Fɔ liv wit wan sik wae nɔr de mɛn we dɛn kɔl Ankylosing Spondylitis (AS) kin bi prɔblɛm sɔmtɛm. Na yu nɔmɔ no aw i nɔ kin izi fɔ bia wit di pen, stif, ɛn taya. Sɔntɛnde, dis kin mek yu fil se yu wangren de ɛn yu at pwɛl. Bɔt mɛmba se yu nɔ nid fɔ go tru dis waka yu wan. Di sɔpɔt we di wan dɛn we yu lɛk de gi yu kin mek i izi fɔ yu fɔ bia wit dis prɔblɛm.
Wetin mek i impɔtant fɔ tɔk bɔt dis?
Fɔ tɔk am simpul wan, we yu tɔk to yu famili ɛn yu tayt padi dɛn bɔt wetin de na yu maynd ɛn aw yu de fil, dat go ɛp dɛn fɔ ɔndastand yu mɔ. Na da tɛm de nɔmɔ dɛn go no aw fɔ ɛp yu ɛn aw fɔ sɔpɔt yu.
Imajin se yu gɛt wan flawa. Yu nɔ go ebul fɔ du yu wok ɔ go na do. If yu nɔ tɔk natin bɔt am, pipul dɛn go tink se yu de les ɔ yu jɔs de tray fɔ ambɔg dɛn. Bɔt if yu se, "Mi AS dɔn wɔs smɔl tide, mi bak de at so bad, na dat mek a nɔ ebul fɔ kam," dɛn go ɔndastand yu sityueshɔn. Dɛn go aks bak if yu nid ɛp. Dis opin kɔmyunikeshɔn fayn fɔ yu rilayshɔnship ɛn yu maynd wɛlbɔdi.
Udat yu de tɛl? Aw yu kin bigin?
Dis na tin we pɔsin kin rili du. Udat yu go tɛl bɔt yu sik, ɛn ɔmɔs ditil yu de sheb , na yu yon ɔl . Yu nɔ nid fɔ tɛl ɔlman bɔt am. Bɔt i impɔtant fɔ tɛl di pipul dɛn we de nia yu pas ɔl na yu layf, di pipul dɛn we yu de spɛn tɛm wit ɛvride.
- Yu patna: Na im bi di big pat fo yu laif. I impɔtant fɔ mek i no bɔt yu gud de dɛn ɛn bak yu bad de dɛn.
- Famili (mama ɛn papa, brɔda ɛn sista): Dɛn kin rɛdi fɔ ɛp yu ɛn kia fɔ yu ɔltɛm.
- Klos padi: Dɛn na di bɛst pipul dɛn fɔ tɛl yu we yu at pwɛl ɔ fɔ ɛksplen wetin mek yu nɔ go ebul fɔ go na wan fayn trip.
- Maneja ɔ kɔleja we yu kin trɔst na wokples: Sɔntɛnde dis kin impɔtant fɔ mek yu chenj smɔl na di we aw yu de wok, ɔ fɔ aks fɔ ɛp pan de we tin nɔ izi.
I kin tranga fɔ bigin tɔk bɔt dis. Start bay we yu se, "A gɛt sɔntin we impɔtant fɔ tɛl yu." Kɔl ɛn jɔs ɛksplen wetin de apin to yu.
Aw yu de ɛksplen wetin de apin to yu?
Bɔrku pipul nɔr kin no bɔt Ankylosing Spondylitis (AS). Dɛn kin tink se na jɔs kɔmɔn bak prɔblɛm. So, e fayn fɔ jɔs ɛksplen wetin na dis sik.
Yu kin se:
"Dis nɔto jɔs bak-ak. Dis na wan krɛse inflammatory arthritis we kin kam bikɔs ɔf prɔblɛm wit mi imyun sistɛm. I kin mɔs afɛkt di jɔyn dɛn na mi spayna. As tɛm de go, dɛn jɔyn dɛn de kin stif ɛn i nɔ kin izi fɔ bɛn ɛn tɔn. Na dat mek sɔntɛnde a kin gɛt prɔblɛm fɔ de na di sem pozishɔn fɔ lɔng tɛm, ɔ a nɔ kin ebul fɔ es ebi ebi wet."
Tek dɛn go to dɔktɔ togɛda.
If yu fil fɔ du dat, invayt yu patna, yu fambul, ɔ yu tayt padi fɔ kam wit yu fɔ go to dɔktɔ . Dis go gi dɛn di chans fɔ yɛri dairekt frɔm yu dɔktɔ bɔt yu sik ɛn aks ɛni kwɛstyɔn we dɛn gɛt. Dis na fayn we fɔ mek dɛn ɔndastand yu sik mɔ ɛn mɔ.
| Wetin fɔ tɔk bɔt | Aw fɔ ɛksplen (ɛgzampul) . |
|---|---|
| Sayn dɛn | "A no jos de fil taya. Dis na taya we a no de bia. And a de fil stiff tu fo moning, laik se mai bak don brok. Na im mek i de at fo mi to grap ali moning." |
| Di tin dɛn we pɔsin kin du we i nɔ ebul fɔ du natin | "Wi shud tek tren insted of di bos? A get had taim fo sidon fo long taim. I izi fo mi fo tren bikos a fit tinap likl." |
| Fɔ Aks fɔ Ɛp | "Yu fit helep mi lif dis tins op? I no gud fo mai bak. I go fayn if yu fit helep." |
| Impekt pan di we aw pɔsin de fil | "Sɔntɛnde a kin fil bad bad wan wit dis pen. A kin fil sɔri we a nɔ ebul fɔ du di tin dɛn we ɔlman de du. Sɔntɛnde lɛk dat, i go bi big trɛnk fɔ mi if yu jɔs ebul fɔ tɔk to mi." |
Nɔ fɔgɛt bɔt di sayn dɛm we ‘nɔ de si’
Wan pan di big big chalenj dɛm wit AS na dat, no difrɛns nɔ de we pɔsin kin si. I nɔ mata aw yu de fil pen ɔ yu taya, pɔsin we de wach am na do nɔ de si am. So tɔk opin wan bɔt dɛn sik ya we ‘nɔ de si’.
- Taya: Dis nɔto jɔs we pɔsin taya. Dis na taya pasmak wae kin mek yu fil taya ɛn slip ɔl di de. Mek shɔ se yu tɔk bɔt dis.
- Stif: Tɔk bɔt stiffness na yu joyn, mɔ na mɔnin ɛn afta yu dɔn de na di sem pozishɔn fɔ lɔng tɛm.
- Di chenj we yu de chenj yu maynd: We yu de liv wit pen ɛn prɔblɛm dɛn ɔltɛm, i nɔmal fɔ fil bad, vɛks, ɛn pwɛl at sɔntɛnde. Tɔk to pɔsin we yu trɔst bɔt dɛn filin ya.
Sheb bɔt yu tritmɛnt ɛn manejmɛnt
Tɛl di wan dɛn we yu lɛk bɔt aw yu de tray fɔ kɔntrol dis sik. We dɛn no bɔt yu tritmɛnt plan, i go izi fɔ dɛn fɔ sɔpɔt yu.
- Ɛksesaiz ɛn Fisiotɛrapi: Ɛksesaiz tan lɛk mɛrɛsin fɔ AS. If yu gɛt ɛksesaiz rutin ɛvride, tɔk bɔt am. Dɛn kin ebul fɔ waka wit yu ɛn ɛp fɔ mɛmba yu fɔ ɛksesaiz.
- Mɛrɛsin: Tɛl wi bɔt di mɛrɛsin dɛn we yu de tek ɛn ustɛm yu de tek am.
- Di it: Sɔntɛm yu dɔktɔ dɔn tɛl yu fɔ it spɛshal it. Tɛl yu famili bɔt dat, ɛn dɛn kin ɛp yu fɔ mek it we fayn fɔ yu.
Fɔ aks fɔ ɛp nɔto sayn fɔ se yu wik. I de gi di wan dɛn we yu lɛk chans fɔ bi pat pan yu layf, fɔ sho se yu lɛk ɛn sɔpɔt yu.
Mɛsej we dɛn kin kɛr go na os
- Wae yu de liv wit de krεse sik wae de kam wit Ankylosing Spondylitis (AS), fɔ tɔk bɔt am wit di wan dɛm wae de nia yu kin bi big sɔs fɔ yu trɛnk, pan yu maynd ɛn bɔdi.
- Udat yu go tɛl ɛn wetin yu se na yu yon disayd. Tɛl di pipul dɛn we yu trɔst pas ɔlman ɛn we de nia yu pas ɔlman fɔs.
- Bi simpul ɛn ɔnɛs we yu de tɔk. Ɛksplen wetin na AS ɛn aw i de afɛkt yu ɛvride layf.
- Mek shɔ se yu tɔk bɔt ɛni sayn lɛk pen, stif, ɛn mɔ taya we yu nɔ de si.
- Nɔ fred fɔ aks fɔ ɛp. I go mek una rilayshɔnship strɔng.
- Tɔk bɔt yu tritmɛnt plan wit yu dɔktɔ ɔltɛm. If yu nid fɔ du dat, yu go ebul fɔ ɔndastand ɛn sɔpɔt yu bay we yu put pɔsin we yu kin abop pan na yu famili pan dɛn tɔk dɛn de.
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