Yu pikin in kɔnia big pasmak? I kin bi bikɔs ɔf Mɛgalokɔnia!

Yu dɔn ɛva luk yu smɔl pikin in yay gud gud wan? Sɔntɛnde wi kin si se di kɔnia, we na di klia, rawnd pat usay layt kin go insay di yay, tu big smɔl. Ɔ yu kin kɔnfyus smɔl we dɔktɔ dɔn tɛl yu di wɔd ``Megalocornea''. Wetin rili na ``Megalocornea''? Nɔ wɔri, wi go tɔk bɔt am simpul wan we yu go ɔndastand.

Wetin rili na `(Megalocornea)`?

fכ sכmtεm, `(Megalocornea)` na we di transparent mεmbran na di fכs pat pan di yay, di pat we wi kכl di kכnia , big pas nכmal. Imajin, if wi yay tan lɛk kamɛra, dis kɔnia tan lɛk di glas we de protɛkt pɔsin we de bifo di lens na da kamɛra de. Layt kin go insay di yay tru dis. insay di kes fכ `(Megalocornea)`, di dayamita fכ dis kכnia (dat na di distans frכm wan say to di כda wan) pas 13 milimita. Nɔmal wan, dis saiz na smɔl pikin kin smɔl pasmak.

כda tin we kin apin wit dis na dat di spεs we fulכp wit wata bitwin di kכnia εn di kכla pat na di yay (we wi kכl di ayris), we dεn kכl di antεriכ chεmba , kin dip pas aw i nכmal.

di imכtant tin na dat `(Megalocornea)` na `(congenital)` kכndishכn . Dis min se dεn bכn di pikin wit dεn tin ya. Bɔku tɛm, dɔktɔ dɛn kin no am we dɛn yɔŋ. Bɔrku pipul nɔr kin gɛt big big prɔblɛm wit dɛn yay bikɔs ɔf dis, ɛn i nɔr kin bi `(progressive)` kɔndishɔn wae kin wɔs as tɛm de go. Dis min se bɔku tɛm na di sem tin lɛk aw i de. dis na di opozit fכ wan kכndyushכn we dεn kכl `(Microcornea)`. insay `(Microcornea)`, di kכnia de sכm sכm we nכ de nכmal.

Bɔt sɔmtɛm dis `(Megalocornea)` kɔndishɔn kin gɛt fɔ du wit ɔda sik dɛn. fכ egzampl, dεn kin si am wit kכnektiv tisu sik dεm lεk `(Marfan syndrome)`. If dis apin, yu pikin kin gɛt ɔda sik dɛn na di yay lɛk katarakt. na dat mek i rili impɔtant fɔ no di `(Megalocornea)` kɔndishɔn kwik kwik wan. Dɔn di dɔktɔ dɛn kin wach di pikin in yay ɛn di tin dɛn we i de si.

Dɔktɔ dɛn kin yuz bɔku ɔda nem dɛn fɔ dis sik:

• Di mɛgaloftalmos we de bifo
• Di mɛgaloftalmia we dɛn bɔn wit antɛriɔr
• Isolated congenital mɛgalokɔnia we dɛn bɔn wit
• Makrokɔnia

Aw Megalocornea kin afɛkt di yay?

כltεm, di kכndyushכn ``Megalocornea'' kin afekt di tu yay dεm. Mɔ pan tu we dɛn:

1. di dayamita fכ di kכnia (we dεn mכsu frכm sayd to sayd) big pas nכmal (i pas 13 milimita).

2. di fכnt pat pan di yay, usay wan klia wata we de fכlכ (di antεriכr chεmba) de dip pas nכmal.

na dεn chenj dεm ya de mek di yay dεn luk big sכmtεm frכm do.

Udat dis tin kin afɛkt mɔ?

Dɛn kin si mɛgalokɔnia mɔ pan bɔy pikin dɛn . dis na biכs mכr dan 90% pan di kes dεm fכ mεgalokכnia de kכz fכ wan jεnεtik mכtεshכn na di X kromozom. Dɛn sik ya we gɛt fɔ du wit X kin afɛkt bɔy pikin dɛn pas gyal pikin dɛn.

Dis na tin we nɔ kin apin so ɔltɛm . Di wan dɛn we de stɔdi bɔt dis nɔ kin ebul fɔ tɔk ustɛm dɛn bɔn am wit am, bɔt dɛn biliv se i go mɔs bi se dɛn nɔ no se i gɛt am.

Wetin na di men kayn `(Megalocornea)`?

Tu men kayn `(Megalocornea)` de:

1. Isolated or simple megalocornea : Dis kin afɛkt di kɔnia nɔmɔ ɛn i nɔ kin gɛt ɛnitin fɔ du wit ɛni ɔda sik.

2. Anterior megalophthalmos : Dis kayn tin kin gɛt fɔ du wit wan ɔndalayn kɔndishɔn, so i kin afɛkt ɔda pat dɛn na di pikin in yay ɔ ɔda pat dɛn na di bɔdi.

Wetin kin mek pɔsin gɛt Mɛgalokɔnia?

di mεgalokכnia de kכz fכ wan jεnεtik mכtεshכn na di CHRDL1 jin, we de εp fכ kכntrכl di ay growth. Risach pipul dɛn biliv se dis chenj de mek di optik kɔp , we na pat pan di yay, gro big pas aw i kin gro. Dis na di men tin we kin mek di kɔnia big.

Wetin na di sayn dɛm fɔ di sik `(Megalocornea)`?

Di gud nyus na dat bɔrku pipul dɛm wae dɛn bɔn wit Megalocornea nɔr kin gɛt ɛni sayn . Dɛn kin liv nɔmal layf.

Bɔt sɔm pikin dɛn kin gɛt sayn dɛn lɛk dis:

• sכmtεm di vishכn de chenj כ blכr vishכn bikoz fכ astigmatism. (Astigmatism na wan sik we di kɔnia nɔ de pafɛkt sfɛri, we de mek layt nɔ de fɔs na wan ples insay di yay.)
• Sεnsitiviti to brayt layt (photophobia) - dis min se di yay dεm kin blu we yu de pan san layt כ brayt layt.
• Short-sightedness (mayopia) we pɔsin kin si tin.

Bɔt if di kɔndishɔn ``Megalocornea'' gɛt fɔ du wit ɔda sik dɛm, di pikin kin gɛt mɔ siriɔs sayn dɛm lɛk:

• Katarakt we pɔsin kin gɛt.
• Koloboma (pat pan di yay we nɔ de divɛlɔp fayn).
• di lεns we dεn sכk (ectopia lentis) כ phacondonesis.
• Glaucoma (vishɔn damej bikɔs ɔf di ay prɛshɔn we de go ɔp).
• di ring we de rawnd di lens na di yay (ciliary body band) big pas aw i nכmal.
• Lɔw vishɔn.
• Di retina we de kɔmɔt na di bɔdi.

Impɔtant: If yu pikin gɛt ɛni wan pan dɛn sik ya, go to ay dɔktɔ wantɛm wantɛm. If yu no am kwik kwik wan, i izi fɔ trit.

Aw fɔ no `(Megalocornea)`?

Dɔktɔ dɛn kin no se i gɛt mɛgalokɔnia we dɛn smɔl . Ɔftalmolɔg dɛn kin kɔnfirm dis wit ay ɛgzam ɛn if nid de, dɛn kin tɛst di jɛnɛtiks.

I rili impɔtant fɔ no dis kɔrɛkt wan, bikɔs dɛn kin difrɛns am frɔm ɔda siriɔs sik dɛn lɛk glaukoma, ɛn i impɔtant bak fɔ mek dɛn gi yu di rayt tritmɛnt.

Yu dɔktɔ kin du ɔda tɛst dɛn bak, lɛk:

• Glɔkoma tɛst dɛn.
• Gonioscopy (egzamin fכ di angle fכ di antεriכr chεmba na di yay).
• optik kohεrens tכmografi (OCT) (we de tek pikchכ fכ di layεr dεm na di yay).
• Tonometry (we dɛn de mɛzhɔ di prɛshɔn na di yay).
• Ultrasound egzamin.
• fכ kכl di vitreous index fכ mכsu di akyu fכ fכm na di yay.

Yu tink se mɛrɛsin de fɔ `(Megalocornea)`?

Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de fɔ Megalocornea. Bɔt nɔ wɔri! Tritmɛnt kin ɛp fɔ protɛkt yu pikin in yay, fɔ kɔntrol ɔda tin dɛn we de apin, ɛn fɔ mek i nɔ gɛt prɔblɛm dɛn. Fɔ no di sik kwik kwik wan na di bɛst we fɔ mek yu pikin gɛt di rayt tritmɛnt we i nid.

Yu dɔktɔ kin sɛn yu to dɔktɔ we de mɛn pikin dɛn we de mɛn dɛn yay. If yu pikin gɛt ɔda sik dɛn we de mek yu gɛt am, yu go nid fɔ go to ɔda spɛshal pipul dɛn.

Wetin na di tritmɛnt dɛm fɔ `(Megalocornea)`?

Bɔrku tɛm, mɛgalokɔnia nɔr nid ɛni spɛshal tritmɛnt , mɔ if yu pikin in yay nɔmal ɛn intraokular prɛshɔn nɔmal. Yu pikin in dɔktɔ kin tɛl yu fɔ du "watchful waiting". Dis min se yu fɔ de chɛk yu pikin in yay ɔltɛm ɛn wach fɔ ɛni chenj.

Bɔt if yu pikin gɛt sɔm sayn dɛn ɔ ɔda tin dɛn we de mek i sik, i kin nid tritmɛnt fɔ mek i ebul fɔ kɔntrol am. Di tritmɛnt dɛn we nɔto ɔpreshɔn na:

• Mɛrɛsin, fɔ ɛgzampul, ay drɔp.
• Di tin dɛn we pɔsin kin yuz fɔ si (ayglas ɔ kɔntakt lɛns we dɛn mek fɔ spɛshal wan).

Sɔntɛnde, i kin nid fɔ du ɔpreshɔn:

• Katarakt ɔpreshɔn ɔ ɔpreshɔn fɔ trit glaukoma.
• Fɔtorefraktiv keratektomi (PRK) na ɔpreshɔn we dɛn kin du na di yay fɔ mɛn pɔsin we de si nia ɔ we i gɛt astigmatism.

Wetin a fɔ ɛkspɛkt if mi pikin gɛt `(Megalocornea)`?

Bɔku pikin dɛn we gɛt mɛgalokɔnia kin gro ɔp wit ɛn kɔntinyu fɔ si fayn . Ɔda pipul dɛn kin ebul fɔ kɔntrol dɛn sik dɛn wit tin dɛn we de ɛp dɛn fɔ si ɔ kɔrɛkt lens.

Bɔt di fiuja fɔ pikin dɛn we gɛt dis sik kin dipen pan di kayn sik ɛn aw i siriɔs. If yu fil se yu sik de wɔs , tɔk to yu dɔktɔ bɔt di bɛst tin fɔ protɛkt yu pikin in yay ɛn in wɛlbɔdi.

A kin ridyus di risk fɔ mek mi pikin gɛt Mɛgalokɔnia?

Fɔ tɔk tru, natin nɔ de we yu go du fɔ mek yu nɔ gɛt Megalocornea. Dis na wan sik we pɔsin kin gɛt we i kam pan jɛnɛtiks. Bɔt yu kin du tin dɛn fɔ protɛkt yu pikin in yay.

Yu kin mek di kɔnia nɔ pwɛl bay we yu wɛr aywe we de protɛkt yu we yu ɔ yu pikin de du dɛn tin ya:

• We yu de klin wit blich ɔ ɔda kemikal dɛn.
• We yu de wok na do lɛk fɔ kɔt di lawn.
• We dɛn de du ripɛnt wok we gɛt fɔ du wit fɔ yuz ilɛktrik ikwipmɛnt, hama, ɔ fɔ pent.
• Insay spɔt dɛn lɛk baysbɔl ɔ ɔki.

If yu pikin wɛr kɔntakt lens, fala di instrɔkshɔn fɔ klin ɛn disinfɛkt am fayn fayn wan fɔ mek i nɔ gɛt infɛkshɔn na in yay ɔ in kɔnia. Nɔ mis yu ay dɔktɔ apɔntinmɛnt , ɛn fala di tritmɛnt gaydlayn fɔ mek yu nɔ gɛt prɔblɛm ɛn fɔ mek yu pikin nɔ si fayn.

Ustɛm yu fɔ go to dɔktɔ fɔ di sik `(Megalocornea)`?

Fɔ no di mɛgalokɔnia kwik kwik wan impɔtant fɔ mek dɛn ebul fɔ trit am fayn. If yu pikin in yay nɔ de fil fayn, i de fil pen, ɔ i chenj in yay, go to yu dɔktɔ wantɛm wantɛm.

Yu dɔktɔ kin gi yu pikin di rayt tritmɛnt fɔ mek i fil fayn ɛn fɔ mek i nɔ si fayn.

Fɔ kia fɔ yu ɔltɛm impɔtant fɔ trit di ɔndalayn kɔndishɔn ɛn fɔ mek dɛn nɔ gɛt prɔblɛm dɛn lɛk katarakt ɔ glaukoma.

Megalocornea na wan sik we nɔ kin apin so ɔltɛm we kin mek di kɔnia na di yay big. Bɔt di gud nyus na dat, bɔku pipul dɛn nɔ kin gɛt dis sik. Ɔda wan dɛn kin protɛkt dɛn yay wit kɔrɛkt lens ɛn mek dɛn nɔ gɛt prɔblɛm dɛn. We yu pikin de chɛk yu yay ɔltɛm, i go ebul fɔ si di wɔl klia wan ɛn ɛnjɔy layf gud gud wan!

Tin dɛn we yu nid fɔ no (Take-Home Message) .

Okay, so naw yu geht gud andastandin fo wetin wi bin de tok boht (Megalocornea). Na sɔm impɔtant tin dɛn we yu fɔ mɛmba:

• Megalocornea na wan rare congenital condition we di konia na di yay big pas nכmal.
• Bɔku tɛm, dis kin afɛkt bɔy pikin dɛn mɔ.
• Bɔku pikin dɛn nɔ kin gɛt big prɔblɛm wit dɛn yay bikɔs ɔf dis, ɛn i nɔ kin wɔs as tɛm de go.
• Bɔt sɔntɛnde, i kin gɛt fɔ du wit ɔda sik dɛn we pɔsin kin gɛt. So, i rili impɔtant fɔ no di sik kwik kwik wan ɛn fɔ de chɛk yu yay ɔltɛm lɛk aw dɔktɔ advays se.
• Tritmɛnt na if yu gɛt sayn ɔ ɔda prɔblɛm dɛn.
• Nɔ wɔri, ɔnda di rayt mɛdikal sɔpɔtishɔn, di pikin kin liv nɔmal layf wit gud vishɔn.

If yu stil gɛt kwɛstyɔn bɔt dis, nɔ shek fɔ aks yu famili dɔktɔ ɔ dɔktɔ we de mɛn yu yay.

` Megalocornea, Kכnia de big, Pikin dεm in yay sik, Congenital yay sik, Anterior membrane fכ di yay, Ay tεst, CHRDL1 jin