Yu pikin in bren nɔ gɛt ɔksijɛn? Lɛ wi lan bɔt di denja HIE (Hypoxic-Ischemic Encephalopathy)!

Wɔd nɔ go ebul fɔ tɔk bɔt di gladi at we yu kin gɛt we yu si nyu pɔsin we dɛn ad to yu famili. Bɔt sɔntɛnde, we dɛn nɔ bin de ɛkspɛkt, dɛn smɔl pikin ya kin gɛt sɔm wɛlbɔdi prɔblɛm dɛn. Tide, wi go tɔk bɔt wan sik we kin afɛkt pikin dɛn we dɛn jɔs bɔn, we siriɔs smɔl, bɔt we wi ɔl nid fɔ no bɔt. Dat na HIE, ɔ hypoxic-ischemic ɛnsefalopathy.

Wetin na HIE (Hypoxik-Ischemic Ɛnsɛfalopati)? Lɛ wi ɔndastand am gud gud wan.

Fɔ tɔk am simpul wan, HIE (Hypoxic-Ischemic Encephalopathy) na wan injuri we pɔsin kin gɛt na in bren we i nɔ gɛt ɔksijɛn ɛn blɔd fɔ di bren. Jɔs tink se, lɛk ɔl di ɔgan dɛn na wi bɔdi, di bren nid ɔksijɛn ɛn tin dɛn bak fɔ mek i ebul fɔ wok. Dɛn kin kɛr dɛn tin ya go na di bren tru di blɔd. If dis saplae disrupt eni we, di bren sel dεm kin bigin fכ pwεl. Dis na wetin HIE bi.

Dis kכndyushכn kin afekt nyu bכbi dεm bכku tεm , εspεshali if kכmplikεshכn de we dεn de bכn. Bɔt sɔntɛnde, big pikin ɛn big pipul dɛn kin gɛt HIE bak if siriɔs prɔblɛm de wit di we aw dɛn de blo, lɛk fɔ drawn .

Di tin we impɔtant pas ɔl na dat HIE na siriɔs sik we kin mek pɔsin in layf de pan denja . So if yu tink se yu pikin de gɛt HIE simptom, yu fɔ go to dɔktɔ wantɛm wantɛm.

Yu kin dɔn yɛri yu dɔktɔ de yuz ɔda nem fɔ dis HIE kɔndishɔn. Fɔ ɛgzampul:

• Asfiksia we dɛn bɔn pikin
• Nyu bɔn pikin dɛn we gɛt ɛnsɛfalopati
• Hapoksia we kin apin we pɔsin de bɔn pikin

No mata wich nem yu kol dis, na di sem situeshɔn.

Difrɛn kayn HIE de? Aw yu kin no aw de sik kin tranga?

Yes, dɔktɔ dɛn kin klas HIE akɔdin to di pikin in prɔgnosis. Dɛn kin sheb dɛn tin ya mɔ to tri kayn : we nɔ kin at fɔ ɔndastand, we nɔ kin at fɔ ɔndastand, ɛn we kin rili bad . dis klasification kin sho aw di pikin in nervous system go afekt.

Bɔt mɛmba se ilɛksɛf HIE nɔ at, na mɛdikal imejensi . Bikɔs i impɔtant fɔ gɛt tritmɛnt kwik kwik wan fɔ mek dɛn nɔ gɛt prɔblɛm dɛn we go mek pɔsin in layf de pan denja. Di dɔktɔ go ebul fɔ gi yu di bɛst ɛksplen bɔt di sik we yu pikin gɛt. Dɔn yu kin mek yu maynd ɛn go bifo.

Aw dis sik kin kɔmɔn?

Statistikin sho se HIE kin afɛkt bitwin 1 ɛn 6 pan ɛvri 1,000 pikin dɛn we dɛn bɔn . Ivin na kɔntri lɛk Amɛrika, na lɛk 9,000 to 12,000 pikin dɛn we dɛn jɔs bɔn kin gɛt dis sik ɛvri ia. Pan ɔl we i nɔ izi fɔ fɛn di rayt statystik na Sri Lanka, dis nɔto kɔndishɔn we pɔsin kin ignore.

Wetin na di sayn dɛm fɔ HIE? Aw yu go fil bɔt pikin we dɛn jɔs bɔn?

If pikin we dɛn jɔs bɔn gɛt smɔl ɔ smɔl HIE, dɛn kin gɛt sɔm sayn dɛn lɛk:

• di bכdi de sכft εn i nכ gεt layf (`hypotonia`) כ i stif εn tεns (`hypertonia`) .
• I nɔ izi fɔ drink milk.
• Fɔ sho ɔltɛm se yu taya.
• Kray ɔltɛm fɔ natin, nɔ rɛst.
• Kray wik wan.
• Wan pale, blu, ɔ greyish kɔlɔ (`cyanosis`) to di skin, di finga dɛn, ɛn di lip dɛn.

If HIE tranga, di sayn dɛm kin tranga pasmak:

• Klosap no ansa nɔ de ivin if yu tɔch am ɔ mek sawnd.
• Riflɛks dɛn we rili wik.
• di we aw yu de brith abnכmal (e.g., yu de brith kwik kwik wan, yu de brith sכt).
• Di at bit we nɔ kin de ɔltɛm ɔ we kin rili slo.
• Di sik dɛn we kin mek pɔsin sik .
• Nɔbɔdi nɔ kin no natin.

Impɔtant: If yu pikin sho ɛni wan pan dɛn sik ya, kɛr am go na di ɔspitul we de nia yu ɔ kɔl 911 wantɛm wantɛm . Ivin if i tan lɛk se HIE nɔ at, na imejensi. Fɔ trit yu kwik kwik wan na di tin we impɔtant pas ɔl.

Wetin na di tin dɛn we kin mek pɔsin gɛt HIE?

Di men tin we kin mek pɔsin gɛt HIE na we di ɔksijɛn ɛn blɔd nɔ de go na di bren. Bɔku we dɛn de we dis kin apin.

HIE kin apin di tεm we di pikin de divεlכp na di bεlε bikoz fכ:

• di divεlכpmεnt כ di fכnshכn we di pikin in at כ di lכng dεm de du we nכ de wok.
• di mama gεt infεkshכn (lεk toxoplasmosis כ CMV).
• di mama we gɛt bɛlɛ in blɔd prɛshɔn go ɔp ɔ dɔŋ pasmak.
• di ɔksijɛn lɛvɛl we de na di mama we gɛt bɛlɛ in blɔd go dɔŋ.

If ɛni kɔmplikeshɔn de we i gɛt bɛlɛ ɔ we i de bɔn pikin, di pikin de pan ay risk fɔ gɛt HIE. Fɔ ɛgzampul:

• di כmbilikal kכd, we de kכmכt na di vagina bifo di pikin bכn (`kכd prolaps`).
• di kכmpreshכn fכ di כmbilikal kכd כ we di bכdi nכ de fכlכ to am igen.
• di plasεnta abrupshכn.
• di uterin we de brok.
• Plasεnta previa (we de kכba di sεviks).

Di tin dɛn we kin mek i gɛt HIE (difikulti fɔ blo) pan big pikin ɛn big pipul dɛn:

• At ritm dizayd (`Aritmia`).
• Sufכkshכn (e.g. drawn, strangulεshכn - `asphyxiation`).
• Ovados fɔ tek drɔgs ɔ mɛrɛsin.
• Pɔyzin (e.g. mɛkkyuri pɔyzin).
• Go insay shɔk.

Udat de pan risk fɔ gɛt HIE?

Di pikin we dɛn jɔs bɔn kin gɛt mɔ risk fɔ gɛt HIE if:

• Fɔ bɔn wit smɔl wet we dɛn bɔn am .
• Kɔntaminɛshɔn na di vagina fluid.
• dilay divεlכpmεnt fכ di pikin (spεshal divεlכpmεnt fכ sכm כgan dεm lεk di lכng dεm we nכ kכmplit).

Mama we gɛt bɛlɛ kin gɛt bɔku prɔblɛm dɛn we i de bɔn pikin, wit tin dɛn lɛk:

• di hεy blכd prεshכn we uman bεlε (`Preeclampsia`).
• Dayabitis we pɔsin kin gɛt we i gɛt bɛlɛ.
• Fɔ leba fɔ lɔng tɛm.
• Yuz drɔgs.

Wetin na di pɔsibul kɔmplikeshɔn dɛm fɔ HIE? Yu tink se dɛn tin ya denja?

HIE na wan sik we rili siriɔs, i kin ivin kil pɔsin. Apat frɔm dat, di damej we di bren kin pwɛl fɔ ɔltɛm kin mek i gɛt difrɛn prɔblɛm dɛn we kin de fɔ lɔng tɛm. Sɔm pan dɛn na:

• Divεlכpmεnt delay : Delay pan tin dεm lεk fכ tכk εn waka.
• Prɔblɛm dɛn we kin apin we pɔsin de gro.
• I nɔ de yɛri ɔ i nɔ de si fayn.
• Kɔgnitiv fɛnshɔn ishu dɛm, intɛlektual disabiliti .
• I nɔ kin izi fɔ mek yu pe atɛnshɔn to yu.
• Epilepsy we pɔsin kin gɛt .
• Sɛribra palsi we pɔsin kin gɛt .
• Infekshɔn dɛn we kin kam bɔku tɛm.

Bɔrku pan dɛn kɔmplikeshɔn ya nɔr kin apin wantɛm wantɛm. Dɛn kin jɔs apia we yu pikin bigin fɔ go skul. If yu pikin nɔ de mit di divɛlɔpmɛnt maylston dɛm fɔ in ej, ɔr de gɛt prɔblɛm fɔ lan na klas, go to dɔktɔ wantɛm wantɛm.

Aw dɔktɔ dɛn kin no di HIE kɔrɛkt wan?

Bikɔs HIE na mɛdikal imejensi, dɔktɔ dɛn kin rili tek tɛm wit di sayn dɛm fɔ di sik bifo ɛn afta dɛn bɔn di pikin. Dis na fɔ mek shɔ se di pikin in bren de gɛt inof ɔksijɛn ɛn blɔd. If ɛni prɔblɛm de we dɛn de bɔn di pikin, di dɔktɔ dɛn kin rɛdi fɔ trit di sik bifo dɛn ɔfishal wan no se di pikin gɛt am.

Fɔ no if yu gɛt HIE, dɔktɔ go du wan kɔmplit ɛgzam fɔ yu bɔdi. Dɛn go luk fɔ di sayn dɛm ɛn ɔda fɔ du sɔm tɛst fɔ kɔnfirm di diagnosis.

fכ HIE pan nyu bכbi dεm, dεn kin du dεn tεst ya bifo εn afta dεn bכn di pikin:

• di fεtal at mכnitri.
• Wan tɛst we dɛn kin du fɔ tɛst di pikin in blɔd.
• Nyu bכn pikin hεlth asesmεnt ( `Apgar score` ).
• tεst di bכdi εn gas lεvεl dεm na di כmbilikal kכd.
• imej tεst dεm lεk `Ultrasound` כ `MRI` (Magnetic Resonance Imaging) .
• EEG (Electroencephalogram) test (fכ mכsu di ilektrikal aktiviti fכ di bren).

Ɔda blɔd tɛst dɛn kin ɛp dɔktɔ dɛn fɔ ɔndastand aw HIE de afɛkt di pikin in ɔda ɔgan dɛn.

Wetin na di tritmɛnt dɛm fɔ HIE? (Tritmɛnt)

Dɔktɔ dɛn kin trit HIE dɛn we ya:

• If yu kol di pikin in bɔdi (therapeutic hypothermia) ɛn afta dat yu put am bak to nɔmal tɛmpracha kin ɛp fɔ mek di bren nɔ pwɛl mɔ.
• We di pikin de na ɔspitul , dɛn kin yuz EEG fɔ wach if i gɛt sik, ɛn dɛn kin gi am mɛrɛsin fɔ mek i nɔ gɛt sik.
• Mek di blɔd ɛn ɔksijɛn flɔ fayn fayn wan na di bren, .sכpכtiv tritmεnt fכ di כndalayn kכz (e.g., fכ gi supliment כksijεn tru fes mask כ nasal kanula).

If prɔblɛm dɛn kin apin we di pikin de gro, dɛn kin nid fɔ gɛt ɔda sɔpɔt. Dis inklud:

• Fizik tɛrapi ɔ ɔkupeshɔn tɛrapi.
• Tɛrapi fɔ tɔk.
• Program dɛm fɔ ɛdyukeshɔn fɔ pikin dɛn we dɛn smɔl.
• Di tin dɛn we de ɛp pɔsin lɛk glas ɔ tin fɔ ɛp pɔsin fɔ yɛri.

Yu tink se bad bad tin dɛn kin apin we di tritmɛnt kin apin?

Di mɛrɛsin dɛn we de mek pɔsin sik kin gɛt sɔm sayd ɛfɛkt dɛn. Dɛn tin ya kin difrɛn difrɛn wan bay di kayn mɛrɛsin we dɛn de gi. Bifo yu bigin fɔ trit yu pikin, tɔk to yu pikin in dɔktɔ bɔt dɛn sayd ɛfɛkt ya ɛn us sayn dɛn fɔ tek tɛm wit. ``Tɛrapi haypotɛmia`` (tritmɛnt fɔ kol di bɔdi) kin mek bak sayd ɛfɛkt, lɛk di blɔd pletlɛt we de dɔŋ.

Aw lɔŋ i go tek fɔ mek di pikin wɛl afta dɛn dɔn trit am?

Bebi dεm we nכ gεt sכm sכm sayn dεm εn we nכ gεt bren damej kin bכku bכku wan insay tu wik. Bɔt if di sik rili bad, prɔblɛm dɛn kin apin fɔ lɔng tɛm, ɛn dis kin mek dɛn nid fɔ mɛn am fɔ lɔng tɛm.

If mi pikin gɛt HIE, wetin a fɔ ɛkspɛkt? Wetin na di tin dɛn we wi go si?

Di kayn we aw di HIE kɔndishɔn siriɔs na in de sho aw di pikin go bi tumara bambay. Risach sho se bitwin 20% ɛn 50% pan di pikin dɛn we gɛt HIE kin day . Dɔn bak, bitwin 25% ɛn 60% kin gɛt lɔng tɛm nyurolɔjik dizayd ɔr nɔ kin ebul fɔ lan, lɛk sɛribra palsi ɔ ɛpilepsi .

Bɔt sɔm tɛm dɛn de, dɛn kin mɛn HIE ɔltogɛda. Di kwik we dɛn trit HIE ɛn mek dɛn nɔ pwɛl di bren, na di mɔ i go fayn. Bɔt wi fɔ ɔndastand se nɔto ɔl pikin dɛn go wɛl ɔl.

If HIE tranga, di pikin in layf kin shɔt. Bebi we in bren dɔn pwɛl bad bad wan kin day we i smɔl ɔ we i smɔl. Mild HIE nɔ kin afɛkt di layf we pɔsin kin liv. Modaret HIE kin shɔt ɔ nɔ kin shɔt di layf ɛkspɛkteshɔn. כl di pikin dεm we gεt mild εn mכdarεt HIE gεt nכmal layf εkspεktεns. Sɔpɔt tritmɛnt dɛn de fɔ mek dɛn nɔ gɛt bɔku prɔblɛm dɛn we go mek pɔsin in layf de pan denja.

We dɛn de fɔ mek yu nɔ gɛt HIE?

I sɔri fɔ no se, dɛn nɔ kin ebul fɔ stɔp HIE ɔltɛm.

Bɔt yu kin ridyus di risk fɔ gɛt HIE bay we yu de chɛk yu ɔltɛm we yu gɛt bɛlɛ . Yu dɔktɔ go gi yu advays bɔt aw fɔ de sef ɛn gɛt gud wɛlbɔdi. Bɔt ilɛk aw yu gɛt wɛlbɔdi we yu gɛt bɛlɛ, HIE kin stil apin.

Dɔn bak, fɔ kɔntrol di we aw yu de yuz drɔgs rili impɔtant fɔ mek yu nɔ gɛt prɔblɛm dɛn we go afɛkt yu ɛn yu pikin.

Fɔ big pikin ɛn big pipul dɛn, yu kin ɛp fɔ mek dɛn nɔ gɛt HIE bay we yu tek sef prɛkoshɔn bifo yu du tin dɛn we kin mek yu denja. Fɔ ɛgzampul, if yu de go swim, na usay layf gad de nɔmɔ yu go swim, dat go ɛp yu fɔ mek yu nɔ drawn.

Ustɛm a fɔ go to dɔktɔ?

If yu pikin nɔ de mit di divɛlɔpmɛnt maylston dɛm fɔ in ej, ɔ if i de sho sayn dɛm fɔ kɔmplikeshɔn as i de gro, go to yu pikin in dɔktɔ. If i nɔ izi fɔ yu pikin fɔ gi in mama in bɛlɛ, go to dɔktɔ.

Ustɛm yu fɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) ?

If yu, yu pikin, ɔ pɔsin we yu sabi gɛt ɛni wan pan dɛn HIE simptom ya, kɔl 911 wantɛm wantɛm ɛn go na di imejensi rum we de nia yu:

• I nɔ kin izi fɔ yu fɔ blo.
• Wan sik we dɛn kɔl seizure.
• If di skin tan lɛk se i gɛt blɛsin, blu, ɔ grey.
• Lɔs pan kɔnshɛns (fainting).

Us kwɛstyɔn dɛn a fɔ aks di dɔktɔ?

Yu kin aks yu dɔktɔ kwɛstyɔn dɛn lɛk dɛn wan ya:

• Aw siriɔs HIE de?
• Mi pikin in bren dɔn pwɛl?
• Us prɔblɛm dɛn a fɔ wach fɔ?
• Ɛni bad tin de we di tritmɛnt kin du?
• Ustɛm mi pikin go ebul fɔ kɔmɔt na ɔspitul?
• Ustɛm a fɔ kam nɛks fɔ wach mi pikin in wɛlbɔdi?

Fɔ dɔn, wan smɔl mɛsej we dɛn kin kɛr go na os fɔ mama ɛn papa dɛn

A ɔndastand aw mama ɔ papa kin fred ɛn wɔri we dɛn kam fɔ no se pikin we dɛn jɔs bɔn gɛt HIE (Hypoxic-Ischemic Encephalopathy). Yu kin fil se yu nɔ ebul fɔ du natin as di mɛdikal tim de wok tranga wan ɔl di de fɔ mek shɔ se di pikin in bren de gɛt inof ɔksijɛn ɛn blɔd.

Insay dis tɛm, yu dɔktɔ go tɛl yu bɔt aw yu pikin de sik . Dɛn de de fɔ ansa ɛni kwɛstyɔn we yu gɛt. Dɔn bak, rawnd yusɛf wit wan strɔng sɔpɔt grup, lɛk yu famili ɛn padi dɛn, fɔ ɛp yu fɔ pas dis tranga ɛkspiriɛns. If nid de, fɔ tɔk to pɔsin we de gi advays bɔt mental wɛlbɔdi biznɛs kin ɛp bak. Mɛmba se nɔto yu wangren de.

` Hypoxic-ischemic encephalopathy, HIE, di dכn dכn כksijεn to di bren, di dכn di bכdi saplai to di bren, nyu bכn pikin dεm, bכn asfiksia, di bren dεm we de pwεl, divεlכpmεnt delay