Yu smɔl pikin gɛt difrɛns pan in an we i bɔn wit? (Congenital Hand Difference) – Lɛ wi tɔk bɔt dis!

We yu bɔn yu pikin, i nɔmal fɔ mek yu fil shɔk ɛn fil bad we yu si smɔl chenj na dɛn an. Sɔntɛm yu go de wɔnda, ‘Wetin mek dis apin to mi pikin?’ I impɔtant fɔ mɛmba se nɔto yu wangren de pan tɛm lɛk dis. Lɛ wi tɔk mɔ bɔt dis, nɔto so?

Dis nɔto ɛnibɔdi in fɔlt, lɛ wi ɔndastand dat fɔs, nɔto so?

Bɔku tɛm, mama ɛn papa dɛn kin tink se, ‘A nɔ no if wi du sɔntin we nɔ rayt, na dat mek di pikin du dis.’ Dɛn kin fil bak se dɛn nɔ bin de kia fɔ dɛn fayn we dɛn gɛt bɛlɛ, ɔ di dɔktɔ dɛn nɔ bin fɔ dɔn no dis bifo tɛm.

Bɔt di tru tin na dat, dis nɔto ɛnibɔdi in fɔlt. dis difrεns dεm we de bitwin an dεm, we wi mεdikal kכl ``Congenital Hand Differences'', nכto dεm we dεn kin gεt wit dεm. Ɛn bɔku tɛm dɛn nɔ kin ebul fɔ avɔyd dɛn. sכmtεm, ivin di ``skan'' dεm we dεn du bifo dεn bכn kin nכ detekt dεm. So nɔ blem yusɛf.

Wetin na dis ‘Congenital Hand Difference’?

Fɔ tɔk am simpul wan, ‘congenital hand deformity’ na smɔl difrɛns pan di we aw yu pikin in an de fɔm, we yu kɔmpia am wit nɔmal. Di wɔd ‘kɔnjɛnital’ min ‘present frɔm we dɛn bɔn am’. Dis kin bi difrɛns pan di shep we di an gɛt, di nɔmba fɔ di finga dɛn, ɔ di we aw di finga dɛn de.

yu kin si dεn chenj dεm ya jisno we dεn bכn di pikin. Sɔm pan di chenj dɛn kin bi tin we nɔ klia, ɛn ɔda wan dɛn kin bi mɔ klia wan. Bɔt, i impɔtant fɔ no bɔt dɛn chenj ya.

Us kayn chenj kin apin na di an?

Wi kin sheb dɛn chenj ya to sɔm men kategori dɛn. Lɛ wi tek wan luk pan wetin dɛn bi:

• Divεlכpmεnt prכblεm dεm na di wan ol כ pat pan di an. Fɔ ɛgzampul, wan pat pan di an nɔ kin divɛlɔp fayn.
• sכm pat dεm na di an (fכ egzampl, finga dεm) kin kכmכt frכm wan an.
• Fɔ put yu finga ɔ big big an pasmak.
• כnda divεlכpmεnt (tu sכm) כ ova divεlכpmεnt (tu big) fכ di an, finga dεm, כ tכmb.

Naw, wi go tɔk bɔt sɔm pan dɛn men kayn dɛn ya smɔl mɔ?

1. Finga dɛn we stɔp togɛda (Syndactyly) .

Dis na di wan wae kin kam pan dɛn kayn tin ya. ``(Syndactyly)`` na we wan כ mכr pan di pikin in finga dεm de fכs tכgeda, כ di skin bitwin di finga dεm strεch hכy pas nכmal. Imajin, lɛk dɔk, wit wɛb we gɛt skin bitwin di finga dɛn, sɔntin lɛk dat.

dis kin bi sכmtεm wan simpul syndactyly , we min se na di skin bitwin di finga dεm nכmכ de kכnekt. Bɔt sɔntɛnde i kin bi wan kɔmpleks sindakti , usay di bon dɛn, di nerv dɛn, ɛn di blɔd vesel dɛn kin kɔnɛkt bak bitwin di finga dɛn.

2. Pɔlidaktili

Polydactyly na we pikin gɛt pas fayv finga ɔ fut finga dɛn. Poly min "bɔku." Sɔntɛnde di ɛkstra finga kin jɔs bi wan pat pan di skin ɔ i kin jɔs kɔnɛkt to di nerv dɛn. Ɔda tɛm dɛn, i kin kɔnɛkt to sɔm pat dɛn na di nɔmal finga, wan ɛkstra bon, ɔ wan jɔyn na di an.

Tu men kayn dis de bak:

• Ulnar Polydactyly: Dis na di kayn we we dɛn kin yuz mɔ. Dis na we wan ekstra finga ɔ pat pan finga de divɛlɔp na di sayd we di smɔl finga de (di sayd na di an usay di smɔl finga de we wi de mek fist). Di ulna na di big bon we de na wi fɔs an. I de na di sayd we di smɔl finga de.
• Radial Polydactyly: Dɛn kin kɔl am bak thumb polydactyly, dis na we mɔ pas wan thumb de na wan an.

3. Radial Klɔb An `(Radial Klɔb An)`

`(Radial Club Hand)` na kכndishכn we di raydial sayd na di an, dat na di tכmb sayd, nכ fכm fayn fayn wan. `(Radius)` de tכk bכt di כda bon we sכm sכmtεm na di fכs an (di bon we de na di tכmbכl sayd). dis de mek di fכs an sכt, εn di an de bεnd insay frכm di an, i de luk lεk di lεta 'J'. Di big an kin rili smɔl, ɔ i kin mis ɔltogɛda.

Bikɔs ɔf di fɔrɛst we shɔt, pipul dɛn we gɛt dis sik kin gɛt prɔblɛm fɔ yuz dɛn tu an, fɔ ɛgzampul, we dɛn de pik big tin. dis kin bi wan say (insay wan an) כ baylatarכl (insay di tu an dεm).

4. Wan cleft an apinans

`(Cleft Hand)` na kכndishכn we wan כ mכr finga dεm nכ de na di midul pat pan di an, we de lεf gap כ krak insay di shep fכ di lεta 'V'. along wit dis kכndishכn, dεn kin si `(Syndactyly)` (jכyn finga dεm) εn `(Polydactyly)` (εkstra finga dεm) dεm bak bכku tεm. `(Cleft Hand)` gɛt difrɛn kayn dɛn bak.

Pɔsin we gɛt dis sik kin gɛt gap na in an, wit di midul finga ɔ finga dɛn we nɔ de. Dis kin apin pan wan ɔ ɔl tu an. (Sכm pipul kin gεt famili histri fכ dis kכndyushכn na dεn tu an εn fut.) Insay ``Cleft Hand'', di an kin bi nכmal saiz, εn di bon dεm na di an kin nכmal.

Aw dis sik kin kɔmɔn?

Dis na kwɛstyɔn we bɔku pipul dɛn kin aks. Na avrej, lɛk tu pan ɛvri 1,000 pikin dɛn we dɛn jɔs bɔn kin gɛt dis difrɛns we dɛn bɔn wit dɛn an. Dat min se i nɔ kɔmɔn so. Dɛn kin tɔk bak se dis sik kin bɔku smɔl pan bɔy pikin dɛn.

Wetin mek dɛn an chenj ya kin apin?

we di pikin de insay di bεlε lεk di pikin, di an dεm εn di finga dεm de bigin fכ fכm bitwin di fכs εn siks wik. Dis na tin we rili kɔmpleks. If sɔntin ambɔg dis prɔses, i kin mek di an chenj.

Bɔku tin dɛn de we kin afɛkt di we aw dɛn mek mɔtalman an. Dis na men tin we de mek pɔsin gɛt jɛnɛtiks ɛnWi kin sheb di tin dɛn we de apin na di envayrɔmɛnt to:

Di tin dɛn we de mek pɔsin gɛt jɛnɛtiks

di instrכkshכn dεm fכ εvri sεl na wi bכdi fכ gro εn wok de insay jin dεm. Dɛn jin ya kin kɔmɔt frɔm mama ɛn papa to pikin dɛn. Bɔt sɔmtɛm dɛn jin ya kin chenj fɔ dɛnsɛf (muteshɔn).

We i kam pan di difrɛns dɛn we de na di an, dɛn difrɛns ya we de na di jɛnɛtiks kin apin bɔku tɛm fɔ no rizin . I nɔ kin izi fɔ mek dɛn kayn tin ya kin apin bikɔs ɔf di difrɛns bitwin di jɛnɛreshɔn dɛn we kin pas frɔm wan jɛnɛreshɔn to di ɔda wan.

Di tin dɛn we de apin na di envayrɔmɛnt

Di tin dɛn we de apin na di envayrɔmɛnt na sɔm infɛkshɔn dɛn we di mama kin gɛt we i gɛt bɛlɛ, ɛn sɔm mɛrɛsin dɛn we di mama kin yuz. Fɔ ɛgzampul, di drɔg ``Thalidomide``, we dɛn bin de yuz fɔ mɛn nɔs trade (naw dɛn nɔ de yuz am na bɔku kɔntri), ɛn sɔm ``Kemotherapy`` drɔgs we dɛn bin de yuz fɔ trit kansa kin mek dis apin.

biכs fכ dεn tin ya we de apin na di envayroment, di tisu dεm we nכmal fכ divεlכp fayn fayn wan kin pwεl, di prכsεs we di an de divεlכp kin chenj, εn chenj dεm na di an kin apin.

Pan ɔl we sɔm an difrɛns dɛn kin ɛksplen bay dɛn jɛnɛtik ɔ envayrɔmɛnt tin ya, fɔ ɔda wan dɛn nɔ kin ebul fɔ fɛn ɛni rizin. sכmtεm di an vεryushכn na jכs ``isolated event``. כda tεm dεm, i kin bi pat pan wan ``syndrome`` fכ simptom dεm we de afekt כda pat dεm na di bכdi.

Us prɔblɛm dɛn kin apin we dɛn chenj dɛn an ya?

Dipen pan di kayn difɔmeshɔn we yu pikin gɛt ɛn aw i siriɔs, dɛn kin ebul fɔ adap to am witout ɛni prɔblɛm ɛn go du dɛn layf ɛvride. Bɔku pikin dɛn kin ajɔst to dɛn tin ya fayn fayn wan. Bɔt sɔm pikin dɛn kin gɛt sɔm prɔblɛm dɛn if dɛn nɔ trit dɛn.

Kɔmplikeshɔn dɛm wae kin apun bikɔs ɔf dɛn kayn tin ya na:

• divεlכpmεnt dilay (e.g., dilay fכ kray, grap tכys, εtk)
• I nɔ izi fɔ du ɛvride wok ɛn di bɛsis tin dɛn we dɛn nid (it, drɛs) fɔ dɛnsɛf.
• Limiteshɔn fɔ tek pat pan sɔm spɔt ɛn ɔda tin dɛn.
• Saikɔlɔjik ɛn soshal prɔblɛm (we yu de shem, ɔda pikin dɛn de provok yu, fil bad bikɔs dɛn lɛf yu na do, ɛn ɔda tin dɛn).

Aw fɔ no dis sik?

Bɔku tɛm, dɔktɔ dɛn kin notis dɛn an chenj ya jɔs afta dɛn bɔn di pikin. Da tɛm de, dɛn go tek tɛm chɛk di pikin. כltu, yu pikin in dכkta kin du ``X-ray`` tεst fכ no εksεkshכnal aw dis dכn afekt di bon dεm εn di tisu dεm na di an. Dis go ɛp fɔ no if di chenj simpul ɔ kɔmpleks. Sɔntɛnde, dɛn kin nid ɔda spɛshal pipul dɛn fɔ ɛp dɛn.

Wetin na di bɛnifit dɛn we pɔsin kin gɛt we i de trit pɔsin?

Ɛvri pikin we gɛt difyushɔn na in an difrɛn, so di tritmɛnt go dipen pan wetin yu pikin nid.

di men gol εn bεnεfit fכ tritmεnt na fכ mek di pikin ebul fכ wok fayn fayn wan.Dɔn bak, wan ɔda gol na fɔ mek di an luk fayn to sɔm mak ɛn ɛp fɔ mek di pikin gɛt rɛspɛkt fɔ insɛf.

Wetin na di tritmɛnt opshɔn fɔ dɛn an chenj ya?

Difrɛn we dɛn de fɔ trit di an we nɔ fayn. Dɔktɔ dɛn go disayd us tritmɛnt go fayn fɔ di pikin bay aw di pikin de.

• Ɛksesaiz fɔ strɛch.
• Splint ɔ kɔst (kip di an na di kɔrɛkt pozishɔn).
• Fizik tɛrapi (inkrisayz di an trɛnk ɛn wok, tren yu an fɔ yuz).
• di yus fכ prosthεtik fכ riples di pat כ bon dεm we nכ de na di an (especially if pat pan di an nכ de).
• Ɔpreshɔn.

Fɔ ɛgzampul, dɛn kin trit sindaktili bay we dɛn de ɔpreshɔn di finga dɛn. If nɔto inof skin lɛf afta dɛn dɔn separet di finga dɛn, dɛn kin nid fɔ graft di skin. Afta yu dɔn du di ɔpreshɔn, yu dɔktɔ kin tɛl yu fɔ put yu an fɔ kɔt, fɔ put splin, ɛn fɔ mek yu an ebul fɔ wok fayn fayn wan, mɔ we tin nɔ izi fɔ yu.

Dɛn kin trit polydactyly (ɛkstra finga dɛn) bay we dɛn kin ɔpreshɔn di ɛkstra finga ɔ big finga ɛn tay di finga ɔ big finga we lɛf bak.

Tritmɛnt fɔ Radial Klɔb Han de dipen pan di wok we yu pikin gɛt fɔ du ɛn wetin i nid. I kin inklud fɔ splin ɔ fɔ kɔt, ɛn/ɔ ɔpreshɔn.

Di tin we impɔtant pas ɔl na fɔ ɔndastand se dɛn tritmɛnt ya nɔ go ebul fɔ ‘kɔl’ di difrɛns we de na yu pikin in an. Bɔt dɛn tritmɛnt ya kin ɛp bad bad wan fɔ mek di an wok fayn ɛn fɔ mek i luk fayn. Fɔ gɛt fayn abit, yu ɛn yu pikin, ɛn fɔ gri wit dis difrɛns rili impɔtant fɔ mek di tritmɛnt go bifo ɛn fɔ mek di pikin gɛt wɛlbɔdi.

Ɛni risk de pan di tritmɛnt dɛm?

Yɛs, jɔs lɛk ɛni ɔda tritmɛnt, prɔblɛm dɛn de we kin apin. Nεv dεm kin pwεl, infεkshכn, bכdi kin bכn, εn stif na di an kin apin. Risk de bak fɔ mek yu nɔ ebul fɔ gro yu finga ɔ an we tan lɛk nɔmal afta yu dɔn trit yu. Yu dɔktɔ go tɔk bɔt dis wit yu ditayli.

Yu tink se dɛn kin mek dɛn nɔ gɛt di kayn we aw dɛn kin gɛt di an we dɛn bɔn wit?

dis kכndyushכn dεm kin kכz fכ jεnεtik fכs dεm כ disrupshכn insay kכmpleks prכsεs dεm we de apin di tεm we di pikin de fכm, so dεn nכ kin ebul fכ sכpכt dεm. Bɔt if yu tek tɛm kia fɔ yu wɛlbɔdi bifo ɛn we yu gɛt bɛlɛ, yu kin gi yu pikin di bɛst chans fɔ bigin fayn fayn wan.

Mek shɔ se yu go na yu klinik dɛn bifo yu bɔn pikin. Nɔ smok ɛn drink rɔm ɔltogɛda we yu gɛt bɛlɛ. Fɔ fala di instrɔkshɔn dɛn we yu dɔktɔ gi yu.

Wetin na di rizɔlt fɔ trit dis sik?

Di tritmɛnt rizulyt kin difrɛn difrɛn wan bay di kayn ɛn kɔmplisiti fɔ yu pikin in an difɔmiti. Insay kes dɛm we na di an nɔmɔ de difɔm ɛn nɔ gɛt ɔda sayn dɛm, di rizɔlt kin fayn. Bɔku pikin dɛn kin lan fɔ ajɔst to di tin dɛn we dɛn nɔ ebul fɔ du. Dɛn kin fɛn wɔndaful we dɛn fɔ du tin.

Bɔt if dis difrɛns na pat pan sɔm `(Syndrome)`, di rizɔlt dipen pan di kayn `(Syndrome)` ɛn aw i siriɔs.

Aw a go kia fɔ mi pikin?

As mama ɔ papa fɔ pikin we gɛt difrɛns pan in an we dɛn bɔn wit, yu want fɔ sɔpɔt yu pikin di bɛst we aw yu ebul.

Aks yu pikin in dɔktɔ bɔt sɔpɔt grup dɛm we de ɛp pikin ɛn mama ɛn papa lɛk yu. Fɔ tɔk to ɔda pipul dɛm wae de go tru di sem tin lɛk yu kin ɛp yu ɛn yu pikin (we dɛn dɔn big smɔl). Na fayn we fɔ fil lɛk se nɔto yu wan de.

Us kwɛstyɔn dɛn a fɔ aks di dɔktɔ?

Yu kin gɛt bɔku kwɛstyɔn bɔt aw yu pikin in kɔndishɔn. Nɔ ɛva fred fɔ aks dɛn. Fɔ ɛgzampul, yu kin aks di dɔktɔ kwɛstyɔn dɛn lɛk dɛn wan ya:

• Us kayn han difɔmiti mi pikin gɛt? Wetin dɛn kɔl am?
• Us kayn tritmɛnt yu kin advays? Wetin na di tin dɛn we dɛn de op fɔ?
• Aw lɔng dɛn tritmɛnt ya go tek?
• Yu tink se mi pikin go ebul fɔ ple, go skul, ɛn du wok dɛn lɛk nɔmal pikin?
• Aw a go ɛp mi pikin fɔ ajɔst to dis chenj we a de chenj in an? Ɛni spɛshal tin dɛn de we a kin du na os?

We yu de op fɔ gɛt pikin, ɔ afta yu bɔn yu pikin, i nɔmal fɔ fil wɔri bɔt wetin go apin to yu pikin ɔ pikin in tumara bambay. Pan ɔl we dɛn nɔ kin ebul fɔ stɔp bɔku tin dɛn we kin apin we pɔsin bɔn wit, sɔm tin dɛn de we yu kin du fɔ ridyus di prɔblɛm dɛn we kin apin na di envayrɔmɛnt. Ɔltɛm tɔk to yu dɔktɔ bɔt wetin de mɔna yu ɛn fala in advays bɔt tɛst ɛn mɛrɛsin.

Mesej we kɔmɔt na in at

Di tin dɛn we impɔtant pas ɔl fɔ mek yu mɛmba frɔm wetin wi dɔn tɔk bɔt na dɛn wan ya:

• If yu pikin gɛt wan sik we dɛn bɔn wit in an, nɔto yu fɔlt. Bɔku tɛm, no rizin nɔ de we dɛn no bɔt. So nɔ blem yusɛf.
• Difrɛn tritmɛnt dɛn de fɔ dɛn sik ya. Di men gol fɔ dɛn tritmɛnt ya na fɔ mek di an wok fayn ɛn fɔ mek i luk fayn.
• Fɔ tink gud wan ɛn fɔ gri wit dis chenj rili impɔtant fɔ yu ɛn yu pikin. Mek yu pikin fil se dɛn lɛk am ɛn sef.
• Yu lɔv, sɔpɔt, ɛn peshɛnt impɔtant fɔ ɛp yu pikin fɔ bia wit dis chenj ɛn fɔ manej di wok dɛn we i de du ɛvride.
• Nɔ ɛva shem fɔ aks dɔktɔ, dɔktɔ dɛn we de mɛn yu bɔdi, ɛn sɔpɔt grup dɛn fɔ ɛp yu if nid de. Nɔto yu wan de.

`Difrεns we de bitwin di an we dεn bכn wit, Sindaktili, polidaktili, raydial klab an, klεft an, difrεns we dεn bכn na di an, pikin hεlth