Aw ɛni mama ɔ papa go fred if dɛn si dɛn smɔl pikin de shek shek wantɛm wantɛm, nɔ no natin, ɛn fɔdɔm na grɔn afta i dɔn ple? Insay kɔmɔn langwej, wi kin kɔl dis ‘gɛt fit’, ‘gɛt sik’, ɔ ‘gɛt sik’. Dis na tin we rili de mek pɔsin fred fɔ si. Bɔt we wi de tɔk bɔt mɛrɛsin, wi kin kɔl dis sik epilepsy. Di tin we impɔtant pas ɔl na fɔ no wetin i bi, wetin mek i kin apin, ɛn aw fɔ kia fɔ pikin, pas fɔ fred am. So nɔ fred. Dis na kɔndishɔn we dɛn kin ebul fɔ manej fayn fayn wan. Lɛ wi tɔk bɔt ɔltin simpul we we yu go ɔndastand.
Wetin rili na ɛpilepsi pan pikin dɛn?
Fɔ tɔk am simpul wan, epilepsy na wan sik we kin apin na pikin in bren. wetin de apin na dat wan sכdεn irεgulεriti de insay di εkshεnj fכ ilektrikal signal bitwin di bren sεl dεm, lεk ‘sכt sεl dεm’. di rizulyt fכ dis ilektrikal aktiviti we nכ de rεgulεr na wetin wi kכl ‘seizure’.
Bɔku pan wi kin tink se fit na jɔs fit usay in bɔdi kin kɔnvul, in mɔt kin swɛt, ɛn di pikin nɔ kin no natin. Bɔt nɔto ɔl fit dɛn kin tan lɛk dat. Sɔm pikin dɛn kin luk wan ples fɔ smɔl tɛm, lɛk se dɛn nɔ no natin, ɔ dɛn kin rili nɔ fil fayn.
Sɔntin de we rili impɔtant fɔ mɛmba na ya. Jɔs bikɔs pikin gɛt wan sik we dɛn kɔl epilepsy. Wan sik kin kam bak fɔ ɔda rizin dɛn, lɛk fɔ gɛt fiva we kin kam we fiva go ɔp. Dɔktɔ go jɔs no se i gɛt ɛpilepsi if di pikin dɔn gɛt pas wan tɛm we i nɔ gɛt ɛni ɔda klia rizin.
Wetin na de kayn epilepsy wae kin kam pan pikin dɛm?
Bɔku kayn epilepsy de. Nɔto ɔlman na di sem. Lɛ wi luk sɔm pan di kayn we dɛn we dɛn kin si pan pikin dɛn.
| Tayp fɔ di sik we dɛn kɔl Epilepsy | Fɔ tɔk am simpul wan, wetin de apin na ya? |
|---|---|
| Absence epilepsy we pɔsin kin gɛt | Dis na we di pikin kin stɔp fɔ du wetin dɛn de du wantɛm wantɛm ɛn luk am blank fɔ sɔm sɛkɔn. I tan lɛk se i lɔs na drim wɔl. If yu tɔk to dɛn da tɛm de, di pikin nɔ go yɛri ɔ ansa. Dɔn dɛn go kɔntinyu fɔ biev nɔmal lɛk se natin nɔ apin. |
| Rolandic epilepsy we pɔsin kin gɛt | Dɛn kin si dis kayn tin we di pikin de go slip ɔ wek na mɔnin. We dis fit apin, yu fes, yu mɔt, ɛn yu tɔŋ kin swɛ, yu kin shek, ɛn i kin at fɔ tɔk. Sɔntɛnde, wan say na di bɔdi go twitch. |
| Juvenail mayɔklɔnik ɛpilepsi | Dis kin bigin we di pikin rich di tɛm we i dɔn rich fɔ bɔn. Ɛspɛshali we yu wek na mɔnin, yu kin gɛt wan kayn we we yu de jɔk yu an ɔ yu sholda wantɛm wantɛm. I kin tan lɛk se ilɛktrik shɔk. Sɔntɛnde, dɛn kin trowe sɔntin lɛk kɔp na di an. |
| Infantil spasm (Wɛst sindrom) . | Dis na siriɔs sik we kin afɛkt pikin dɛn we rili yɔŋ. Di pikin kin fleks, strɛch, ɛn jɔk wantɛm wantɛm we i de go slip ɔ we i wek. Dɛn jɔk ya kin las fɔ sɔm sɛkɔn, bɔt dɛn kin apin bɔku tɛm insay wan row wit shɔt brek. dis kin afekt di pikin in bren divεlכpmεnt εn i nid fכ trit am kwik kwik wan. |
| Lennox-Gastaut sindrom (LGS) we gɛt di sik. | Dis na wan kayn sik bak we kin mek pɔsin gɛt ɛpilepshɔn. Insay dis, di pikin kin gɛt sɔm kayn fit. Sɔntɛnde, di mɔsul dɛn kin stif ɛn fɔdɔm wantɛm wantɛm, ɛn ɔda tɛm dɛn kin tan lɛk se dɛn nɔ no natin. Dis kכndyushכn kin afekt di pikin in lanin εn divεlכpmεnt. |
Wetin na de sayn dɛm wae yu kin si bifo ɛn wae yu gɛt fit?
Sɔntɛnde, fit kin kam pan pɔsin we nɔ gɛt ɛni wɔnin , bɔt sɔm pikin dɛn kin sho sayn bifo di fit kam.
Fɔs sayn dɛm wae kin apia bifo yu fit:
- Fɔ fil lɛk se yu de tɔn yu ed smɔl.
- Fɔ lɔs fɔ no bɔt di tin dɛn we de arawnd, fɔ kɔnfyus.
- Fɔ luk wan ples blank wan.
- Chenj we yu de yɛri, si, smɛl, ɛn teist.
- Fɔ fil sik to yu bɛlɛ, fil fɔ nɔs, ɔr fil lɛk se yu bɔdi wam de chenj.
Di sayn dɛm wae yu kin si wae yu gɛt fit:
Bɔku tɛm, wan fit kin las fɔ sɔm minit nɔmɔ. Insay da tɛm de, tin dɛn lɛk dis kin apin:
- Fɔ lɔs kɔnshɛns kpatakpata ɛn fɔdɔm na grɔn.
- di mכsul dεm we dεn nכ de kכntro twitch, jכk, כ kכntinyu fכ muv wan pat na di bכdi di sem we.
- Nɔ ebul fɔ tɔk, fɔ smap yu lip, ɔ fɔ mek muvmɛnt fɔ chew wit yu mɔt.
- Di at we de blo.
- Fɔ blo kwik kwik wan.
Di impɔtant tin na dat nɔto ɔl pikin gɛt fit. Sɔm fit nɔ kin involv ɛni muvmɛnt atɔl. Dɔn bak, i kin at fɔ no se pɔsin fit fɔ yɔŋ pikin pas fɔ no big pikin. So if yu notis ɛnitin we nɔ kɔmɔn ɔ we nɔ strenj pan yu pikin, rayt aw lɔng i dɔn de ɛn tɔk to yu dɔktɔ.
Afta di fit, di pikin kin fil taya bad bad wan ɛn kɔnfyus . Sɔntɛm i nɔ go mɛmba wetin bin apin da tɛm de. I kɔmɔn bak fɔ gɛt ed we de at afta yu dɔn fit.
Wetin mek pikin dɛn kin gɛt epilepsy?
As wi bin dɔn tɔk, epilepsy kin kam bikɔs di ilɛktrik wok nɔ de wok fayn na di bren. Bɔt wetin mek i kin apin? Sɔntɛnde, i nɔ kin izi fɔ fɛn klia rizin. Bɔt sɔm tin dɛn de we kin mek pikin dɛn gɛt ɛpilepshi.
- Head injury: Na bikɔs ɔf wan ed injury frɔm siriɔs aksidɛnt.
- di kכmplikεshכn dεm we dεn kin gεt we dεn bכn pikin: Kכz dεm lεk we di כksijεn nכ de na di bren we dεn bכn am.
- Infεkshכn: Infεkshכn dεm we de afekt di bren, fכ egzampl mεningaytis כ εnεfalaytis.
- di bren divεlכpmεnt abnכmaliti dεm: Na difεkt na di bren divεlכpmεnt we de apin we di pikin de divεlכp na di bεlε.
- Jɛnɛtik kɔz: If sɔmbɔdi na di famili gɛt ɛpilepshi, sɔm risk de fɔ mek di pikin sɛf gɛt am.
Sɔntɛnde, epilepsy kin kam ɛn nɔr kin gɛt ɛni rizin fɔ du dat. Risach stil de go bifo pan dis.
Epilepsy kin mek pikin gɛt ɔda prɔblɛm?
Yɛs, epilepsy kin afɛkt di pikin in bɔdi ɛn maynd wɛlbɔdi.
- Injury na yu bɔdi: Yu kin gɛt injury wae yu fɔdɔm wae yu nɔr no natin we yu de fit.
- Fɔ fred fɔ gɛt ɔda fit: Dis frayd kin apin to di pikin ɛn in mama ɛn papa.
- Prɔblɛm dɛn we pɔsin kin gɛt we i de slip: Di prɔblɛm dɛn we pɔsin kin gɛt we i de slip.
- Nɔr kin gɛt bɛtɛ rɛspɛkt fɔ dɛnsɛf: Na bikɔs dɛn kin fil difrɛn frɔm ɔda pikin dɛn.
- I nɔ izi fɔ pe atɛnshɔn: I kin afɛkt di we aw pɔsin de lan.
- Pwɛl hat ɛn wɔri: Fɔ gɛt strɛs na yu maynd.
I rili impɔtant fɔ protɛkt yu pikin we i gɛt sik. If yu fil se yu pikin gɛt sik we de mek i sik, le am wantɛm wantɛm na grɔn. If dɛn de na say we at, put sɔntin we saf, lɛk klos, ɔnda dɛn ed. Nɔ tray fɔ stɔp di sik we de mek yu sik. Dis kin wund yu pikin. Nɔ put ɛnitin na dɛn mɔt. Di sik go stɔp fɔ insɛf insay sɔm minit. If di sik de te pas 5 minit, aks yu dɔktɔ wetin fɔ du.
Sɔm kayn bad bad sik wae kin kam pan pɔrsin wae gɛt epilepsy kin mek pɔrsin in layf de pan denja. Wan ɛgzampul na wan sik we dɛn kɔl status epilepticus . Dis na we yu gɛt wan sik insay wan row ɔr wan sik bifo yu wɛl frɔm ɔda wan. Dis na mɛdikal imejensi.
Aw di dɔktɔ kin no if dis na ɛpilepshi?
Di dɔktɔ de du bɔku tɛst fɔ no if i gɛt dis sik.
- Fɔ gɛda infɔmeshɔn ɛn fɔ chɛk yu bɔdi: Dɛn go aks yu ɔl di ditil dɛm, lɛk aw di pikin in fit bigin, aw lɔng i tek, ɛn if ɛnibɔdi na di famili gɛt dis sik.
- Nyurolɔjik ɛgzam: Dɛn kin chɛk aw di pikin in bren ɛn in nervɔs sistɛm de wok.
- Blɔd tɛst: Chɛk fɔ ɛni ɔndalayn mɛdikal kɔndishɔn we go de mek di fit.
- Imej tɛst: Test we de tek pikchɔ fɔ di bren. Dis kin inklud fɔ du MRI skan .
- EEG (Electroencephalogram) test: Dis na di test we impɔtant pas ɔl. Dis min se yu fɔ tay smɔl smɔl tin dɛn we de mek pɔsin fil pen na di pikin in ed ɛn rikodɔ di ilɛktrik patɛns dɛn na di bren. I tan lɛk se yu de du ECG na di at. Dis kin no ɛni abnɔmal ilɛktrik aktiviti na di bren.
Wetin na di tritmɛnt fɔ epilepsy?
Laki, gud tritmɛnt dɛn de fɔ kɔntrol di sik we dɛn kɔl epilepsy.
- Antiseizure medication: Dis na di tritmɛnt wae dɛn kin yuse pas ɔl. Dɛn mɛrɛsin ya de wok bay we dɛn de kɔntrol di ilɛktrik wok we nɔ de apin ɔltɛm na di bren ɛn mek i nɔ gɛt sik. Di tin we impɔtant pas ɔl na fɔ gi di pikin di mɛrɛsin jɔs lɛk aw di dɔktɔ tɛl am, di rayt tɛm, ɛn di rayt doz, ɛn yu nɔ go mis wan de.
- Ɔpreshɔn: Sɔntɛnde, dɛn kin se dɛn fɔ du ɔpreshɔn fɔ di sik we dɛn kɔl epilepsy we dɛn nɔ kin ebul fɔ kɔntrol wit mɛrɛsin ɛn we kin kɔmɔt na wan patikyula say na di bren.
- Di mɛrɛsin dɛn we dɛn put insay pɔsin in bɔdi: Sɔntɛnde dɛn kin yuz vagus nerve stimulator ɔ Deep brain stimulator pan pikin dɛn we nɔ de ansa mɛrɛsin.Dɛn kin put divays dɛn lɛk dis na di bɔdi. Dɛn tin ya kin sɛn ilɛktrik signal to di bren fɔ kɔntrol di fit.
- Ketogenic diet: Dis na spɛshal it we gɛt bɔku fat ɛn we nɔ gɛt bɔku kabɔhaydrɛt. Dis it kin fayn fɔ sɔm pikin dɛn we gɛt ɛpilepsi we at fɔ kɔntrol. Bɔt dɛn fɔ jɔs du dis ɔnda dɔktɔ ɛn pɔsin we sabi bɔt it, de kia fɔ am gud gud wan.
Aw a go protɛkt mi pikin we gɛt ɛpilepshi?
As mama ɔ papa, na nɔmal tin fɔ bisin bɔt yu pikin in sef. Fit kin apin ɛnitɛm, so na fɔ no bɔt dɛn tin ya fɔ mek yu pikin nɔ gɛt prɔblɛm.
Kɔmɔn sefty mɛsej dɛn
- Mek shɔ se yu wɛr tin dɛn fɔ protɛkt yusɛf, lɛk ɛlmɛt , we yu de ple spɔt ɔ we yu de rayd baysikul.
- Kip yu pikin ɔnda big pɔsin we i de ple ɛn ɛksesaiz. Tɛl di wan dɛn we de kia fɔ yu pikin ɛn di skul ticha dɛn klia wan bɔt aw yu pikin de sik ɛn wetin fɔ du if dɛn gɛt fit.
- If yu pikin yɔŋ, tɔk to yu dɔktɔ ɛn gɛt advays bifo yu gɛt laysens fɔ drayv .
- Nɔ mek yu pikin slip na di ɔp flɔ na bɔnk bed .
- Pe atɛnshɔn mɔ we yu de du tin dɛn we yu de du na ay ay ples, lɛk fɔ klaym tik ɛn mawnten dɛn.
Mɛmba dɛn tin ya fɔ avɔyd di prɔblɛm dɛn we kin mek yu gɛt prɔblɛm wit wata
Risk de fɔ mek aksidɛnt apin we gɛt fɔ du wit wata.
- Lɛf di domɔt dɛn na di bafa we nɔ lɔk .
- Nɔ ɛva lɛf yu pikin in wan na bat, bathtub, ɔ nia swimin pul. Ɔltɛm, na fɔ supavayz.
- Nɔ mek di pikin swim in wan.
- Kip di wata lɛvɛl na di bathtub smɔl.
- Kip ilɛktrik tin dɛn fa frɔm di bathtub ɛn sink.
Ustɛm a fɔ go to di dɔktɔ? Ustɛm a fɔ go na di ETU?
I rili impɔtant fɔ no gud gud wan dis difrɛns.
| Si di dɔktɔ di tɛm lɛk dis. | If dis kayn tin apin, go na di ETU (Imergency Treatment Unit) wantɛm wantɛm. |
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Mi pikin kin liv nɔmal layf wit ɛpilepshi?
Absolutli yes. Na lɛk 70% pan di pikin dɛm wae gɛt epilepsy, ɔr sɛvin pan tɛn, kin liv nɔrmal, gladi layf lɛk ɔda pikin dɛm wae gɛt dɛn ej. Dɛn divɛlɔpmɛnt ɛn di tin dɛn we dɛn de du ɛvride nɔ kin afɛkt dɛn bad bad wan. Sɔntɛm di wangren tin we difrɛn na dat dɛn nid fɔ tek dɛn mɛrɛsin di sem tɛm ɛvride.
Dɔn bak, pas 60% pan di pikin dɛn we gɛt ɛpilepshi, ɔ siks pan tɛn, go dɔn pas di sik kpatakpata bay di tɛm we dɛn dɔn big . Dis min se i go bɛtɛ kpatakpata as dɛn de ol.
Bɔt sɔm pikin dɛn kin gɛt sɔm saykilɔjik prɔblɛm dɛn bikɔs ɔf dis sityueshɔn. Dɛn kin shem, fil bad, ɛn fil bad bikɔs dɛn kin fil difrɛn frɔm ɔda pipul dɛn. Na dɛn kayn tɛm dɛn de, di pikin we yu lɛk ɛn sɔpɔt am rili impɔtant fɔ di pikin. If nid de, fɔ go to pɔsin we de gi advays bɔt mental wɛlbɔdi biznɛs go ɛp di pikin bak.
Mɛsej we dɛn kin kɛr go na os
- Epilepsy na wan sik we pɔsin kin ebul fɔ kɔntrol na in bren. I nɔto sɔntin we wi fɔ shem ɔ ayd.
- Nɔto ɔl fit dɛn na di sem. Yu fɔ no di spɛshal kwaliti dɛn we yu pikin gɛt.
- Gi yu pikin di mɛrɛsin we di dɔktɔ tɛl yu fɔ gi am, jɔs lɛk aw dɛn tɛl yu fɔ gi yu pikin, ɛn yu nɔ go mis wan de.
- Lan aw fɔ protɛkt yu pikin we i de fit. Nɔ panik ɛn kɔntinyu fɔ de kwayɛt.
- If fit tek pas 5 minit ɔ di pikin gɛt delay fɔ gɛt kɔnshɛns bak, na imejensi. Tek di pikin go na di ETU wantɛm wantɛm.
- Nɔto yu wan de na dis waka. Kɔnekt wit yu dɔktɔ, aks kwɛstyɔn, ɛn gɛt di sɔpɔt we yu nid.
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