Yu tink se big pipul dɛn bak kin gɛt at sik we dɛn bɔn wit? (Adult Congenital At Disease we dɛn kin gɛt) .

Sɔntɛm yu nɔ bin no se yu gɛt at sik frɔm we yu smɔl. Bɔt as yu de ol, ɔ as yu de ol, yu dɔn bigin fɔ fil taya, yu nɔ de blo fayn, ɔ yu dɔn bigin fɔ de bit yu chɛst? Bɔku pipul dɛn kin tink se at sik na sɔntin we kin kam wit di ej. Bɔt di tru tin na dat, wi kin gɛt sɔm at sik dɛn we wi kin gɛt frɔm wi gret gret granpa dɛn. Tide, wi de tɔk bɔt at sik dɛn we dɛn kin bɔn wit, we dɛn kin no ɔ trit we pɔsin big.

Wetin na Adult Congenital Hat Disease (ACHD)?

Fɔ tɔk am simpul wan, dis na prɔblɛm we de na di shep ɔ di we aw yu at de we de de we dɛn bɔn yu. Di wɔd “fɔ bɔn pikin” min “frɔm we dɛn bɔn am.” Dɛn bad tin ya kin apin we di pikin stil de na di bɛlɛ. Dɛn bad tin ya kin afɛkt di we aw blɔd de pas na di at . Wi kin kɔl dɛn tin ya bak “di at pwɛl we dɛn bɔn wit.”

Sɔm pan dɛn at sik ya kin rili smɔl. Ɔda wan dɛn kin rili siriɔs. I kin dipen pan di kayn sik ɛn aw i tranga, sɔm pipul dɛn nɔ kin gɛt ɛni sayn te dɛn big. Ɔda pipul dɛn nɔ kin gɛt ɛni sayn atɔl ɔl dɛn layf. Ɔda pipul dɛn kin gɛt tritmɛnt fɔ am we dɛn smɔl bɔt dɛn kin gɛt prɔblɛm fɔ lɔng tɛm we dɛn dɔn big.

Bɔt nid nɔ de fɔ wɔri. We di mɛrɛsin dɛn we dɛn de yuz tide dɔn go bifo, di we aw dɛn kin no ɛn trit dɛn sik ya dɔn rili impɔtant. Infakt, pas 90% pan di pipul dɛm wae dɛn kin trit fɔ dɛn at sik ya we dɛn smɔl kin go bifo fɔ liv wɛl bɔdi layf. Ilɛksɛf dɛn no se yu gɛt dis sik we yu smɔl ɔ we yu dɔn big, yu go nid fɔ gɛt dɔktɔ advays ɛn tɛst fɔ yu layf fɔ wach aw yu sik.

Us pat dɛn na di at dis kin afɛkt?

Dɛn at prɔblɛm ya we dɛn kin bɔn wit kin afɛkt ɛni pat na di at. Di men pat dɛm wae kin afɛkt na:

• Blɔd vesel dɛm : Blɔd vesel dɛm na di at kin kɛr blɔd ɔlsay na di bɔdi ɛn bak to di at. di at dεm kin kכri bכdi we gεt כksijεn frכm di at to di bכdi. di vein dεm kin kכri bכdi we nכ gεt כksijεn bak na di at.
• At chεmba dεm: At bit εn blɔd we de kכmכtNa dɛn chɛmba dɛn ya de kɔntrol am. tu כp chεmba dεm de (rayt εn lεft atria) εn tu lכw chεmba dεm (rayt εn lεft vεntrikl dεm). dis chεmba dεm na wan wכl (septum) de separet frכm dεn wan dεm.
• di at valv dεm : dεn fכ valv dεm ya de εp di bכdi fכ fכlכ tru di at na wan say nכmכ. Dɛn tan lɛk domɔt dɛn we de mek blɔd nɔ flɔd na di rɔng say.

Wetin na di men kayn hat sik wae dɛn kin bɔn wit?

Bɔrku kayn hat sik de wae kin kam pan big pipul dɛm. Lɛ wi tek wan luk pan wetin dɛn bi.

Udat kin gɛt dɛn kayn sik ya?

Dɛn tin ya kin afɛkt ɛnibɔdi, ilɛksɛf na man ɔ uman, in ej, ɔ in kɔlɔ. Bɔt sɔm tin dɛn kin apin to uman dɛn pas man dɛn. fכ egzampl, kכndishכn dεm lεk `Atrial septal defect (ASD)` εn `Mitral valve prolapse (MVP)` de mכr kכmכn pan uman dεm. di kכndishכn dεm lεk `Aortic coarctation` de mכr kכmכn pan man dεm. כlso, pipul dεm we gεt jεnεtik kכndyushכn lεk `Down syndrome` כ `Turner syndrome` dεn tu de pan hכy risk fכ gεt kכnεkshכn at sik.

Wetin mek dis kin apin? Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?

Bɔku tɛm, ivin dɔktɔ dɛn nɔ kin ebul fɔ tɔk klia wan wetin mek pɔsin we dɛn bɔn wit at prɔblɛm lɛk dis kin apin. Sɔm pan dɛn kin gɛt frɔm dɛn gret gret granpa dɛn. Dat min se, tru di jin dɛn.

Dɔn bak, sɔm tin dɛn we di mama kin gɛt we i gɛt bɛlɛ kin mek dis risk fɔ di pikin bɔku.

• If di mama gɛt vayral infɛkshɔn lɛk rubɛla ɔ inflɔɛnsa insay di fɔs tri mɔnt we i gɛt bɛlɛ.
• If di mama gɛt dayabitis (Tayp 1 ɔ Tayp 2 Dayabitis) .
• Sɔm mɛrɛsin dɛn we dɛn kin yuz fɔ sik dɛn lɛk akni ɛn ɛpilepsi kin yuz we uman gɛt bɛlɛ.
• If yu tek pen kil lɛk ibuprofen afta 30 wiks we yu gɛt bɛlɛ.

Yu gɛt dɛn sik ya bak?

Di sayn dɛm fɔ ACHD kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Dɛn kin dipen pan yu ej, di nɔmba fɔ di at prɔblɛm dɛn we yu gɛt, aw di sik bad, ɛn di kayn prɔblɛm we yu gɛt. Sɔm pipul dɛn nɔ kin gɛt ɛni sayn atɔl. If di sayn dɛm wae de sho se yu gɛt dis sik, dɛn kin bi:

• Blu di kɔlɔ we di nel, lip, ɛn skin kin chenj (Cyanosis): Dis kin apin we ɔksijɛn nɔ de na di blɔd we de flɔ to di bɔdi.
• Diziz we pɔsin kin gɛt.
• Fɔ fil taya izi wan: Fɔ fil lɛk se yu go fɔdɔm ivin afta yu dɔn du smɔl wok ɔ waka.
• At murmur: Yu nɔ go ebul fɔ fil dis. Dis abnɔmal sawnd na we dɔktɔ put stetɔskɔp na yu chɛst nɔmɔ yu kin yɛri.
• At palpitations: Na filin wae de hat de bit lawd wan ɛn kwik kwik wan.
• Di at bit we nɔ de bit ɔltɛm (Aritmia).
• I nɔ izi fɔ blo (Dyspnea).
• Swel (edema) na di anklɛ, fut, ɔ an.

Aw yu go fɛn dis, Dɔktɔ?

We yu go to dɔktɔ, i go aks yu fɔs bɔt di sayn dɛn we yu gɛt ɛn if ɛnibɔdi na yu famili gɛt at sik. Dɔn i go du ɛgzam fɔ yu bɔdi ɛn lisin to yu at sawnd.

Fɔ mek yu no se yu gɛt di sik, dɛn kin aks yu fɔ du wan ɔ mɔ pan dɛn tɛst ya:

• Chɛst X-ray: Na ɛkstrem rayt fɔ chɛk di chɛst.
• Echocardiogram (echo): Dis tan lɛk we dɛn de skan di at. I kin si klia wan aw di at shep, di chɛmba dɛn, ɛn aw di valv dɛn de wok.
• Ilɛktrokardiogram (EKG): Dis de tɛst di ilɛktrik wok we di at de du, dat na di ritm we di at de bit.
• Ɛksesaiz strɛs tɛst: Dɛn kin du EKG we yu de waka ɔ rɔn pan tredmil, fɔ luk aw yu at de ansa we yu de du ɛksɛsayz.
• At MRI ɛn At CT skan: Skan we de mek klia, tri-dimɛnshɔnal pikchɔ dɛn bɔt di at.
• Cardiac catheterization: Dɛn kin yuz dis fɔ ɔl tu diagnosis ɛn tritmɛnt. tεst we dεn de pas wan tכb we rili tכn (kateta) tru wan bכdi we de na di tכŋ to di at.

Wetin na di tritmɛnt dɛm fɔ dis?

Sɔm rili smɔl smɔl at prɔblɛm dɛn we dɛn bɔn wit nɔ nid ɛni tritmɛnt. Bɔt ivin fɔ di wan dɛn we de du dat, dɛn go nid fɔ chɛk dɛn ɔltɛm to dɔktɔ we de mɛn dɛn at fɔ si if di sik de wɔs.

Ɔda wan dɛn nid tritmɛnt. De kayn tritmɛnt kin dipen pan di kayn ɛn aw yu sik kin tranga.

Di mɛrɛsin dɛn we dɛn kin yuz

Yu dɔktɔ kin gi yu difrɛn mɛrɛsin fɔ mek yu at wok fayn ɛn fɔ kɔntrol di sik dɛn we yu kin gɛt. Fɔ ɛgzampul, dɛn kin gi dɛn mɛrɛsin dɛn we de kɔntrol blɔd prɛshɔn, kɔntrol at rit, ɔ pul wata we pasmak na di bɔdi (diuretics).

Divays dɛn we dɛn kin put insay di at

• Pacemaker: Dɛn kin put dis divays ɔnda di skin fɔ kɔntrol di at rit, mɔ if di at rit slo.
• ICD (Implantable Cardioverter Defibrillator): Na tin we de no di at bit we nɔ de bit ɔltɛm we de mek pɔsin in layf de pan denja ɛn i de gi ilɛktrik shɔk fɔ kɔrɛkt am.

Di Mɛtɔd fɔ Kadiak Kateshɔn

Dis na tin we simpul pas fɔ du ɔpreshɔn. as wi bin dכn tכk, dεn kin put wan tin tכb insay di at εn dεn kin yuz am fכ kכlod ol dεm na di at (lεk ASD). Dɛn kin yuz am bak fɔ mek di blɔd vesel ɔ valv dɛn we dɔn smɔl, big.

Ɔpreshɔn

Sɔm bad bad tin dɛn kin nid fɔ du ɔpreshɔn fɔ kɔrɛkt. Dɛn kin mek ɔ chenj di at valv dɛn, ɔ dɛn kin kɔrɛkt di tin dɛn we nɔ izi fɔ du wit di at we dɛn opin ɔ we dɛn kin du ɔpreshɔn we nɔ kin ambɔg di at.

Transplant fɔ di At

Dis nɔ kin apin so ɔltɛm. Hat transplant na las tin fɔ pipul dɛn we gɛt di at sik we rili siriɔs, we de mek dɛn layf de pan denja ɛn we dɛn nɔ go ebul fɔ mɛn wit ɛni ɔda tritmɛnt.

Aw yu fɔ kia fɔ yusɛf?

We yu de liv wit ACHD, yu nid fɔ tek kia ɔf yu wɛlbɔdi bak.

• Yu fɔ liv fayn layf: It fayn it, go to yu dɔktɔ ɛn du ɛksɛsayz we go fayn fɔ yu, ɛn nɔ smok ɛn drink rɔm kpatakpata.
• Tɛl ɔl yu dɔktɔ dɛn: Ilɛksɛf yu go to dɛntist ɔ ɛni ɔda dɔktɔ, mek shɔ se yu tɛl dɛn se yu gɛt ACHD.
• Si dɔktɔ we de mɛn yu at ɔltɛm: Ivin if yu nɔ gɛt ɛni sayn, go fɔ chɛk-ap lɛk aw yu dɔktɔ tɛl yu.
• Tek kia ɔf yu tit: Kip yu tit klin. If yu gɔm gɛt di sik, di jem dɛn kin travul tru yu blɔd ɛn afɛkt yu at (endocarditis).
• Go to dɔktɔ bifo yu gɛt bɛlɛ: If yu na uman we de op fɔ bɔn pikin, i impɔtant fɔ mek yu tɔk bɔt am wit yu dɔktɔ we de mɛn yu at ɛn aks fɔ advays bifo yu tray fɔ gɛt bɛlɛ.

Ustɛm yu nid fɔ go to dɔktɔ wantɛm wantɛm?

If yu gɛt ɛni wan pan dɛn sayn ya, we kin bi sayn fɔ se yu at nɔ de wok fayn, go na di ɔspitul we de nia yu in Imejɛnsi Dipatmɛnt (ETU) ɛn nɔ de te .

• I nɔ kin izi fɔ yu fɔ blo bad bad wan.
• Swel na di bɛlɛ ɔ di ɔda leg dɛn we de dɔŋ.
• Taya pasmak, we nɔ kɔmɔn fɔ no rizin.

Dɔn bak, if yu gɛt ɛni nyu sik ɔ yu fil se di sik we yu dɔn gɛt de wɔs, go to yu dɔktɔ wantɛm wantɛm.

Hat sik we dɛn bɔn wit, at sik, ACHD, Adult Congenital Heart Disease sinhala, ol na di at, i nɔ izi fɔ blo, pen na yu chɛst, at ɔpreshɔn, at sik simptom dɛm