Wetin na haydrosɛfalɔs? Lɛ wi tɔk bɔt am ditayli!

"Hydrocephalus"... I at fɔ ivin kɔl dis wɔd, nɔto so? Sɔntɛm yu nɔ ɛva yɛri bɔt dis wɔd. Bɔt if yu se "wata de ful-ɔp di ed" ɔ "wata na di bren", yu kin no am smɔl. Dis na di mɛdikal kɔndishɔn we wi go tɔk bɔt tide. Nɔ wɔri, wi go tɔk bɔt dis simpul wan, insay Sinhala we yu kin ɔndastand.

Wetin dis tin we de ful-ɔp ed wit wata rili min?

Fɔ tɔk am simpul wan, wan spɛshal wata we de protɛkt wi bren ɛn di spɛnal kɔd (di nɛv kɔd we de rɔn dɔŋ wi spayna). I tan lɛk smɔl matres pan am. Dis wata de kɔmɔt insay wi bren. Insay mɛrɛsin, wi kin kɔl am sɛribrospaynal fluid . Sɔntɛnde dɔktɔ dɛn kin kɔl am ``Sɛribrospinal Fluid'' ɔ ``CSF''.

Tink bɔt am dis fluid we dɛn kɔl ``(CSF)`` tan lɛk di plaba sistɛm na wi os. I kin bigin frɔm wan ples, i kin flɔ na sɔm rod dɛn, ɛn leta i kin go insay wi blɔd. Dis na wetin kin apin nɔmal wan. I tan lɛk saykl, sɔntin we kin apin ɔltɛm. Dis wata de gi wi bren tin fɔ it, i de pul dɔti tin dɛn we nɔ nid, ɛn i de protɛkt di bren bak frɔm smɔl smɔl shɔk ɛn brus.

So, wetin kin apin if fɔ sɔm rizin dɛn dɔn blok di rod we dis wata de pas, ɔ if tumɔs pan dis wata de gɛda insay di bren, ɔ if di wata we de gɛda nɔ de go insay di blɔd fayn fayn wan? Na da tɛm de di prɔblɛm bigin. Jɔs lɛk we wata paip kin lɔk ɛn flɔd, dis wata sɛf kin bigin fɔ gɛda insay di bren. dis na aw dis `(CSF)` fכluid de kכlכm na di kכva dεm insay di bren (we wi kin kכl bak `(Ventricles)`) εn di prεshכn insay di ed de inkrεs, we na wetin wi kכl `(Hydrocephalus)` כ ``wata na di ed.''

Wetin mek dis de apin? Wetin kin bi di rizin dɛn?

dis nכto di כnli kכz fכ `(Hydrocephalus)`. Bɔku tin dɛn kin de we kin mek i apin. Fɔ sɔm pipul dɛn, dis kin bi sɔntin we dɛn bɔn wit . dat min se i kin bi bikoz fכ sכm prכblεm wit di divεlכpmεnt fכ di bren we di pikin stil de na di bεlε. fכ egzampl, dεn kin si dis kכndyushכn wit sכm bכn dεfεkt dεm na di nεv sεstem.

Dɔn bak, dis kin apin bikɔs ɔf rizin dɛn we kin apin leta na layf . Lɛ wi si wetin dɛn bi:

• Infεkshכn dεm na di bren כ spεnal kכd: fכ egzampl, infεkshכn dεm lεk mεningaytis kin blכk di rod dεm we di sεribrospεnal fכluid (CSF) de fכ fכlכ.
• bכdi we de bכn insay di bren: εspεshali pan di pikin dεm we dεn bכn bifo tεm (wi kכl dεm "premature babies"), bכdi we de kכmכt insay di bren kin apin. Dis kɔndishɔn kin pɔsibul bak if i apin. Dɔn bak, blɔd kin kɔmɔt insay di bren bikɔs ɔf bad bad injury na di ed.
• Bren Tכmכro: If tכmכro de divεlכp insay di bren, i kin blכk di pasej we di sεribrospεnal fכluid (CSF) de fכlכ.
• Injuri na di ed: If di ed pwɛl pan siriɔs aksidɛnt, dis wata we de muv kin ambɔg bak.
• Sɔm tin dɛn we kin apin we pɔsin gɛt jɛnɛtiks:Na smɔl tɛm nɔmɔ, haydrosɛfalɔs kin apin bak bikɔs ɔf sɔm jɛnɛtik kɔz dɛm.

De tin wae impɔtant pas ɔl na fɔ no ɛn trit dis sik kwik kwik wan, ilɛk wetin de mek yu gɛt dis sik.

Aw wi no dis? Wetin na di sayn dɛm we de sho se yu gɛt dis sik?

De sayn dɛm fɔ haydrosɛfalɔs kin difrɛn frɔm wan pɔrsin to ɔda pɔrsin. Dɔn bak, dɛn sayn ya kin chenj wit di ej.

Fɔ yɔŋ pikin dɛn (0 mɔnt - lɛk 2 ia) .

if sכm pikin gεt dis kכndishכn, dεn nכ kin se "dεn gεt ed pen" lεk wi. So di sayn dɛm wae dɛn kin gɛt kin difrɛn smɔl.

• di ed de big: If di pikin in ed de gro fast fast pas aw i fכ gro, dat na big sayn. Na di klinik, di dɔktɔ dɛn kin mɛzhɔ di say we di pikin in ed de rawnd wit wan tep fɔ chɛk if dis de apin.
• di fכs skin de luk swεla: di sכft say we de na di pikin in ed in ed, jכs oba di fכs (we wi kכl fכs skin), kin sho se i swel εn i at.
• di vein dεm de sho klia wan na di sכl: yu kin si di vein dεm de bulg כnda di skin na di sכl.
• i tan lεk se di yay dεn tכn dכn: lεk se di san de go dכn, di dak sεkshכn dεm we de כnda di yay dεm kin lεk se dεn dכn sink insay.dεn kin kכl dis bak ``Sכnset sayn''.
• Fɔ vɔmit ɔltɛm.
• A nɔ lɛk fɔ drink milk ɛn a kin lɔs mi wet.
• Ɔltɛm, i kin kray ɛn akt we i kin vɛks.
• I kin tan lɛk se dɛn de slip bad bad wan ɛn i nɔ kin izi fɔ wek.
• Sɔntɛnde, yu kin gɛt sik dɛn we de mek yu sik.

Fɔ big pikin ɛn yɔŋ pipul dɛn

If dis sik apin to big pikin ɛn yɔŋ pipul dɛm, di sayn dɛm kin bi lɛk dis:

• Yu ed kin at ɔltɛm: Dis ed we kin at kin wɔs we yu wek na mɔnin.
• Nɔs ɛn vɔmit: Yu kin si dis mɔ na mɔnin.
• Prɔblɛm fɔ si: Yu nɔ de si fayn fayn wan na yu tu yay, yu de si tu tɛm, ɛn ɔda tin dɛn.
• I nɔ izi fɔ waka, i nɔ de balans igen.
• Slip pasmak, les.
• Di chenj we yu de biev: Yu kin vɛks kwik, yu kin vɛks, ɔ yu nɔ kin mɛmba fayn ɛn yu nɔ kin ebul fɔ lan.
• Di kɔntrol we dɛn de kɔntrol fɔ go tɔylɛt nɔ bɔku.
• Tin dɛn lɛk fɔ rayt wit an kin mɛs.

Fɔ big pipul dɛn

If big pɔsin gɛt ``(Hydrocephalus),'' di sayn dɛm kin difrɛn smɔl. Sɔmtɛm, dɛn tin ya kin tan lɛk di sayn dɛm fɔ kɔmɔn sik dɛm wae kin kam wit ol pipul dɛm, so i kin let smɔl fɔ no dɛm.

• I nɔ izi fɔ waka: I kin tan lɛk se yu fut dɛn dɔn stɔp na grɔn, ɛn dis kin mek i nɔ izi fɔ stɛp.
• Wae yu nɔr de mɛmba fayn ɛn yu nɔr de tink fayn: I tan lɛk de sayn dɛm wae de sho se yu gɛt dis maynia sik.
• I nɔ izi fɔ kɔntrol di urine.

di kכmbaynshכn fכ dεn tri simptom dεm ya dεn kכl am ``Nכmal Prεshכn Hydrocephalus - NPH''.

Impɔtant:Nɔr frayd fɔ tink se yu gɛt haydrosɛfalɔs jɔs bikɔs yu gɛt wan ɔ tu pan dɛn sik ya. Bɔt if yu gɛt pas wan pan dɛn sayn ya, mɔ if yu notis se sɔntin lɛk smɔl pikin in ed de big, i go bɛtɛ fɔ mek yu rili go to dɔktɔ.

Aw dɔktɔ dɛn kin no dis?

If yu ɔ yu pikin de sho ɛni wan pan dɛn sik ya, di fɔs tin we dɔktɔ go du na fɔ chɛk yu gud gud wan. Dɛn go lisin to wetin yu de tɔk ɛn du ɛgzam fɔ yu bɔdi. If na smɔl pikin, dɛn go mɛzhɔ di saiz fɔ di ed ɛn chɛk di bren.

afta dat, sכm tεst kin nid fכ du fכ kכnfכm dis ``Hydrocephalus'' kכndishכn εn fכ no wetin de mek i de.

• Ultrasound Scan: Bɔku tɛm dis na di fɔs tɛst we dɛn kin du pan pikin. dis skan dεn de du am tru di pikin in sכkul fכ si di sayz fכ di kכva dεm we fulכp wit wata insay di bren. Dis na tɛst we nɔ de mek pɔsin fil pen ɛn we izi fɔ du.
• CT Scan (Computed Tomography Scan): Dis kin tek kכros-sekshכnal imej dεm fכ di bren. i kin si klia wan aw bכku sεribrospεnal fכluid (CSF) dεn dכn kכmכt εn aw big di kכva dεm na di bren dכn bi.
• MRI Scan (Magnetic Resonance Imaging): Dis na di bɛst tɛst we pɔsin kin du. MRI kin mek pikchɔ dɛn we rili ditayli bɔt di bren ɛn di rod dɛn we di sɛribrospaynal fluid (CSF) de flɔ tru. I kin ɛp bak fɔ no wetin mek i apin.

Bay di infɔmeshɔn we dɛn go gɛt frɔm dɛn tɛst ya, di dɔktɔ go disayd if yu ɔ yu pikin gɛt haydrosɛfalɔs, ɛn if na so i gɛt, wetin fɔ du bɔt am.

Wetin na di tritmɛnt dɛm fɔ dis?

Tritmεnt dεm de fכ di kכndyushכn ``Hydrocephalus''. di men gol na fכ pul di εksyכs ``CSF'' fכluid we dεn kכlכm insay di bren εn ridyus di prεshכn insay di ed.

Bɔku tɛm, di men tritmɛnt fɔ dis na fɔ put shunt.

"Wetin na shunt?" yu kin de wɔnda. Fɔ tɔk am simpul wan, na smɔl tiub. dis ``(Shunt)`` dεn kin כpכt am insay wan kכva we fulכp wit wata na di bren εn put am na כda pat na di bכdi (bכku tεm di bכdi kכva). di ekstra wata we de bכku na di bren de travul tru dis tכb go na di bכdi, usay i de kכmכt insay di bכdi. Dis kin ɛp fɔ kɔntrol di prɛshɔn we de insay di bren.

Dis shunt gɛt smɔl valv na wan say. Dat de kɔntrol aw bɔku wata de kɔmɔt.

Wan ɔda tritmɛnt we dɛn kin yuz na ɛndoskopik tɔd ventrikulostomi (ETV) . dis involv fכ put sכmכl kεmεra (εndoskop) insay di bren εn fכ mek nyu rod fכ di sεribrospεnal fכluid (CSF) fכ fכlכ tru. I tan lɛk se yu de mek nyu baypas rawnd wan at we dɔn blok. Nɔto ɔlman kin gɛt ETV. Yu dɔktɔ go disayd us tritmɛnt we fayn fɔ yu.

sכmtεm, if di kכz fכ ``Hydrocephalus'' na sכmtin lεk bren tכmכro, di kכndyushכn kin kכl wans dεn dכn pul di tכmכro.

Mɛmba se nɔ fred we yu yɛri bɔt dɛn ɔpreshɔn ya. Dɛn tin ya dɔn rili go bifo naw. Di dɔktɔ dɛn go ɛksplen dɛn to yu gud gud wan.

Liv wit Hydrocephalus

Hydrocephalus na wan sik wae kin te sɔmtɛm kin de fɔ ɔl yu layf. Ɛspɛshali afta dɛn dɔn put shunt, yu nid fɔ go to yu dɔktɔ ɔltɛm fɔ fala-ɔp fɔ mek shɔ se i de wok fayn.

Sɔntɛnde di shunt kin blok, brok, ɔ gɛt di sik. If dis apin, de sayn dɛm wae yu bin gɛt bifo (ed pen, vɔmit, slip) kin kam bak. If dis apin, yu fɔ go to dɔktɔ wantɛm wantɛm.

Pikin we gɛt haydrosɛfalɔs nid spɛshal atɛnshɔn fɔ mek dɛn divɛlɔp ɛn lan. Sɔntɛnde, dɛn kin nid spɛshal ɛdyukeshɔn nid, fisiotɛrapi, ɛn ɔkupeshɔn tɛrapi.

Fɔ liv wit dis sik kin tranga, bɔt if dɛn gɛt di rayt mɛrɛsin, dɛn famili sɔpɔt dɛn, ɛn dɛn gɛt gud abit, bɔku pipul dɛn kin liv nɔmal layf.

Fɔ dɔn, tin dɛn fɔ mek yu mɛmba (Take-Home Message) .

• haydrosefalus na wan kכndyushכn we wata we de fכm (sεribrospεnal fכluid - CSF) de bכlכp insay di bren, we de mek di prεshכn insay di ed go כp.
• Bɔku rizin dɛn kin de fɔ dis. I kin kam bikɔs ɔf di tin dɛn we dɛn bɔn wit ɛn bak bikɔs ɔf infɛkshɔn leta, injuri, tumbu, ɛn ɔda tin dɛn.
• Di sayn dɛm kin difrɛn difrɛn wan bay di ej. pan yכŋ pikin dεm, di men sayn dεm na we di ed de big εn di bren de swel. Na pikin dɛm we dɔn big, di sayn dɛm kin bi ed we de at, vɔmit, we dɛn nɔ de si fayn, ɛn i nɔ kin izi fɔ waka.
• If yu si sayn dɛm lɛk dis, nɔr panik ɛn go to dɔktɔ kwik kwik wan.
• Dis kin kɔnfɔm bay we dɛn de skan tɛst.
• Bɔku tɛm, dɛn kin du shunt ɔpreshɔn as tritmɛnt.
• We yu de liv wit haydrosɛfalɔs, i rili impɔtant fɔ go to yu dɔktɔ ɔltɛm ɛn fala wetin dɛn tɛl yu fɔ du.

Mɛmba se nɔto yu wangren de. If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis, nɔ fred fɔ tɔk to yu dɔktɔ. I go ɛksplen ɔltin to yu.

` haydrosefalus, wata pan di bren, sεribrospεnal fכluid, CSF, shunt, bren big, bren כpεrayshכn