If yu pikin gɛt kansa we dɛn kɔl Nyuroblastoma, di dɔktɔ kin disayd fɔ yuz wan mɛrɛsin we dɛn kɔl Naxitamab. We yu yɛri nem lɛk dis, yu kin fred smɔl ɛn yu kin fil bad. Dat na nɔmal tin. Na dat mek tide wi go tɔk bɔt dis drɔg, wetin i de du to di bɔdi, ɛn wetin wi nid fɔ no bɔt. I rili simpul, so yu kin ɔndastand am.
Us kayn mɛrɛsin na Naxitamab?
Fɔ tɔk am simpul wan, Naxitamab (brand nem DANYELZA) na wan mɛrɛsin we de insay wan spɛshal klas fɔ drɔgs we dɛn kɔl monoklonal antibodies . Tink bɔt am lɛk sojaman we dɛn tren ɛn we de ɛp wi yon imyun sistɛm. di spεshal protin dεm we de insay dis dכg de εp wi כwn bכdi in difεns sistεm fכ fכn εn no di kεnsar sεl dεm (spεshal wan di Nyuroblastoma sεl dεm), atak dεm, εn pwεl dεm.
Dis na tritmɛnt wae dɛn kin gi pɔrsin wae de woke difrɛn frɔm di kemotɛrapi we dɛn kin gi ɔltɛm. Dat min se i kin mɔna di kansa sɛl dɛn. Bɔt dɛn kin yuz am bak fɔ ɔda tin dɛn. Tɔk to yu dɔktɔ bɔt am.
Di tin dɛn we impɔtant pas ɔl fɔ tɛl di dɔktɔ bifo yu gi am mɛrɛsin
Bifo yu pikin bigin dis tritmɛnt, i rili impɔtant fɔ tɛl di dɔktɔ sɔm tin dɛn klia wan. Nɔ ayd dɛn tin ya, bikɔs dis infɔmeshɔn impɔtant fɔ mek di pikin sef.
- Ay Blɔd Prɛshɔn: If yu pikin gɛt ay blɔd prɛshɔn ɔ i de tek mɛrɛsin fɔ am, mek shɔ se yu tɛl am.
- Alɛji: Tɛl wi if yu dɔn gɛt alɛji fɔ ɛni ɔda mɛrɛsin, it, ɔ day, nɔto jɔs fɔ Naxitamab.
- Bɛlɛ: Tɛl yu tritmɛnt tim if yu (di pikin in mama ɔ pɔsin we de kia fɔ am) gɛt bɛlɛ, de tray fɔ gɛt bɛlɛ, ɔ yu gɛt ɛni saspek se yu go gɛt bɛlɛ. (Dis advays kin apin bak to yɔŋ pipul dɛn we de tek dis mɛrɛsin).
- Fɔ gi yu pikin in mama in bɛlɛ: If yu de gi yu pikin in bɛlɛ, yu fɔ tɔk bɔt dat bak.
Aw yu kin gi pikin dis mɛrɛsin?
Dis nɔto pil ɔ srɔp fɔ tek na os. Naxitamab na wan tin we dɛn kin put insay wan vein . Na wan dɔktɔ we tren na ɔspitul ɔ klinik kin gi yu pikin, jɔs lɛk salin sɔlvushɔn.
Sɔntɛnde dɛn kin gi dis tritmɛnt to pikin dɛn we yɔŋ lɛk wan ia, bɔt dɛn fɔ fala spɛshal tin dɛn fɔ tek tɛm wit. Yu dɔktɔ go ɛksplen dis to yu.
Wetin fɔ du if yu mis apɔntinmɛnt fɔ tek mɛrɛsin?
Sɔm patikyula de dɛn de we dɛn kin arenj fɔ dis tritmɛnt. I rili impɔtant fɔ kam na ɔspitul dɛn de dɛn de. Nɔ skip dɛn apɔntin dɛn ya fɔ ɛni rizin.If yu nɔ ebul fɔ atɛnd yu apɔntinmɛnt we yu dɔn sɛtul, kɔl yu dɔktɔ ɔ ɔspitul wantɛm wantɛm ɛn mek dɛn no.
Wetin a go du if a tek bɔku mɛrɛsin?
Dɛn kin gi dis na ɔspitul, so di chans fɔ mek dis apin rili smɔl. Bɔt if yu tink se yu pikin dɔn gɛt tumɔs mɛrɛsin sɔm kayn we, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm , ɔ kɛr yu pikin go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu.
Tin dɛn we wi fɔ pe atɛnshɔn mɔ to we wi de yuz di mɛrɛsin
Dɔktɔ ɛn nɔs dɛn go de wach yu pikin in kɔndishɔn gud gud wan ɔl di tɛm we dɛn de tek dis mɛrɛsin, bɔt as mama ɛn papa, i impɔtant fɔ mek yu no bɔt dɛn tin ya.
- Di tin dɛn we kin apin we pɔsin infuz: Sɔm pikin dɛn kin gɛt riakshɔn wantɛm wantɛm we dɛn gi dɛn dis mɛrɛsin . Fɔ ɛgzampul, ay blɔd prɛshɔn, i nɔ kin izi fɔ blo, ɔ i kin it. Fɔ ridyus dis risk, yu dɔktɔ kin gi yu pikin ɔda mɛrɛsin (lɛk pen kil ɔ alɛji mɛrɛsin) bifo i gi yu Naxitamab. So fala yu dɔktɔ in instrɔkshɔn dɛn di rayt we.
- Bεlε εn bεlε: Dis na tin we rili impɔtant.
Nɔ gɛt bɛlɛ fɔ ɛni rizin we yu de tek dis mɛrɛsin ɛn fɔ 2 mɔnt afta yu dɔn stɔp di tritmɛnt. Dis mɛrɛsin kin rili ambɔg di pikin we nɔ bɔn yet. Dɔn bak, nɔ gi yu pikin in bɛlɛ we yu de tek dis mɛrɛsin ɛn fɔ 2 mɔnt afta yu dɔn stɔp di tritmɛnt.
- Ɔda mɛrɛsin dɛn: Dɛn nɔr dɔn gɛt kɔmplit infɔmeshɔn yet bɔt aw ɔda mɛrɛsin dɛn kin miks wit dis mɛrɛsin. So, i rili impɔtant fɔ tɛl yu dɔktɔ bɔt ɔl di mɛrɛsin dɛn we yu de gi yu pikin (inklud vaytamɛn dɛn, ɛbul mɛrɛsin dɛn, ɛn sɔpɔtmɛnt dɛn) . Dɔn bak, nɔ bigin fɔ tek ɛni nyu mɛrɛsin we yu nɔ aks yu dɔktɔ fɔs.
Wetin na di sayd ɛfɛkt dɛm we dis mɛrɛsin kin gɛt?
Lɛk ɛni mɛrɛsin, Naxitamab kin mek yu gɛt sayd ɛfɛkt. Bɔt, nɔto ɔlman kin gɛt dɛn. Di tin we impɔtant pas ɔl na fɔ no bɔt dɛn sik ya ɛn fɔ tɛl yu dɔktɔ kwik kwik wan if nid de.
| Naxitamab sayd ɛfɛkt dɛn | |
|---|---|
| 🚨 Sayd ifekt dɛm we fɔ ripɔt to dɔktɔ ɔ ɔspitul wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Skin rash, it ɔ ayv, swel na di fes, lip ɔ tong. |
| I nɔ izi fɔ blo | I nɔ izi fɔ blo, i de swɛt. |
| Di nervɔs sistɛm kin chenj | Siriv ed pen, siz, kɔnfyushɔn, at fɔ tɔk, blurred vishɔn, sɛnsitiv to layt, pen, numbness ɔ lɔs sɛns na di limb dɛm, mɔsul dɛm wik. |
| At ɛn blɔd prɛshɔn | Blɔd prɛshɔn we de go ɔp, chɛst de pen, at de bit kwik kwik wan, diziz, ɛn layt ed. |
| Ɔda siriɔs sayn dɛn | Bɛlɛ pen bad bad wan, i nɔ kin izi fɔ pis ɔ chenj di we aw yu de pis, bon pen. |
| 🩺 Sayd ɛfɛkt dɛm we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to dɔktɔ if dɛn kɔntinyu | |
| Dijestiv sistɛm | I nɔ kin want fɔ it, yu nɔ kin fil fayn, yu kin vɔmit, yu kin gɛt dayarɛa. |
| Ɔda tin dɛn we de apin | Taya, fil fɔ wɔri ɔltɛm, pen, rɛd, ɔ swel na di say we dɛn injekt am. |
If yu pikin gɛt ɛni ɔda tin we nɔ kɔmɔn we dɛn nɔ tɔk bɔt na dis list, tɛl yu dɔktɔ bɔt dɛn bak.
Mɛsej we dɛn kin kɛr go na os
- Naxitamab na wan patikyula, targeted tritmɛnt fɔ nyuroblastoma kansa. Na drɔg we dɛn kin gi insay wan vein na ɔspitul.
- Bifo yu bigin fɔ tek tritmɛnt, tɛl di dɔktɔ bɔt ɔl yu pikin in mɛrɛsin (espɛshali ay blɔd prɛshɔn), alɛji, ɛn ɔl di mɛrɛsin dɛn we i de tek.
- Yu fɔ no bɔt di infushɔn riakshɔn ɛn siriɔs sayd ɛfɛkt dɛm (bɔdi ed pen, siz, at fɔ blo) we kin apin we dɛn gi di mɛrɛsin.
- Nɔ gɛt bɛlɛ ɛn gi pikin in bɛlɛ ɔltogɛda we yu de trit am ɛn fɔ 2 mɔnt afta yu dɔn stɔp.
- If yu gɛt ɛni kwɛstyɔn, wɔri, ɔ dawt, aks yu dɔktɔ ɔ nɔs. Nɔ kip ɛnitin fɔ yusɛf.
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