Sɔntɛnde yu kin fil lɛk se yu smɔl pikin de biɛn ɔda bebi dɛn smɔl? Na nɔmal tin fɔ mek mama ɔ papa fil big lod we dɛn fil lɛk se dɛn de biɛn ɔda pikin dɛn smɔl, mɔ pan tin dɛn lɛk fɔ waka, rɔn, jomp, ɛn tɔk. Sɔntɛnde, di rizin we mek dis kayn tin kin delay na bikɔs wan pat we rili impɔtant na wi pikin in bren nɔ de divɛlɔp fayn. Tide, wi go tɔk bɔt dis kayn tin we nɔ kin apin so ɔltɛm, bɔt we impɔtant fɔ no.
Wetin na Sɛribɛl Haypoplasia?
Fɔ tɔk am simpul wan, sɛribɛl haypoplasia na wan sik we di sɛribɛl , we na wan pat pan di pikin in bren, nɔ de divɛlɔp fayn ɔ i smɔl pas aw i fɔ bi. dis kכndyushכn kin apin we di pikin stil de na di bεlε.
Tink bɔt am, wi bren tan lɛk mashin we rili kɔmpleks. Ɛni pat pan am de kɔntrol di difrɛn wok dɛn we wi bɔdi de du.
So wetin na di wok we di sεribεl de du?
Na di bak pat na wi bren, jɔs ɔp usay di nɛk ɛn di skel de mit, na dis pat we dɛn kɔl di sɛribɛl , we tan lɛk smɔl bren. Dis na wetin de mek wi bɔdi wok togɛda . Dat min se we wi de waka, rɔn, ɛn grap sɔntin, dis sɛribɛl de ɛp wi fɔ du ɔltin fayn fayn wan ɛn kɔrɛkt wan. Nɔto dat nɔmɔ, i de ɛp wi bak fɔ tɔk wɔd dɛn klia wan we wi de tɔk . So imajin, if dis kayn impɔtant pat nɔ de divɛlɔp fayn, aw i go afɛkt di pikin in divɛlɔpmɛnt.
Dis kכndyushכn kin mek pikin dεn de gεt dilay fכ divεlכpmεnt, dεn nid spεshal sכpכt fכ tin dεm lεk fכ waka εn tכk.
Ɛni kayn tin de fɔ dis sik?
Yes, tu men kayn dis sik de (Cerebellar Hypoplasia) dipen pan di tin wae de mek yu gɛt dis sik:
1. Praymari tayp: Dis kin apin wit wan kכndyushכn we dεn bכn wit . Dat min se dεn bכn di pikin wit dis kכndyushכn.
2. Sɛkɔndari tayp: Dis na tin we dɛn kin gɛt . dis min se dis kכndyushכn kin apin bikoz fכ sכm tin dεm we de na do we de afekt di pikin in divεlכpmεnt.
Wetin kin bi di sayn dɛm?
di sayn dεm fכ dis kכndyushכn kin difrεn frכm wan pikin to כda pikin, i dipכnt pan us pat pan di sεribεl we nכ de divεlכp fayn, כ wetin na di כndalayn kכz.
Di kɔmɔn sayn dɛm we dɛn kin si pan bebi dɛm:
- Nɔmal yay muvmɛnt ɛn i nɔ kin izi fɔ kip yu yay pan sɔntin (visual tracking). Fɔ ɛgzampul, we yu de muv tɔys rawnd, yu pikin in yay go de waka waka bifo i luk am.
- Divɛlɔpmɛnt dilɛys:Dat min se dɛn nɔ fɔ bigin waka ɔ tɔk di spid we fit dɛn ej. Fɔ ɛgzampul, yu pikin nɔ kin ebul fɔ du tin dɛn we ɔda pikin dɛn kin du we dɛn ol dis ej yet.
- I nɔ kin izi fɔ mek yu balans we yu de waka.
- Intɛlektual disabiliti kin apin bak.
- Di sik kin apin, bɔt dis nɔ kin apin so ɔltɛm.
- Yu kin gɛt wik mɔsul dɛn . Yu bɔdi kin fil bad bad wan we yu ol di pikin.
Di sayn dɛm wae kin si pan pikin dɛm wae dɔn big:
- Fɔ mek pɔsin nɔ ebul fɔ du sɔntin.
- Diziz we pɔsin kin gɛt .
- Ɛd we de at.
- I nɔ de yɛri fayn igen.
If yu notis wan ɔ mɔ pan dɛn sik ya na yu pikin, i go fayn fɔ mek yu go to dɔktɔ kwik kwik wan.
Wetin na di rizin dɛn we mek dis kayn tin de apin?
Bɔku tin dɛn de we kin mek pɔsin gɛt dis sik we nɔ kin apin so ɔltɛm. sכmtεm, wan kכmplikεshכn we uman bεlε kin ambɔg di divεlכpmεnt fכ di sεribεl. כ, i kin bi wan jεnεtik kכndyushכn we de kכz fכ di mכtεshכn dεm na di pikin in DNA .
Sɔmtɛm, dis sik (Cerebellar Hypoplasia) kin apin in wan. Bɔt sɔmtɛm, e kin apin togɛda wit ɔda sayn dɛm (syndrom). Fɔ ɛgzampul:
- (CHARGE sindrom) we gɛt di sik.
- (Joubert sindrom) we gɛt di sik.
- (Wilson sik) .
- Sɔm mɛtabolik dizayd dɛn
- Ɔda kɔndishɔn dɛn we gɛt fɔ du wit DNA chenj
Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?
If yu gɛt bɛlɛ, dɛn tin ya kin mek yu pikin gɛt dis sik smɔl:
- Yuz tabak ɔ sigrɛt.
- Fɔ drink rɔm.
- Yuz sɔm mɛrɛsin dɛn we de mek pɔsin nɔ gɛt sik.
- Sɔm vayral infɛkshɔn dɛn , fɔ ɛgzampul , Zika vayrɔs ɔ Saytomegalovayrɔs .
dis tin dεm kin afekt di divεlכpmεnt fכ di pikin in sεribכl na di bεlε. pan tap dat, if dεn bכn di pikin bifo tεm (dεn bכn am bifo tεm) כ if di pikin in wet we i bכn sכmtεm sכm (lכw we i bכn) , di risk fכ dis kכndyushכn (Cerebellar Hypoplasia) go bכku.
Aw dɔktɔ dɛn kin no dis?
Dɔktɔ go du sɔm imej tɛst fɔ no if dis sik de. Dɛn kin luk fɔ ɛni abnɔmal tin na di sayz ɔ shep fɔ yu pikin in sɛribɛl. Sɔntɛnde, tɛst dɛn we dɛn kin du we uman gɛt bɛlɛYu kin si dɛn sayn ya bak we dɛn de du ɔltra saund skan. Fɔ bebi ɔ pikin dɛn we gɛt di sik, di dɔktɔ kin ɔda bak fɔ mek dɛn du MRI skan .
Apat frɔm dat, dɛn kin du ɔda tɛst dɛn fɔ no di rayt tin we mek i apin. fכ egzampl, jεnεtik tεst , כ tεst fכ chεk fכ εni infεkshכn כ כda εksposhכn we i bεlε.
Aw dɛn kin trit am?
Bikɔs di sayn dɛm fɔ dis sik kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin, yu dɔktɔ go mek wan tritmɛnt plan we go spɛshal fɔ yu pikin. De gol na fɔ ɛp yu pikin fɔ liv fayn fayn wan wit in sik dɛn. Dis tritmɛnt plan kin inklud:
- Ɛdyukeshɔn sɔpɔt: Speshal ɛp fɔ mek pikin ebul fɔ lan mɔ.
- Occupational therapy: Dis kin ɛp di pikin fɔ du di wok dɛn we i kin du ɛvride fɔ insɛf, lɛk fɔ ol tɔys, fɔ yuz spun we i de it, ɛn fɔ rayt.
- Fizik tritmɛnt: Dis kin ɛp fɔ mek yu balans we yu de waka ɛn rɔn, i kin mek yu mɔsul dɛn strɔng, ɛn i kin mek yu gɛt trɛnk.
- Spich therapy: Dis kin ɛp yu fɔ lan fɔ tɔk klia wan, fɔ kɔl wɔd dɛn kɔrɛkt wan, ɛn fɔ tɔk to ɔda pipul dɛn.
Ɔl dɛn tritmɛnt ya gɛt fɔ du wit fɔ ɛp di pikin fɔ gɛt di skil dɛm we i nid fɔ liv in yon ɛn gladi at as i pɔsibul.
Ustɛm a fɔ go to dɔktɔ bɔt mi pikin?
If yu fil se yu pikin nɔ de rich di divɛlɔpmɛnt maylston dɛn we fit in ej, go to yu dɔktɔ we de mɛn pikin dɛn wantɛm wantɛm . Fɔ ɛgzampul, if yu pikin nɔ de waka ɔ tɔk di rayt ej, yu fɔ rili tɔk to dɔktɔ bɔt dat.
If wi ebul fɔ no sɔntin lɛk dis kwik kwik wan, wi kin gi di pikin di ɛp we i nid kwik kwik wan.
Wetin a fɔ ɛkspɛkt if mi pikin gɛt dis sik?
Bɔrku pikin dɛm wae gɛt dis sik (Cerebellar Hypoplasia) nid sɔm sɔpɔt wit dɛn motoka skil dɛm , lɛk fɔ yuz kɔtlɛri ɛn fɔ balans we dɛn de waka, ɛn bak dɛn sɛns skil dɛm , lɛk fɔ lan.
Sɔm pikin dɛn kin nid dis kayn sɔpɔt fɔ kia fɔ dɛn ɔl dɛn layf. Di kayn kia we dɛn nid fɔ kia fɔ, kin dipen pan aw di sik kin tranga. Dat min se, aw di sεribεl nכ de divεlכp sכmtεm sכmtεm כ i rili כnda divεlכp, wetin na di כndalayn kכz, εn if כda sayn dεm de we de sho se i gεt am.
Di bɛst tin na dat, bɔku difrɛn tritmɛnt dɛn de we go fit yu pikin in nid. Yu pikin in mɛdikal tim kin ɛp yu fɔ pik di bɛst tritmɛnt fɔ yu pikin in sik.
Aw di layf we pɔsin kin liv kin bi?
Dis kin kam as sɔntin we go mek yu shɔk. Bɔt lɛ wi ɔnɛs. Di layf we pikin we gɛt dis sik kin liv kin difrɛn difrɛn wan bay di tin we kin mek i gɛt dis sik ɛn di sayn dɛm we di pikin gɛt. Fɔ ɛgzampul, sɔm pikin dɛn kin liv nɔmal layf. Bɔt sɔm pikin dɛn nɔ kin ebul fɔ liv pas we dɛn smɔl.
Di impɔtant tin na dat, di statystik nɔ de apin to ɔl pikin. So, i go fayn fɔ no gud gud wan wetin yu pikin in sik de, ɔndastand wetin yu fɔ ɛkspɛkt, ɛn tɔk to yu pikin in dɔktɔ opin wan.
We yu kam fɔ no se yu pikin gɛt Cerebellar Hypoplasia, i nɔmal fɔ mek yu fil bad, wɔri, ɛn fil bad we yu tink bɔt fɔ kia fɔ pikin we go nid mɛrɛsin fɔ di res ɔf in layf. We yu fil dis kayn we, aks fɔ infɔmeshɔn ɛn sɔpɔt frɔm yu pikin in dɔktɔ ɛn nɔs dɛn . Dɛn rɛdi fɔ ɛp yu ɛvri step we yu de go. Mɛmba se nɔto yu wangren de.
Di tin we impɔtant pas ɔl we wi fɔ mɛmba
A op se dis atikul dɔn gi yu sɔm tin fɔ no bɔt Cerebellar Hypoplasia. Na sɔm impɔtant tin dɛn we yu fɔ mɛmba:
- Cerebellar Hypoplasia na we di sεribεl, we na wan pat pan di bren, nכ de divεlכp fayn fayn wan.
- Dis kin afɛkt di pikin in muvmɛnt, tɔk, ɛn balans.
- Di sayn dɛm kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Di divɛlɔpmɛnt we kin delay, i nɔ kin izi fɔ waka, ɛn i nɔ kin izi fɔ tɔk na di men tin dɛn.
- dis kin bi bikoz fכ di jεnεtiks כ kכmplikεshכn dεm we uman bεlε.
- If yu no di sik kwik kwik wan ɛn gi di pikin di tritmɛnt dɛn we i nid, dat kin mek di pikin in layf bɛtɛ bad bad wan.
- If yu gɛt ɛni dawt bɔt aw yu pikin de gro, go to dɔktɔ wantɛm wantɛm.
Fɔ kia fɔ pikin we gɛt dis sik kin tranga, bɔt wi op se if yu gɛt di rayt infɔmeshɔn, sɔpɔt, ɛn lɔv, yu go gɛt di trɛnk fɔ win da prɔblɛm de.
` sεribra haypoplasia, divεlכpmεnt na di bren, divεlכpmεnt delay, pikin sik dεm, sεribεl haypoplasia, divεlכpmεnt dilay, di bren divεlכpmεnt
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