Yu skin de rɔsh ɛn yu mɔsul dɛn wik? Lɛ wi tɔk bɔt dɛmatomyositis!

Sɔntɛnde yu kin gɛt strenj skin rash? Yu kin fil bak se yu mɔsul dɛn wik smɔl? Sɔntɛm yu nid fɔ no bak bɔt wan sik we dɛn kɔl dɛmatomyositis. Na sik wae nɔr kin bɔrku, bɔt e fayn fɔ no bɔt.

Wetin na Dɛmatomyosaytis?

Fɔ tɔk am simpul wan, dɛmatomyositis na wan sik we nɔ kin apin so ɔltɛm we kin mek yu mɔsul dɛn wik ɛn mek yu gɛt rash we tan lɛk ɛkzema . I de pan wan big grup fɔ sik dɛn we dɛn kɔl mayopati. Dis min se i kin afɛkt di mɔsul dɛn. Sɔntɛnde, if i tranga , i kin ivin afɛkt di we aw yu de blo ɛn swɛla. Tink bɔt am, na wi mɔsul dɛn de mek wi muv, so i kin at we i dɔn pwɛl.

Dεrmatomyositis na wan kayn ɔda mכsul sik we dεn kכl polymyositis. Bɔt insay dis kes, apat frɔm di mɔsul dɛn, di skin kin afɛkt bak. Na dat mek dɛn ad di wɔd ‘derma’ (we gɛt fɔ du wit di skin) to di nem.

If yu gɛt ɛni wan pan dɛn sik ya, i impɔtant fɔ go to dɔktɔ wantɛm wantɛm. Sɔntɛnde, dɛn sayn ya kin tek sɔm mɔnt fɔ sho. Bɔt sɔntɛnde, dɛn kin apia kwik kwik wan. If dɛn bigin fɔ trit am kwik, dɛn kin ebul fɔ avɔyd siriɔs prɔblɛm dɛn.

Pan ɔl we i nɔ kin apin so ɔltɛm, dis sik we dɛn kɔl dɛmatomyositis , kin mek pɔsin in layf de pan denja, mɔ insay di fɔs ia afta di sik bigin. Dɛn dɔn si bak se i kin mek pɔsin gɛt sɔm kayn kansa.

Wetin na di difrɛns bitwin Dɛmatomyositis ɛn Lupus?

Dεrmatomyositis na wan kכndyushכn we gεt sכm tin dεm we fiba di lupus εn כda כtoimyun sik dεm. Bɔt masta sabi bukman dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt dɛmatomyositis. Na dat mek dɛn nɔ de klas am as ɔtoimyun kɔndishɔn.

Naw, if yu gɛt lupus, yu kin gɛt pen na yu jɔyn, yu skin kin fil fayn ɛn yu kin gɛt ɛkzema, ɛn yu kin gɛt prɔblɛm wit yu insay ɔgan dɛn (spɛshal wan yu bren, yu lɔng, yu kidni, ɛn yu at). Bɔrku tɛm yu simptom kin flay ɔp ɛn afta dat dɛn kin stɔp, ɛn afta dat kin kam bak insay wev – wi kin kɔl dɛn flare-up ya.

Bɔt di dɛmatomyositis kin bi we di mɔsul dɛn wik ɛn di tisu dɛn kin day , wit di skin we kin rɔsh. Dɛn kin no am tru blɔd tɛst, bayɔpsi, ɛn difrɛn imej tɛst dɛn.

Ilɛksɛf na dɛmatomyositis ɔ lupus, i impɔtant fɔ no ɛn trit am kwik kwik wan. If yu notis ɛni nyu sayn, go to dɔktɔ wantɛm wantɛm.

Udat kin gɛt dis sik pas ɔlman? Aw i kɔmɔn?

Dɛmatomyosaytis kin rili afɛkt ɛnibɔdi, bɔt sɔm grup dɛn kin gɛt am mɔ. Dɛn tin ya na:

• Yɔŋ pikin dɛn we ol bitwin 5 ɛn 15 ia.
• Big pipul dɛn we ol bitwin 40 ɛn 60 ia.
• Uman dɛn.

Wi fɔ no bak se dis sik nɔ kin bɔku . Na avrej, na wan pan ɛvri 100,000 pipul dɛn nɔmɔ kin gɛt dis sik ɛvri ia. So yu kin si aw dis nɔ kin apin so ɔltɛm.

Aw dis sik kin afɛkt yu bɔdi? Risk fɔ gɛt kansa?

Wan sik wae dɛn kɔl dermatomyositis kin afɛkt yu bɔdi fɔ di res ɔf yu layf.

Imajin, if dis de pwɛl yu mɔsul dɛn bad bad wan, yu nɔ go ebul fɔ yuz ɔ muv wan pat na yu bɔdi fayn fayn wan. Bɔku tɛm, dis kin tek sɔm ia fɔ mek i go bifo. Bɔt sɔm pipul dɛn kin gɛt siriɔs mɔsul wikɛd kwik kwik wan pas ɔda pipul dɛn.

Wan ɔda tin na dat dɛn dɔn si bak se dɛmatomyositis kin mek pɔsin gɛt sɔm kayn kansa mɔ ɛn mɔ .

Dɛmatomyosaytis ɛn kansa

Na lɛk 15% pan di pipul dɛm wae gɛt dɛmatomyositis kin gɛt kansa leta na dɛn layf. Di kayn kansa wae dɛn kin si pan pipul dɛm wae gɛt dɛmatomyositis na:

• Kansa na ovarian
• Kansa na di lɔng
• Limfoma we dɛn kɔl Limfoma
• Brɔst kansa
• Kansa na di kɔlon

So, i rili impɔtant fɔ tɔk to yu dɔktɔ bɔt yu kansa risk ɛn us tɛst yu go nid.

Wetin na di sayn dɛm fɔ dis sik?

Di tu men ɛn kɔmɔn sayn dɛm fɔ dɛmatomyositis na wae yu mɔsul wik ɛn yu skin de rɔsh.

Sɔm pipul dɛn kin gɛt ɔl tu di mɔsul dɛn wik ɛn skin rɔsh di sem tɛm. Bɔt sɔntɛnde, wan sayn kin de fɔ sɔm wik, mɔnt, ɔ ivin ia we di ɔda wan nɔ de.

Di mɔsul dɛn we wik

We yu mɔsul wik, dat kin mek i nɔ izi fɔ yu fɔ du sɔm tin dɛn ɛvride. Fɔ ɛgzampul:

• Sidɔm ɔp stret.
• Fɔ grap frɔm sidɔm ples (lɛk frɔm chia ɔ sofa).
• We yu de klaym di stej dɛn.
• We yu grap frɔm we yu ledɔm na bed.
• Wash yu ia.

Imajin aw yu go fil se yu nɔ ebul fɔ du natin if yu nɔ ebul fɔ du simpul tin dɛn lɛk dis.

Ekzima we de mek pɔsin gɛt sik

Dɛmatomyosaytis kin mek yu skin gɛt rash (espɛshali na say dɛn we di san de shayn ). Di skin kin chenj in kɔlɔ ɛn i kin swel. De say dεm wae dis rash kin apun na:

• Aylash ɛn rawnd di yay.
• di fכnt pat pan di chεst εn di sכlda dεm (sכmtεm dεn kin kכl am ‘V-sayn rash’).
• di bak pat pan di nεk εn di sכlda dεm (dεn kכl am bak ‘shawl sayn rash’).
• Skull we de na di bɔdi.

Ɔda sayn dɛn we de sho se yu gɛt dis sik

Apat frɔm dat, dɛmatomyositis kin mek yu gɛt sɔm sayn dɛm bak lɛk:

• di skin in kכla de chenj εn di bכmp dεm na di an dεm, spεshal wan arawnd di kכl dεm (sכmtεm dεn kin kכl am Gottron papules).
• di kalsiכm de dכn כnda di skin, insay di mכsul dεm, כ insay di kכnektiv tisu dεm.
• Lumps na di ni ɔ di ɛlbow.
• Skin de krak rawnd di nel ɛn blɔd vesel dɛn we yu kin si na di tip pan di nel.
• Pen na di jɔyn dɛn.

Sɔm pipul dɛm (especially yɔŋ pikin dɛm) kin gɛt dermatomyositis, dɛn kin gro pas am we dɛn dɔn big, ɛn nɔr kin ɛva gɛt dis sik igen. Bɔt, na lɛk 80% pan di kes dɛm, i kin bi krɛse – we min se i kin kam bak tɛm ɛn tɛm bak – ɛn i kin mek yu gɛt sɔm sayn dɛm ɔlsay na yu layf.

Wetin kin mek dis apin?

Masta sabi bukman dɛn stil nɔ no di rayt tin we kin mek pɔsin gɛt dɛmatomyositis, bɔt bɔku tin dɛn de we dɛn kin tink se kin mek i gɛt dis sik:

• Jɛnɛtik tin dɛm: Sɔm stɔdi dɔn sho se dɛmatomyositis kin bi jɛnɛtik sik, we min se i kin pas to jɛnɛreshɔn dɛm.
• Awtoimyun ishu dɛm: As wi bin dɔn tɔk, dɛmatomyositis na sik we fiba bɔku ɔtoimyun sik dɛm we di bɔdi in imyun sistɛm kin atak di wɛlbɔdi tisu dɛm.
• Vayral infɛkshɔn: Sɔm pruf de fɔ se sɔm pipul dɛn kin gɛt vayral infɛkshɔn, ivin afta i dɔn sɔlv, we kin mek pɔsin gɛt wan sik we dɛn kɔl dɛmatomyositis.
• Di tin dɛn we de apin na di envayrɔmɛnt: Sɔm stɔdi dɛn dɔn sho bak se pipul dɛn we de na say dɛn we gɛt bɔku bɔku dɔti ɔ we di briz nɔ fayn, kin gɛt di sik we dɛn kɔl dɛmatomyositis.

Aw dɛn kin no dis sik?

Dɛn kin no bɔt dɛmatomyositis tru blɔd tɛst ɛn smɔl smɔl sɛmpul dɛm we dɛn kin tek frɔm yu skin ɛn mɔsul dɛm (bayopsi) .

Yu dɔktɔ go tɛst yu blɔd fɔ si:

• if di lεvεl dεm fכ spεsifi k mכsul εnzym dεm de inkrεs we de sho se di mכsul dεm dεm dεm.
• כtoantibodi dεm na sεl dεm we de sho se di imyun sistεm de rεspכnd to sכmtin we i no se i de du bad.

Yu kin nid bak fɔ mek dɛn tek yu skin bayɔpsi frɔm di rash. Yu dɔktɔ kin want bak fɔ tek mɔsul bayɔpsi fɔ chɛk if yu mɔsul dɛn de swel.

Yu kin gɛt wan pan bɔku tɛst dɛn bak fɔ tek pikchɔ. Dɛn tɛst ya kin mek yu dɔktɔ ebul fɔ chɛk yu mɔsul dɛn, yu nerv dɛn, yu lɔng dɛn, ɛn ɔda pat dɛn. Dɛn tɛst ya kin ɛp fɔ no if yu sik na bikɔs ɔf dɛmatomyositis ɔr ɔda prɔblɛm. di mכst kכmכn imej tεst dεm we dεn kin yus fכ no if yu gεt dεmatomyositis na:

• Magnɛtik Rɛsɔnans Imej (MRI) .
• X-ray na di chɛst.

Sɔntɛnde, yu dɔktɔ kin tɛl yu bak fɔ du tɛst we dɛn kɔl ilɛktromayografi (EMG). dis tεst de mכsu di ilektrikal aktiviti we de apin we dεn de stimulate di mכsul dεm כ di nεv dεm.

Aw dɛn kin trit am?

Na sɔm pan di tritmɛnt dɛm wae de fɔ dermatomyositis:

• Kɔtikosterɔyd: Dis kayn mɛrɛsin kin mek yu mɔsul dɛn nɔ swel.
• Fizik tritmɛnt: Fizik tritmɛnt (ɛn ɛksɛsayz in jɔnaral) kin ɛp fɔ bil bak di damej we yu mɔsul dɛn dɔn du. Di mɔ yu mɔsul dɛn strɔng, na di mɔ dɛn go ebul fɔ bia wit di damej we di dɛmatomyositis kin mek.
• Immunosuppressant medicines: Dɛn mɛrɛsin ya de stɔp yu imyun sistɛm fɔ atak wɛlbɔdi sɛl ɛn tisu dɛn. Dɛn kin ridyus di damej we yu bɔdi in difɛns sistɛm kin du to yu mɔsul dɛn.
• Intravenous immunoglobulin (IVIg): IVIg na supliment to yu bכdi plasma, we na wan kכmכpכnt fכ immunoglobulin we de na yu bכdi nכmal wan. Dɛn kin gi IVIg tritmɛnt togɛda wit imyunosuprɛsiv drɔgs, ɔ as ɔda tritmɛnt.
• Spich therapy: If yu gɛt wik na di mɔsul dɛm na yu trot ɔ rawnd yu trot, speech therapy kin mek di mɔsul dɛm na yu trot strɔng we de ɛp yu fɔ swɛla it.

De kayn tritmɛnt wae yu nid go dipen pan usai yu sik de ɛn aw dɛn kin tranga. Tɔk to yu dɔktɔ bɔt wetin fɔ ɛkspɛkt ɛn ustɛm yu go nid sɔm tritmɛnt dɛn.

Aw fɔ kɔntrol di sayn dɛm?

Fɔ manej di simptom dɛm fɔ dɛmatomyositis go mɔs bi wan prɔses fɔ lɔng tɛm – sɔntɛm yu ɔl yu layf.

• If yu dɔktɔ, pɔsin we de mɛn yu bɔdi, ɔ pɔsin we de mɛn yu fɔ tɔk gi yu ɛksesaiz, du am jɔs lɛk aw dɛn tɛl yu fɔ du am, fɔ di nɔmba we dɛn tɛl yu. Dis go ɛp fɔ mek yu mɔsul dɛn strɔng as yu ebul.
• Tek di mɛrɛsin jɔs lɛk aw di dɔktɔ tɛl yu, fɔ di wan ol tɛm.
• Nɔ mek yu nɔ gɛt UV rayt. Limit yu tɛm na di san, nɔ yuz indo tan bed, ɛn de insay os ɔ na shed we yu de na do.
• Evri taim yu sabi se yu de go outYuz tin fɔ protɛkt yusɛf frɔm di san. Mek shɔ se yu sanskrin gɛt SPF we at le 50, ɛn put am bak ɛvri tu awa.

If yu gɛt dermatomyositis, i impɔtant fɔ go to yu dɔktɔ ɔltɛm. I kin wach yu sayn dɛm ɛn chɛk fɔ ɛni chenj na yu mɔsul ɔr skin.

Wetin yu kin ɛkspɛkt we yu de liv wit dis sik?

Nɔr mɛrɛsin nɔr de fɔ dematomyositis fɔ ɔltɛm, so yu kin ɛkspɛkt fɔ kɔntrol yu sik dɛn fɔ di res ɔf yu layf.

Ivin wit tritmɛnt, lɛk 80% pan pipul dɛn kin gɛt krɛse sik (sɔntɛnde dɛn kin kɔl am polycyclic dermatomyositis). Dis min se yu sik kin kam ɛn go ɔlsay na yu layf. Si dɔktɔ jɔs afta yu notis ɛni sayn we de sho se di sik de wɔs.

Na lɛk tu-tɛd pan di pipul dɛm wae gɛt dɛmatomyositis kin gɛt sɔm kayn fyzikal disabled bikɔs ɔf di mɔsul dɛm wae de pwɛl.

Dɛmatomyosaytis kin kil lɛk 5% pan di pipul dɛm wae dɛn kin no se gɛt dis sik. Dis risk kin pasmak insay di fɔs ia we dɛn no di sik. Bɔt lɛk 20% pan di pipul dɛm we gɛt dɛmatomyositis kin go insay lɔng tɛm rɛmishɔn. Dis min se dɛn kin liv witout symptom fɔ lɔng tɛm.

Sɔm sayn dɛm ɛn ɔda tin dɛm kin mek pɔrsin day pasmak. Sɔm ɛgzampul dɛn na:

• If di tritmɛnt delay pas siks mɔnt.
• If yu dɔn pas 60 ia.
• If yu gɛt siriɔs sik dɛn.
• If yu gɛt sɔm sayn dɛn na yu trot, yu lɔng, ɔ yu at.
• If yu gɛt kansa ɔ if i kam fɔ bi nyu wan.

Ustɛm yu fɔ go to dɔktɔ?

If yu notis nyu wikɛd tin dɛn na yu mɔsul dɛn, mɔ if yu gɛt rɔsh na yu skin, go to dɔktɔ wantɛm wantɛm. Di kwik we dɛn no se gɛt dɛmatomyositis, na di mɔ yu kin bigin fɔ trit am kwik kwik wan. Dis kin ridyus di risk fɔ gɛt siriɔs sik ɛn ɔda prɔblɛm dɛn.

Aks bak aw ɔltɛm yu fɔ go to yu dɔktɔ fɔ wach yu sayn dɛm ɛn chenj dɛm na yu mɔsul ɔr skin.

Us kwɛstyɔn dɛn yu fɔ aks yu dɔktɔ?

Na nɔmal tin fɔ gɛt kwɛstyɔn we yu de lan bɔt sik lɛk dis. Yu kin aks yu dɔktɔ kwɛstyɔn dɛn lɛk:

• A gɛt dɛmatomyositis ɔ ɔda sik?
• Us kayn tɛst dɛn a nid fɔ du?
• Us kayn tritmɛnt a nid, ɛn aw lɔng i go tek?
• A go nid fɔ gɛt kansa skrinin?

Na nɔmal tin fɔ fil rili fred we yu kam fɔ no se yu gɛt sik lɛk dɛmatomyositis.E kin shok for lan bɔt wan sik wae de kam wae yu de liv yu layf, wae kin kil yu. Bɔt tek am wan stɛp wan tɛm. Di kwik we dɛn no se yu gɛt di sik, na di mɔ yu kin bigin fɔ tek tritmɛnt kwik kwik wan.

Tɔk to yu dɔktɔ bɔt aw fɔ plan yu tritmɛnt ɛn aw fɔ mɛn yu sik dɛn. I go ɛksplen wetin fɔ ɛkspɛkt nɛks ɛn wetin chenj yu nid fɔ mek fɔ rɛdi fɔ if yu dermatomyositis simptom dɛn wɔs.

Tin dɛn fɔ mɛmba fɔ shɔt tɛm

Dɛmatomyosaytis na wan sik we nɔ kin apin so ɔltɛm we kin mek di mɔsul dɛn wik ɛn mek di skin gɛt rɔsh.

• Dis kin kam pan ɛnibɔdi, bɔt i kin apin mɔ pan pikin dɛn we ol 5-15 ia, big pipul dɛn we ol 40-60 ia, ɛn uman dɛn.
• I rili impɔtant fɔ go to dɔktɔ as yu notis di sayn dɛm. If yu trit yu kwik kwik wan, dat kin mek yu nɔ gɛt prɔblɛm dɛn.
• Pan ɔl we no mɛrɛsin nɔ de fɔ dis fɔ ɔltɛm, dɛn kin kɔntrol di sik dɛn wit tritmɛnt ɛn manejmɛnt.
• Tɔk bak to yu dɔktɔ bɔt yu kansa risk.
• Nɔ wɔri, nɔto yu wan de. If dɔktɔ ɛn pipul dɛn we yu lɛk ɛp yu, yu go ebul fɔ bia wit dis prɔblɛm.

` Dεrmatomyositis, mכsul wik, skin sik, rash, כtoimyun sik, kansa risk, fyzikal tεrapi