wi go tכk bכt nyural tכb dεfekt (NTD) dεm we de afekt di bren εn spεnal kכd fכ pikin we de gro na di bεlε?

Ilɛksɛf yu de op fɔ bɔn pikin ɔ yu dɔn gɛt di gud nyus, sɔntɛm yu de wɔnda wan tawzin tin dɛn bɔt di smɔl pikin we de na yu bɛlɛ. Aw i go valyu fɔ no smɔl bɔt yu pikin in wɛlbɔdi? Na dat mek, tide wi go tɔk bɔt sɔntin we kin apin sɔm tɛm we uman gɛt bɛlɛ, bɔt dɛn kin avɔyd am if yu no am bifo tɛm. dat na nyural tyub dεfekt , כ lεk aw dכkta dεn kכl dεm ``Nyural tyub dεfekt - NTD dεm''. Nɔ wɔri, wi go tɔk bɔt dis simpul wan, di we we yu go ɔndastand.

Wetin na di nyural tiub difεkt (NTD) dεm? Fɔ tɔk am simpul wan...

Fɔ tɔk am simpul wan, NTD na wan kayn sik we dɛn bɔn wit . dat min se na kכndishכn dεm we de apin we di pikin stil de na di bεlε. dεn kin afekt di pikin in bren, spεnal kכd, כ spεnal kכd (di nεv sεstem we de rכn tru di spayna). Mɛmba se, bɔku tɛm dɛn prɔblɛm ya kin apin bifo yu ivin no se yu gɛt bɛlɛ, bɔku tɛm insay di fɔs mɔnt we yu gɛt bɛlɛ.

Dis na wetin kin apin ɔltɛm. we di pikin fכs bigin fכ divεlכp na di bεlε, di tu say dεm na di pikin in spayna de fכm tכgeda, fכ mek wan strכkchכ we lεk tכb. Dis na wetin wi kɔl di nyural tiub . dis nyural tyub na in go leta divεlכp to di pikin in bren εn spεnal kכd. so, if dis nyural tכb nכ kכloz fayn, if sכm sכm gap כ dεfisit de sכmsay, den dis kכndyushכn we dεn kכl NTD de apin. I tan lɛk we yu bil ruf, if gap de sɔmsay, wata kin lik frɔm di ruf.

Wetin na di men kayn NTD dɛm?

difrεn men tכp dεm de fכ nyural tכb dεfekt (NTD dεm). Lɛ wi luk ɛni wan pan dɛn wan bay wan:

1. Spina Bifida we de na di bɔdi

Dis na di kayn NTD we kɔmɔn pas ɔl . Spina Bifida na wan kכndyushכn we di nyural tכb nכ de kכloz kכmplit wan na sכm tεm along di spayna we di pikin de divεlכp. Agen, sɔm sɔbtayp dɛn de:

• Maylomɛningosɛl (Open Spina Bifida): .

Imajin, we dɛn bɔn sɔm pikin dɛn, yu kin si wan sak we ful-ɔp wit wata we de kɔmɔt na dɛn bak pat na dɛn spayna. dis dεn kכl am `(Myelomeningocele).` insay di sak kin bi pat pan di pikin in spεnal kכd, di tisu dεm we de kכba am `(Meninges)`, di nεv dεm, εn ivin di wata we de rawnd di bren `(Cerebrospinal Fluid - CSF)`. dis na di mכst siriכs εn kכmכn fכm f כ `(Spina Bifida).`

• Meningosel: 1. .

If na so i bi, i kin bi se wan sak we ful-ɔp wit wata kɔmɔt na di pikin in bak. כltu, insay dis kes, di pikin in spεnal kכd nכ de pwεl, we min se di spεnal kכd nכ de insay di sak.

• Spina Bifida Ɔkulta: .

Dis na di mildest fכm fכ `(Spina Bifida)`. insay dis kes, sכm gap de na di pikin in spayna, bכt nכ sak we yu kin si de. Natin nɔ de we de pwɛl di spɛshal kɔd ɔ di nerv dɛn. Bɔku tɛm, dis nɔ kin mek wi gɛt ɛni prɔblɛm. Sɔntɛnde, yu nɔ kin ivin no se yu gɛt am fɔ di res ɔf yu layf.

2. Di sik we dɛn kɔl Anencephaly

Dis na siriɔs kɔndishɔn. anεnsεfali na wan kכndyushכn we di tכp pat pan di nyural tכb, usay di bren de divεlכp, nכ de kכloz fayn fayn wan we di pikin de divεlכp. Dis kin mek di pikin in skel, in skin, ɛn in bren nɔ de gro fayn. Sɔm pat dɛn na di bren ɛn di skel kin nɔ de igen. di bren tisu we de divεlכp kin kכmכt na di bכdi biכs nכ skin כ bon de fכ kכba am. I sɔri fɔ no se bɔku tɛm, pikin dɛn we gɛt dis sik kin bɔn day ɔ day jɔs afta dɛn bɔn dɛn.

3. Ɛnsɛfalɔsɛl

dis kin apin we di nyural tכb nכ de kכloz fayn fayn wan nia di bren, we de mek wan opin na di sכkul. di pikin in bren εn di mεmbran dεm we de kכba di bren (mεninges) kin kכmכt tru dis opin, we de mek wan kכmכt we lεk sak. Sɔntɛnde, na smɔl opin nɔmɔ kin de na di nos ɔ fɔrɛst, we nɔ kin rili notis.

4. Iniɛnsɛfali

Dis na sik bak we rili siriɔs ɛn we nɔ kin apin so ɔltɛm. I kin mek di spayna nɔ fayn bad bad wan. Bɔku tɛm, di nɛk nɔ kin de atɔl, ɛn di ed kin bɛn bak so dat di pikin in fes kin tay pan di chɛst ɛn di skin we de na di bak pat pan di skel kin tay. Bɔku tɛm, dɛn kin bɔn pikin dɛn we gɛt dis sik we dɛn dɔn day.

Udat dɛn `(NTD)` ya de afɛkt? Aw dɛn kɔmɔn?

NTD na tin dεm we de apin we dεn bכn am, we min se i de afekt di pikin we de divεlכp . Dɛn kin apin bak insay di fɔs mɔnt we di bɛlɛ de.

Pan ɔl we NTD nɔ kin bɔku na sɔm kɔntri dɛn, i impɔtant fɔ no bɔt dɛn. Fɔ ɛgzampul, na Amɛrika, dɛn kin si dis sik pan lɛk 3,000 pikin dɛn we gɛt bɛlɛ ɛvri ia. Pan dɛn wan ya, na di wan dɛn we dɛn kɔl Spina Bifida ɛn Anencephaly. Pan ɔl we i nɔ izi fɔ fɛn kɔrɛkt statystik na Sri Lanka, i impɔtant fɔ mɛmba se dɛn tin ya kin apin to ɛnibɔdi.

wetin mek dεn nyural tyub dεfεkt (NTD) dεm ya kin apin?

Infakt, dɔktɔ ɛn sayɛnsman dɛn stil nɔ ebul fɔ tɔk fɔ tru wetin na di wangren tin we kin mek dɛn gɛt dɛn NTD ya. Bɔt dɛn biliv se na kɔmpleks kɔmbaynshɔn fɔ di jɛnɛtiks, it, ɛn di envayrɔmɛnt tin dɛn .

Dɛn dɔn si se wan men tin we kin mek dis apin na we di mama in bɔdi nɔ gɛt bɛtɛ fɔlik asid, mɔ bifo i gɛt bɛlɛ ɛn di fɔs wik dɛn we i gɛt bɛlɛ . fכlik asid כ fכlet na imכtant tin fכ mek di pikin in bren εn in spεnal kכd divεlכp fayn fayn wan.

Wetin na di sayn dɛm fɔ NTD?

Ɛni kayn NTD gɛt in yon spɛshal sayn dɛn.

Fɔ bebi dɛn we gɛt sɔm `(NTD)`No sayn nɔ de fɔ sho se i gɛt dis sik. Bɔt sɔm bebi dɛn kin gɛt siriɔs prɔblɛm dɛn . as wi bin dכn tכk, pikin dεm we gεt `(Iniencephaly)` εn `(Anencephaly)` kin day we dεn bכn dεm כ sכm tεm afta dεn bכn dεm.

Di kɔmɔn sayn dɛm fɔ NTD na:

• di prכblεm dεm na di bכdi - fכ egzampl, paralayz (dεn de lכs di limb dεm), nכ ebul fכ kכntro di urine εn stכl.
• Lɔs fɔ si (blayndnɛs).
• I nɔ de yɛri fayn (def).
• Disabiliti dɛn we gɛt fɔ du wit intɛlektual.
• Stet dɛn we pɔsin nɔ no natin, sɔntɛnde i kin ivin day.

if dכkta dεn sכspεkt se yu pikin gεt ``(NTD)'', dεn go tεl yu mכr bכt dis, biכs dεn kכndyushכn ya kin difrεn frכm wan pikin to כda wan.

Yu tink se di mama kin gɛt ɛni sayn we i gɛt bɛlɛ?

Nɔ ivin if yu pikin gɛt ``(NTD)'', yu nɔ go gɛt ɛni patikyula sayn we gɛt fɔ du wit am. Dɔktɔ dɛn kin no dɛn tin ya tru tɛst we dɛn kin du we uman gɛt bɛlɛ.

Aw dɛn kin no dɛn `(NTD)` ya?

di dכkta dεm kin no di NTD dεm tru di tεst dεm we dεn kin du bifo dεn bכn we uman bεlε. Ultrasound skan impɔtant mɔ fɔ dis.

Us tɛst dɛn kin yuz fɔ no NTD dɛn?

Dɔktɔ dɛn kin yuz dɛn tɛst ya fɔ no NTD bifo dɛn bɔn pikin:

• Blɔd Tɛst: Bitwin 16 ɛn 18 wiks we yu gɛt bɛlɛ, yu dɔktɔ kin tɛl yu fɔ du tɛst fɔ no wan prɔtin we dɛn kɔl alfa-fetoprotein (AFP) we de na yu blɔd. if yu pikin gεt NTD, di mama in bכdi lεvεl dεm fכ dis protin kin hכy pas nכmal (bכt 75% - 80%). If yu AFP lɛvɛl bɔku, yu dɔktɔ kin ɔda fɔ mek dɛn du ɔda tɛst dɛn, lɛk fɔ mek dɛn du ɔltra saund skan.
• Fetal (Prenatal) Ultrasound: כltra saund skan we uman bεlε na di mכst akכrd we fכ no sεvεra NTD dεm. Dɔktɔ dɛn kin se dɛn fɔ skan insay di fɔs tri mɔnt (wik 11-14) ɛn di sɛkɔn tri mɔnt (wik 18-22). dis skan dεm de egzamin di pikin in spayna εn ed fכ si if eni sayn dεm de fכ NTD.
• Amniocentesis: Dis tεst kin chεk fכ NTD dεm εn כda bכn difεkt dεm. i involv fכ yuz nidul fכ tek sכm sכm sεmpl fכ di amniotic fluid we de rawnd di pikin. dis kin bi bitwin 15 εn 20 wiks we uman bεlε. Bɔt sɔm prɔblɛm dɛn de we kin apin we dɛn du dis tɛst, so tɔk to yu dɔktɔ bɔt am.

sכmtεm, dεn kin no sכm NTD dεm afta dεn bכn di pikin tru imej tεst lεk MRI (Magnetic Resonance Imaging) כ CT (Computed Tomography) skan.

Wetin na di tritmɛnt dɛm fɔ NTD dɛm?

fכ kכndyushכn dεm lεk `(Spina Bifida)` εn `(Encephalocele), sεvεra tritmεnt opshכn dεm de dipכnt pan di siriכs kכndyushכn.

Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de fɔ Anɛnsɛfali ɛn Inɛnsɛfali. Bɔku tɛm, dɛn kayn pikin dɛn ya kin day we dɛn bɔn dɛn ɔ jɔs afta dɛn bɔn dɛn.

Tritmεnt fכ `(Spina Bifida)` εn `(Encephalocele)`

di tritmεnt fכ di tu kכndyushכn dεm de dipכnt pan aw di kכndyushכn at εn if di pikin gεt כda kכmplikεshכn dεm. Ɔpreshɔn na di men tritmɛnt fɔ dɛn ɔl tu.

כpεrayshכn dεn kin trit εnsefalosεl, usay dεn kin put di pat pan di bren we dכn kכmכt na di pikin in sכkul, wit di mεmbran dεm we de rawnd am, bak insay di sכkul, we de kכloz di opin we de na di sכkul.

Maylomeningocele, we na di kayn we we dɛn kin gɛt mɔ spina bifida, dɛn kin trit am wit ɔpreshɔn fɔ mek di say we opin na di pikin in spayna fayn bak. dis כpεrayshכn kin bi bifo dεn bכn di pikin (fetal כpεrayshכn) כ jכs afta dεn bכn am (postnatal surgery) .

Dɛn tu tin ya kin nid fɔ gɛt tritmɛnt fɔ lɔng tɛm , i kin dipen pan di pikin in kɔndishɔn. As tɛm de go, dɛn kin nid fɔ du mɔ ɔpreshɔn, ɔ dɛn kin nid fɔ trit prɔblɛm dɛn lɛk haydrosɛfalɔs, we na we bɔku wata kin gɛda rawnd di bren.

Wetin na di risk factor dɛm fɔ mek yu gɛt NTD?

Eni uman kin geht pikin wit ``(NTD)``. Bɔt sɔm tin dɛn kin mek dis prɔblɛm bɔku. Lɛ wi si wetin dɛn bi:

• Fɔlet (fɔlik asid) we nɔ de: Dis rili impɔtant. Folate na wan kayn vaytamɛn B-9. I impɔtant fɔ mek di pikin gro fayn fayn wan. if fכlik asid nכ inof bifo uman bεlε εn insay di fכs fכs mכnt dεm we di bεlε, chans de fכ divεlכp NTD lεk Spina Bifida.

So if yu de plan fɔ gɛt bɛlɛ, ɔ yu dɔn gɛt bɛlɛ, i rili impɔtant fɔ tek di vaytamɛn dɛn we yu dɔktɔ tɛl yu bifo yu bɔn. jεnarali i rεkomεnd fכ tek at le 400 maykrogram (mcg) fכlik asid evri de. I fayn bak fɔ it tin dɛn we gɛt bɔku folate (lɛk spinach, pia).

• Famili histri fכ nyural tyub dεfεkt: Mama we dכn bכn pikin we gεt NTD bifo i gεt 2% to 3% inkrεs risk fכ gεt כda pikin we gεt di sem dεfεkt. If yu want fɔ no mɔ bɔt dis, i go fayn fɔ mek yu go to pɔsin we de advays yu bɔt yu jɛnɛtiks.
• Sɔm mɛrɛsin dɛn we de mek yu nɔ gɛt sik: Dɛn mɛrɛsin ya kin mek yu gɛt NTD if yu tek am we yu gɛt bɛlɛ. If yu de tek mɛrɛsin fɔ epilepsy, tɔk to yu dɔktɔ bifo yu gɛt bɛlɛ fɔ no aw di mɛrɛsin go afɛkt yu bɛlɛ.
• Shuga:mama dεm we bεlε we gεt dayabεtis we dεn nכ kin kכntrol fayn kin gεt bכku risk fכ bכn pikin we gεt ``(NTD)''.
• Fɔ fat: Dis risk kin bɔku bak fɔ mama dɛn we fat bifo dɛn gɛt bɛlɛ.
• di tεmprachכ we di bכdi de go כp we yu bεlε kwik: If yu bכdi tεmprachכ de go כp (hyperthermia) insay di fכs wik dεm we yu bεlε, ilɛksɛf na bikɔs ɔf fiva we de kɔntinyu ɔ bikɔs yu de yuz sawna ɔ hot tub, smɔl risk de fɔ mek yu gɛt NTD.
• Yuz opioid we uman bεlε kwik: Opioid na wan kayn pen kil we kin mek yu adikshɔn bad bad wan. If yu yuz dɛm insay di fɔs tu mɔnt we yu gɛt bɛlɛ, yu go gɛt pikin we gɛt NTD. If yu gɛt bɛlɛ ɛn yu de tek ɛni mɛrɛsin we go gɛt opioid, tɛl yu dɔktɔ wantɛm wantɛm.

Bebi we gɛt `(NTD)` kin liv?

yes, pikin dεm we gεt sכm nyural tכb dεfekt lεk `(Spina Bifida)` εn `(Encephalocele)` kin liv. Bɔt as wi bin dɔn tɔk, di pikin dɛn we gɛt `(Anencephaly)` ɛn `(Iniencephaly)` kin day we dɛn bɔn dɛn ɔ jɔs afta dɛn bɔn dɛn.

di pikin dεm we gεt `(Spina Bifida),` spεshal wan `(Myelomeningocele)` כ `(Encephalocele),` de pan risk fכ damej di nεv dεm. Dis kin mek yu gɛt tin dɛn lɛk fɔ paralayz. di nεv dεm we de pwεl εn di lכs fכ wok we de de we dεn bכn pikin kin bi fכ כltεm. Bɔt bɔku tritmɛnt dɛn de we kin ɛp fɔ mek dɛn nɔ gɛt mɔ damej ɛn prɔblɛm dɛn.

sכm pikin dεm we gεt ``Spina Bifida'' kin liv witout nכ komplikashכn כ wit rili sכm sכm kכmplikεshכn.

Aw a go tek kia ɔf mi pikin wit `(NTD)`?

I impɔtant fɔ mɛmba dis: Nɔto ɔl di pikin dɛn we gɛt NTD na di sem. εspεshali di pikin dεm we gεt Spina Bifida εn Encephalocele kin afekt difrεn we. I nɔ pɔsibul fɔ tɔk klia wan aw yu pikin go afɛkt. di bεst tin we yu kin du na fכ tכk to yu dכkta bכt yu pikin in kכndyushכn εn gεt advays frכm dεm.

As yu pikin de gro, i kin nid fɔ gɛt ɛp frɔm wan tim we gɛt dɔktɔ dɛn fɔ gi am di difrɛn kayn kia we dɛn nid. I rili impɔtant fɔ advatayz fɔ yu pikin ɛn mek shɔ se dɛn gɛt di bɛst mɛrɛsin we pɔsin kin gɛt.

Ustɛm a fɔ go to dɔktɔ bɔt NTD?

If dɛn bɔn yu pikin wit NTD, dɛn go nid fɔ go to dɔktɔ ɔ mɛdikal tim ɔltɛm fɔ kia fɔ dɛn fɔ di res ɔf in layf.

If yu de tek mɛrɛsin fɔ ɛpilepsi ɔ opioid, tɔk to yu dɔktɔ bifo yu gɛt bɛlɛ fɔ no aw di mɛrɛsin go afɛkt yu bɛlɛ ɛn di pɔsibul fɔ bɔn pikin we gɛt NTD.

i nכmal fכ fil frayd εn shok we yu fכnכt se yu pikin gεt ``(NTD)''. Bɔt mɛmba se nɔto yu wangren de. Bɔku tin dɛn de we go ɛp yu ɛn yu famili. I impɔtant fɔ tɔk to dɔktɔ we no bɔt ``(NTD)'' fɔ lan aw yu pikin go afɛkt ɛn aw fɔ rɛdi fɔ am.

Fɔ dɔn, tin dɛn we wi nid fɔ mɛmba (Take-Home Message) .

a op se dis diskushכn dכn gi yu sכm insayt fכ ``Nyural Tiub Dεfεkt - NTDs''. Di tin we impɔtant pas ɔl na fɔ no bɔt dɛn tin ya bifo tɛm.

• (NTD) na divεlכpmεnt dεfekt dεm we de apin na di pikin in bren εn spεnal kכd insay di fכs wik dεm we di bεlε de.
• Fɔlik asid na rili impɔtant tin fɔ mek dɛn nɔ gɛt dɛn kayn tin ya. If yu tek fכlik asid evride frכm di tεm we yu plan fכ bεlε εn insay di fכs fכs mכnt dεm we yu bεlε, i kin ridyus di risk fכ NTD dεm bכku bכku wan.
• dεn kin no di NTD dεm tru כltra saund skan we dεn bεlε.
• Pan ɔl we sɔm NTD dɛn gɛt tritmɛnt, lɛk ɔpreshɔn, sɔm bad bad tin dɛn nɔ gɛt tritmɛnt.
• If yu gɛt ɛni kwɛstyɔn ɔ wɔri bɔt NTD, mek shɔ se yu tɔk to yu dɔktɔ.

Wi op se dis infɔmeshɔn go ɛp yu. Mek yu fɛn di trɛnk fɔ bɔn pikin we gɛt wɛlbɔdi!

` Nyural Tiub Dεfεkt, NTD, Spina Bifida, Anεnsεfali, Fכlik Asid, Bεlε, Bכn Difεkt, Nyural Tiub Dεfεkt