Yu pikin in fɔrɛst tan lɛk triangul? Lɛ wi lan bɔt Metopic Craniosynostosis.

Yu dɔn notis ɛnitin we difrɛn bɔt di shep we yu smɔl pikin in ed shep, mɔ di fɔrɛst, sɔntɛm i shep we gɛt triangul? Na nɔmal tin fɔ mek mama ɔ papa fil wɔri smɔl we dɛn si sɔntin lɛk dat. Fɔ ansa di kwɛstyɔn dɛn we kin kam na yu maynd pan dɛn kayn tɛm ya, tide wi go tɔk bɔt wan sik we dɛn kɔl Metopic Craniosynostosis. Sɔntɛnde dɛn kin kɔl dis bak Trigonocephaly.

Wetin na Mɛtɔpik Kraniɔsynɔstosis?

Fɔ tɔk am simpul wan, mɛtɔpik kraniosynostosis na difεkt we dɛn bɔn pikin . i kin apin we di tu fכnt bon dεm na di pikin in ed, כ in sכkul, fכ fכm tכgeda bifo tεm (premature fusion), i kin bi insay di bכdi כ we i bכn. Tink bɔt am, wi skel nɔto wan bon, bɔt na bɔku bon dɛn. dis pat dεm na di bon dεm de kכnekt to wan an bay sכmtin we dεn kכl "sutures." Dɛn sutura ya tan lɛk di say dɛn we di bon dɛn de gro. as di pikin in bren de gro, dεn sutura dεm ya de εp di sכkul fכ gro fכ fit am.

naw, insay di kes fכ mεtopik kraniosynostosis, di sεm bitwin di tu fכnt bon dεm we dεn kכl "mεtopik sutura," de kכloz bifo di pikin in bren fulכp divεlכp. dis na we di pikin in fכs de tek triangul shep. Dɛn kin kɔl dis bak trigonocephaly.

Aw dis sik kin kɔmɔn?

stכdi dεm we dεn jכs du sho se mεtopik kraniosynostosis kin bi di sεkכn mכst kכmכn tכp fכ kraniosynostosis. Bɔt di sik kin difrɛn frɔm wan kɔntri to ɔda kɔntri. Insay kɔntri dɛn lɛk Amɛrika, dɛn se dis sik kin afɛkt ɛnisay frɔm wan pan ɛvri 700 to wan pan ɛvri 15,000 pikin dɛn we dɛn jɔs bɔn.

Wetin na di sayn dɛm fɔ dis?

di pikin we gεt mεtopik kraniosynostosis kin sho dεn simptom dεm ya:

• di pikin in ed ɛn in fes bon dɛn nɔ de gro fayn .
• di bren de push insay di pikin in sכkul, we min se di prεshכn we de insay di bren de go כp .
• Prɔblɛm dɛn we pɔsin kin si .

Aw di pikin in lukin-grɔn kin chenj?

Dis kכndyushכn de afekt di we aw di pikin in fes de divεlכp. I kin tan lɛk dis:

• I gɛt fɔrɛst we smɔl, we gɛt pɔynt, ɛn we gɛt tri an .
• I tan lɛk se di yay dɛn de nia dɛnsɛf .
• I tan lɛk se mi aybrɔw dɛn dɔn rayz .
• Di bak pat pan di ed kin tan lɛk se i wayd .

Imajin, i tan lɛk se di pikin in fɔɛd de kɔmɔt na di midul.

Wetin mek dis de apin? Wetin na di rizin dɛn?

di men kכz fכ mεtopik kraniosynostosis na di fכs fכ di fכnt bon dεm bifo di bren fulכp divεlכp .. Dat min se i kin fuz togɛda kwik kwik wan. Bɔt dɔktɔ dɛn stil nɔ dɔn fɛn wan patikyula rizin we mek dɛn bon dɛn ya kin jɔyn kwik kwik wan. Bɔt risach dɔn sho se bɔku tin dɛn kin ɛp:

• jεnεtik chenj dεm (fכ egzampl, jεnεtik mכtεshכn dεm na di FREM1 εn SMAD6 jin dεm).
• as sayd ifekt fכ sכm mεdikeshכn dεm we di mama de tek we i bεlε (e.g., mεdikeshכn dεm lεk valproic acid εn clomiphene citrate).
• Mama gɛt tayroyd sik .
• di posishכn we di pikin de insay di uterus .
• As wan sayn fɔ ɔda jenɛtik kɔndishɔn, lɛk Williams syndrome.

Udat de pan denja pas ɔl fɔ dis?

Yu risk fɔ gɛt pikin we gɛt mɛtɔpik kraniosynostosis kin bɔku if yu:

• If yu de ɛkspɛkt twins .
• If yu gɛt ɔndalayn wɛlbɔdi prɔblɛm lɛk tayroyd sik ɔ dayabitis mɛlitɔs .
• If yu tek sɔm mɛrɛsin fɔ sik lɛk ɛpilepsi.
• If yu de yuz tin dɛn we dɛn mek wit tabak .

Fɔ no mɔ bɔt di prɔblɛm we kin apin we pɔsin bɔn pikin we gɛt prɔblɛm, go to yu dɔktɔ fɔ advays yu bifo yu gɛt bɛlɛ. Yu kin gɛt advays we go mek yu nɔ gɛt pikin we gɛt prɔblɛm we dɛn bɔn am .

Us prɔblɛm dɛn dis kin mek?

di komplikashכn dεm fכ mεtopik kraniosynostosis kin nכ de sho te di pikin big εn bigin fכ skul. Di prɔblɛm dɛn we kin apin mɔ na:

• divεlכpmεnt dilay (tכk εn langwej כ mכtalman skil dεm).
• Prɔblɛm dɛn we gɛt fɔ du wit di divɛlɔpmɛnt pan pɔsin in maynd .
• di chenj dεm na di bihayvya (lεk iritabiliti).
• Sayn dεm fכ inkrεs intrakranial prεshכn ( inklud ed pen εn vishכn εshyu).
• Di ed de gro sloslo we yu kɔmpia am wit ɔda pat dɛn na di bɔdi.

Aw dɔktɔ dɛn kin no bɔt dis?

Sɔntɛnde, dɔktɔ kin sɔprayz dis we dɛn de du ɔltra saund skan bifo dɛn bɔn pikin insay di sɛkɔn ɛn tɔd trimɛst we di bɛlɛ de. Bɔt bɔku tɛm, dɛn kin no di sik we dɛn de chɛk di pikin we dɛn jɔs bɔn afta dɛn bɔn di pikin .

di dɔktɔ go tek tɛm luk di pikin in ed frɔm di tap (vɛtɛks) to di sayd na di fes. If, we yu si am wit bɔd in yay, di pikin in ed tek triangul ɔ kɔnik shep instead fɔ gɛt rawnd shep, dɛn kin no se na sik we dɛn kɔl trigonocephaly.

dεn kin du tεst dεm lεk εks-ray כ CT skan (Computed Tomography - CT scan) bak fכ lan mכr bכt di shep fכ di pikin in sכkul bon dεm. Di infɔmeshɔn we dɛn kin gɛt frɔm dɛn tɛst ya kin ɛp fɔ plan di tritmɛnt.

Aw siriɔs dis tin kin bi?

di kayn we aw di mεtopik kraniosynostosis kin siriכs kin difrεn frכm pכsin to pכsin. di siriכs de ditarmin bay di sayz fכ di angle we di sכkul bon dεm de fכm kwik kwik wan. Fɔ ɛgzampul:

• If i nɔ tu te, na smɔl chenj nɔmɔ de apin na di shep fɔ di fɔrɛst.
• If i bad, di fɔɛd kin rili pɔynt, ɛn i kin tek triangul ɔ kɔnik shep.
• Wan mɔdaret chans de bitwin dɛn tu pipul ya.

Aw dɛn kin trit dis?

if mεtopik kraniosynostosis nכ sכmtεm , כ ​​if na כnli mεtopik rij we de kכmכt we nכ gεt sכm fכs fכs, i nכ nid fכ mεdikal tritmεnt .

Bɔt if di trigonocephaly na smɔl ɔ i bad, dɛn kin du ɔpreshɔn fɔ shep di pikin in ed bak ɛn gi di bren di ples we i nid fɔ gro . If nid de, ɔpreshɔn kin ridyus di prɛshɔn pan di bren bak.

Tu men kayn ɔpreshɔn de fɔ trit mɛtɔpik krayniasaynɔstosis:

1. Ɛndoskopik-asist ɔpreshɔn:

• Dɛn kin du dis ɔpreshɔn pan yɔŋ pikin dɛn, bɔku tɛm bifo dɛn ol 4 mɔnt, ɛn dɛn kin du am fɔ 6 mɔnt .
• Di dɔktɔ we de du di ɔpreshɔn kin kɔt smɔl pat na di pikin in fɔɛd, usay di ia layn kin bigin.
• afta dat, we dεn de yuz εndoskop (wan tin tכb we gεt kεmεra), dεn de pul wan strip pan bon we de oba di mεtopik sutura. Dis ɛndoskɔp de mek di dɔktɔ we de du di ɔpreshɔn ebul fɔ si insay di skel ɛn du di ɔpreshɔn we i nɔ mek big say.

2. Opin ɔpreshɔn (Open ɔpreshɔn - Kranial Vault Rimɔdelin):

• Dɛn kin du dis ɔpreshɔn pan pikin dɛn we ol bitwin 6 ɛn 12 mɔnt .
• Bɔku tɛm, na wan dɔktɔ we de mɛn nyuro ɛn wan dɔktɔ we de du plastic sajin kin du dis.
• Di dɔktɔ we de du di ɔpreshɔn kin kɔt di pikin in ed big wan pas di ɔpreshɔn we dɛn kin du wit ɛndoskopik .
• Dɔn, dɛn kin pul di pat dɛn na di skel we nɔ shep fayn. Neks, dɛn kin kɔt di bon dɛn, shep dɛn bak, ɛn tay dɛn bak fɔ mek di ed shep di rayt we.dis de gi di pikin in bren mכr rum fכ divεlכp.

Yu tink se di pikin nid fɔ wɛr ɛlmɛt afta dɛn dɔn du am ɔpreshɔn?

Afta dɛn dɔn du ɛndoskopik ɔpreshɔn, yu pikin go nid fɔ wɛr spɛshal ɛlmɛt te i ol lɛk 12 mɔnt so. Dis ɛlmɛt de ɛp di pikin in skel fɔ mek i tan lɛk rawnd. Bɔku tɛm, dɛn nɔ kin nid ɛlmɛt afta dɛn dɔn ɔpreshɔn yu opin , bɔt yu dɔktɔ go advays yu bɔt am.

Ɛni sayd ɛfɛkt de we di tritmɛnt dɛn kin gɛt?

Jɔs lɛk ɛni ɔpreshɔn, bɔku prɔblɛm dɛn ɛn sayd ɛfɛkt dɛn de we kin apin wit dɛn tu ɔpreshɔn ya:

• Blɔd we de lɔs .
• Sik we de prɛd .
• Wan blɔd we de kɔmɔt na di bren (Hematoma) .

Yu pikin in dɔktɔ go ɛksplen dɛn bad bad tin ya to yu bifo dɛn du di ɔpreshɔn. Open ɔpreshɔn kin gɛt ay risk pas ɛndoskopik ɔpreshɔn . Dɔn bak, di tɛm we i kin tek fɔ mek dɛn du di ɔpreshɔn ɛn fɔ mek i wɛl kin lɔng.

Sɔntɛnde, if blɔd de kɔmɔt afta dɛn dɔn du di ɔpreshɔn, i kin nid fɔ gɛt blɔd . Dɛn kin si dis mɔ pan ɔpreshɔn we dɛn kin du opin.

I nɔ kin izi fɔ mek trigonocephaly nid fɔ du ɔda ɔpreshɔn fɔ kɔrɛkt di sik, bɔt i kin nid fɔ du am.

Aw lɔng i kin tek fɔ mek i wɛl afta dɛn dɔn du di ɔpreshɔn?

Yu pikin kin fil fayn pasmak insay sɔm wiks afta dɛn dɔn du di ɔpreshɔn. Bɔt i kin tek tu to tri mɔnt fɔ mek i wɛl . Fɔ mek di bon dɛn wɛl ɛn fɔ gro bak kin tek wan ia. Yu pikin in ɔspitul dɔktɔ go tɔk to yu bɔt di tɛm we i go wɛl ɛn wetin fɔ ɛkspɛkt bifo dɛn du di ɔpreshɔn.

If mi pikin gɛt metopic craniosynostosis, wetin a fɔ ɛkspɛkt?

pan ɔl we mɛtɔpik kraniosynostosis na wan sik we nɔ kin apin so ɔltɛm, di we aw i kin afɛkt ɛni pikin kin difrɛn. Sɔm pikin dɛn kin gɛt smɔl chenj dɛn nɔmɔ na dɛn ed shep ɛn dɛn nɔ kin nid tritmɛnt . Ɔda pipul dɛn kin nid fɔ gɛt ɔpreshɔn fɔ kɔrɛkt di shep we di ed gɛt ɛn fɔ gɛt tritmɛnt fɔ prɔblɛm dɛn lɛk we dɛn nɔ de gro fayn.

Di tritmɛnt we dɛn kin du ɔpreshɔn pan kin wok fayn, ɛn bɔku tɛm di bad tin dɛn we kin apin to am nɔ kin bɔku. Afta dɛn dɔn du ɛndoskopik ɔpreshɔn, dɛn kin kip di pikin na ɔspitul fɔ wan nɛt ɛn tek tɛm wach am. Bɔku tɛm, dɛn kin go na os insay wan ɔ tu dez. We dɛn du ɔpreshɔn pan am, dɛn kin kip di pikin na di say usay dɛn de kia fɔ di pikin fɔ 24 awa ɛn dɔktɔ dɛn kin wach am ɔlsay. Afta dat, dɛn kin transfa dɛn na ɔda wɔd na di ɔspitul fɔ sɔm dez ɔ wan wik fɔ wach aw dɛn wɛl.

We di pikin de na ɔspitul, di pikin in ed ɛn in fes kin swel. Dis na nɔmal tin. Di yay kin swel ɛn lɔk fɔ tu to tri dez. Afta dat, di swɛlin go go dɔŋ smɔl smɔl.

Pikin dɛn we dɛn dɔn du ɛndoskopik ɔpreshɔn fɔ wɛr ɛlmɛt te dɛn ol 12 mɔnt, ɛn dis kin tranga smɔl fɔ nyu mama ɛn papa dɛn. Na bikɔs dɛn pikin go luk difrɛn frɔm ɔda pipul dɛn te i wɛl. Bɔku mama ɛn papa dɛn kin dekɔret di ɛlmɛt wit fayn fayn stika dɛn fɔ mek i go mach di kayn pɔsin we dɛn pikin bi.

Bikɔs yu pikin luk difrɛn, pipul dɛn kin aks kwɛstyɔn bɔt am. Sɔntɛm i nɔ kin izi fɔ yu fɔ tɛl ɔlman bɔt dɛn tin ya. Bɔrku famili dɔn gɛt kɔrej wae dɛn kin tɔk to pɔrsin wae sabi bɔt mɛntɛl hεlth di tεm dεm lεk dis.

Yu tink se dɛn go ebul fɔ mek dis tin nɔ apin?

Naw, no we nɔ de fɔ mek dɛn nɔ gɛt mɛtɔpik krayniasaynɔstosis. Bɔt yu kin ridyus di prɔblɛm we yu gɛt bay we yu tɔk to yu dɔktɔ bɔt aw fɔ gɛt wɛlbɔdi bifo ɛn we yu gɛt bɛlɛ ɛn aw fɔ mek yu nɔ bɔn pikin we gɛt prɔblɛm.

Ustɛm mi pikin fɔ go to dɔktɔ?

We yu pikin dɔn wɛl, wan tim we gɛt spɛshal pipul dɛn (craniofacial team) go de wach am te i big.

If yu pikin let fɔ rich di divɛlɔpmɛnt maylston dɛn we fit in ej , go to dɔktɔ wantɛm wantɛm. Fɔ ɛgzampul, we dɛn de waka ɔ tɔk dɛn fɔs wɔd dɛn. pan ɔl we bɔku pikin dɛn we gɛt mɛtɔpik kraniosynostosis kin divɛlɔp nɔmal wan, sɔm pikin dɛn kin gɛt dilɛys fɔ divɛlɔp. Dɛn kin nid smɔl mɔ tɛm pas ɔda pipul dɛn. Dɔktɔ kin ɛp yu pikin fɔ du wetin i want fɔ du.

Afta dɛn dɔn du di ɔpreshɔn, yu dɔktɔ go gi yu infɔmeshɔn bɔt tin dɛn we yu fɔ tek tɛm wit, lɛk we yu gɛt infekshɔn. If yu notis ɛnitin we nɔ kɔmɔn, go to yu dɔktɔ wantɛm wantɛm.

Us kwɛstyɔn dɛn a fɔ aks mi pikin in dɔktɔ?

• Yu tink se dɛn nid fɔ du ɔpreshɔn pan mi pikin?
• Us kayn ɔpreshɔn yu kin advays fɔ du?
• Ɛni bad tin de we di tritmɛnt kin du?
• Ustɛm a fɔ kam bak fɔ chɛk-ap afta dɛn dɔn du di ɔpreshɔn?
• Wetin a fɔ du if mi pikin let fɔ rich di divɛlɔpmɛnt maylston dɛn?

I kin mek yu shɔk fɔ si di we aw yu bɔn pikin in ed shep difrɛn pas aw yu bin de tink. Bɔt nɔ wɔri. As soon as yu bכn yu pikin, yu mεdikal tim go no di mεtopik kraniosynostosis εn trit am fכ mek i nכ gεt kכmplikεshכn dεm we kin afekt yu pikin in growth εn divεlכpmεnt. Ɔpreshɔn go ɛp yu pikin in bren ɛn in skel fɔ divɛlɔp fayn fayn wan.

Sɔma (Mɛsej we dɛn kin tek go na os) .

if yu notis se yu pikin in fכs de tek triangul shep, i kin bi sayn fכ se di mεtopik sutura dכn klos bifo tεm. dεn kכl dis mεtopik kraniosynostosis כ trigonocephaly .

Nɔ fred!If de sik nɔr kin fayn, i nɔr kin nid fɔ gɛt tritmɛnt. If i rili bad, dɛn kin du ɔpreshɔn fɔ kɔrɛkt di shep we di ed gɛt ɛn mek di bren gro fayn fayn wan. Di ɔpreshɔn kin wok fayn, ɛn pikin dɛn kin wɛl kwik kwik wan. Yu go nid fɔ wɛr spɛshal ɛlmɛt fɔ sɔm tɛm afta di ɔpreshɔn.

Di tin we impɔtant pas ɔl na fɔ fala di dɔktɔ in instrɔkshɔn dɛn gud gud wan ɛn fɔ de tɔk to yu pikin in divɛlɔpmɛnt . If yu gɛt ɛni kwɛstyɔn ɔ dawt, nɔ shek fɔ aks di dɔktɔ. Wi ɔl want yu pikin fɔ gro ɔp wit wɛlbɔdi ɛn gladi at!

` mεtopik kraniosynostosis, trigonocephaly, infantil sכkul, fכs shep, bכn difεkt, bren divεlכpmεnt, כpεrayshכn