Yu tink se pat pan yu pikin in bren de kɔmɔt na in ed? Dɛn kɔl dis ɛnsɛfalosil!

Yu go dɔn si, ɔ yɛri se dɛn kin bɔn sɔm pikin dɛn wit smɔl ol na dɛn skel, ɛn wan pat pan dɛn bren kin kɔmɔt na do. Na nɔmal tin fɔ mek ɛni mama ɔ papa fred we dɛn si dis. Tide wi go tɔk bɔt dis sik we dɛn kɔl ɛnsɛfalɔs. Nɔ wɔri, wi go tɔk bɔt am ditayli ɛn simpul wan.

Wetin na Ɛnsɛfalɔs?

Fɔ tɔk am simpul wan, ɛnsɛfalɔs na wan prɔblɛm we dɛn bɔn we di pikin in skel in bon dɛn nɔ kin lɔk fayn, we kin mek di bren tisu kɔmɔt tru dɛn. Dis kin tan lɛk smɔl balyɔn we de kɔmɔt na di skel.

Dis kכndyushכn de kכz fכ wan nyural tyub dεfεkt . Naw yu go de wɔnda wetin na dis nyural tiub. I rili simpul. afta di pikin bכn na di bכdi, insay di fכs wik dεm, di pikin in bren εn in spεnal kכd de bigin fכ divεlכp insay wan strכkchכ we lεk tכb. Dis na wetin wi kɔl di nyural tiub. if di tכp pat pan dis nyural tכb nכ kכloz fayn, dis kכndyushכn we dεn kכl εnεsεfalosεl de apin. Sɔntɛnde, dis kin bi smɔl tin, ɔr kin tranga pasmak ɛn dat kin mek pɔrsin in layf de pan denja.

Wetin na di kayn sik we dɛn kɔl ɛnsɛfalɔs?

di εnsefalos dεm dεn kכl dεm akɔdin to usay dεn de fכm na di sכkul. Dɛn kin de mɔ na dɛn ples ya:

• Oksipital: Na di bak pat pan di pikin in ed, nia di nεk. Dis na di kayn we we pipul dɛn kin gɛt mɔ.
• Parietal: Na di tap pat pan di ed, to di bak.
• Frontoethmoidal (dεn kin kכl am bak Sincipital): di pikin in fכs de na di rayt say.
• Sphenoidal: I de insay di ed, biɛn di yay ɛn bifo di yes. Sɔntɛm yu nɔ go si dis frɔm do.

Dɔn bak, dɔktɔ dɛn kin sheb dis to tu kayn, i kin dipen if i de na di fɔs pat ɔ di bak pat na di ed:

• Anterior: Di frɔnt pat pan di pikin in skel.
• Posita: Na di bak pat pan di pikin in skel.

Aw dis sik kin kɔmɔn?

Ɛnsɛfalɔs na wan sik we nɔ kin apin so ɔltɛm. If yu luk di statystik na kɔntri lɛk Amɛrika, dis sik kin apin to lɛk wan pan ɛvri 10,500 pikin dɛn we dɛn bɔn. Dat min se na lɛk 375 bebi dɛn kin bɔn ɛvri ia. Pan ɔl we i nɔ izi fɔ fɛn di rayt statystik na Sri Lanka, dɛn kin tek dis as tin we nɔ kin apin ɔlsay.

Aw pikin we gɛt ɛnsɛfalɔs kin tan lɛk?

if di pikin we dεn bכn gεt εnεsεfalosεl, yu kin si wan ol na dεn sכkul we nכ kכlכs kכmplit. Dis dɔn mek di bren tisu de kɔmɔt na wan ol na di skel lɛk sak we dɛn kɔba wit skin . I tan lɛk se balyɔn de kɔmɔt na di ed. dipכnt usay di ol de, i kin gεt lεk ia we de gro na di sak.

Dis ol na di skel kin apin ɛnisay na di ed. Bɔt dɛn kin si am mɔ na di fɔɛd ɔ na di bak pat na di ed, nia di nɛk.

Wetin na di sayn dɛm wae de sho se pɔrsin gɛt ɛnsefalosi?

De sayn dɛm fɔ dis sik kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Dɛn kin dipen pan di sayz we di ol na di skel gɛt, usay i de, ɛn aw bɔku pan di bren de kɔmɔt na do. Sɔm sayn wae kin kam pan pɔrsin wae gɛt dis sik na:

• Ɛd we de at (espɛshali pan pikin dɛn we dɔn big ɔ if dɛn no se i gɛt am leta) .
• Prɔblɛm dɛn we pɔsin kin gɛt we i de si
• Di mɔsul dɛn we wik na di an ɛn fut dɛn
• Di ed smɔl pas aw dɛn bin de tink we dɛn bɔn am
• Ataxia (nɔ balans we yu de waka ɔ muv) .
• Fes we nɔ fayn (espɛshali rawnd di fɔrɛst) .
• Nasal kɔnjɛshɔn (if ɛnsɛfalɔs de na di nos) .
• di spεnal fכluid de lik frכm di nos כ di yes

Sɔntɛnde, di sayn dɛm kin kam bak bikɔs wata we tan lɛk wata kin gɛda insay di bren (dɛn kin kɔl dis haydrosɛfalɔs ).

Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt ɛnsɛfalos?

sכm sכm sכm εnεsεfalos dεm kin go witout big kכmplikεshכn. Bɔt sɔm tɛm dɛn kin gɛt prɔblɛm dɛn we kin te fɔ lɔng tɛm. Dɛn tin ya na:

• divεlכpmεnt dilay (e.g., dilay fכ tכk, waka) .
• Intɛlektual disabiliti
• Prɔblɛm dɛn we pɔsin kin gɛt we i de si
• Fɔ mek yu bɔdi nɔ gro fayn
• Di sik dɛn we kin mek pɔsin sik

Wetin na di tin dɛm wae kin mek pɔrsin gɛt encephalocele?

Bɔrku tɛm, ɛnsɛfalɔs na wan sik we dɛn bɔn wit . Dat min se na sɔntin we kin apin we di pikin stil de na di bɛlɛ. Bɔt, i nɔ kin apin so ɔltɛm, i kin apin bak leta bikɔs ɔf injuri na yu ed, yu bren tɔmɔs, ɔ ɔda tin dɛn we nɔ kin apin lɛk idiopathic intracranial hypertension .

di εnεsεfalos we dεn bכn wit de apin we di tכp pat pan di nyural tכb we wi bin dכn tכk bכt, nכ de kכloz fayn fayn wan. dis nyural tכb na di pat pan di tisu usay di pikin in bren εn spεnal kכd fכs fכm. insay di tכd כ fכ wik we di bεlε de tכn, i de tכn to shep we lεk tכb εn i nid fכ kכloz fayn fayn wan. if dis tכp nכ kכloz fayn, di sכkul nכ go fulכp fכm. na dat mek pat pan di pikin in bren de kכmכt na dis ol.

wi nɔ no yet di rayt tin we kin mek di nyural tiub nɔ de lɔk fayn, bɔt risach dɔn sho se dɛn tin ya kin ɛp:

• jεnεtik chenj dεm (sכmtin we de apin di tεm we di pikin bεlε) .
• sכm infεkshכn dεm we di mama kin kכntrakt we i bεlε (e.g. Toxoplasmosis , Rubella , Cytomegalovirus) ., Hɛpi Simpleks Vayrɔs (Hɛpi Simpleks Vayrɔs )
• Sɔm sik dɛm na di nervɔs sistɛm (e.g. Tayp 3 Chiari Malformation) .

Ɛnsɛfalɔs kin kam bak bikɔs ɔf sɔm ɔda mɛrɛsin dɛn. Fɔ ɛgzampul:

• Walker-Warburg Sindrom we gɛt di sik
• Knobloch Sindrom we dɛn kɔl Knobloch
• Di sik we dɛn kɔl Roberts Syndrome
• Amniotic Band Sindrom we gɛt di sik

Wetin na di tin dɛm wae kin mek pɔrsin gɛt ɛnsefalos?

If pɔsin na yu famili dɔn gɛt nyural tiub difɛkt (NTD), yu go gɛt am smɔl. כlso, if yu nכ gεt inof fכlik asid (vitamin B9) bifo εn we yu bεlε, di risk fכ gεt pikin we gεt nyural tyub dεfekt de bכku.

Aw dɛn kin no se pɔsin gɛt ɛnsɛfalɔs?

Bɔku tɛm, yu dɔktɔ kin no dis sik we dɛn de du ɔltra saund skan ɔltɛm we yu gɛt bɛlɛ. If ɛni dawt de, yu dɔktɔ kin tɛl yu bak fɔ du MRI skan bifo yu bɔn . Dis kin gi mɔr infɔmeshɔn bɔt de sik.

dis kכndyushכn kin kכnfכm we dεn egzamin di pikin afta dεn bכn am. Apat frɔm dat, dɛn kin du blɔd tɛst ɛn ɔda skan fɔ tray fɔ no wetin de mek dis sik ɛn aw i dɔn afɛkt di pikin. Dɛn kin plan di tritmɛnt akɔdin to dat.

Yu tink se dɛn nɔ no di sik we dɛn kɔl ɛnsɛfalɔs?

Yɛs, sɔntɛnde i kin apin. εspεshali di sכm sכm εnεsεfalos dεm, dεn wan dεm we de na di pikin in nos כ in fכs, kin go sכmtεm we dεn nכ no di sik. Dɛn smɔl wan ya nɔ kin mek ɛni big big sayn to di pikin we dɛn jɔs bɔn, ɛn dɛn nɔ kin mek prɔblɛm dɛn we i de gro.

Wetin na di tritmɛnt fɔ ɛnsɛfalɔs?

di men tritmεnt fכ dis kכndyushכn na כpεrayshכn fכ ripεr di sכkul εn pul di bren tisu we de kכmכt. Bɔku tɛm, di pat pan di bren we de kɔmɔt na di skel nɔ kin wok ɛn dɛn kin pul am. Sɔntɛnde, if di ol smɔl, dɛn kin put di bren bak insay di skel, dɔn di dɔktɔ we de du di ɔpreshɔn kin mek di skel bak.

Bɔku tɛm, dɛn kin du dis ɔpreshɔn insay sɔm dez afta dɛn bɔn am, insay di fɔs mɔnt dɛn, ɔ insay wan ia. I dipen pan di saiz fɔ di ɛnsefalos, usay i de, ɛn aw i dɔn afɛkt di pikin.

Di impɔtant tin na dat, pikin dɛn lɛk dis kin gɛt fɔ du pas wan ɔpreshɔn. If dɛn fes nɔ fayn, dɛn fɔ ɔpreshɔn dɛn, ɛn if dɛn gɛt haydrosɛfalɔs, dɛn fɔ du ɔpreshɔn.

As yu pikin de ol, i kin nid ɔda ɛp. Fɔ ɛgzampul:

• Speshal ɛdyukeshɔn program dɛn na skul
• If yu gɛt sik we de mek yu sik, tek mɛrɛsin fɔ am.
• Glas fɔ di prɔblɛm dɛn we pɔsin kin si

Ɛni bad tin de we di tritmɛnt kin du?

Jɔs lɛk ɛni ɔpreshɔn, sɔm bad tin dɛn de we kin apin. Bɔt nɔ wɔri, yu pikin in mɛdikal tim dɔn rili tren. Dɛn go du dɛn bɛst fɔ mek dɛn nɔ gɛt bɔku prɔblɛm dɛn.

Sɔm pan di prɔblɛm dɛn we kin apin na:

• Sik we de prɛd
• Spinal fluid de lik
• Blɔd we de kɔmɔt

If di ol na di skel big ɛn big pat pan di bren de insay, dat kin mek yu gɛt prɔblɛm wit di nyurolɔjik. Bifo yu bigin fɔ trit yu pikin, tɔk to yu pikin in dɔktɔ bɔt dɛn sayd ɛfɛkt ya.

Yu tink se pikin we gɛt ɛnsɛfalɔs go ebul fɔ liv?

Yɛs, pikin dɛn we gɛt ɛnsɛfalɔs kin liv. We dɛn du ɔpreshɔn fɔ mek di skel fayn, dat kin ɛp dɛn fɔ liv. Bɔt di pikin dɛn we gɛt big ol dɛn na dɛn skel kin gɛt mɔ sayn ɛn prɔblɛm dɛn pas di pikin dɛn we gɛt smɔl ol dɛn. So, dɛn kin gɛt layf we kin mek dɛn layf de pan denja ɔ dɛn kin gɛt shɔt layf.

Risach dɔn sho se pikin dɛn we gɛt ol na dɛn skel bifo kin gɛt bɛtɛ tin fɔ du pas pikin dɛn we gɛt ol na dɛn bak.

Aw di pipul dɛn we de day de?

Akɔdin to di data frɔm ɔganayzeshɔn dɛn lɛk di U.S. Centers for Disease Control and Prevention (CDC), di nɔmba fɔ pipul dɛn we de day fɔ big big ɛnsɛfalosɛl na lɛk 45%. Dat min se di chans fɔ liv na 55%. dis risk kin bכku dipכnt pan di sayz fכ di ol na di sכkul, usay i de, εn di pikin in כl hεlth we i bכn.

Yu tink se dɛn kin ebul fɔ mek dɛn nɔ gɛt ɛni sik?

No patikyula we nɔ de fɔ mek yu nɔ gɛt ɛni sik. Bɔt yu kin ridyus di risk fɔ bɔn pikin we gɛt prɔblɛm wit di nyural tyub. Di tin we impɔtant pas ɔl na fɔ gɛt inof fɔlik asid.

If yu de plan fɔ gɛt bɛlɛ, go to yu dɔktɔ fɔ advays bifo yu gɛt bɛlɛ. Yu dɔktɔ kin tɛl yu fɔ tek 400 mcg (maykrogram) fɔlik asid fɔ wan de, ivin if yu nɔ plan fɔ gɛt bɛlɛ da tɛm de. dis na biכs di nyural tכb dεfekt (NTD) de apin insay di fכs trimεst we di bεlε de. Dis min se bɔku tɛm yu nɔ kin ivin no se yu gɛt bɛlɛ. Na dat mek i impɔtant fɔ tek fɔlik asid kwik kwik wan.

Apat frɔm dat, if ɛnibɔdi na yu famili dɔn gɛt nyural tyub dɛfɛkt (NTD), ɔ if yu dɔn gɛt pikin wit wan bifo, tɛl yu dɔktɔ. Dɔn yu dɔktɔ kin ɛp yu fɔ mek yu nɔ gɛt nyural tiub difrɛns (NTD) tumara bambay.

Ustɛm yu fɔ go to dɔktɔ?

If yu de plan fɔ gɛt bɛlɛ, gi advays bifo yu gɛt bɛlɛTɔk to dɔktɔ bɔt dis. Dɛn kin ɛp yu fɔ gɛt gud wɛlbɔdi fɔ ridyus di risk fɔ bɔn pikin we gɛt prɔblɛm we dɛn bɔn am.

Us kwɛstyɔn dɛn yu fɔ aks yu dɔktɔ?

We yu kam fɔ no se yu pikin gɛt ɛnsɛfalɔs, i nɔmal fɔ gɛt bɔku kwɛstyɔn. Nɔ fred fɔ aks kwɛstyɔn dɛn lɛk dɛn wan ya:

• Usay di ol de na mi pikin in skel?
• Yu tink se dɛn nid fɔ du ɔpreshɔn pan mi pikin?
• Wetin na di bad tin dɛn we kin apin we dɛn du di ɔpreshɔn?
• Aw a fɔ kia fɔ mi pikin afta di ɔpreshɔn?
• Us prɔblɛm dɛn a fɔ wach fɔ?
• Wetin a fɔ du if mi pikin nɔ de du di tin dɛn we i fɔ du fɔ di divɛlɔpmɛnt we fit in ej?

fכ gεt pikin we gεt εnεsεfalosεl na wan joyn we de mek yu fil bad bad wan. Yu kin fil bɔku strɛs ɛn nɔr kin ebul fɔ du natin, mɔr lɛk wae dɛn de trit yu pikin. Yu pikin go nid fɔ de na ɔspitul we i de wɛl afta dɛn dɔn du am ɔpreshɔn. Insay dis tɛm, yu fɔ de wit yu fambul ɛn padi dɛn we go ebul fɔ sɔpɔt yu ɛnitɛm we yu nid am.

Bɔrku pipul kin gɛt bɔrku kɔrej wae dɛn de tɔk to mental health counselor , mɔr lɛk afta dɛn dɔn lɔs dɛn pikin we dɛn nɔr bin de ɛkspɛkt. di kכmplikεshכn dεm we de kכmכt frכm εnεsεfalosεl kin afekt di pikin as i de gro. So, go to yu pikin in dɔktɔ ɔltɛm ɛn de wach aw i de gro ɛn aw i de wɛl.

Wan impɔtant mɛsej fɔ yu (Take-Home Message)

Pan ɔl we ɛnsɛfalɔs na sik we de mek pɔsin fred, if dɛn no am kwik ɛn trit dɛn fayn, bɔku pikin dɛn kin liv fayn fayn wan. Di tin we impɔtant pas ɔl na fɔ tek fɔlik asid bifo yu gɛt bɛlɛ ɛn fala yu dɔktɔ in advays. If yu gɛt ɛni kwɛstyɔn bɔt dis, nɔ fred fɔ tɔk to dɔktɔ. Mɛmba se nɔto yu wangren de.

` εnsefalosεl, bכn difεkt, nyural tyub dεfekt, bren sik, pikin hεlth, bεlε hεlth, fכlik asid