I nɔmal fɔ fil frayd ɛn shɔk we yu kam fɔ no se yu pikin ɔ yu fambul mɛmba gɛt wan sik we nɔ kin apin so ɔltɛm, we kin rili siriɔs lɛk praymari ɛmofagosaytik limfohistiɔsaytɔsis (HLH). Na dis kayn tɛm, i impɔtant fɔ mek yu no ɔltin bɔt di tritmɛnt dɛn we yu dɔktɔ tɛl yu fɔ du. Tide, wi de tɔk bɔt wan spɛshal vaysin we dɛn kɔl Emapalumab, we dɛn kin yuz fɔ kɔntrol di sayn dɛm fɔ dis sik.
Fɔ tɔk am simpul wan, wetin na Emapalumab?
Emapalumab na wan spɛshal kayn mɛrɛsin we dɛn kɔl monoklonal antibodi . Tink bɔt am lɛk wan prɔtin we dɛn mek spɛshal wan na lab fɔ kɔntrol di wok we wan patikyula pat pan wi bɔdi in imyun sistɛm de du.
Naw lɛ wi si aw dis kin ɛp wit HLH. insay HLH, wi bכdi in imyun sistεm de bi ova aktif εn bigin fכ atak hεlty sεl dεm. Emapalumab de wok bay we i de blok wan kεmikכl signal we dεn kכl intafεron-gama we de mek dis כva aktiviti, we de mek di imyun sistεm kol.
Di tin we impɔtant pas ɔl: Dis nɔto mɛrɛsin fɔ HLH, bɔt i de ɛp fɔ kɔntrol di bad bad sayn dɛm fɔ di sik ɛn sɔpɔt di bɔdi fɔ mek i wɛl.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin dis mɛrɛsin
Bifo yu bigin dis tritmɛnt, i impɔtant fɔ gi di dɔktɔ yu ɔ di pɔsin in kɔmplit wɛlbɔdi istri. Mek shɔ se yu tɔk mɔ bɔt dɛn pɔynt dɛn ya.
- Infεkshכn dεm naw: If yu gεt eni infεkshכn naw lεk fiva, kכf, כ kol.
- Bɔt di vaysin: If yu jɔs gɛt ɛni vaysin, ɔ yu de plan fɔ gɛt wan tumara bambay.
- Tuberculosis (TB): Yu fɔ tɛl yu dɔktɔ if yu dɔn gɛt TB bifo, yu dɔn gɛt TB tɛst fɔ yu skin, ɔ yu nɔ tu te yet we yu dɔn de nia pɔsin we gɛt TB.
- Alɛji: If yu gɛt alɛji to dis Emapalumab mɛrɛsin ɔ ɛni ɔda mɛrɛsin, it, ɔ day.
- Bεlε εn bεlε: If yu bεlε, yu de tray fכ bεlε, כ yu de gi bεlε.
Bay dis infɔmeshɔn, yu dɔktɔ go disayd if i fayn fɔ gi yu dis mɛrɛsin ɛn us spɛshal tin dɛn fɔ tek tɛm wit yu fɔ fala.
Aw dɛn kin gi dis mɛrɛsin?
Emapalumab na injεkshכn we dεn kin gi insay wan vein (infushכn). Yu nɔ go ebul fɔ yuz am na os. Na pɔsin we tren fɔ kia fɔ wɛlbɔdi biznɛs na ɔspitul ɔ klinik kin gi am. Dɛn go de wach yu gud gud wan di tɛm we yu de trit yu ɛn afta yu dɔn du yu tritmɛnt.
Dɛn kin gi dis mɛrɛsin to pikin dɛn we gɛt ɛni ej, frɔm pikin dɛn we dɛn jɔs bɔn to pikin dɛn, we nid de. Bɔt dɛn kin tek tɛm we dɛn de gi pikin dɛn spɛshal tin. Yu kin tɔk to yu dɔktɔ we de mɛn pikin dɛn fɔ no mɔ.
Wetin a go du if a mis wan doz fɔ tek mɛrɛsin?
Dɛn kin gi dis tritmɛnt pan wan schedule we dɛn dɔn plan fɔ du. So, i rili impɔtant fɔ mek yu nɔ mis yu dɔktɔ apɔntinmɛnt. If fɔ sɔm rizin yu nɔ ebul fɔ go di de we dɛn dɔn plan fɔ go, kɔl yu dɔktɔ ɔ di ɔspitul wantɛm wantɛm ɛn mek dɛn no.
Wetin a go du if a tek bɔku mɛrɛsin?
Dɛn kin gi dis na ɔspitul say so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se yu dɔn tek di mɛrɛsin tumɔs, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta wantɛm wantɛm na di Kɔlɔmbɔ Nashɔnal Ospital , ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) we de nia yu .
Tin dɛn we yu fɔ tink bɔt we yu de du tritmɛnt
- Tubakulosis (TB) tɛst: Bifo yu bigin dis mɛrɛsin, dɛn go tɛst yu fɔ TB (TB). If yu dɔktɔ gi yu mɛrɛsin fɔ TB, yu fɔ bigin tek di mɛrɛsin bifo yu bigin fɔ yuz Emapalumab ɛn dɔn am fɔ di ful tɛm we dɛn gi yu.
- Risk fɔ gɛt infɛkshɔn: Bikɔs dis mɛrɛsin de stɔp di imyun sistɛm, di risk fɔ gɛt infɛkshɔn kin go ɔp smɔl. So, if yu gɛt sɔm sayn dɛn lɛk fiva, kol, trot we de at, ɔ kɔf , nɔ fɔ mɛn yusɛf ɛn tɛl yu dɔktɔ wantɛm wantɛm. Tray fɔ de fa frɔm pipul dɛn we sik.
- Ɔda mɛrɛsin dɛn: Tɛl yu dɔktɔ bɔt ɛni ɔda mɛrɛsin, vaytamɛn, ɔ ɛbul mɛrɛsin we yu de tek. Na mɔtalman, yu fɔ avɔyd fɔ gɛt layf vayrɔs vaysin we yu de tek dis tritmɛnt.
Us sayd ɛfɛkt dɛn we a go gɛt?
Lɛk ɔl mɛrɛsin, Emapalumab kin mek yu gɛt sayd ɛfɛkt, pan ɔl we nɔto ɔlman kin gɛt am.
| Sayd Ifɛkt dɛn we kin apin | |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip ɔ tong. |
| I nɔ kin izi fɔ yu fɔ blo | Short brith, inkris brith rεt. |
| At bit we pɔsin de bit | Fɔ fil lɛk se yu at de bit fast fast. |
| Di ay blɔd prɛshɔn | Blɔd prɛshɔn we de go ɔp. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf, trot we de at, pen we yu de pis. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Bɛlɛ de at, kɔnstipɛshɔn, dayarɛa, vɔmit. |
| Ɔda tin dɛn we de apin | Kɔf, nɔ de rɛst (espɛshali pan pikin dɛn), pen, rɛd, ɔ swel na di say we dɛn injekt am. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛnitin we difrɛn, duya go to dɔktɔ fɔ advays.
Mɛsej we dɛn kin kɛr go na os
- Emapalumab na spɛshal mɛrɛsin we dɛn kin injɛkt insay wan vein fɔ kɔntrol di simptom dɛm fɔ siriɔs HLH.
- Pan ɔl we dis nɔ kin mɛn di sik ɔltogɛda, i rili impɔtant fɔ kɔntrol di sayn dɛm.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ ɔl yu wɛlbɔdi infɔmeshɔn, mɔ bɔt infɛkshɔn, alɛji, ɛn TB.
- We yu de du tritmɛnt, tek tɛm bad bad wan bɔt di sayn dɛm we de sho se yu gɛt di sik lɛk fiva, kɔf, ɛn alɛji. If yu gɛt ɛni prɔblɛm, tɛl yu dɔktɔ wantɛm wantɛm.
- Bikɔs dɛn kin gi dis mɛrɛsin na ɔspitul, mek shɔ se yu go fɔ tritmɛnt di de dɛn we dɛn dɔn sɛtul.
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