Yu pikin gɛt prɔblɛm bitwin in chɛst ɛn in bɛlɛ? Lɛ wi tɔk bɔt (Kɔnjɛnital Dayafragmatik Ɛnia - CDH)!

If yu na mama we go bi mama ɔ yu de op se nyu mɛmba go jɔyn yu famili, dis stori go rili impɔtant to yu. Sɔntɛnde, wi smɔl pikin dɛn kin kam na dis wɔl wit bɔn prɔblɛm dɛn we wi nɔ ivin yɛri bɔt. Dat na wan pan dɛn sityueshɔn dɛn we wi go tɔk bɔt tide, i kɔmplikt smɔl, bɔt i rili fayn fɔ no bɔt.

Wetin na CDH? Lɛ wi ɔndastand am simpul wan.

Okay, naw lɛ wi si wetin dis `(Congenital Diaphragmatic Hernia)` ɔ `(CDH)` na fɔ shɔt. Fɔ tɔk am simpul wan, dis na tin we kin apin we dɛn bɔn am. Dis kin apin we di pikin stil de na di bɛlɛ. wan mכsul de we de separet wi chεst εn bכdi, we wi kכl di `Diaphragm` . I tan lɛk wɔl we de sheb tu rum dɛn. if dis dayafragm nכ strכng, כ if ol de insay, di כgan dεm na di bכdi – dat na di bεlε, intestinal, liva, εn כda tin dεm – kin go insay di chεst kεviti. Na dat wi kin kɔl `(Hernia)`, ɔ hεnia.

Naw imajin wetin go apin if sɔntin lɛk dis apin we di pikin de gro na in bɛlɛ. We di ɔgan dɛn na di bɛlɛ muf go na di chɛst, nɔto inof ples de de, nɔto so? di men prכblεm na dat di lכng dεm nכ gεt inof rum fכ gro fayn fayn wan. we di lכng dεm sכm, dat min se we wan kכndyushכn we dεn kכl `(Pulmonary Hypoplasia)` apin, i kin at fכ brith afta i bכn, εn di bכdi nכ de gεt inof כksijεn. Nɔto dat nɔmɔ, bɔt di blɔd prɛshɔn na di lɔng dɛn kin go ɔp bak. Dis kin put bɔku prɛshɔn bak pan di at. fכ dat, pikin we gεt `(CDH)` nid spεshal mεdikal tritmεnt rayt afta dεn bכn am.

Wetin na di sayn dɛm fɔ pikin we gɛt CDH?

If yu pikin gɛt siriɔs prɔblɛm fɔ blo rayt afta dɛn bɔn am, i kin bi wan big sayn fɔ di sik (CDH). Apat frɔm dat, yu kin si tin dɛn bak lɛk:

• Wan at bit we rili fast (Tachycardia).
• Saynosis na di blush we di skin de chenj bikɔs i nɔ gɛt ɔksijɛn.
• Sawnd dεm we yu de blo we rili lכw (especially na wan sayd).
• Fɔ yɛri di sawnd we di intestinal dɛn de mek we yu put yu yes na di chɛst.
• Di chɛst de bɔl kɔmɔt ɛn i tan lɛk barɛl, ɛn i tan lɛk se di bɛlɛ de sink insay.

If yu pikin gɛt wan ɔ mɔ pan dɛn sik ya, i go fayn fɔ mek yu go to dɔktɔ wantɛm wantɛm.

Wetin mek dis CDH de divɛlɔp? Wetin na di tin dɛn we kin mek i apin?

I rili at fɔ mek dɔktɔ dɛn tɔk ɛksaktɔli wetin na di ɛksaktɔl kɔz fɔ dis ``(CDH)`` kɔndishɔn. Bɔt risach dɔn sho se dɛn tin ya kin apin:

• Di tin dɛn we kin mek pɔsin gɛt jɛnɛtiks: Dat na sɔm tin dɛn we kin pas frɔm jɛnɛreshɔn dɛn.
• Fɔ gɛt tin dɛn we de ambɔg yu we yu gɛt bɛlɛ: Tin dɛn lɛk sɔm kemikal dɛn ɛn sigrɛt.
• di pikin we di pikin nכ de it fayn: di pikin de gεt in it frכm di it we di mama de it.

Dis na di rizin dɛm naw, bɔt dɛn de du mɔ risach bɔt dis.

Us kɔmplikɛshɔn dɛn kin apin bikɔs ɔf CDH?

as wi bin dכn tכk bifo, bכku pikin dεm we gεt CDH gεt כnda divεlכp lכng (Pulmonary Hypoplasia). Dis kin mek wi gɛt difrɛn prɔblɛm dɛn:

• di כksijεn we de sכmtεm na di bכdi (Hypoxemia): Dis kin afekt כl di pikin in כgan dεm, spεshal wan di bren εn at. If dis sik tranga ɔr de kɔntinyu, i kin mek pɔrsin gɛt pwɛl hat fɔ lɔng tɛm.
• di ay blɔd prɛshɔn na di at na di lɔng dɛn (Pulmonary Hypertension): Dis kin put bɔku strɛs na di rayt say na di at ɛn i kin ivin mek di at nɔ wok fayn.
• Infεkshכn na di lכng: di lכng dεm we nכ de divεlכp fayn kin izi fכ gεt infεkshכn lεk nyumonia. Ivin afta dɛn dɔn mek di hεnia bak wit ɔpreshɔn, di risk fɔ gɛt dɛn sik ya kin kɔntinyu fɔ de ɔlsay na in layf.

apat frכm dis, pikin dεm we gεt `(CDH)` kin gεt כda prכblεm dεm:

• difεlεns fכ it: Dis kin bi bikoz fכ prεshכn pan di bכdi כgan dεm כ biכs fכ mכtalman mεdikal intavεnshכn dεm we dεn de bכn. Sɔm pikin dɛn kin nid fɔ gi dɛn tiub fɔ lɔng tɛm, ɛn dɛn kin gɛt bak se dɛn nɔ de gro fayn.
• Divεlכpmεnt Delay: sכm pikin dεm kin nid fכ fכs, tכk כ wok tεrapi fכ sכm tεm bikoz dεn nכ gεt כksijεn.
• Sensorineural Hearing Loss: Sɔm pikin dɛn we gɛt CDH kin lɔs dɛn yɛri smɔl smɔl. Sayɛnsman dɛn nɔ shɔ yet if na di sik insɛf, di tritmɛnt, ɔ ɔl tu de mek dis sik.

Imajin aw mama ɔ papa go fil lod we i yɛri sɔntin lɛk dis. Bɔt mɛmba se, mɛrɛsin sayɛns dɔn rili go bifo naw.

Aw dɔktɔ dɛn kin no se i gɛt CDH?

Bɔku tɛm, dɔktɔ dɛn kin no dis sik we dɛn de du ɔltrasɔund skan bifo yu bɔn ɔltɛm we yu gɛt bɛlɛ. We dɛn dɔn notis dɛn, dɛn go du ɔda tɛst dɛn. fכ egzampl, dεn go du fetal MRI fכ luk di hεnia klia wan. dεn go du di fetal εkokadyografi bak fכ si if di pikin in at dεn dכn afekt.

Sɔntɛnde, dɔktɔ dɛn nɔ kin notis CDH te afta dɛn bɔn di pikin. Afta di pikin bɔn, di mɛdikal tim kin sɔprayz if dɛn notis tin dɛn lɛk we i nɔ izi fɔ blo, di septum we de kɔmɔt na di bɔdi, ɔ di chɛst we de bɔl. Dɔn dɛn go du ɛkstrem rayt na dɛn chɛst ɛn ɛkokadiogram . Dɛn kin tek blɔd sɛmpul bak fɔ chɛk di pikin in blɔd ɔksijɛn ɛn fɔ chɛk fɔ ɔda tin dɛn we nɔ fayn na in jɛnɛtiks .

Na smɔl tɛm nɔmɔ, pikin dɛn we gɛt CDH nɔ kin sho ɛni big big sayn we dɛn bɔn dɛn. If di εnia rili smɔl, dɛn nɔ kin no am we i smɔl, ɔ ivin we i big.

Wetin na di tritmɛnt dɛm fɔ CDH?

Tritmɛnt fɔ dis sik, ``Congenital Diaphragmatic Hernia'', kin bigin jɔs afta dɛn no se i gɛt am. Yu kin fil frayd we yu yɛri bɔt dis tritmɛnt, bɔt mɛmba se dɔktɔ dɛn de du ɔltin fɔ protɛkt yu pikin.

Tritmɛnt bifo dɛn bɔn pikin

If dɛn no se yu gɛt CDH we yu gɛt bɛlɛ, yu dɔktɔ go wach yu gud gud wan. Dɛn go chɛk fɔ prɔblɛm wit ɔda ɔgan sistɛm dɛn, bikɔs sɔntɛnde i kin bi pat pan wan mɔ kɔmpleks kɔndishɔn. Dɛn go chɛk bak fɔ si if yu pikin go bɔn bifo tɛm (premature labor), ɛn if na so, dɛn go disayd if dɛn fɔ induce labor (induce labor) fɔ ɛp di pikin in wɛlbɔdi.

Sɔm spɛshal kes dɛm, di mɛdikal tim kin trit di pikin bifo dɛn bɔn di pikin. ``Fetoscopic Tracheal Occlusion (FETO)`` na wan pan dεn kayn fetal כpεrayshכn dεm ya. i de εp fכ mek di pikin in lכng dεm saiz εn wok fayn we di pikin de gro na di bεlε. dis dεn kin du am bay we dεn de yuz sכmכl kεmεra we dεn kכl ``Fetoscopy``, tru sכm sכm sכm say dεm we dεn mek tru yu skin insay yu uterus.

insay dis `(FETO)` prosidכs, di dכkta de put sכm sכm balכn insay di `(Trachea)` fכ di pikin. afta dat, di `(Amniotic Fluid)` we di pikin de sכlow de kכlekt bihayn di balכn εn insay di lכng dεm, we de mek di lכng dεm fכ blo. dis inflating de mek di lכng dεm gro εn wok fayn, εn i de εp fכ kכrekt sכm pan di damej we `(CDH)` de mek.

Tritmɛnt fɔ di pikin dɛn we dɛn jɔs bɔn

di pikin dεm we dεn bכn wit CDH kin nid intensiv kεriכn frכm spεshal tim rayt afta dεn bכn dεm. if di pikin in lכng dεm nכ fulכp (Pulmonary Hypoplasia), dεn go fכs gi am כksijεn sכpכt. Fɔ sɔm pikin dɛn, dis kin bi wan tiub we dɛn kin yuz fɔ blo we dɛn kɔnɛkt to wan mashin we dɛn kin yuz fɔ blo .

Sɔm bebi dɛn kin nid fɔ sɔpɔt dɛn layf mɔ ɛn mɔ. Dɛn kɔl dis Ɛkstrakɔpɔrial Mɛmbran Ɔksijɛn (ECMO) . Dis min se yu fɔ baypas di pikin in lɔng dɛn we nɔ machɔ ɛn sɔntɛnde di at, ɛn yuz mashin fɔ ad ɔksijɛn to di blɔd ɛn gi am bak to di pikin in bɔdi.

Neks, di pikin go nid fɔ gɛt ɔpreshɔn. Dɛn go kip di pikin na di Nionatal Intensive Care Unit (NICU) te di pikin stebul fɔ mek dɛn du am ɔpreshɔn. dis kin min te di ay blכd prεshכn na di lכng dεm (pulmonary hypertension) dכn sכbכt εn di εkstrakכpכrial mεmbran כksijεnεshכn (ECMO) nכ nid igen.

Fɔ di ɔpreshɔn, wan Pediatric Anesthesiologist go put di pikin fɔ slip ɔnda anestezi . Dɔn wan dɔktɔ we de mɛn pikin dɛn go du di ɔpreshɔn.Di ɔpreshɔn na fɔ muv di ɔgan dɛn we dɛn dɔn muf frɔm di chɛst bak insay di bɛlɛ ɛn fɔ mek di prɔblɛm we de na di dayafragm fayn. Bɔku tɛm, we na lɛk af pan ɔl di ɔpreshɔn dɛn, dɔktɔ dɛn kin ebul fɔ du wan ɔpreshɔn we nɔ de tek bɔku tɛm (MIS) we kin min fɔ kɔt smɔl smɔl pat dɛn we gɛt lɛk 3 milimita instead fɔ kɔt big wan .

Aw di tɛm fɔ wɛl kin tan lɛk?

As yu pikin de wɛl afta dɛn dɔn du am ɔpreshɔn, smɔl smɔl dɛn go lɛf yu ɔksijɛn. Yu go kɔntinyu fɔ gi yu tin fɔ it tru wan tiub te dɛn pul di tiub we yu de blo. Afta dat, di wan dɛn we de mɛn pipul dɛn we de tɔk ɛn di wan dɛn we sabi bɔt aw fɔ gi pikin milk go ɛp yu ɛn yu pikin fɔ bigin fɔ it bay mɔt. Sɔm pikin dɛn kin tek lɔng tɛm fɔ lɛf fɔ gɛt ɔksijɛn ɛn di tyub fidin pas ɔda wan dɛn. Yu mɛdikal tim go sɔpɔt yu as lɔng as nid de.

Wetin na di fiuja fɔ bebi dɛn we gɛt CDH?

di gud nyus na dat di rεt we di pikin dεm we dεn bכn wit CDH de liv bכku bכku wan. Bitwin 7 ɛn 9 pan 10 pikin dɛn kin liv. Pan ɔl we dɛn kin bɔn dɛn pikin ya wit bad bad tin dɛn we kin apin to dɛn, if dɛn pas di fɔs de dɛn, di chans fɔ liv kin bɛtɛ pasmak. Sɔm pikin dɛn kin gɛt prɔblɛm dɛn we kin de fɔ lɔng tɛm, bɔt dɛn kin liv lɔng ɛn ful layf bak. Wit di advans na di mεdikal sayns, di rεt fכ sכt tεm rεt εn di lכng tεm hεlth autkam de bכku de bכku.

Di prɔgnosis fɔ lɔng tɛm de dipen pan sɔm tin dɛm:

• Yu tink se dɛn bɔn di pikin bifo tɛm?
• Aw bad di pikin in kɔndishɔn bin de we dɛn bɔn am.
• Di sayz fɔ di hεnia.
• Us ɔgan dɔn go insay di chɛst?
• Ɛni ɔda prɔblɛm dɛn de we gɛt fɔ du wit wɛlbɔdi biznɛs?

Bebi dεm we nid εp fכ brith כ fכ it fכ lכng tεm kin gεt hכy risk fכ gεt kכmplikεshכn dεm we de kכntinyu, lεk di lכng sik we de kכlכs, fכ gro fayn, dεn nכ de yεri, εn dεn de delay fכ divεlכpmεnt. Yu pikin in dɔktɔ go de wach dɛn gud gud wan ɔlsay na dɛn fɔs ia.

Fɔ no se yu pikin gɛt dayafragmatik ɛnia we dɛn bɔn wit, i kin rili mek yu fred ɛn i kin mek yu at pwɛl. Dɛn go kɛr yu pikin go na di intensiv kia yunit (ICU) rayt afta dɛn bɔn am, ɛn i kin ivin gɛt fɔ de na ɔspitul fɔ lɔng tɛm. Bɔt we di tin dɛn we dɛn dɔn lan bɔt mɛrɛsin dɔn go bifo, di we aw pipul dɛn de si dis sik dɔn bɛtɛ pas aw dɛn bin de si am trade. Pan ɔl we dis na tranga tɛm, wan tim we gɛt dɔktɔ ɛn nɔs dɛn de ya fɔ ɛp yu ɛn yu nyu bɔbɔ. Dɛn go sɔpɔt yu frɔm di tɛm we dɛn no di sik, ɔlsay na yu pikin in yɔŋ layf.

Tin dɛn we wi nid fɔ mɛmba

Pan ɔl we dis sik we dɛn kɔl `(Congenital Diaphragmatic Hernia - CDH)` siriɔs smɔl, if yu no am bifo tɛm, yu kin fes am we yu nɔ panik.

• CDH na wan kכndyushכn we de apin we dεn bכn am εn i de mek di כgan dεm na di bכdi muv insay di chεst bikoz fכ difεkt na di dayafragm.
• dis kin mεntal afekt di divεlכpmεnt fכ di lכng dεm.
• yu kin no dis tru skan we yu bεlε.
• Dɛn nid spɛshal tritmɛnt ɛn ɔpreshɔn jɔs afta dɛn bɔn dɛn.
• We dɛn dɔn go bifo pan mɛrɛsin sayɛns, bɔku pan dɛn pikin ya kin ebul fɔ liv gud layf.

If yu gɛt ɛni ɔda kwɛstyɔn ɔ wɔri bɔt dis, mek shɔ se yu tɔk to yu dɔktɔ ɔ nɔs. Dɛn kin gi yu mɔ infɔmeshɔn ɛn ɛp yu fɔ pul di strɛs na yu maynd. Mɛmba se nɔto yu wangren de.

` CDH, Kongenital Dayafragmatik Hεnia, Dayafragmatik hεnia, Bכn difεkt, lכng divεlכpmεnt, Bebi hεlth, כpεrayshכn