Yu ɔ pɔsin we yu sabi gɛt Gaucher’s Disease? If na so, yu kin dɔn yɛri bɔt di vaysin we dɛn kɔl ‘Imiglucerase’. Bɔku tɛm dɛn kin sɛl dis mɛrɛsin ɔnda di brand nem ‘Cerezyme’ na wi kɔntri. So, tide wi go jɔs tɔk bɔt us kayn mɛrɛsin dis, wetin kin apin wit am, ɛn us tin dɛn fɔ tek tɛm wit we yu de tek dis tritmɛnt.
Us kayn mɛrɛsin na Imiglucerase?
Fɔ tɔk am simpul wan, Gaucher’s Disease na wan jenɛtik kɔndishɔn we kin kam bikɔs wi nɔ gɛt wan ɛnzaym we wi bɔdi kin mek bay wilful. we dis εnzym nכ de, fεt tin dεm kin bigin fכ kam insay sכm pan di bכdi in sεl dεm. Dis kin pwɛl di ɔgan dɛn lɛk di bon dɛn, di splin, ɛn di liva.
imiglucerase na wan sεntetik εnzym we de tek di ples fכ di εnzym we nכ de. we dεn gi dis dכg insay di bכdi, i de tek ova di wok we di nεchכral εnzym de du εn i de kכntro di fεt we de kכmכt na di sεl dεm. Dis kin ridyus di sayn dɛm bad bad wan.
Bɔt dis rili impɔtant: Imiglucerase na tritmɛnt we de kɔntrol di sayn dɛm fɔ Gaucher sik, nɔto fɔ mɛn di sik.
Tin dɛm fɔ tɛl yu dɔktɔ bifo yu tek dis mɛrɛsin
Bifo yu bigin dis tritmɛnt, yu nid fɔ tɔk bɔt dɛn tin ya klia wan wit yu dɔktɔ.
- Yu gɛt alɛji fɔ Imiglucerase ɔ ɛni ɔda mɛrɛsin, it, ɔ tin dɛn we de mek yu nɔ pwɛl?
- Yu gɛt bɛlɛ ɔ yu op fɔ gɛt bɛlɛ ?
- Yu na mama we de gi pikin in bɛlɛ ?
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis tritmɛnt fayn fɔ yu ɛn aw fɔ go bifo.
Aw dɛn kin gi di tritmɛnt?
Dɛn kin gi dis mɛrɛsin as infushɔn insay wan vein, we fiba salin. Dis nɔto sɔntin we yu go ebul fɔ du na os. Na ɔspitul ɔ klinik we pɔsin we dɔn tren fɔ mɛn pipul dɛn kin gi am. Dɛn kin gi am ɛvri tu wik.
Yu tink se dɛn kin gi pikin dɛn dis mɛrɛsin?
Yɛs, dɛn kin advays dis mɛrɛsin fɔ pikin dɛn we dɔn pas 2 ia pan sɔm kes dɛm we dɛn dɔn pik. Bɔt sɔm tin dɛn de we wi fɔ tek tɛm wit we wi de gi pikin dɛn. So, if dɛn dɔn gi yu pikin dis tritmɛnt, tɔk to yu dɔktɔ we de mɛn pikin dɛn bɔt am ɛn mek ɔltin klia.
Wetin fɔ du if dɛn mek mistek we dɛn mek di mɛrɛsin inkri?
Bikɔs dɛn kin gi dis tritmɛnt na ɔspitul, di risk fɔ mek pɔsin tek am pasmak nɔ kin bɔku. Bɔt if yu tink se sɔntin dɔn apin, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm ɔ go na di Imejɛnsi Dipatmɛnt (ETU) na di ɔspitul we de nia yu.
Wetin a go du if a mis wan de fɔ tek di mɛrɛsin?
I rili impɔtant fɔ gɛt dis tritmɛnt di de ɛn tɛm we dɛn dɔn sɛtul. dis na aw yu kin mεnten di εnzym lεvεl dεm na di bכdi insay wan sכm we. If yu nɔ ebul fɔ gɛt di tritmɛnt di de we dɛn dɔn sɛtul, tɛl yu dɔktɔ wantɛm wantɛm. Dɔn i go advays yu di nɛks de fɔ gɛt di tritmɛnt.
Ɔda tin dɛm wae kin miks wit dis mɛrɛsin
Sɔm mɛrɛsin kin miks wit dis mɛrɛsin. Fɔ ɛgzampul, wan mɛrɛsin we dɛn kɔl miglustat. Bɔt dis list nɔ kɔmplit.
So tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de tek (inklud vaytamɛn, ɛbul mɛrɛsin, ɛn it we yu de it). Yu fɔ tɛl yu dɔktɔ bak if yu de smok, drink rɔm, ɔ yuz drɔgs we nɔ rayt.
Wetin na di bad tin dɛn we kin apin to pɔsin?
Lɛk ɛni mɛrɛsin, Imiglucerase kin mek sɔm pipul dɛn gɛt sayd ɛfɛkt. Wi kin sheb dɛn tin ya to tu men grup dɛn. Sɔm pan dɛn fɔ ripɔt to yu dɔktɔ wantɛm wantɛm, ɛn ɔda wan dɛn, pan ɔl we dɛn nɔ kin siriɔs, yu fɔ ripɔt am if dɛn kɔntinyu fɔ de.
| Sayd ɛfɛkt tayp ɛn diskripshɔn |
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| Sayd ɛfɛkt dɛn we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm |
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| Sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu ɔ de mɔna am |
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If yu gɛt ɛni ɔda kayn sik we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, tɔk to yu dɔktɔ bɔt dɛn bak.
Mɛsej we dɛn kin kɛr go na os
- Imiglucerase na tritmɛnt we de kɔntrol di sayn dɛm fɔ Gaucher in sik, bɔt i nɔto mɛrɛsin fɔ di sik.
- Dɛn kin gi dis tritmɛnt as infushɔn insay wan vein na ɔspitul ɔ klinik.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɛni alɛji we yu gɛt ɛn ɔl di ɔda mɛrɛsin dɛn we yu de tek.
- If yu gɛt ɛni siriɔs sayd ɛfɛkt lɛk fɔ mek yu nɔ ebul fɔ blo ɔ fɔ mek yu fes swel, go to dɔktɔ wantɛm wantɛm.
- I rili impɔtant fɔ gɛt tritmɛnt di rayt tɛm. If yu mis wan de fɔ ɛni rizin, tɛl yu dɔktɔ.
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