Wi ɔl dɔn yɛri bɔt ayɔn dɛfisiɛns, we min se anemia, nɔto so? Bɔku tɛm wi kin yɛri advays fɔ it spinach, it spinach, ɛn tek ayɛn tablɛt. Bɔt yu dɔn ɛva tink bɔt wetin go apin if ayɛn de na di bɔdi tumɔs? Yɛs, dat kin bi siriɔs prɔblɛm bak. Na dat wi kin kɔl Hemochromatosis, ɔ jɔs Ayɔn Ɔvalod pan mɛrɛsin. Tide, wi go tɔk bɔt dis ditayli, rili simpul wan.
Fɔ tɔk am simpul wan, wetin na Ɛmokromatosis?
Tink bɔt yu bɔdi lɛk westɛm. Wi kin tek di tin dɛn we wi nid frɔm di it we wi de it ɛn drink. Ayɔn na wan pan dɛn impɔtant tin dɛn de. Ayɔn rili impɔtant fɔ mek rɛd blɔd sɛl dɛn na wi blɔd ɛn gi wi bɔdi ɛnaji. Bɔt lɛk ɔl ɔda tin, bɔku ayɛn kin bi prɔblɛm if dɛn tek am pasmak.
Ɛmokromatosis na di prɔblɛm. We dis kayn tin de apin, yu bɔdi kin tek bɔku bɔku ayɛn pas aw i nid frɔm it. Di prɔblɛm na dat, wi bɔdi nɔ gɛt we fɔ pul dis ayɛn we pasmak. So wetin di bɔdi de du? Dis ayron we pasmak kin bigin fɔ gɛda na impɔtant ɔgan dɛn lɛk di liva, at, ɛn pankrias. I tan lɛk se wi de kip tin dɛn we wi nɔ de yuz na kloz. As tɛm de go, dis ayɔn we dɔn gɛda kin bigin fɔ pwɛl dɛn ɔgan dɛn de ɛn i nɔ kin wok fayn. If dɛn nɔ trit am, i kin mek pɔsin in layf de pan denja. Bɔt di gud nyus na dat if dɛn no am kwik, na sik we pɔsin kin ebul fɔ kɔntrol ɔlmost.
Wetin na di sayn dɛm we de sho se yu gɛt dis sik? Ustɛm dɛn kin apia?
Wan pan di spɛshal tin dɛm wae dis sik kin gɛt na dat i kin tek lɔng tɛm fɔ mek di sayn dɛm fɔ sho. Pan ɔl we dis sik kin apin we pɔsin bɔn wit, di sayn dɛn kin apin nɔmɔ we ayɔn gɛda na di bɔdi ɛn bigin fɔ pwɛl di ɔgan dɛn. Dis kin tek sɔm ia. Bɔrku pipul nɔr kin gɛt dis sik te dɛn rich 40-50 ia. Sɔm pipul dɛn kin gɛt dis sik wae nɔr kin pasmak ɛn nɔr kin sho sɔm kayn sik fɔ dɛn wan ol layf.
Lɛ wi si wetin na di men sayn dɛm.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| Fɔ taya ɔltɛm | Fɔ fil taya ɔltɛm fɔ natin. Ivin afta yu dɔn slip fayn, yu kin stil fil taya. |
| Pen na di jɔyn dɛn | Pen, mɔ na di nɛk na di finga dɛn, di indeks finga, ɛn di midul finga. Dɛn kin kɔl dis bak "ayɔn fist." |
| Skin de dak | Di skin kin tek wan grey ɔ brɔnz tint. |
| At de flɔt | Fɔ fil lɛk se yu at de bit fast, lɛk we yu de flɔt na yu chɛst (arrhythmias). |
| Di want fɔ du mami ɛn dadi biznɛs we de go dɔŋ | Uman ɛn man kin gɛt di kayn we aw dɛn kin want fɔ du mami ɛn dadi biznɛs igen. Man dεm kin gεt εrectile dysfunction bak. |
| Di pen we de na di ɔp pat na di bɛlɛ | I kin pen ɔnda di rib dɛn na di rayt say, usay di liva de. |
| We yu de lɔs yu wet fɔ natin | If yu de lɔs yu wet we yu nɔ de it ɔ ɛksesaiz, yu fɔ wɔri. |
Wetin mek dis de apin? Wetin na di rizin dɛn?
Tu men rizin dɛn de fɔ dis.
1. Di men tin we kin mek i apin: Hɛridit Ɛmokromatosis
Bɔku pipul dɛn kin gɛt dis sik bikɔs ɔf wan prɔblɛm we dɛn gɛt na dɛn jɛnɛtiks, dat na smɔl chenj na di jin dɛn we dɛn mama ɛn papa ɔl tu gɛt.
Jɔs tink bɔt am dis we. Wan spɛshal jin de we de kɔntrol aw ayɔn de tek am na wi bɔdi. Wi de kɔl am di `(HFE jin)`. כl pikin kin gεt wan kכpi fכ dis jin frכm in mama εn wan kכpi frכm in papa. fכ mek dεn gεt εmokromatosis, i fכ gεt difεkt na di kכpi fכ di jin frכm dεn mama εn di kכpi fכ di jin frכm dεn papa.
Imajin se yu gɛt wan buk frɔm yu mama ɛn wan frɔm yu papa. Fɔ mek dis sik bigin, dɛn tu buk ya fɔ gɛt smɔl mistek na di pej we de kɔntrol ayɛn. If na wan buk nɔmɔ gɛt di mistek, yu na pɔsin nɔmɔ we de kɛr di sik. Yu nɔ go gɛt di sik.
So, ilɛksɛf dɛn mama ɛn papa ɔl tu gɛt dis jin we nɔ fayn, dɛn nɔ kin gɛt sɔm sayn dɛn. Bɔt if pikin we dɛn bɔn gɛt ɔl tu di kɔpi dɛn fɔ dis jin we nɔ fayn, i go mɔs bi se di pikin go gɛt di sik. di tu men tכp dεm fכ difεkt dεm we dεn si na di `(HFE jin)` na `(C282Y)` εn `(H63D)`.
pan tap dat, wan kayn we nכ kin apin we dεn kכl ``Juvenile Hemochromatosis`` we de apin we i yכng, dat na bitwin 15-30 ia. i de kכz fכ mכtεshכn insay כda jin dεm ``(HJV, HAMP)``.
2. Na ɔda mɛrɛsin dɛn kin mek am (Secondary Hemochromatosis) .
Sɔntɛnde, di ayɛn we pasmak kin bi bikɔs ɔf ɔda mɛrɛsin ɔ tritmɛnt. Dis nɔto tin we pɔsin kin gɛt frɔm in mama ɛn papa.
- Dɛn kin put blɔd bɔku tɛm: Bɔku tɛm, pipul dɛn we gɛt sɔm kayn blɔd prɔblɛm (lɛk we dɛn nɔ gɛt bɛtɛ blɔd lɛk thalassemia) kin nid fɔ gɛt blɔd. We dɛn gi blɔd dis kayn we fɔ lɔng tɛm, di ayɛn we de insay da blɔd de kin gɛda na di bɔdi, ɛn dis kin mek i gɛt dis sik.
- Sivεr liva sik: Di liva na di men כgan we de kכntro di ayn mεtabolism na wi bכdi. If di liva dɔn pwɛl bad bad wan (e.g. sirosis), i nɔ kin ebul fɔ ol ayɔn fayn ɛn i kin gɛda na di bɔdi.
- Fɔ drink pasmak: Rɔk nɔ jɔs de pwɛl di liva, bɔt i de mek di bɔdi tek ayɔn mɔ ɛn mɔ.
Us bad tin we ayɔn we pasmak kin du to di bɔdi?
As wi bin dɔn tɔk, tumɔs ayɛn tan lɛk pɔyzin to di bɔdi. Dis ayɛn kin gɛda smɔl smɔl na di ɔgan dɛn ɛn bigin fɔ pwɛl dɛn. Dis kin mek yu gɛt siriɔs prɔblɛm dɛn.
| Men ɔgan dɛn we dɛn afɛkt | Sɔm siriɔs prɔblɛm dɛn we kin apin |
|---|---|
| Liva | di liva we big, di liva we gɛt fat, sirosis (di liva we de shrink) ɛn di risk fɔ gɛt kansa na di liva we de go ɔp. |
| At | Kɔnjɛstiv at fayl, aritmia. |
| Pankrias we de na di bɔdi | If di pankrias pwɛl, i kin mek i nɔ ebul fɔ mek insulin ɛn i kin gɛt dayabitis. Dɛn kin kɔl dis bak ``Dayabetes Tayp 3c''. |
| Jɔyn dɛn | Atrit kondishɔn, pen ɛn swel na di jɔyn dɛm. |
| Ɔda gland dɛn | If di gland dɛn we de mek ɔmon, lɛk di pituitary gland ɛn di tayroyd gland pwɛl, dat kin mek di ɔmon dɛn nɔ balans. |
Aw yu go fɛn dis, Dɔktɔ?
If yu gɛt ɛni wan pan di sayn dɛn we wi dɔn tɔk bɔt ɔ if pɔsin na yu famili gɛt dis sik, mek shɔ se yu go to dɔktɔ. Di dɔktɔ go aks yu sɔm kwɛstyɔn dɛn fɔs ɛn chɛk yu.
- Aks if yu mama ɛn papa ɔ ɛnibɔdi na yu famili gɛt ayron ɔva lod ɔ liva sik.
- Dɛn kin aks if yu de tek ayɔn pils ɔ vaytamɛn C sɔpɔtmɛnt (vitamin C de mek yu gɛt ayrɔn absɔpshɔn mɔ).
- Dɛn kin aks bɔt di kayn rɔm we yu de drink.
Afta dat, dɛn kin du bɔku tɛst fɔ no if pɔsin gɛt di sik.
- Blɔd tɛst: Dis na di bɛsis tɛst. Dɛn go tɛst yu blɔd fɔ si if yu gɛt ayron (Serum Iron), we na wan prɔtin we de kip ayrɔn (Serum Ferritin), ɛn aw di prɔtin we de kɛr ayɔn ful (Transferrin Saturation). if dεn lεvεl dεm ya go כp, dεn kin sכspεkt se hεmokromatosis de.
- Jɛnɛtik tɛst: Dɛn kin tek blɔd sɛmpul fɔ chɛk fɔ si if di HFE jin nɔ fayn. Dis kin ɛp fɔ no if yu gɛt di fɔm we yu gɛt frɔm yu mama ɛn papa.
- MRI skan: Dis kin mek yu no aw bɔku ayɛn de na di liva ɛn at we nɔ gɛt pen.
- Liva bayɔpsi: Sɔntɛnde, fɔ no di rayt say we di liva dɔn pwɛl, dɛn kin tek wan smɔl tisu na di liva bay we dɛn yuz smɔl nidul ɛn chɛk am ɔnda maykroskɔp.
Wetin na di tritmɛnt? Yu tink se dɛn go ebul fɔ mɛn dis?
Yɛs, tritmɛnt dɛn de we go ɛp dis. Di men gol fɔ tritmɛnt na fɔ ridyus di ayɔn we pasmak na di bɔdi, fɔ mek i kɔntinyu fɔ de na di nɔmal lɛvɛl, ɛn fɔ mek di ɔgan dɛn nɔ pwɛl mɔ.
Di impɔtant tin na dat, di mɔ we dɛn no dis sik kwik kwik wan, na di mɔ di tritmɛnt go wok fayn. If dɛn bigin fɔ trit am kwik, sɔm pan di tin dɛn we dɔn pwɛl di ɔgan dɛn kin ivin chenj.
Bɔku men we dɛn de fɔ trit pɔsin.
| Di we aw dɛn kin trit am | Wetin kin apin to am? |
|---|---|
| Tɛrapi Plɛbotɔmi | Dis na di men tritmɛnt we go wok fayn pas ɔl. Fɔ tɔk am simpul wan, i tan lɛk se pɔsin de gi blɔd. sכm sכm bכdi (dεn kin kכl 450-500 ml) na yu bכdi we dεn de yuz nidul. Bɔku pan di ayɛn we de na wi bɔdi de na wi rɛd blɔd sɛl dɛn. So we dɛn pul di blɔd, dɛn kin pul di ayɛn bak wit am. Fɔs, i kin nid fɔ du am lɛk wan tɛm insay di wik. Wae yu dɔn kɔntrol yu ayɛn lɛvɛl, yu kin jɔs nid fɔ du am wan tɛm ɛvri sɔm mɔnt. |
| Ayɔn Chɛleshɔn Tɛrapi | Sɔm pipul dɛn (fɔ ɛgzampul, di wan dɛn we gɛt at sik ɔ we nɔ gɛt bɛtɛ blɔd) nɔ kin ebul fɔ tek blɔd. Dɛn kin gi dis tritmɛnt to dɛn kayn pipul ya. Dis min se yu fɔ gi mɛrɛsin we de tay pan ayɛn ɛn pul di ayɛn na di bɔdi insay di urine ɛn di fes. Yu kin tek dis mɛrɛsin as pil ɔ gi am as injɛkshɔn. |
| Fɔ chenj di we aw yu de it | Apat frɔm di tritmɛnt, yu nid fɔ tek kia ɔf yu it bak.
|
Mɛsej we dɛn kin kɛr go na os
- Ɛmokromatosis na wan sik we tumɔs ayɔn kin gɛda na di bɔdi. Bɔku tɛm, dis na tin we pɔsin kin gɛt frɔm dɛn mama ɛn papa.
- Nɔ ignore di sayn dɛm lɛk fɔ taya ɔltɛm, yu jɔyn pen, ɛn yu skin kin chenj, mɔ if yu dɔn pas 40 ia.
- Dis sik kin mek di impɔtant pat dɛn lɛk di liva, di at, ɛn di pankrias pwɛl bad bad wan.
- Bɔt if dɛn no am kwik ɛn trit am fayn, dɛn kin kɔntrol am fayn ɛn yu kin liv nɔmal, wɛlbɔdi layf.
- If yu gɛt ɛni dawt bɔt dis, ɔ if pɔsin na yu famili gɛt dis sik, mek shɔ se yu tɔk to yu dɔktɔ.
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