We yu dɔktɔ tɛl yu ɔ pɔsin we yu lɛk se yu gɛt kansa we dɛn kɔl ‘ Multiple Myeloma ’, i tɛl yu bak se yu nid fɔ bigin wan tritmɛnt we dɛn kɔl Melphalan Flufenamide Injection? Na nɔmal tin fɔ fil smɔl frayd ɛn fred we yu yɛri nem lɛk dis. Bɔt nɔ fred. Tide, wi go tɔk rili simpul ɛn fayn bɔt dis mɛrɛsin, wetin i de du, ɛn wetin wi nid fɔ tek tɛm wit. Dis atikul go ansa bɔku pan di kwɛstyɔn dɛn we yu gɛt na yu maynd.
Fɔ tɔk am simpul wan, wetin na Melphalan Flufenamide?
Dis na mɛrɛsin we de pwɛl di kansa sɛl dɛn . Insay mɛrɛsin, wi kin kɔl dis kemotɛrapi . Spɛshal wan, dɛn kin yuz dis mɛrɛsin fɔ mɛn Multiple Myeloma , we na wan kayn kansa we kin apin na di plasma sɛl dɛn we kin mek na wi bon mɛrɔ.
Imajin se wi bɔdi tan lɛk wan fayn gadin. Sɔntɛnde, gras dɛn we dɛn nɔ want kin gro na dis gadin we kin pwɛl di gadin. Kansa sɛl dɛn tan lɛk dat. dεn nכ lεk nכmal sεl dεm, dεn de sheb kwik kwik wan εn de spre כlsay na di bכdi we dεn nכ de kכntrol. Dis drɔg we dɛn kɔl Melphalan Flufenamide de luk fɔ dɛn kansa sɛl dɛn de we de sheb kwik kwik wan, atak dɛn, ɛn stɔp dɛn fɔ gro. I tan lɛk se yu de sprɛy mɛrɛsin we dɛn kɔl ɛbisid ɛn pwɛl di gras. Bɔt insay dis prɔses, sɔm gud sɛl dɛn kin afɛkt smɔl bak. Na dat mek sayd ɛfɛkt kin apin. Wi go tɔk bɔt dat leta.
Tin dɛm wae yu fɔ tɛl yu dɔktɔ bifo yu bigin dis tritmɛnt
Dis rili impɔtant. Yu dɔktɔ nid fɔ gɛt kɔmplit pikchɔ bɔt yu wɛlbɔdi bifo i gi yu ɛni mɛrɛsin. So, mek shɔ se yu tɛl dɛn dɛn tin ya ɛn nɔ ayd ɛnitin.
| Infɔmeshɔn we yu nid fɔ gi | Fɔ tɔk am simpul wan, wetin mek... |
|---|---|
| Infɛkshɔn dɛn we de naw | If yu gɛt infekshɔn naw lɛk fiva, kol, ɔ kɔf, dis mɛrɛsin kin mek di infekshɔn wɔs bikɔs i kin mek di bɔdi in imyun sistɛm wik mɔ. So, dɛn fɔ jɔs bigin dis mɛrɛsin afta dɛn dɔn dɔn di tritmɛnt fɔ dat. |
| Alɛji dɛn we pɔsin kin gɛt | Mek shɔ se yu tɛl yu dɔktɔ if yu gɛt ɛni alɛji to Melphalan Flufenamide, Melphalan, ɛni ɔda mɛrɛsin, it, ɔ day. Tɛl dɛn if yu bin dɔn gɛt ɛnitin fɔ du wit yu skin trade, lɛk fɔ gɛt rash ɔ it. |
| Bɛlɛ ɔ tray fɔ gɛt bɛlɛ | Dis mɛrɛsin kin rili ambɔg di pikin we nɔ bɔn yet. Tɛl yu dɔktɔ if yu gɛt bɛlɛ, yu de tray fɔ gɛt bɛlɛ, ɔ yu tink se yu go gɛt bɛlɛ. |
| If yu na mama we de gi pikin in bɛlɛ (Breast-feeding) . | di tin dεm we de insay di mεdikal kin pas to di pikin tru in mama in milk. I de ambɔg di pikin. So if yu de gi pikin in mama in bɛlɛ, tɛl yu pikin bɔt am. |
Aw dɛn go gi yu dis mɛrɛsin?
Dis nɔto mɛrɛsin we yu kin kɛr go na os. Dis na injɛkshɔn we dɛn kin put insay wan vein . Dat min se na ɔspitul ɔ klinik we tren fɔ mɛn pipul dɛn kin gi am. Dɛn kin put kanula insay yu vein ɛn tru am dɛn kin put dis mɛrɛsin insay yu bɔdi smɔl smɔl wit wan bɔtul we gɛt salin.
Fɔ fala yu dɔktɔ in instrɔkshɔn dɛn di de we dɛn gi yu dis mɛrɛsin. Sɔntɛnde, dɛn kin gi yu ɔda mɛrɛsin (lɛk mɛrɛsin fɔ mɛn yu nɔs) bifo yu tek dis mɛrɛsin fɔ ridyus di sayd ɛfɛkt dɛm.
Di tin we impɔtant pas ɔl na fɔ tek yu tritmɛnt jɔs di de ɛn tɛm we yu dɔktɔ gi yu. Nɔ skip wan doz fɔ ɛni rizin. If yu nɔ ebul fɔ mek am, kɔl yu dɔktɔ bifo tɛm ɛn mek i no.
Wetin fɔ du if yu tek bɔku mɛrɛsin?
Dɛn kin gi dis na ɔspitul say so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se yu dɔn tek di mɛrɛsin tumɔs, tɛl di wan dɛn we de wok de wantɛm wantɛm. Ɔ kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital . If ɛnitin apin we nɔ izi fɔ du, kɔl di wan we de nia yuGo na di Imejɛnsi Tritmɛnt Yunit (ETU).
Ɔda tin dɛm wae kin intarakt wit dis mɛrɛsin (Interactions) .
Yu fɔ tɛl yu dɔktɔ bɔt ɛni mɛrɛsin we yu de tek, ilɛksɛf na vaytamɛn, tin we de ɛp yu fɔ it , ɔ ivin Sinhala mɛrɛsin. Sɔm mɛrɛsin dɛn kin mek prɔblɛm we dɛn put dɛn togɛda wit Melphalan Flufenamide.
- Layf vaysin: Yu fɔ avɔyd fɔ gɛt layf vaysin dɛn dis tɛm bikɔs yu imyun sistɛm wik bikɔs ɔf kemotɛrapi, ɛn yu kin sik frɔm dɛn vaysin dɛn de.
- Ɔda mɛrɛsin dɛn: Dɛn mɛrɛsin ya kin miks wit sɔm mɛrɛsin dɛn, mɔ di kamɔstin, cisplatin, ɛn sayklosporin. I bɛtɛ fɔ gi yu dɔktɔ wan list fɔ ɔl di mɛrɛsin dɛn we yu de tek.
Dɔn bak, if yu de smok, drink rɔm, ɔ yuz ɔda drɔgs, tɔk to yu dɔktɔ bɔt dat ɔnɛs wan.
Tin dɛm wae wi fɔ pe atɛnshɔn to wae wi de trit wi
Na nɔmal tin fɔ fil smɔl nɔr kɔmfyut ɛn nɔr gɛt layf wae yu de du kemotɛrapi. dis na biכs, lεk aw wi bin se, dεn dכg dεm ya nכ de כnli afekt di kεnsar sεl dεm, bכt i de afekt hεlty sεl dεm we de sheb kwik kwik wan na wi bכdi (e.g., ia sεl dεm, sεl dεm we de insay wi mכt, bכdi sεl dεm).
- Risk fɔ gɛt infɛkshɔn: Dis mɛrɛsin kin ridyus di nɔmba fɔ di wayt blɔd sɛl dɛn na yu blɔd. Wait blɔd sɛl dɛn tan lɛk di ami na wi bɔdi. Dɛn kin fɛt di jem dɛn. So we dɛn nɔ bɔku, yu kin sik ɛn gɛt infɛkshɔn.
- If yu gɛt sɔm sayn dɛn lɛk fiva, kol, trot we de at, kɔf, nɔs we de rɔn, ɔ bɔn we yu de pis, nɔ fɔ tek mɛrɛsin fɔ yusɛf ɛn kɔl yu dɔktɔ wantɛm wantɛm.
- Ridyus fɔ go na ples dɛn we pipul dɛn kin bɔku.
- Stay away frɔm pipul dɛn we sik.
- Wash yu an fayn fayn wan wit sop ɔltɛm.
- Risk fɔ blɔd: Dis mɛrɛsin kin ridyus di nɔmba fɔ di pletlɛt dɛn bak, we kin ɛp fɔ mek blɔd klɔt. So, ivin we pɔsin kɔt smɔl, i kin tek lɔng tɛm fɔ lɛ i nɔ blɔd igen.
- If yu gɛt brus we nɔ kɔmɔn (blu spat) na yu bɔdi, blɔd na yu gɔm, yu nos blɔd, blɔd na yu stɔl (blak stɔl), ɔ rɛd/dak brawn urine, tɛl yu dɔktɔ wantɛm wantɛm.
- We yu de brus yu tit, yuz brɔsh we saf.
- Stay away frɔm tin dɛn we kin mek yu kɔt ɛn skrach.
- Bεlε εn fεtiliti: Dis rili impɔtant.
- Uman: We yu de tek dis mɛrɛsin ɛn fɔ 6 mɔnt afta yu dɔn stɔp fɔ trit yuYu fɔ avɔyd fɔ gɛt bɛlɛ. Tɔk to yu dɔktɔ bɔt wan fayn we fɔ kɔntrol bɔn pikin.
- Man: Yu fɔ avɔyd fɔ bɔn pikin we yu de tek dis mɛrɛsin ɛn fɔ 3 mɔnt afta yu dɔn stɔp fɔ trit yu.
- Fɔ gi yu pikin in mama in bɛlɛ: Nɔ gi yu pikin in bɛlɛ we yu de trit am ɛn fɔ wan wik afta yu dɔn stɔp.
- Dis mɛrɛsin kin afɛkt yu ebul fɔ bɔn pikin tumara bambay. If yu gɛt ɛnitin fɔ wɔri bɔt dis, tɔk to yu dɔktɔ bifo yu bigin fɔ trit yu.
Sayd ɛfɛkt dɛn we kin apin bikɔs ɔf mɛrɛsin
Nɔto ɔlman kin gɛt ɔl di sayd ɛfɛkt dɛn. Sɔm pipul dɛn nɔ kin ivin notis ɛnitin. Bɔt, i impɔtant fɔ no bɔt dɛn tin ya.
| Siriɔs sayd ɛfɛkt dɛm we yu fɔ ripɔt to yu dɔktɔ wantɛm wantɛm | |
|---|---|
| Alɛji we pɔsin kin gɛt | Skin rash, it, swel na di fes, lip, tong, i nɔ izi fɔ blo. |
| Blɔd we de kɔmɔt | Blak ɔ blɔd stɔl, rɛd/dak brawn urine, vɔmit we tan lɛk kɔfi grɔn, rɛd spat na di skin, i izi fɔ brus, blɔd de kɔmɔt na di gam ɔ nos. |
| Sayn dɛn we de sho se pɔsin gɛt di sik | Fiva, kol, kɔf, trot we de at, pen ɔ i nɔ izi fɔ pis. |
| Di sayn dɛm we de sho se di rɛd blɔd sɛl nɔ bɔku | I nɔ kin izi fɔ yu fɔ blo, yu kin fɔdɔm, yu kin gɛt diziz, yu kin fɔdɔm, yu kin taya pasmak ɛn yu kin taya. |
| Bɔku tɛm, i nɔ kin rili bad, bɔt if i kɔntinyu fɔ deSayd ɛfɛkt fɔ tɛl di dɔktɔ | |
| Kɔf | Fil fɔ it |
| Dayarɛa (bɛlɛ de at) . | Ed de at |
| Nɔs ɛn vɔmit | Ɔda smɔl smɔl tin dɛn we kin ambɔg am. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn we pɔsin kin gɛt. If yu gɛt ɛnitin we nɔ kɔmɔn, nɔ fred fɔ tɔk to yu dɔktɔ bɔt am.
Mɛsej we dɛn kin kɛr go na os
- Melphalan Flufenamide na wan kemotɛrapi drɔg we dɛn kin yuz fɔ trit di kansa we dɛn kɔl Multiple Myeloma. Dɛn kin gi am insay di bɛlɛ na ɔspitul.
- Bifo yu bigin fɔ trit yu, tɛl yu dɔktɔ bɔt ɔl yu mɛrɛsin, alɛji, ɛn ɔl di mɛrɛsin dɛn we yu de tek.
- Risk de fɔ gɛt infɛkshɔn ɛn blɔd we dɛn de trit am. Yu fɔ no bɔt di sayn dɛm lɛk fiva ɛn brus.
- Nɔ gɛt bɛlɛ we yu de tek dis mɛrɛsin ɛn fɔ sɔm tɛm afta dat. Tɔk to yu dɔktɔ bɔt dis.
- If yu gɛt ɛni ɔda kayn sayn ɔ sayd ɛfɛkt we nɔ kɔmɔn, tɛl yu dɔktɔ wantɛm wantɛm.
- Dis waka at, bɔt nɔto yu wangren de. Yu dɔktɔ, di wan dɛn we de wok na di nɔs, ɛn yu famili de wit yu. Stay pɔsitiv ɛn strɔng.
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