Yu dɔn ɛva notis se sɔm pipul dɛn gɛt rɛd rɛd say dɛn we de ɔp smɔl na dɛn fes, dɛn chɛst, ɔ dɛn ed? Sɔntɛnde, dɛn tin ya nɔ kin it ɔ at. Pan ɔl we bɔku pipul dɛn kin tink se dis na nɔmal tin we kin apin to dɛn skin, dis kin bi tin we kin mek dɛn pe atɛnshɔn to am smɔl. Tide wi de tɔk bɔt wan sik we dɛn kɔl ‘Discoid Lupus’ we kin mek dɛn gɛt dɛn sik ya. Pan ɔl we dis na nem we yu nɔ sabi smɔl, i rili impɔtant fɔ no bɔt am.
Fɔ tɔk am simpul wan, wetin na Diskoid Lupus?
Diskoid Lupus, we dεn kכl mכr prεsishכn as `Discoid Lupus Erythematosus (DLE),` na wan kכndyushכn we de afekt wi skin dεn wan dεm. i de pan di `Cutaneous Lupus Erythematosus (CLE)` klasification fכ lupus. di wod `Cutaneous' min `related to the skin.` Dis min se dis kayn lupus kin afekt wi skin men wan.
Pɔsin we gɛt diskoid lupus kin gɛt rawnd, rɛd, rayz smɔl, ɛn tik tik na in skin, mɔ na in fes, in chɛst, in nos, ɛn in skel. Dɛn tin ya kin bi krɔs as tɛm de go. Dɛn kin kɔl dis bak kronik cutaneous lupus. Kronik min fɔ lɔng tɛm.
So wetin na ‘Lupus’?
We wi de tɔk bɔt ‘lupus’, bɔku tɛm wi kin tɔk bɔt wan sik we dɛn kɔl `Systemic Lupus Erythematosus (SLE).` Dis na di kayn lupus we kin bɔku pas ɔl. Na lɛk 70 pan ɔl 100 pipul dɛm wae gɛt lupus gɛt dis sik.
Naw, luk, pan ɔl we diskoid lupus (DLE) kin afɛkt di skin mɔ, di kayn we dɛn kɔl SLE kin afɛkt di wan ol bɔdi. Na dat ‘systemic’ min. Na wan sik we pɔsin kin gɛt we i de fɛt insɛf . Fɔ tɔk am simpul wan, di difɛns sistɛm na wi bɔdi, we na di imyun sistɛm, kin go hayway ɛn bigin fɔ atak wi yon sɛl ɛn tisu dɛn we gɛt wɛlbɔdi. Dis kin mek di bɔdi inflamɛns, ɔ inflamɛns, ɔlsay na di bɔdi.
Pɔsin wae gɛt SLE kin gɛt sɔm kayn sik lɛk dis:
- Fiva we kin kam fɔ natin
- Jɔyn pen ɛn swel
- Fɔ taya ɔltɛm
- Chɛst de pen
- Di we aw difrɛn spat ɛn blemish dɛn de na di skin
- Sɛnsitiviti to san layt (fɔtosɛnsitiviti) .
Di impɔtant tin na dat nɔto ɔlman we gɛt diskoid lupus go gɛt sistɛm lupus erythematosus (SLE), we kin afɛkt di wan ol bɔdi. Wi go tɔk bɔt dat smɔl leta.
Wetin na di kayn lupus (CLE) wae kin afɛkt di skin?
As wi bin dɔn tɔk, diskoid lupus na wan kayn lupus we kin afɛkt di skin. Tri men kayn dɛn de. Ɛni kayn we gɛt smɔl difrɛn patɛn fɔ di skin lɛsin dɛn.
| Tayp fɔ di sik we dɛn kɔl lupus | Di kayn we aw di skin spat dɛn tan |
|---|---|
| Diskoid Lupus we gɛt di sik | Raun, tik, rɛd, skel spat, lɛk kɔyn. Bɔku tɛm, i kin apia na di fes, yes, ɛn ed. |
| Subakut Kutan Lupus we de na di bɔdi | Pat dɛn we tan lɛk ring ɔ we gɛt skel. Bɔku tɛm, i kin apia na di chɛst, bak, ɛn nɛk. |
| Akyu Cutaneous Lupus we de mek pɔsin gɛt sik | Dis na di say we di fambul "bɔtaflay rash" kin apin. Wan rɛd, we tan lɛk we di san bɔn, de kɔmɔt na di chɛst ɛn di nos. |
Sɔmbɔdi kin gɛt pas wan kayn lupus?
Yɛs, i kin apin. Sɔm pipul dɛn kin gɛt wan kayn lupus nɔmɔ. Dat min se sɔm pipul dɛn kin gɛt SLE nɔmɔ, ɛn ɔda wan dɛn kin gɛt DLE nɔmɔ. Bɔt sɔntɛnde pɔrsin kin gɛt pas wan kayn lupus di sem tɛm.
Bɔt mɛmba dis. Bɔrku pipul dɛm wae gɛt diskoid lupus (DLE) nɔr gɛt systemic lupus erythematosus (SLE), we kin afɛkt di wan ol bɔdi. Na lɛk 5% pan di pipul dɛm wae gɛt DLE, ɔr lɛk 5 pan ɛvri 100, go leta gɛt SLE. Dɔn bak, lɛk wan kwata (25%) pan di pipul dɛn we gɛt SLE go gɛt lɛsin dɛn na dɛn skin we fiba di wan dɛn we dɛn kin si na diskoid lupus. So wan link de bitwin di tu kɔndishɔn, bɔt nɔto ɔlman we gɛt wan go divɛlɔp di ɔda wan.
Wetin kin mek pɔsin gɛt diskoid lupus? Udat dɛn de pan denja pas ɔlman?
Infakt, dɔktɔ dɛn stil nɔ no di rayt tin we kin mek pɔsin gɛt lupus, ivin diskoid lupus. Bɔt i klia se na sɔntin we nɔ rayt na wi imyun sistɛm de mek i apin. Dɔn bak, dis sik kin kam na famili . Dis min se if pɔrsin na yu famili gɛt ɔtoimyun sik lɛk lupus, yu kin de pan denja bak.
Lɛ wi tek wan luk pan udat de pan ay risk fɔ gɛt diskoid lupus.
| Risk factor | Tɔk bɔt |
|---|---|
| Bɔy ɔ gal | Uman dɛn kin gɛt dis sik pas man dɛn. |
| Ej | I kin apin mɔ pan pipul dɛm wae ol bitwin 15 ɛn 44. I kin pasmak pan uman dɛm wae dɔn pas 30 ɛn 40 ia. |
| Skin kɔlɔ/rɛs | Risach dɔn sho se pipul dɛn we gɛt dak skin (e.g., di wan dɛn we kɔmɔt na Afrika ɔ Eshia) kin gɛt dis sik pas di wan dɛn we gɛt layt skin . |
Wetin na di simptom ɛn kɔmplikeshɔn dɛm fɔ diskoid lupus?
Di men sayn na di diskoid lεsin dεm we wi bin tכk bכt.
- Usay: Dɛn kin si am mɔ na di skel ɛn fes, bɔt i kin apin bak na ɔda pat dɛn na di bɔdi, mɔ di say dɛn we di san de shayn.
- Di tin dɛn we yu kin du: Bɔku tɛm, dɛn spat ya nɔ kin mek pɔsin fil pen, ɛn dɛn nɔ kin it . Dɛn kin rɛd, dɛn kin ay smɔl, ɛn sɔntɛnde dɛn kin tan lɛk skel na di say we dɛn de.
- Leta tin dɛn we kin apin: Afta dɛn spat ya dɔn wɛl, dɛn kin gɛt skata ɛn dɛn kin chenj di kɔlɔ . Sɔntɛnde di skin kin tɔn wayt ɔ brawn/blak.
Sɔm prɔblɛm dɛn we kin apin
- Di ia we de lɔs: If dɛn spat ya de na di ed, di ia we de na da say de kin fɔdɔm. Di tin we bad pas ɔl na dat if ska kam na da say de, di ia kin stɔp fɔ gro fɔ ɔltɛm .
- Di risk fɔ gɛt kansa na di skin:If yu gɛt diskoid lupus spat fɔ lɔng tɛm, na rili smɔl inkris risk de fɔ gɛt kansa na yu skin na dɛn say dɛn de. Ɛspɛshali if dɛn spat ya de kam insay di mɔt, i kin mek yu gɛt wan kayn kansa na yu skin we dɛn kɔl squamous cell carcinoma.
- Chilblain Lupus: Dis na wan sik we nɔ kin apin so ɔltɛm. pan dis kכndyushכn, pepul spat כ pat dεm de sho na di skin we i de kol. Dɛn tin ya kin rili mek pɔsin fil pen.
Aw fɔ no bɔt dis sik?
If yu gɛt dɛn sik ya, di bɛst tin fɔ du na fɔ go to dɔktɔ we de mɛn yu skin . I go chɛk yu ɛn rɔn tɛst fɔ no if yu gɛt di sik.
Dɛn kɔl dis skin bayɔpsi . Dis involv fɔ tek wan rili smɔl pat pan di skin frɔm di say we di spat de ɔnda anestezi. Dɔn dɛn kin sɛn am na lab ɛn chɛk am ɔnda maykroskɔp. We wi luk di chenj dɛn we de apin na dɛn sɛl dɛn de, wi kin no fɔ tru if na diskoid lupus ɔ ɔda sik na di skin.
Wetin na di tritmɛnt dɛn?
Diskoid lupus nɔ kin ebul fɔ mɛn ɔl. Bɔt, tritmɛnt kin ɛp fɔ kɔntrol di sayn dɛm, fɔ mek yu nɔr gɛt nyu flawa, ɛn ɛp yu fɔ liv nɔrmal layf. Yu dɔktɔ go gi yu di rayt tritmɛnt fɔ yu bay aw yu sik bad bad wan.
Sɔm pan di men tritmɛnt dɛn we dɛn kin yuz, de dɔŋ ya.
| Di kayn tritmɛnt we dɛn kin gi | Fɔ wok ɛn ɛgzampul dɛn |
|---|---|
| Steroid Ɔntmɛnt dɛn | Dis na krim dɛn we dɛn kin put dairekt pan di rash. Dɛn kin ridyus di inflamɛns ɛn swel na di skin. fכ egzampl: `fluocinolone acetonide`, `haydrokortison butyrate`. |
| Drugs fɔ mɛn malaria | Dis na pils we yu de tek. Nɔr sɔprayz, di mɛrɛsin dɛm wae dɛn kin yuse fɔ malaria kin woke fayn bak fɔ lupus. Dɛn kin ɛp fɔ ridyus di spat dɛn na di skin ɛn fɔ mek pɔsin nɔ taya. Fɔ ɛgzampul: `haydroksiklorokin (Plaquenil®)`. |
| Drɔg dɛn we de kɔntrol di imyun (Calcineurin Inhibitors) . | Dis na kayn ɔntmɛnt dɛn bak. Dɛn kin kɔntrol di wok we di imyun sistɛm de du to sɔm mak ɛn ridyus di inflamɛns. Fɔ ɛgzampul: `takrolimus`, `pimɛkrɔlimus`. |
| Ɔda mɛrɛsin dɛn we de mek pɔsin nɔ gɛt inflammatory | If di sik rili bad, dɔktɔ dɛn kin gi yu mɛrɛsin bak we dɛn kin it lɛk dapsone ɛn methotrexate. |
Impɔtant: Ɛni wan pan dɛn tritmɛnt ya fɔ jɔs bigin bay dɔktɔ advays . Nɔ yuz mɛrɛsin fɔ yusɛf.
Aw fɔ mek yu nɔ gɛt flawa?
Na dis na wetin ɛnibɔdi we gɛt diskoid lupus nid fɔ no. Fɔ lɛk 70% pan di wan dɛn we gɛt lupus, di sik kin wɔs we dɛn de pan ɔltra vayolɛt (UV) layt frɔm di san. Dis min se nyu spat dɛn kin apia, spat dɛn we dɔn de kin tɔn rɛd, ɔ big. Dis impɔtant mɔ fɔ pɔsin we de liv na kɔntri lɛk wi yon we gɛt strɔng san ɔlsay na di ia.
Fɔ protɛkt yusɛf frɔm di san ɛn fɔ mek di sik nɔ wɔs, du dɛn tin ya:
- Put tin we de protɛkt yu frɔm di san ɛvride bifo yu go na di san. Pik wan brayt-spɛktrum (we de protɛkt frɔm ɔl tu di UVA ɛn UVB) sanskrin wit at le SPF 30 .
- I fayn fɔ yuz sanskrin nɔto jɔs we yu de go na do, bɔt bak we yu de insay os, mɔ if yu de nia winda.
- Riaplay sanskrin ɛvri 4 awa. Put am bak bifo yu swet ɔ go insay di wata.
- Nɔ mek di san gɛt strɔng layt bitwin 10 oklɔk ɛn 4 oklɔk na nɛt as yu ebul.
- We yu de go na do, yuz tin dɛn lɛk klos we gɛt lɔng sliv, hat we gɛt wayd brim, ɛn ambɔla .
- Ivin fluorescent layt dɛn we de insay os kin mek sɔm UV rayt dɛn kɔmɔt, so nɔ de ɔnda dɛn kayn layt dɛn de fɔ lɔng tɛm.
- Nɔ ɛva yuz bed fɔ tan .
If yu fala dɛn step ya fayn fayn wan, yu go ebul fɔ kɔntrol yu sik dɛn to bɔku bɔku wan.
Mɛsej we dɛn kin kɛr go na os
- Diskoid lupus na wan kayn lupus we kin de fɔ lɔng tɛm ɛn we kin mɔs afɛkt di skin.
- Dis kin mek say dɛn we gɛt rawnd, rɛd, we tan lɛk kɔyn, de na di fes ɛn di skel. Bɔku tɛm, dɛn tin ya nɔ kin at ɔ it.
- Pan ɔl we dɛn nɔ kin ebul fɔ mɛn am ɔl, dɛn kin kɔntrol di sik dɛn fayn fayn wan wit mɛrɛsin.
- Fɔ protɛkt yusɛf frɔm di san na sɔntin we yu fɔ du! Yuz sanskrin ɛvride ɛn avɔyd bad bad san layt rili impɔtant fɔ mek di sik nɔ wɔs.
- If yu gɛt spat lɛk dis na yu skin, go mɔs go to dɔktɔ we de mɛn yu skin fɔ advays.
- Nɔ skrach ɔ pik pan di blemish dɛn na di skin. Dis kin mek yu gɛt skata ɛn infekshɔn.
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