Yu tink se dɛn kin pul yu nɛk di we we yu nɔ want? Lɛ wi lan bɔt (Cervical Dystonia)!

Sɔntɛnde, yu kin fil wan strenj tin we yu nɛk stif, yu kin fil pen, ɛn dɛn kin pul yu ed na wan say? Ɔ yu tink se di mɔsul dɛn na yu nɛk kin shek shek wantɛm wantɛm, ɛn dis kin mek yu shek yu ed we yu nɔ ebul fɔ kɔntrol? Dɛn tin ya nɔ kin jɔs bi simpul nɛk we kin swɛt. Tide wi go tɔk bɔt wan nyurolɔjik kɔndishɔn we gɛt fɔ du wit di nɛk we yu nɔ go dɔn yɛri bɔt, bɔt i kin afɛkt sɔm pipul dɛn. Dis na wetin dɔktɔ dɛn kin kɔl `(Cervical Dystonia)`.

Wetin na Sɛvikal Distonia?

Fɔ tɔk am simpul wan, sɛvikal distonia na nyurolɔjik kɔndishɔn we di mɔsul dɛn na di nɛk kin kɔntrakt we wi nɔ kin ebul fɔ kɔntrol bikɔs ɔf prɔblɛm na wi bren ɛn di nervɔs sistɛm. I tan lɛk se di mɔsul dɛn na di nɛk de gɛt smɔl naf ɛn dans to dɛn yon tiun.

We dɛn mɔsul dɛn ya kin kɔntrakt, dɛn kin tayt bifo dɛn rilaks. Dis kin ivin chenj di we aw yu de tinap. Yu ed ɛn yu nɛk kin bigin fɔ muv di we we nɔmal, lɛk se dɛn de spam ɔ jɔk wantɛm wantɛm. Dis kin rili mek yu fil pen ɛn i kin ambɔg yu fɔ du tin dɛn we yu kin du ɛvride.

di sεvikal distonia na wan pan di big grup fכ kכndyushכn dεm we dεn kכl ``Focal Dystonia.`` Focal Dystonia de tכk bכt di kכndyushכn dεm we de mek di mכsul dεm spam na jכs wan pat pan di bכdi. Sɔntɛnde yu dɔktɔ kin kɔl am bak ``Spasmodic Torticollis.`` Pan ɔl we dɛn kin kɔl am tu ɔ tri nem, na di sem kɔndishɔn.

di men kayn sεvikal dystonia dεm de?

Yɛs, wi kin no tu men kayn dɛn. Dɛn kin difrɛns dɛn tu kayn ya bay di rizin fɔ dis:

1. Praymari sɛvikal dystonia: Insay dis kes , dɛn nɔ no di rayt kɔz fɔ di sik. Na wan kɔndishɔn we kin jɔs apin.

2. Sεkכnd sεvikal dystonia: insay dis kes, dεn kin no wan kכz. Dis min se i kin kam bikɔs ɔf ɔda sik, wan sayd ɛfɛkt we wan mɛrɛsin gɛt, ɔ aksidɛnt.

Aw dis sik kin kɔmɔn?

di sεvikal distonia na wan pan di sik dεm we de kכmכn pan di ``Focal Dystonia`` kεtכgכri. Dɛn se na lɛk 60,000 pipul dɛn nɔmɔ na Amɛrika de sɔfa wit dis sik. Dɛn kayn sik pipul ya kin de na Sri Lanka bak, ɛn sɔntɛm di statystik kin smɔl bikɔs dɛn nɔ no di sik.

Wetin na di sayn dɛm fɔ di sɛvikal dystonia?

Dis kɔndishɔn kin mek yu muv we yu nɔ ebul fɔ kɔntrol. Di men sayn dɛm wae de sho se yu gɛt dis sik na:

• Mɔsul dɛn we de spam: Di mɔsul dɛn na di nɛk kin tayt wantɛm wantɛm, lɛk rɔk, ɛn dɛn nɔ kin ebul fɔ rilaks. Sɔntɛnde, di mɔsul dɛn kin fil lɛk se dɛn de shek shek ɔ muv.
• Trem: I de shek di pat dɛn na di bɔdi, lɛk di an ɛn leg we yu nɔ ebul fɔ kɔntrol. Dis shek kin apin bak na di nεk εria.

Dɛn muvmɛnt ya we yu nɔ de kɔntrol kin mek yu chenj di we aw yu de tinap. Posture na di we aw yu de ol yu bɔdi we yu tinap ɔ sidɔm. di sεvikal dystonia kin mek dεn chenj ya na di poshכn:

• Fɔ rɔta yu ed: Yu kin mek yu ed tɔn to wan say we yu nɔ ivin no.
• Tilt di ed fɔ go bifo, bak, ɔ to di sayd: I tan lɛk se di ed tilt to wan say.
• Fɔ bɛn di nɛk ɛn ed fɔ go bifo, bak, ɔ to di sayd dɛn: I kin at fɔ mek di nɛk stret.

Dɛn muvmɛnt ya kin mek yu sɔl ɛn nɛk fil pen bak, ɛn dis kin kam wit inflamɛns . Sɔm pipul dɛn kin gɛt ed we de at bak . Imajin aw i nɔ kin izi fɔ du yu wok we yu de du ɛvride wit sɔntin lɛk dis.

Wetin mek di sɛvikal distonia kin apin?

Infakt, dɔktɔ dɛn stil nɔ no di rayt tin we kin mek ɔlman gɛt di sik we dɛn kɔl sɛvikal dystonia. bכt risεch sho se i de kכz f כ wan disfכnkshכn na wan pat pan wi bren we dεn kכl ``Basal Ganglia'' . dis pat pan di ``Basal Ganglia'' de kכntro di muvmεnt fכ wi mכsul dεm. We prɔblɛm de de, dɛn kin sɛn di rɔng sayn dɛn to di mɔsul dɛn na di nɛk, ɛn dis kin mek dɛn nɔ de wok fayn.

sεkכnd sεvikal distonia kin kכz fכ dεn tin ya:

• As wan sayd ɛfɛkt fɔ sɔm saykayatrik mɛrɛsin dɛn .
• Bikɔs ɔf di bad bad injuri dɛn we de na di bren (Traumatic brain injury) .
• Wit ɔda nyurolɔjik kɔndishɔn dɛm, lɛk Pakinsin sik .
• jεnεtik mכtεshכn dεm na jin dεm we dεn kכl `GNAL`, `THAP1`, `CIZ1` כ `ANO3`. Dɛn tin ya kin kɔmplikt smɔl, bɔt dɛn kin pɔsibul.

Udat dɛn kin gɛt dis sik?

Pan ɔl we dis sik kin kam pan ɛni ej, sɔm pipul dɛn kin gɛt bɔku prɔblɛm:

• If pɔrsin na yu famili dɔn gɛt dis sik bifo (i kin gɛt jɛnɛtik link).
• If yu de tek mɛrɛsin wae dɛn kɔl `(Dopamine antagonists)` ɔr `(Antipsychotics)`.
• If yu dɔn gɛt injuri na yu bren.

Dis sik kin bɔrku pan uman ɛn pipul dɛm wae ol bitwin 30 ɛn 60. Bɔt dat nɔr min se ɔda pipul nɔr kin gɛt am.

Wetin na di prɔblɛm dɛn we kin kam wit di sɛvikal distonia?

Dɛn sayn ya kin gɛt big impak pan yu ɛvride layf. I kin ivin mek i nɔ izi fɔ du sɔm wok dɛn. Pen, tret, ɛn mɔsul dɛn we de shek shek kin mek i nɔ izi fɔ muv yu nɛk, yu jaw, yu an, ɛn yu bɔdi fayn fayn wan. I kin mek tin dɛn lɛk fɔ tɔk, fɔ swɛla, ɛn fɔ wok togɛda tranga bak.

Sɔntɛnde, yu kin si se yu nɔ kin ebul fɔ du ivin simpul wok dɛn we yu bin de ebul fɔ du izi wan, lɛk fɔ kɔm yu ia ɔ fɔ brus yu tit. Dis kin rili mek wi at pwɛl.

If dɛn nɔ trit dis sik, i kin mek pɔsin fil pen ɛn in mɔsul dɛn kin spam (dystonia) na ɔda pat dɛn na di bɔdi apat frɔm di nɛk . So, i rili impɔtant fɔ go to dɔktɔ wantɛm wantɛm if yu gɛt sɔm sayn dɛn.

Aw dɛn kin no dis sik?

Dɔktɔ go chɛk yu ɛn aks yu bɔt di sayn dɛm fɔ yu fɔ no if yu gɛt dis sik. Dɛn go aks bak bɔt yu mɛdikal istri ɛn yu famili mɛdikal istri . Dis min se yu fɔ no if ɛnibɔdi na yu famili dɔn gɛt dis sik.

Nɔto ɔlman kin nid tɛst lɛk MRI skan ɔ ilɛktromayografi (we de mɛzhɔ di ilɛktrik aktiviti we di mɔsul fayv dɛn de du). Bɔt di dɔktɔ kin tɛl dɛn fɔ du dɛn tɛst ya nɔmɔ if dɛn tink se di spɛnal kɔd dɔn kɔmprɛs ɔ di nerv dɔn pwɛl .

Wetin na di tritmɛnt fɔ di sɛvikal dystonia?

Difrɛn tritmɛnt dɛn de fɔ dis. Nɔto ɔl di tritmɛnt dɛn kin wok fɔ ɔlman. Yu kin nid fɔ tray sɔm tritmɛnt dɛn fɔ no wetin go wok fɔ yu.

Na dɛn kayn tritmɛnt ya mɔ de:

• Botulinum toxin injection: Dis na injεkshכn dεm we dεn kin gi di mכsul dεm na di nεk we dεn afekt.
• Mɛrɛsin we dɛn kin tek bay mɔt: Na mɛrɛsin we dɛn kin gi fɔ ridyus pen ɛn fɔ mek di mɔsul dɛn we de spam nɔ bɔku.
• Fizik tritmɛnt: Strɔng di mɔsul dɛm na di nɛk ɛn mek yu muv fayn fayn wan tru ɛksɛsayz ɛn ɔda we dɛm.
• Dip bren stimuleshɔn ɔpreshɔn: Dis na sɔm kɔmplikɛt ɔpreshɔn we nɔ nid fɔ ɔlman ɛn dɛn kin du am pan spɛshal kes dɛm.

Sɔm pipul dɛn kin si bak se we dɛn ol dɛn chin ɔ wɛr nɛk bres ɔ sɛvikal kɔla kin ɛp fɔ mek dɛn nɔ gɛt di sik . Dɛn kɔl dɛn tin ya trik we pɔsin kin fil.

De tin wae impɔtant pas ɔl na fɔ woke wit yu dɔktɔ fɔ fɛn de tritmɛnt wae fayn fɔ yu.

Aw di tritmɛnt fɔ bɔtulinum toxin de wok?

Bɔku pipul dɛn dɔn yɛri bɔt di nem `(Botox®)`. Na wan brand nem fɔ `(Botulinum toxin serotype A)`. sεm kayn we, dεn kin yuz `(Botulinum toxin type B)` bak fכ trit sεvikal dystonia.

wetin dis `(Botulinum toxin) de du na fכ wik di fכnshכn fכ di nεk mכsul dεm we dεn afekt (dystonic nεk mכsul dεm). Dɔn, dɛn mɔsul dɛn de kin stɔp fɔ kɔntrakt we dɛn nɔ nid.

Di dɔktɔ kin injekt dis mɛrɛsin insay di mɔsul dɛn we fit yu na yu nɛk. I kin tek lɛk wan wik so fɔ si aw di mɛrɛsin de du tin. Bɔt di tin we dis mɛrɛsin kin du kin las fɔ lɛk tu to tri mɔnt so.Afta da tɛm de, di sayn dɛm kin kam bak, so dɛn kin nid fɔ tek di vaysin bɔku tɛm fɔ kɔntrol di sayn dɛm.

Di sayd ɛfɛkt dɛm fɔ dis vaysin kin bi:

• I nɔ izi fɔ swɛla
• Pen na di say we dɛn injɛkshɔn
• Fɔ fil se yu wik na yu nɛk

Dɛn tin ya nɔ kin apin to ɔlman, bɔt i fayn fɔ no se dɛn kin apin.

Us ɔda mɛrɛsin dɛn kin gi fɔ di sɛvikal dystonia?

Dɛn kin yuz dɛn kayn mɛrɛsin ya as mɛrɛsin we dɛn kin it:

• `Dopaminεrjik ejen dεm` (e.g. `Levodopa`) .
• Antikolinerjik ejen dεm (εgz. Bεnztropin, Trihεksifεnidyl) .
• `Baklɔfen`
• `Klɔnazepam`

Dɛn mɛrɛsin ya kin mek yu gɛt sayd ɛfɛkt bak lɛk fɔ mɛmba prɔblɛm ɛn taya . So, e fayn fɔ tɔk bɔt ɔl dɛn tin ya wit yu dɔktɔ ɛn pik di tritmɛnt we go fayn fɔ yu.

Wetin na di lukin-grɔn fɔ sɛvikal dystonia?

Cervical dystonia na wan sik wae de kam wae yu de liv yu layf. Bɔt, i nɔ de afɛkt di tɛm we yu de liv yu layf. Sɔntɛnde, de sik kin wɔs smɔl smɔl as tɛm de go, ɔr kin de plet.

Di bɛst pat na dat, if yu gɛt di rayt tritmɛnt, yu ɛn yu dɔktɔ kin ebul fɔ kɔntrol dɛn sik ya, so dat yu go ebul fɔ du di tin dɛn we yu lɛk ɛn nɔ gɛt ɛni prɔblɛm.

yu kin kכl di sεvikal distonia kכmplit wan wit `(Botox)`?

Nɔ, no kɔmplit mɛrɛsin nɔ de fɔ di sɛvikal distonia yet. Botulinum toxin (Botox) kin jɔs kɔntrol di sik dɛn fɔ sɔm tɛm, i nɔto mɛrɛsin.

we de fכ mek yu nכ gεt sεvikal dystonia?

Bɔt i sɔri fɔ no se naw, dɛn nɔr no we fɔ mek dis sik nɔ kam.

Ustɛm a fɔ go to dɔktɔ?

Si dɔktɔ if yu notis ɛni wan pan dɛn tin ya:

• If yu fil se di bɔdi na yu nɛk de twit ɔ tayt.
• If dɛn dɔn ɔlrɛdi no se yu gɛt sɛvikal distonia ɛn di tritmɛnt de mek yu gɛt sayd ɛfɛkt ɔ if di sayn dɛn de wɔs.

I rili impɔtant fɔ go to dɔktɔ kwik kwik wan pan tɛm lɛk dis.

Wetin a fɔ aks mi dɔktɔ?

We yu go si dɔktɔ, yu kin aks kwɛstyɔn dɛn lɛk:

• If pɔsin na mi famili dɔn gɛt dis sik, yu tink se misɛf go gɛt dis sik?
• Us tritmɛnt yu kin kɔmɛnt fɔ mi?
• Ɛni bad tin de we di tritmɛnt kin du?
• Yu tink se a go nid ɔpreshɔn?

Apat frɔm dɛn kwɛstyɔn ya, aks yu dɔktɔ ɛni dawt ɔ kwɛstyɔn we yu gɛt.

Fɔ dɔn, tin dɛn fɔ mɛmba (Take-Home Message) .

Cervical dystonia kin bi wan rili nɔr kɔmfyut ɛn pen. Bikɔs di mɔsul dɛn na yu nɛk nɔ ebul fɔ rilaks, yu ed de muf we yu nɔ want. Dis kin mek i nɔ izi fɔ du tin dɛn we yu bin de ɛnjɔy trade, ɛn i kin mek i nɔ izi fɔ du ɛvride wok.

Bɔt mɛmba se nɔto yu wangren de. Tritmɛnt dɛn de fɔ dis. Yu dɔktɔ kin ɛp yu fɔ fɛn di bɛst tritmɛnt fɔ yu sik dɛn. Dɔn yu kin wɛl bak. So if yu gɛt sɔm sayn dɛn, nɔ fred fɔ go to dɔktɔ.

A op se dis infɔmeshɔn go yusful to yu. Stay wit wɛlbɔdi!

` Sɛvikal Distonia, Spasmodik Tɔtikolis, Nɛk Pen, Nyuropati, Mɔsul Twitch, Bɔtɔks, Tritmɛnt