blכd stεm sεl dεm (Hematopoietic Stem Cells) frכm hεlth pכsin. Dɛn nyu sɛl dɛn ya tan lɛk nyu faktri. Dɛn kin go na yu bon mɛro ɛn bigin fɔ mek wɛlbɔdi rɛd blɔd sɛl dɛn.
Dat min se, i tan lɛk fɔ pul ol mashin dɛn we nɔ de wok, put sɔm nyu mashin dɛn, ɛn stat di faktri bak.
Aw dis transplant prɔses kin apin?
Dis kin apin insay sɔm step dɛn.
Bifo dɛn transplant am
Fɔs, yu nid fɔ pwɛl di ol bon mɛro sɛl dɛn we nɔ de wok fayn na yu bɔdi. Na dat kemotɛrapi de fɔ. di wod "chemo" kin mek sכm pipul dεn fred, bכt na ya dεn kin yus am fכ mek rum na di bon mכro fכ nyu, hεlty sεl dεm fכ kam insay εn sεtul. I tan lɛk se yu de klin ɔl di ol gras dɛn ɛn pripia di grɔn bifo yu plant.
We dɛn de du di transplant
Dis nɔto big ɔpreshɔn lɛk aw yu go tink. I jɔs tan lɛk se yu de gi blɔd. stεm sεl dεm frכm wan dכna de injεkt insay yu bכdi tru wan plastic tyub (kateta) we dεn de put insay yu chεst. Dɛn sɛl ya kin travul tru yu blɔd, fɛn dɛn ples na di bon mɛro, ɛn setul de. Na da tɛm de nɔmɔ dɛn kin bigin fɔ mek blɔd sɛl dɛn we gɛt wɛlbɔdi.
Usay wi kin gɛt dɛn sɛl dɛn ya?
Dis na di pat we impɔtant pas ɔl ɛn we nɔ izi fɔ du pan dis tritmɛnt. Wi nɔ go ebul fɔ tek sɛl frɔm jɔs ɛnibɔdi. di jεnεtik mach bitwin di dכna εn di rεsεpεnt fכ rili hכy.
- Di bɛst mats:Di bɛst pɔsin we go gi dis na di pɔsin in brɔda ɔ sista . Dɛn kin gɛt di bɛst jɛnɛtik mach.
- Ɔda tin dɛn we yu kin du: Bɔt nɔ giv ɔp fɔ op se yu nɔ fɛn brɔda ɛn sista we fiba yu yon. Opportunity de fɔ fɛn wan jenɛtik mach tru intanashɔnal dona rɛjista, ivin if yu nɔ fambul. Dis kin tek bɔku tɛm.
Wetin na de risk dɛm wae dis tritmɛnt kin gɛt?
Jɔs lɛk ɛni big tritmɛnt, sɔm prɔblɛm dɛn de we kin mek pɔsin gɛt prɔblɛm. I impɔtant fɔ tɔk bɔt dɛn tin ya opin wan wit yu dɔktɔ.
| Denja | Simpul ɛksplen |
|---|---|
| Ɔgan dɛn we dɔn pwɛl | If di ayɔn we de na di bɔdi go ɔp bikɔs ɔf di blɔd we dɛn kin gi am ɔltɛm ɛn di ɔgan dɛn lɛk di at ɛn di liva kin pwɛl, di risk kin go ɔp mɔ afta di transplant. Na dat mek i impɔtant fɔ mek dɛn du di chelation therapy kɔrɛkt wan bifo di transplant. |
| Graft versus Ɔs sik (GVHD) . | wetin kin apin insay dis kes na di sεl dεm we di dכna in sεl dεm we dεn nyu insay di bכdi, kin no di sikman in bכdi as ‘εnεmi’ εn atak am. Mɛrɛsin dɛn de fɔ kɔntrol dis. |
| Infεkshכn dεm | Di mɛrɛsin dɛn we dɛn kin yuz fɔ kɔntrol GVHD ɛn di kemotɛrapi we dɛn kin gi bifo dɛn transplant di bɔdi kin ridyus di bɔdi in imyuniti. Dis kin mek i izi fɔ mek yu gɛt baktriyal infɛkshɔn. Bɔt dɔktɔ dɛn go gi yu mɛrɛsin lɛk antibayɔtik fɔ mek dis nɔ apin insay dis tɛm. |
Impɔtant tin na dat, dis tritmɛnt kin wok fayn fɔ yɔŋ pipul dɛn, mɔ pikin dɛn we nɔ rich 14 ia yet. Dɔn bak, di mɔ di bɔdi in ɔgan dɛn nɔ de pwɛl bifo dɛn transplant am, na di mɔ di tin dɛn go fayn.
Sɔm sayd ɛfɛkt dɛn we kin apin afta dɛn dɔn trit am
Bɔku shɔt tɛm ɛn lɔng tɛm sayd ɛfɛkt dɛn de we kin apin afta dɛn dɔn transplant am.
Di tin we impɔtant pas ɔl na di impak we i gɛt pan di ebul fɔ bɔn pikin (Infertility) . di hכy dכz kεmothεrapi we dεn gi bifo transplant kin pwεl di ovaria dεm fכ uman dεm εn di prodakshכn fכ sεl dεm na man dεm. Bɔt naw, sɔlv dɛn de fɔ dis bak. man kin kip dεn sperm εn uman kin kip dεn eg (sperm/egg freezing) bifo tritmεnt. I impɔtant fɔ tɔk to yu dɔktɔ bɔt dis bifo tɛm ɛn gɛt advays.
Apat frɔm dat, dɛn tin ya kin apin jɔs afta di transplant:
- Pen na yu mɔt ɔ yu trot
- Nɔs ɛn vɔmit
- Blɔd ɔ brus
- Di lɔng dɛn we de swel
i kin tek lεk 2 to 6 wik f כ dεn stεm sεl dεm ya fכ travul go na di bon mכro, bigin fכ wok, εn mek di nכmba fכ di sεl dεm na yu bכdi kam bak to nכmal. Di mɛdikal tim go wach yu gud gud wan insay dis tɛm. So natin nɔ de fɔ wɔri bɔt.
Mɛsej we dɛn kin kɛr go na os
- Stem sel transplant na tritmɛnt we kin mɛn beta thalassemia kɔmplit wan, bɔt i nɔ fayn fɔ ɔlman.
- dis involv fכ riples di bon mכro sεl dεm we sik wit stεm sεl dεm we dεn gεt frכm hεlty dona.
- Di pɔsin we fit fɔ gi mɔni pas ɔl na di pɔsin in brɔda ɔ sista, bɔt dɛn kin fɛn ɔda pipul dɛn bak we de gi mɔni.
- Bikɔs prɔblɛm dɛn de ɛn sayd ɛfɛkt dɛn de, i impɔtant fɔ tɔk gud gud wan wit yu dɔktɔ bɔt ɔl di tin dɛn bifo yu disayd fɔ du dis tritmɛnt.
- Dɛn tritmɛnt ya de bɛtɛ ɔltɛm, so kɔntinyu fɔ gɛt op fɔ tumara bambay.
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