Yu dɔn ɛva yɛri bɔt wan kayn kansa we nɔ kin bɔku ɛn we kin rili siriɔs we kin kam na di kidni, mɔ pan yɔŋ pipul dɛn? Sɔntɛm nɔto so. Dis na Renal Medullary Carcinoma, ɔ RMC fɔ shɔt tɛm. Pan ɔl we i nɔ kin rili kɔmɔn, i kin rili impɔtant fɔ no bɔt am, mɔ fɔ sɔm pipul dɛn. Pan ɔl we dis na siriɔs tɔpik smɔl, nɔ fred. Lɛ wi tɔk bɔt am simpul ɛn ɔndastandin tide.
Wetin na RMC rili?
Fɔ tɔk am simpul wan, Renal Medullary Carcinoma (RMC) na wan kayn kansa na di kidni. Bɔt i nɔ kin bɔku, i kin rili fɛt, ɛn i kin skata kwik kwik wan. i kin bכku pan yכng pipul dεm, spεshal wan dεm we gεt bכdi kכndyushכn we dεn kכl `sikl sεl sik` כ `sikl sεl trayt`.
we wi de tכk bכt kidni kεnsar, di tכp we kכmכn pas כl na `rεnal sεl kεnsar`. RMC na sכbtayp bak fכ `rεnal sεl kכrεkshכn`. Bɔt nɔto ivin wan pan ɛvri 100 pipul dɛn we gɛt kansa na dɛn kidni kin gɛt dis RMC kɔndishɔn. Na so i nɔ kin apin so ɔltɛm.
Wetin kin mek pɔsin gɛt dis kansa?
Sayɛnsman ɛn dɔktɔ dɛn stil nɔ dɔn fɛn di 100% ɛksaktɔl kɔz fɔ dis, bɔt wan men tin de we dɛn dɔn no.
wi kidni dεm gεt wan pat we dεn kכl `rεnal mεdula`. Pɔsin we gɛt `sikl sɛl` kɔndishɔn sɔmtɛm kin gɛt rɛd blɔd sɛl dɛn we kin chenj to sikle shep. we dis apin, di sεl dεm kin stik togeda εn blכk di bכdi vεsul dεm na di `rεnal mεdula` pat pan di kidni.
Dis we aw di blɔd kin blok kin pwɛl di sɛl dɛn we de na da say de. sכm patikyula wan, wan jin we dεn kכl `INI1` (dεn kכl am bak `SMARCB1`) insay dεn sεl dεm de dεm. dis `INI1` jin de akt lεk `guardian` we de stכp di sεl dεm fכ bi kεnsar. we dεn egzamin di RMC kεnsar sεl dεm, dεn nכ de fכn dis `INI1` jin insay dεm. so dכkta dεm de chεk fכ di prεsεns fכ dis `INI1` jin fכ kכnfכm if tכmכro na RMC כ nכ.
A de pan risk bak fɔ gɛt RMC?
I at fɔ tɔk klia wan udat go divɛlɔp dis. Fɔ gɛt pɔrsin na yu famili wit RMC nɔr de inkrisayz yu risk fɔ gɛt am. Dat min se i nɔto sɔntin we de rɔn na famili.
di men tin we kin mek yu gɛt dis sik na wan blɔd disɔda we dɛn kɔl `sikl ɛmoglobinopathy`. dat min se fכ gεt `sikl sεl sik` כ `sikl sεl trayt`. Bɔt nɔr kin bɔrku , pipul dɛm wae nɔr gɛt dɛn kayn tin ya kin gɛt RMC bak. dεn kכl am “rεnal sεl kכrεkshכn, we dεn nכ klas wit mεdula fεnotayp” (RCCU-MP).
If yu luk di statystik dɛn:
- I kin apin mɔ pan man dɛn pas uman dɛn.
- Bɔku tɛm, i kin afɛkt di rayt kidni.
- Dɛn kin no dis sik we dɛn yɔŋ, bitwin 11 ɛn 39 ia.
I impɔtant fɔ mek yɔŋ pipul dɛn, mɔ di wan dɛn we gɛt siklɛt sik ɔ siklɔs trayt, fɔ no bɔt dɛn sik ya, bikɔs if dɛn no dɛn kwik kwik wan, dat kin mek i izi fɔ trit dɛn. If yu si di sik, go to dɔktɔ wantɛm wantɛm.
Wetin na di sayn dɛm fɔ RMC?
Bɔrku sayn dɛm de wae kin kam pan dis sik. If yu gɛt wan ɔ mɔ pan dɛn tin ya, i go fayn fɔ mek yu go to dɔktɔ kwik kwik wan.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Pen na di kidni eria | Wan pen we dɛn kin fil ɔltɛm na di tu say dɛn na di bɛlɛ ɛn na di ɔda pat na di bɔdi (jɔs ɔp di groin). |
| Blɔd we de na di urine | Pink, rɛd, ɔ brawn urine. Sɔntɛnde, blɔd kin de we di yay nɔ kin si. |
| Tɔmɔs na di bɛlɛ | Lump ɔ mas we de fil lɛk lump na wan say na di bɛlɛ. |
| We yu de lɔs yu wet fɔ natin | Fɔ lɔs yu wet kwik kwik wan insay shɔt tɛm, ɛn yu nɔ go tray fɔ du am. |
| Fiva ɔltɛm ɛn swet na nɛt | If yu kin gɛt fiva ɔltɛm fɔ no ɔda rizin ɛn yu kin swet so na nɛt dat yu sheet kin wet. |
Aw dɔktɔ kin no bɔt dis?
We yu tɛl wi bɔt yu sik, di fɔs tin we di dɔktɔ go du na fɔ chɛk yu. Dɔn yu kin fala dɛn step ya.
1. 1. 1. .Ultrasound scan: Dis kin gi yu rough idea if somtin lεk tumor de na di kidni dεm.
2. CT ɔ MRI skan: If dɛn tink se di tumbu de, dɛn kin ɔda CT skan ɔ MRI fɔ gɛt klia pikchɔ bɔt di tumbu. Frɔm dɛn pikchɔ ya, di dɔktɔ kin no aw i go bi se i gɛt kansa.
3. Bayopsi: If dɛn tink se kansa tranga wan, dɛn kin du dis tɛst fɔ kɔnfɔm am. Dis min se yu fɔ put fayn fayn nidul na di say we di kidni tɔŋ de, tek wan rili smɔl pat pan di tisu ɛn chɛk am ɔnda maykroskɔp.
4. Jεnεtik tεst: dεn de chεk di sεl dεm we dεn tek frכm di bayopsi fכ di prεsεns fכ di kεnsar-fεt `INI1` jin we wi bin tכk bכt bifo.
- if di `INI1` jin nɔ de , dɛn kin no am as RMC.
- if di `INI1` jin nכ de εn di sikman n כ gεt `sikl sεl` kכndishכn, dεn kin no am as `RCCU-MP`.
- if di `INI1` jin de , i nכto RMC, bכt na difrεnt tכmכro.
Wetin na di tritmɛnt dɛm fɔ dis?
Bikɔs RMC na kansa we de skata kwik kwik wan, we de fɛt, di tritmɛnt fɔ bi ikwal kwik ɛn agresiv.
- Kimotɛrapi: Dis na di fɔs tritmɛnt we dɛn kin yuz mɔ. I min fɔ gi di bɔdi mɛrɛsin dɛn we de kil di kansa sɛl dɛn.
- Ɔpreshɔn: Dɛn kin pul di kansa tɔŋ ɛn sɔntɛm di kidni we afɛkt.
- Radiation Therapy: Fɔ pwɛl di kansa sɛl dɛn we yu de yuz pawaful redyushɔn bim dɛn.
Bikɔs dis sik nɔ kin bɔku, dɛn stil de du risach. Sayɛnsman dɛn kin ɔltɛm luk fɔ nyu ɛn mɔ ifɛktiv tritmɛnt fɔ RMC.
I gɛt we fɔ mek dɛn nɔ gɛt RMC?
I sɔri fɔ no se naw, no we nɔ de we dɛn no fɔ mek RMC nɔ divɛlɔp, ɛn no tɛst nɔ de fɔ no am bifo di sayn dɛn sho.
Di bɛst tin we yu go du na fɔ no . If yu no se yu gɛt siklɛt sik ɔ siklɔs trayt, de wach fɔ di sayn dɛm we wi dɔn tɔk bɔt. If yu gɛt ɛnitin we de mɔna yu, go to yu dɔktɔ wantɛm wantɛm.
Bɔku tɛm, bay di tɛm we dɛn kin no dis sik, di kansa dɔn ɔlrɛdi go na di limf no dɛm ɔ ɔda pat dɛm lɛk di lɔng, liva, ɛn bon dɛm. So, fɔ no di pɔsin kwik kwik wan na di bɛst we fɔ gɛt di bɛst rizɔlt.
Mɛsej we dɛn kin kɛr go na os
- Renal Medullary Carcinoma (RMC) na wan kayn kansa we nɔ kin bɔku bɔt we rili siriɔs we kin afɛkt yɔŋ pipul dɛn mɔ.
- Di men tin we kin mek pɔsin gɛt dis na fɔ gɛt wan sik we dɛn kɔl
sickle cell diseaseɔsickle cell trait. - Bak/bεl pen, blɔd na di urine, wan lump na di bɛlɛ, ɛn we yu nɔr ɛksplen to yu wet na di men sayn dɛm.
- If yu gɛt siklɛt sik ɛn yu gɛt wan ɔ mɔ pan dɛn tin ya we wi dɔn tɔk bɔt, go to yu dɔktɔ wantɛm wantɛm ɛn nɔ de te.
- Insay dis sik, fɔ no di sik kwik kwik wan ɛn bigin fɔ trit am na di bɛst chans fɔ sev pipul dɛn layf.
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