Sɔntɛnde, di imyun sistɛm we de protɛkt wi bɔdi kin wok pasmak ɛn bigin fɔ atak wi yon gud sɛl dɛn. I tan lɛk se di ami we de protɛkt di kɔntri de atak in yon pipul dɛn. Dis na wan sik we nɔ kin bɔku bɔt we rili siriɔs we dɛn kɔl Ɛmophagocytic Lymphohistiocytosis, ɔ HLH fɔ shɔt tɛm. So, tide wi de tɔk bɔt wan spɛshal mɛrɛsin we dɔktɔ dɛn kin yuz fɔ kɔntrol di ɔvaaktiv imyun sistɛm insay tɛm lɛk dis.
Fɔ tɔk am simpul wan, wetin na Emapalumab?
Emapalumab (brand nem Gamifant) na wan mɛrɛsin we dɛn kin yuz fɔ trit di sik we dɛn kɔl Hemophagocytic Lymphohistiocytosis (HLH) , we kin mek yu inflamɛns bad bad wan ɛn pwɛl di tisu dɛn ɔlsay na di bɔdi.
So wetin dis mɛrɛsin de du na fɔ kɔntrol dis ɔva aktiviti na wi imyun sistɛm ɛn mek i wok smɔl mɔ smol. I tan lɛk se yu de kɔntrol di brek na motoka we de spid. we di imyun sistεm slo dis we, di inflameshn εn damej we de kכz na di bכdi de rεdכks. We wi de tɔk bɔt mɛrɛsin, dis de pan wan klas we dɛn kɔl monoklɔnal antibodi .
Yu dɔktɔ kin gi yu dis mɛrɛsin bak fɔ ɔda mɛrɛsin, so if yu gɛt ɛni kwɛstyɔn, aks yu dɔktɔ.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin dis mɛrɛsin
Bifo yu bigin dis tritmɛnt, i rili impɔtant fɔ tɛl yu dɔktɔ yu kɔmplit wɛlbɔdi istri . Ɛspɛshali if yu gɛt ɛni wan pan dɛn tin ya:
- If yu gɛt infekshɔn naw: Tɛl yu dɔktɔ bɔt ɛni infekshɔn we yu gɛt, lɛk fiva, kɔf, ɔ kol . Dis mɛrɛsin kin ridyus di imyun sistɛm in ebul fɔ fɛt infɛkshɔn.
- If yu jɔs gɛt di vaysin ɔ yu dɔn arenj fɔ gɛt wan tumara bambay: Vaysin, mɔ di layf vayrɔs vaysin, kin intarakt wit dis mɛrɛsin.
- Bɔt Tubakulosis (TB): .If yu bin dɔn gɛt TB bifo, yu bin dɔn de nia pɔsin we gɛt TB, ɔ yu dɔn gɛt TB tɛst fɔ yu skin, yu fɔ tɔk bɔt dis.
- Ɔda Alɛji : Tɛl yu dɔktɔ if yu gɛt ɛni alɛji to dis mɛrɛsin, Emapalumab, ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- If yu gɛt bɛlɛ ɔ yu de tray fɔ gɛt bɛlɛ: Tɔk to yu dɔktɔ bɔt aw dis mɛrɛsin kin afɛkt di bɛlɛ.
- If yu na mama we de gi pikin in bɛlɛ: Go to dɔktɔ fɔ advays if dis mɛrɛsin de pas to yu pikin tru in mama in milk.
Aw yu kin gɛt dis mɛrɛsin?
Dis nɔto mɛrɛsin we yu kin kɛr go na os. Emapalumab na injεkshכn insay yu bכdi tru wan vein ( infushכn ). Dis min se na ɔspitul ɔ klinik we tren fɔ mɛn pipul dɛn kin gi yu.
Impɔtant: Dɛn dɔn gi yu dis mɛrɛsin fɔ yu nɔmɔ. Nɔ sheb am wit ɛni ɔda pɔsin fɔ ɛni rizin.
Yu tink se dɛn kin gi dis mɛrɛsin to smɔl pikin dɛn?
Yɛs, dɛn kin gi dis mɛrɛsin fɔ sɔm mɛrɛsin dɛn we dɛn dɔn pik, ivin fɔ pikin dɛn we dɛn jɔs bɔn. Bɔt na spɛshal dɔktɔ kin disayd fɔ du dis afta we i dɔn tek tɛm chɛk di pikin in kɔndishɔn. So if yu de gi pikin dis mɛrɛsin, tɔk bɔt am gud gud wan wit di dɔktɔ.
Wetin fɔ du if yu tek bɔku mɛrɛsin?
Dɛn kin gi dis na ɔspitul, so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se yu dɔn tek di mɛrɛsin pasmak, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
I rili impɔtant fɔ tek yu mɛrɛsin di rayt tɛm ɛn di de dɛn we dɛn dɔn sɛtul fɔ tek dis tritmɛnt. So, nɔ mis yu dɔktɔ in apɔntinmɛnt. If fɔ sɔm rizin yu nɔ ebul fɔ go di de we yu dɔn sɛtul, kɔl yu dɔktɔ ɔ di mɛdikal tim wantɛm wantɛm ɛn mek dɛn no.
Tin dɛm wae yu fɔ mɛmba wae yu de trit yu
Yu dɔktɔ go de chɛk yu ɔltɛm we yu de tek dis mɛrɛsin.
- TB Tɛst: Bifo yu bigin dis tritmɛnt, dɛn go tɛst yu fɔ TB. If yu dɔktɔ gi yu mɛrɛsin fɔ TB, yu fɔ bigin tek am bifo yu bigin fɔ tek Emapalumab ɛn dɔn am fɔ di ful tɛm we dɛn gi yu.
- Risk fɔ gɛt di sik:Dis mɛrɛsin kin mek yu imyun sistɛm nɔ wok fayn, we kin mek yu gɛt mɔ sik. So, if yu gɛt fiva, kol, trot we de at, ɔ ɔda tin dɛn we tan lɛk kol , nɔ fɔ mɛn yusɛf ɛn kɔl yu dɔktɔ wantɛm wantɛm fɔ advays. Tray fɔ de fa frɔm pipul dɛn we sik.
Sayd ɛfɛkt dɛn we kin apin bikɔs ɔf mɛrɛsin
Lɛk ɛni mɛrɛsin, dis mɛrɛsin kin mek pɔsin gɛt sayd ɛfɛkt. Bɔt, nɔto ɔlman kin gɛt dɛn. Sɔm pipul dɛn kin gɛt dɛn, ɛn sɔm nɔ kin gɛt dɛn atɔl. Dis dɔŋ ya na sɔm pan di sayd ɛfɛkt dɛm we pɔsin kin gɛt.
| Tayp fɔ di sayd ɛfɛkt | Tɔk bɔt |
|---|---|
| Tin dɛn fɔ tɛl yu dɔktɔ wantɛm wantɛm | |
| Riakshɔn dɛn we pɔsin kin gɛt we i gɛt alɛji | Skin rash, it, swel na di fes, lip, tong ɔ trot. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf, trot we de at, wund we nɔ de wɛl, pen we yu de pis, ɛn jenɛral bɔdi diskɔmfɔt. |
| Riakshɔn dɛn we pɔsin kin du wit di infushɔn | Chɛst pen, i nɔ kin izi fɔ blo, i kin fɔdɔm, ɔ i kin fil lɛk se i de tɔn. |
| Ɔda siriɔs sayn dɛn | Bɛlɛ pen, fil taya ɔ wik pasmak, nɔs, vɔmit, dayarɛa, ɔ fiva we nɔ de dɔn. |
| Bɔku tɛm i nɔ kin siriɔs (bɔt tɛl yu dɔktɔ if i kɔntinyu fɔ de) . | |
| Smɔl smɔl sayd ɛfɛkt dɛn | Kɔnstipɛshɔn, kɔf, dayarɛa, bɛlɛ pen. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn. If yu notis ɛnitin we nɔ kɔmɔn apat frɔm dɛn tin ya, tɔk to yu dɔktɔ bɔt am.
Mɛsej we dɛn kin kɛr go na os
- Emapalumab na spɛshal mɛrɛsin we dɛn kin gi fɔ trit HLH, we na siriɔs tin we kin kam bikɔs ɔf di imyun sistɛm we de wok pasmak.
- Bifo yu bigin dis tritmɛnt, tɛl yu dɔktɔ ɔl yu wɛlbɔdi infɔmeshɔn, mɔ ɛni histri bɔt infɛkshɔn, alɛji, ɛn TB.
- We yu de du tritmɛnt, tek tɛm bad bad wan bɔt di sayn dɛm we de sho se yu gɛt di sik, lɛk fiva ɛn kol. If yu gɛt ɛni wan pan dɛn tin ya, tɛl yu dɔktɔ wantɛm wantɛm.
- Nɔ skip yu dɔktɔ in apɔntinmɛnt dɛn. I rili impɔtant fɔ tek yu mɛrɛsin dɛn di rayt tɛm.
- Dɛn kin jɔs gi dis mɛrɛsin na ɔspitul ɔ klinik ɛn dɛn nɔ kin kɛr am go na os.
- If yu gɛt ɛni kwɛstyɔn ɔ dawt bɔt dis mɛrɛsin, aks yu dɔktɔ fɔ mek i klarify.
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