Yu dɔktɔ dɔn tɛl yu ɔ sɔmbɔdi na yu famili gɛt wan sik we dɛn kɔl Primary Hyperoxaluria Type 1 (PH1)? If na so, dɛn go dɔn tɛl yu bɔt wan mɛrɛsin we dɛn kɔl Lumasiran. Bikɔs dis na sɔm spɛshal mɛrɛsin ɛn nɔr kin kɔmɔn, yu kin gɛt bɔrku kwɛstyɔn bɔt am. Na nɔmal tin fɔ wɔnda tin lɛk, "Wetin go apin wit dis?", "I sef?", "Ɛni sayd ɛfɛkt de?" So nɔ wɔri, tide wi go tɔk bɔt dis Lumasiran vaysin insay wan simpul we we yu go ɔndastand.
Mek wi si fos, wetin bi Lumasiran?
Fɔ tɔk am simpul wan, Lumasiran (brand nem: OXLUMO) na spɛshal vaysin we dɛn kin gi big pipul ɛn pikin dɛn we gɛt wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl Primary Hyperoxaluria Type 1 (PH1).
Okay, naw lɛ wi si wetin rili de apin. Pɔsin we gɛt PH1 sik kin mek mɔ kemikal we dɛn kɔl ɔxalate na in bɔdi, mɔ na di liva. Dis ɔksalat we pasmak kin jɔyn wit kalsiɔm fɔ mek smɔl smɔl kristal dɛn we tan lɛk san. Dɛn kristal ya kin de na di kidni ɛn di urinary tract, we kin mek di kidni pwɛl bad bad wan, di kidni ston, ɛn leta di kidni nɔ kin wok fayn.
di men wok we di Lumasiran vaksin de du na fכ ridyus di כksalεt we nכ nid fכ prodyuz na di bכdi. Dis kin ɛp bɔku fɔ kɔntrol di damej we di kidni dɛn kin gɛt.
Dis nɔto pil. Na injɛkshɔn we dɛn kin put ɔnda di bɔdi.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin fɔ tek mɛrɛsin
Bifo yu bigin dis tritmɛnt, i rili impɔtant fɔ tɛl yu dɔktɔ yu kɔmplit wɛlbɔdi histri, mɔ bɔt dɛn tin ya.
- Alɛji: Duya tɔk klia wan if yu gɛt ɛni alɛji, nɔto jɔs to Lumasiran, bɔt to ɛni ɔda mɛrɛsin, it, it day, ɔ tin dɛn we de mek yu nɔ pwɛl.
- Bɛlɛ: Yu fɔ tɔk bak if yu gɛt bɛlɛ naw ɔ yu de op fɔ bɔn pikin jisnɔ.
- Fɔ gi pikin in bɛlɛ: If yu na mama we de gi pikin in bɛlɛ, tɛl di dɔktɔ bak.
Bay dis infɔmeshɔn, di dɔktɔ go disayd if dis tritmɛnt fayn fɔ yu, ɔ if yu fɔ tek am wit spɛshal kia.
Aw dɛn kin gi dis vaysin? Ɛn dɛn kin gi am to pikin dɛn?
Dis nɔto vaysin we yu kin kɛr go na os ɛn gi yusɛf. Na dɔktɔ ɔ nɔs we tren kin gi am ɔnda yu skin ɔltɛm na ɔspitul ɔ klinik. So yu go gɛt fɔ go na di klinik pan di de dɛn we dɛn dɔn sɛtul fɔ dis.
Yu kin gi pikin dɛn dis mɛrɛsin?
Yes, dɛn kin gi dis mɛrɛsin bak to pikin dɛn we gɛt PH1 sik. Bɔt we dɛn de gi pikin dis tritmɛnt, dɛn fɔ pe atɛnshɔn mɔ pan tin dɛn lɛk di ej ɛn di wet we i gɛt. So, if dɛn dɔn gi yu pikin dis mɛrɛsin, nɔ fred fɔ tɔk bɔt ɛni kwɛstyɔn ɔ dawt we yu gɛt wit di dɔktɔ.
Lɛ wi tek tɛm wit di doz fɔ di mɛrɛsin.
Wetin fɔ du if yu tek di mɛrɛsin pasmak?
Bikɔs dɛn kin gi dis na ɔspitul, di chans fɔ mistek di doz rili smɔl. Bɔt if yu gɛt ɛnitin fɔ tink se yu dɔn gɛt tumɔs pan dis mɛrɛsin sɔm kayn we, tɛl di dɔktɔ dɛn wantɛm wantɛm . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu. If nid de, yu kin kɔl bak di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital fɔ advays.
Wetin fɔ du if yu mis wan doz fɔ di vaysin?
I rili impɔtant fɔ gɛt di vaysin di rayt tɛm ɛn di de dɛn we dɛn dɔn sɛtul fɔ mek dis tritmɛnt go bifo. So, nɔ mis di de dɛn we di dɔktɔ gi yu fɔ mek yu go si yu. If yu nɔ ebul fɔ go bikɔs ɔf wan rizin we rili impɔtant, we yu nɔ go ebul fɔ avɔyd, kɔl yu dɔktɔ ɔ di klinik wantɛm wantɛm ɛn tɛl dɛn bɔt dis ɛn aks fɔ advays di nɛks de we go kam.
Yu fɔ no bɔt di bad tin dɛn we kin apin to yu
Lɛk ɛni mɛrɛsin, Lumasiran kin mek sɔm sayd ɛfɛkt dɛn. Bɔt, nɔto ɔlman kin gɛt dɛn. Lɛ wi tek wan luk pan wetin na dɛn sayd ɛfɛkt ya.
| Tayp fɔ di sayd ɛfɛkt | Tɔk bɔt |
|---|---|
| Siriɔs sayd ɛfɛkt dɛm we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
| Siriɔs alɛji riakshɔn dɛn | If yu gɛt ɛni sayn lɛk we yu gɛt skin rɔsh, ayv, yu fes, yu lip, ɔ yu tɔng we de swel, ɔ we i nɔ izi fɔ blo, go to dɔktɔ wantɛm wantɛm. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Riakshכn dεm na di sayt we dεn de injεkshכn | I kin gɛt rɛd, pen, swel, ɔ it na di say we dɛn injekt. Bɔku tɛm, dɛn tin ya kin go insay sɔm dez. |
| Bɛlɛ de pen | Sɔm pipul dɛn kin gɛt smɔl bɛlɛ pen. |
Di tin we impɔtant pas ɔl na dat, ivin if yu nɔ si ɛnitin na dis list, nɔ fred fɔ tɔk to yu dɔktɔ bɔt am if yu notis ɛnitin we nɔ kɔmɔn ɔ we difrɛn.
Yu tink se prɔblɛm go de wit ɔda mɛrɛsin dɛn?
Akɔdin to stɔdi dɛn we dɛn dɔn du te naw, nɔ ripɔt nɔ de fɔ se Lumasiran vaysin de mek i gɛt intarakshɔn wit ɔda mɛrɛsin dɛn.
Bɔt, dat nɔ min se yu kin yuz ɛnitin we yu want. Fɔ yu yon sef, i bɛtɛ fɔ tɛl yu dɔktɔ bɔt ɔltin we yu de yuz.
- Drug dɛn we dɛn kin gi pɔsin
- Drug dɛn we nɔ gɛt prɛskrishɔn
- Vitamin ɔ ɔda tin dɛn we dɛn kin yuz fɔ mek tin dɛn
- Tradishɔnal ɔ Ayurveda mɛrɛsin dɛn (ɛrbal prɔdak dɛn) .
Tɛl yu dɔktɔ bɔt ɔl dɛn tin ya. Dɔn bak, tɛl am if yu de smok ɔ drink rɔm.
Mɛsej we dɛn kin kɛr go na os
- Lumasiran na spεshal injεkshכn we dεn kin gi fכ ridyus di כksalet we de bכlכp na di bכdi bikoz fכ Primary Hyperoxaluria Type 1 (PH1).
- Na ɔspitul ɔ klinik nɔmɔ dɛn kin gi dis vaysin na di mɛdikal wokman dɛn we tren. I nɔto mɛrɛsin we pɔsin kin kɛr go na os.
- Bifo yu bigin fɔ trit yu, mek shɔ se yu tɛl yu dɔktɔ bɔt ɔl yu alɛji, ɔda mɛrɛsin dɛn, ɛn ɔl di mɛrɛsin dɛn we yu de tek.
- Nɔ mis yu scheduled vaksin apɔntinmɛnt. If yu nɔ ebul fɔ atɛnd fɔ ɛni rizin, kɔl yu dɔktɔ wantɛm wantɛm.
- If yu gɛt siriɔs alɛji lɛk fɔ swel na yu fes, yu lip, yu nɔ go ebul fɔ blo, ɔ yu skin de rɔsh, go to dɔktɔ wantɛm wantɛm.
- Nɔ ɛva shem fɔ tɔk to yu dɔktɔ bɔt ɛni ɔda kayn sik ɔ sayd ɛfɛkt we yu gɛt.
💬 Comments (0)
No kɔmɛnt nɔ de yet. Ad yu kɔmɛnt ya fɔ di fɔs tɛm.
Ad yu kɔmɛnt