Yu kin bi pɔsin we de kɔntrol yu it ɛn ɛksesaiz ɛvride. Bɔt we yu du yu blɔd tɛst, yu kɔlɔstrel lɛvɛl nɔ de go dɔŋ, nɔto so? Sɔntɛnde yu kin tink se, "Wetin mek dis de apin to mi wan? A de du ɔltin rayt." Fɔ tru, di rizin fɔ dis nɔto di we aw yu de liv yu layf, bɔt na sɔntin we kɔmɔt frɔm yu famili, dat na frɔm jɛnɛreshɔn dɛn. Lɛ wi tɔk bɔt dis smɔl mɔ .
Lisin to di stori bɔt wan yɔŋ uman we nem Suzan Adis. We i bin de na kɔleji, in mama bin sɛn wan smɔl paket to am wit lɛta. Di lɛta se, "It ɔl di it we a sɛn yu wantɛm wantɛm, bikɔs afta yu dɔn tɛst yu blɔd, yu nɔ go ebul fɔ it am igen." Bay da tɛm de, Suzan in mama in kɔlɔstrel lɛvɛl bin dɔn go ɔp to 500 mg/dL. (Dɛn kin tek ɛnitin we pas 200 as ay.) Di dɔktɔ bin dɔn tɛl di ɔda tri pikin dɛn na di famili fɔ mek dɛn tɛst dɛn.
Suzan we bin ol 24 ia da tɛm de, bin tu tan ɛn i bin gɛt wɛlbɔdi fɔ aks dɔktɔ fɔ mek dɛn tɛst di kɔlɔstrel. I bin gɛt di tɛst ɛni we. Di rizɔlt? Kɔlɔstrel 350 mg/dL! Bɔt di dɔktɔ dismis am as "jɔs ay smɔl." Bɔt na we Suzan luk am na wan buk nɔmɔ i kam fɔ no se di tin dɛn we i de rid bin de ɔp.
Dis na bikɔs Suzan gɛt wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl Familial Hypercholesterolemia . Fɔ tɔk am simpul wan, dis sik kin mek yu bɔdi gɛt bɔku bɔku kɔlɔstrel, ilɛksɛf yu gɛt wet, it, ɔ ɛksesaiz.
We I De na Yu Jin?
Wan pan ɔl tri big pipul dɛn na di wɔl gɛt bɔku kɔlɔstrel. Bɔt di jenɛtik kɔndishɔn we wi bin dɔn tɔk bɔt we dɛn kɔl famili haypa kɔlɔstrelemia kin afɛkt wan rili smɔl grup, we na lɛk wan pan ɛvri 300 pipul dɛn. Na lɛk 1,500 difrɛn difrɛn jin dɛn de we kin mek i apin. mama ɔ papa we gɛt dis jin gɛt 50% chans fɔ pas am to dɛn pikin. Suzan bin gɛt dis jin frɔm in mama. Suzan in gyal pikin sɛf bin gɛt am, bɔt in bɔy pikin nɔ bin gɛt am.
כl di jin vεryכnt dεm de afekt wan protin we dεn kכl di LDL rεsεpכta . dis protin in wok na fכ pul di LDL kכlestכl , כ wetin wi kכl "bad kכlestכl," kכmכt na di bכdi. Bɔt pan pipul dɛn we gɛt dis jenɛtik kɔndishɔn, da prɔtin de nɔ de wok fayn.
Pipul wae gɛt dis sik kin gɛt bɔrku kɔlɔstrel frɔm we dɛn bɔn dɛn. If dɛn nɔ trit dɛn, dɛn kin gɛt at sik we dɛn rili yɔŋ.
Di bɛst tin na dat di tritmɛnt fɔ dis na di sem we fɔ ɛnibɔdi we gɛt ay kɔlɔstrel. Dat min se fɔ it tin dɛn we nɔ gɛt bɔku fat, fɔ du ɛksɛsayz, ɛn fɔ tek mɛrɛsin dɛn we de mek yu nɔ gɛt bɔku bɔku kɔlɔstrel . Bɔt di prɔblɛm na dat, ivin wit ɔl dis, if di kɔntrol de na di jin dɛn an, di kɔlɔstrel lɛvɛl kin stil bɔku.
"Pɔsin we gɛt jenɛtik kɔndishɔn nɔ kin ansa di tritmɛnt di sem we lɛk pɔsin we nɔ gɛt am. So dɛn tray nɔ kin bi as saksesful. I kin rili frustrate." - Dɔktɔ Ɛrika Spatz, dɔktɔ we de mɛn at.
Suzan, we i bin de na kɔleji, i bin de fala wan rili strikt it ɛn ɛksesaiz ɛvride, ɛn i bin ebul fɔ kip in kɔlɔstrel lɛvɛl na jɔs 240 mg/dL. Bɔt dat bin stil ay. Afta we i bigin fɔ du wok, i nɔ bin ebul fɔ kɔntinyu fɔ liv da layf de. Naw, we i ol 54 ia, i kin ebul fɔ kɔntrol in kɔlɔstrel wit mɛrɛsin ɛn it fayn fayn tin dɛn.
| Aw fɔ gɛt di prɔpati | Fɔ tɔk am simpul wan... |
|---|---|
| Jɛnɛtik sik (Familial Hypercholesterolemia) . | Dis na wan sik wae nɔr kin bɔrku wae kin kam dayrɛkt wan pan pɔrsin in jɛnɛtiks. I nɔ mata aw yu layf fayn, di kɔlɔstrel go stil go ɔp. I impɔtant fɔ tek mɛrɛsin. |
| Jɛnɛtik Prɛdispɔzishɔn | Wetin de apin ya na dat, pas fɔ gɛt sik, na jenɛtik "risk" de fɔ mek yu gɛt ay kɔlɔstrel. Di we aw pɔsin de liv in layf kin mek big difrɛns. |
| Layf Stayl we dɛn kin gɛt frɔm dɛn mama ɛn papa | If ɛni jɛnɛtiks nɔ de insay, di kɔlɔstrel de go ɔp bikɔs di pikin dɛn de adopt di rɔng we aw dɛn mama ɛn papa de it ɛn we dɛn nɔ de du natin. |
Nɔto jɔs jin, bɔt yu “inhɛrit” layf stayl
Wi nɔ jɔs gɛt jin frɔm wi mama ɛn papa, bɔt wi kin gɛt dɛn abit dɛn bak. Dɛn tin ya na gud abit ɛn, i sɔri fɔ no se, bad abit.
Abit dɛn we kin bigin bifo dɛn bɔn pikin
Tink bɔt am, yu teist bɔd dɛn kin bigin fɔ divɛlɔp bifo dɛn ivin bɔn yu. Stɔdi dɔn sho se if mama it difrɛn it dɛn we i gɛt bɛlɛ, in pikin go lɛk dɛn flawa dɛn de mɔ afta dɛn bɔn am.di smel we di spays dεm lεk galik, kכri, εn jinja de ad to di amniotic fluid we di pikin de swεl na di bεlε.
Insay wan stɔdi, dɛn bin gi mama dɛn we gɛt bɛlɛ karɔt jus ɛn wata fɔ drink. Afta dɛn dɔn bɔn dɛn pikin dɛn, di mama dɛn we bin de drink karɔt jus nɔ bin de gɛt bɛtɛ fes we dɛn bin fɔs it karɔt. Wan stɔdi we dɛn bin du pan mama dɛn we bin de drink karɔt jus we dɛn bin de gi dɛn mama in bɛlɛ bin sho di sem tin.
Di abit dɛn we i bin gɛt we i bin smɔl
We yu yɔŋ, di we aw yu de it kin chenj bay wetin yu mama ɛn papa de it ɛn drink bifo yu. Dɔktɔ Spatz se: "As famili, wi kin it di sem it dɛn. Di we aw bɔku pipul dɛn kin it kin gɛt fɔ du wit wetin dɛn bin de it ɛn dɛn bin dɔn yus fɔ it frɔm we dɛn yɔŋ."
Semweso, di it dɛn we dɛn bin de gi yu as gift we yu bin smɔl, ɛn di it dɛn we dɛn nɔ fɔ it, dɛnsɛf kin afɛkt dis. Di tin we kin mek wi sɔprayz na dat, if dɛn nɔ bin alaw yu fɔ it swit ɛn ɔyl it dɛn we yu bin smɔl, yu go gridi fɔ dɛn we yu dɔn big.
Semweso, if mama ɛn papa dɛn de du tin, i go izi fɔ mek pikin dɛnsɛf de du tin. Bɔt di pikin dɛn we dɛn mama ɛn papa we de smok kin smok mɔ , we na di men tin bak we kin mek dɛn gɛt bɔku kɔlɔstrel.
Aw wi de fes dis jɛnɛreshɔn risk?
Di gud nyus na dat dɛn kin kɔntrol di damej we di jin dɛn we nɔ fayn ɛn di bad abit dɛn we pɔsin kin gɛt frɔm dɛn mama ɛn papa kin gɛt if dɛn liv di rayt layf ɛn di mɛrɛsin dɛn we dɛn de tek .
Suzan se, "A bin de it bɔku chiz we a bin smɔl, ɛn a lɛk chiz. Bɔt naw a de avɔyd dairy prodakt dɛn we gɛt bɔku fat. A nɔ de it rɛd mit ɔ ful eg." I de yuz wan aktiviti tracker fɔ kip insɛf motiveshɔn fɔ kɔntinyu fɔ aktif. Wetin i nɔ ebul fɔ kɔntrol wit it ɛn ɛksesaiz, i kin kɔntrol wit in mɛrɛsin.
naw in kכlestכl lεvεl de stebul bitwin 220-240 mg/dL.
Suzan se i de fɛn di trɛnk fɔ go tru dis joyn bay we i de luk ɔltin fayn fayn wan. "We yu dɔktɔ se yu kɔlɔstrel bɔku ɛn yu nid fɔ du sɔntin bɔt am, wi kin tink se, 'O, a nɔ go ebul fɔ it dis naw, a nɔ go ebul fɔ it dat naw.' Bɔt a bin de tink se, ‘Us nyu tin dɛn a go tray fɔ du?’”
"We a tink lɛk dat, i rili ɛp mi fɔ kuk nyu we dɛn, yuz difrɛn spays dɛn, ɛn tray nyu fayn fayn tin dɛn. Bɔku it dɛn de we dɛn kin mek we nɔ gɛt bɔku fat, bɔt we stil fayn . Yu kin it fayn ɛn fayn."
Fɔ tru, na dat ɛnibɔdi go want fɔ pas to in pikin dɛn, nɔto so?
Mɛsej we dɛn kin kɛr go na os
- If yu nɔ ebul fɔ stɔp yu kɔlɔstrel ilɛksɛf yu tray tranga wan, i kin gɛt sɔntin we de mek yu gɛt dis sik. Nɔto yu fɔlt.
- If ɛnibɔdi na yu famili (mama, papa, brɔda ɛn sista) gɛt ay kɔlɔstrel ɔr dɔn gɛt at sik we i yɔŋ, yu fɔ wɔri bɔt am bak.
- Tɔk opin wan wit yu dɔktɔ bɔt yu kɔlɔstrel lɛvɛl ɛn yu famili istri. Gɛt di tɛst ɛn tritmɛnt we yu nid.
- Ivin if di tin we kin mek pɔsin gɛt dis sik na bikɔs ɔf in jɛnɛtiks, i rili impɔtant fɔ mek wi it fayn ɛn liv fayn layf. Nɔ stɔp dɛn tin ya ivin we yu de yuz mɛrɛsin.
- Bifo yu wɔri bɔt "tin dɛm we yu nɔ go ebul fɔ it," tink gud wan bɔt "freshly kuk, wɛlbɔdi it we yu kin ɛnjɔy."
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