Yu at sɛf de sɔfa wit dis prɔblɛm? Lɛ wi lan bɔt Jaynt Sɛl Mayokarditis!

Sɔntɛnde yu kin fil lɛk se yu at de bit, de bit, ɔ sɔntin we strenj de na yu chɛst? Dis na tin wae wi nɔr kin pe atɛnshɔn to sɔmtɛm, bɔt dɛn kin bi sayn fɔ sɔm kayn hat sik wae nɔr kin bɔrku. Tide wi go tɔk bɔt wan kayn hat sik wae nɔr kin bɔrku, bɔt kin siriɔs. in nem na Jaynt Sεl Mayokarditis, כ insay Inglish `(Jaynt Sεl Mayokarditis)`.

Wetin na Jaynt Sɛl Mayokarditis? Lɛ wi ɔndastand am simpul wan.

Fɔ tɔk am simpul wan, Jaynt Sɛl Mayokarditis na wan kayn we we nɔ kin apin so ɔltɛm we di at mɔsul dɛn kin inflamɛns . Inflameshɔn na wan kayn we we pɔsin kin swel. wetin kin apin pan dis sik na we sכm pan wi bכdi in ‘inflammatory cells’ kin gεt togeda εn fכm wan kayn big sεl we dεn kכl ‘Giant Cells’. Dɛn big big sɛl dɛn ya, lɛk ɛnimi dɛn, kin atak yu at mɔsul ɛn mek yu gɛt skata.

Tink bɔt am, wi at tan lɛk wata pɔmp. Na wetin de pɔmp blɔd ɔlsay na di bɔdi. So, we dɛn big big sɛl ya de pwɛl di at mɔsul, di at nɔ kin ebul fɔ wok fayn. Dat min se:

• I de at fɔ pɔmp blɔd .
• We di at de bit, nɔto ɔl pat pan am kin kɔntrakt di sem tɛm .
• Di ilɛktrik signal dɛn we de kɔntrol di at bit kin ambɔg , ɛn dɛn signal dɛn de nɔ kin travul tru di at fayn fayn wan.

Bikɔs dis sik kin tranga kwik kwik wan, bɔku tɛm, pipul dɛn we gɛt dis sik kin gɛt fɔ gɛt at transplant .

Wetin na di difrɛns bitwin Mayokarditis ɛn Jaynt Sɛl Mayokarditis?

Mayokarditis na inflamɛns bak na di at mɔsul. כltu, jayant sεl mayokarditis na wan kayn mayokarditis we nכ kin rili rεs εn spεsifi k . Lɛk ɔda kayn mayokarditis, i kin mek bak di at nɔ de rit, ɔ i kin mek i nɔ ritmi.

Vayral infεkshɔn na di men tin we kin mek pɔsin gɛt mayokarditis. Bɔt di wan dɛn we de stɔdi bɔt dis stil de tray fɔ no wetin mek dis jayant sɛl mayokarditis (GCM) kin apin.

Udat dɛn kin afɛkt mɔ pan dis sik? Aw i kɔmɔn?

Jaynt sel mayokarditis (GCM) kin apin mɔ pan yɔŋ pipul dɛn we gɛt wɛlbɔdi ɛn midul ej . Bɔt i kin apin to pipul dɛn we ol ɛni ej, ilɛksɛf na man ɔ uman.

As far as aw dis kɔmɔn, i rili, rili rare. Dɔktɔ dɛn kin no bɔt dis sik pan less dan wan pan ɛvri 100,000 pipul dɛn ɛvri ia. Dat min se dɛn kin ripɔt am pan lɛk 0.13 pan ɛvri 100,000 pipul dɛn .

Wetin na di sayn dɛm we de sho se yu gɛt dis sik? Aw wi kin no dɛn?

Di fɔs sayn dɛm fɔ jayant sɛl mayokarditis (GCM) kin bi:

• At palpitations (de fil lɛk yu at de bit fast ɔ yu chɛst de bit) .
• Chɛst de pen
• I nɔ kin izi fɔ yu fɔ bloɔ Fɔ blo shɔt
• Ankles we dɔn swel
• Taya pasmak

Bɔku tɛm dɛn sayn ya kin bigin kwik kwik wan . Leta, di at ritm nɔ kin fayn kin kam. Mɔ pas af pan pipul dɛm wae gɛt dis sik kin gɛt denja at ritm irɛgyulariti (`Ventricular arrhythmias`), we kin bigin na di chɛmba dɛm na di at . Dɛn tin ya kin mek di at stɔp wantɛm wantɛm.

Dɔn bak, di at rit kin rili fast ɔ i kin rili slo. Yu kin fil lɛk se yu ed de tɔn ɔ yu kin fil fɔdɔm . Sɔm pipul kin ivin gɛt wan siriɔs sik we dɛn kɔl ``cardiogenic shock,'' usay di at nɔ kin ebul fɔ pɔmp blɔd fayn fayn wan.

Wetin mek dis kin apin? Wetin na di rizin dɛn?

Risach pipul dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt jayant sɛl mayokarditis (GCM). Dɛn de luk insay difrɛn tin dɛn. Fɔ ɛgzampul, dɛn de luk fɔ no if sɔm infɛkshɔn dɛn, tin dɛn we nɔ fayn na yu imyun sistɛm, ɔ sɔntin we de na yu jin dɛn kin mek yu gɛt di sik mɔ ɛn mɔ.

Wan ɔda tin na dat, dɛn dɔn si se lɛk 20% pan di pipul dɛn we gɛt dis sik gɛt ɔtoimyun disɔda . Awtoimyun sik na we wi bɔdi in difɛns sistɛm, dat na di imyun sistɛm, de atak wi yon bɔdi in sɛl dɛm. So, dɛn kayn sik ya kin bi bak wan kɔz ɔ risk factor fɔ divɛlɔp GCM.

Aw yu kin no dis sik kɔrɛkt wan?

Fɔ mek yu no se yu gɛt jayant sɛl mayokadaytis (GCM), yu dɔktɔ go nid fɔ tek smɔl sɛmpul pan yu at mɔsul . Dɛn kɔl dis at bayɔpsi. Dɛn kin sɛn di sampul to lɛbɔtri ɛn wan dɔktɔ we de mɛn di at we de mek pɔsin gɛt sik dɛn we de ambɔg di at kin chɛk am.

I impɔtant fɔ mek spɛshal pɔsin lɛk dis chɛk di sampul bikɔs di rizɔlt fɔ bayɔpsi fɔ jayant sɛl mayokadaytis kin tan lɛk ɔda sik dɛn we kin mek di at mɔsul inflamɛns, lɛk kadyak sarkoidosis. So, fɔ no di sik kɔrɛkt wan impɔtant fɔ mek dɛn plan fɔ trit am.

Dis `(Biopsy)` test na risky wan, bɔt na di wan we fɔ no fɔ tru if yu gɛt dis sik. Sɔm pan di kɔmplikɛshɔn dɛm we kin apin wit wan at mɔsul `(Biopsy)` na:

• di pεrikardyal efyushכn (fכlכd we de kכmכt na di mεmbran we de rawnd di at) .
• Tamponade fɔ di at
• Pεrforeshכn na di wכl na wan at chεmba (vεntrikul wכl) .

We di dɔktɔ de tek dis sɛmpul, i kin put wan tiub we rili tan, we dɛn kɔl kateta, insay yu at tru wan big blɔd vesel we de na yu nɛk ɔ yu groin. dis kateshכn de gayd insay di at we dεn de yuz spεshal divays (`Imaging`). Dɔn, wan spɛshal tul we de insay di kateshɔn de tek wan smɔl pat pan di at mɔsul.

Sɔntɛnde dɛn kin nid fɔ du mɔ pas wan `(Biopsy)`. dis na biכs `(GCM)` kin nכ afekt כl pat dεm na di at di sem we. If yu du sɔntin lɛk `(MRI)` skan fɔ di at go ɛp di dɔktɔ fɔ disayd ustɛm fɔ tek di `(Biopsy)`.

Us ɔda tɛst dɛn yu kin du?

Fɔ mek shɔ se yu nɔ gɛt ɔda at sik, yu dɔktɔ kin tɛl yu fɔ du ɔda tɛst. Sɔm pan dɛn tin ya na:

• Ilɛktrokardiogram (EKG) .
• Ekokardiogram we dɛn kin du
• Kadiak kateshɔn

Wetin na di tritmɛnt dɛn?

Yu dɔktɔ kin gi yu difrɛn mɛrɛsin fɔ trit dis sik. Dɛn mɛrɛsin ya na:

• I kin ridyus di inflamɛns .
• I de ɛp fɔ mek di at nɔr de ritm ɔr at nɔr de woke fayn.
• Dɛn kin gi yu mɔ tɛm te yu nid fɔ transplant yu at.
• I de ɛp fɔ mek pɔsin liv lɔng .

Ɔda tritmɛnt dɛn fɔ jayant sɛl mayokarditis (GCM) de ɛp fɔ kɔntrol di at we nɔ de wok fayn ɛn di at ritm we nɔ de wok fayn. Dɛn tritmɛnt ya kin bi:

• Mɛrɛsin dɛn we dɛn kin yuz
• Fɔ pul di kateshɔn
• Wan mashin we de mek pɔsin in peshɛnt
• implantable cardioverter defibrillator (ICD) na wan tin we dɛn kin put insay di bɔdi fɔ rigul ɛn shɔk di at rit.
• Wan at we dɛn kin transplant

We yu de wet fɔ mek dɛn transplant yu at, yu kin nid fɔ gɛt lɛft ventrikular ɛp divays (LVAD). If yu nid fɔ transplant yu at, yu go nid fɔ gɛt di tɛst ɛn tritmɛnt na ɔspitul we gɛt di tin dɛn fɔ dat.

Us kayn mɛrɛsin dɛn kin yuz?

Di tritmɛnt fɔ jayant sɛl mayokarditis (GCM) inklud mɛrɛsin dɛn we de kɔntrol yu imyun sistɛm (immunosuppressants). Dat min se, mɛrɛsin dɛn we de ridyus di imyuniti. Sɔm pan dɛn tin ya na:

• Sayklɔspɔrin (e.g. Gengraf®, Niɔral®) .
• Kכtikostεroyd dεm lεk prεdnison (e.g. Sterapred®, Rayos®) .
• Azatioprin (e.g. Imuran®, Azasan®) we de mek pɔsin gɛt di sik.

I rili impɔtant fɔ bigin dɛn mɛrɛsin ya kwik kwik wan. If dɛn nɔ gɛt dɛn mɛrɛsin ya, dɛn kin nid fɔ transplant dɛn at insay tri mɔnt frɔm di tɛm we di sik bigin, ɔ di sik kin kil pɔsin. Bɔt pipul dɛn we de tek mɛrɛsin we de kɔntrol di imyun sistɛm kin liv fɔ lɛk 12 mɔnt so.

Ɛni bad tin de we di tritmɛnt kin du?

Di sayd ɛfɛkt kin difrɛn difrɛn wan bay di kayn mɛrɛsin we yu de tek. Sɔm pan di bad bad tin dɛn we kin apin to pɔsin na:

• Mɔsul dɛn kin pen ɔ wikɛd
• Ed de at
• Di blɔd shuga we bɔku
• Rɔnbɛlɛ
• Nɔ ebul slip

If yu fil ɛnitin lɛk dis, nɔ fɔgɛt fɔ tɛl yu dɔktɔ.

Aw layf go tan lɛk wit dis sik?

If yu gɛt jayant sɛl mayokarditis (GCM), i kin mek yu at nɔ wok fayn ɔ yu at kin blok . We dɛn tin ya kin tranga (bɔku tɛm insay lɛk fayv mɔnt), yu kin nid fɔ transplant yu at, if yu kwalifay. Bɔrku pipul dɛn nɔr kin gɛt sɔm kayn sik afta dɛn dɔn gɛt nyu at, bɔt dɛn go nid fɔ tek bɔrku nyu mɛrɛsin fɔ sɔpɔt di nyu at.

Yu tink se dɛn kin ebul fɔ mek dɛn nɔ gɛt jayant sɛl mayokarditis?

Pan ɔl we pipul dɛn kin liv lɔng wit jayant sɛl mayokadaytis (GCM) pas aw dɛn bin de liv trade, i stil na sik we kin kil pɔsin if dɛn nɔ transplant dɛn at . Fɔ bɔku pan di 1900 dɛm, pipul dɛm wae gɛt GCM bin liv fɔ lɛs tri mɔnt. Bɔt tide, if dɛn no di sik kwik kwik wan ɛn trit am wit drɔgs we de kɔntrol di imyun sistɛm, 90% pan di pipul dɛm we gɛt GCM de liv fɔ at le wan ia. Dɛn mɛrɛsin ya kin bay yu mɔnt ɔ ia te yu nid fɔ transplant yu at.

Wetin na di prɔgnosis fɔ di sik?

Afta dɛn transplant dɛn at, lɛk 71% pan di pipul dɛn we gɛt jayant sɛl mayokarditis (GCM) kin liv fɔ fayv ia (82% pan ɔda stɔdi) . tεn ia afta dεn transplant di at, di rεt we de liv na bכt 68%.

כltu, jayant sεl dεm kin apia bak insay bitwin 10% εn 50% pan pipul dεm we gεt nyu at. Dis kin apin ɛnisay frɔm sɔm wiks to nayn ia afta di transplant. If dis apin, yu go nid fɔ tek stɛroyd fɔ sɔm mɔnt.

Aw a kin kia fɔ misɛf?

If yu gɛt jayant cell myocarditis (GCM), yu fɔ avɔyd kɔmpitishɔn spɔt fɔ at le tri to siks mɔnt . We yu GCM dɔn stebul, aks yu dɔktɔ if i sef fɔ go bak smɔl smɔl fɔ du ɛksɛsayz.

Ustɛm yu nid fɔ go to dɔktɔ?

If yu gɛt siriɔs sayd ɛfɛkt frɔm yu mɛrɛsin, ɔ if i tan lɛk se yu sik de wɔs, go to yu dɔktɔ wantɛm wantɛm . I impɔtant bak fɔ go to yu dɔktɔ ɔltɛm fɔ wach yu sik.

Ustɛm yu nid fɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) ?

If yu gɛt siriɔs pen na yu chɛst ɔ yu nɔ ebul fɔ blo, kɔl 911 ɔ go na imejensi rum wantɛm wantɛm. Dis kin rili impɔtant, bikɔs dɛn tin ya kin bi sayn fɔ se yu gɛt siriɔs sik.

Us kwɛstyɔn dɛn a fɔ aks di dɔktɔ?

Nɔ fɔgɛt fɔ aks dɛn kwɛstyɔn ya we yu go si yu dɔktɔ:

• Aw ɔltɛm a nid fɔ kam fɔ fala-ap apɔntinmɛnt?
• Sɔpɔt grup de wae pipul dɛm wae gɛt dis sik kin jɔyn?
• Yu tink se a go nid fɔ transplant mi at?

Fɔ dɔn, di tin we impɔtant pas ɔl we wi fɔ mɛmba

So, naw yu go dɔn ɔndastand se Jaynt Sɛl Mayokarditis na wan sik we nɔ kin bɔku, bɔt we rili siriɔs. Di tin we impɔtant pas ɔl na fɔ no di sayn dɛn kwik kwik wan, go to dɔktɔ, ɛn bigin fɔ gɛt di rayt tritmɛnt. Nɔr wɔri, bikɔs tritmɛnt de fɔ dis sik naw, ɛn dɛn kin ebul fɔ liv lɔng. So, if yu fil sɔntin we nɔ kɔmɔn na yu at, nɔ ignore am ɛn go to dɔktɔ. Tek kia ɔf yu at!

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