Lɛ wi lan bɔt Nyuroɛndokrin Tumɔs insay wan simpul we.

Bɔku tɛm yu kin fil taya, yu bɛlɛ kin at, ɔ yu nɔ kin fil fayn we yu nɔ ɛksplen? Bɔku tɛm wi kin dismis dɛn tin ya as nɔmal tin. Bɔt sɔmtɛm, biɛn dɛn smɔl smɔl sik ya, wan tin kin de we nɔ kin apin so ɔltɛm bɔt we impɔtant we wi fɔ no bɔt. wan pan dεn kayn tin dεm ya, we nכ kכmכn bכt imכtant na nyuroεndokrin tכmכro, כ lεk aw wi kin se na Inglish, `Nyuroεndokrin Tכmכro (NETs).` So tide, lε wi tכk bכt am insay simpul tεm dεm.

wetin na dεn nyuroεndokrin tכmכro dεm (NET) dεm?

Fɔ tɔk am simpul wan, dis na wan kayn tumbu we nɔ kin apin so ɔltɛm we kin kam na wi bɔdi. dis dεm de stat frכm wi ‘nyuroεndokrin sεl dεm’. Naw yu go mɔs de wɔnda us kayn sɛl dɛn ya. wetin so amazing na dat dεn sεl dεm ya gεt di prכpati dεm fכ di nεv sεl dεm εn di prכpati dεm fכ di εndokrin sεl dεm, we de mek כmon dεm. dis min se dεn sεl dεm ya kin gεt mεsej frכm di nεv sεstem εn rilis כmon dεm na di bכdi fכ ansa.

dis nyuroεndokrin sεl dεm de na bכku say dεm na wi bכdi. Dɛn kin si dɛn mɔ na say dɛn lɛk di lɔng, bɛlɛ, pankrias, ɛn insay di bɔdi. So, we fכ sכm rizin dεn sεl dεm ya bigin fכ sheb εn bכku we dεn nכ ebul fכ kכntrכl, wan tכmכro de fכm. Bɔku pan dɛn tumbu ya kin gɛt bad bad sik, we min se dɛn kin gɛt kansa.

Dɛn tumbu ya rili difrɛn frɔm dɛnsɛf. Sɔm kin gro sloslo, ɛn ɔda wan dɛn kin gro kwik kwik wan. Dɔn bak, dɛn sayn ɛn tritmɛnt kin difrɛn bad bad wan dipen pan di say ɛn di kayn we aw di tumbu de.

Wetin na di men kayn nɛt dɛn ya?

Dɔktɔ dɛn kin put dɛn tumbu ya insay tu men we dɛn. Wan pan dɛn de bay if dɛn de mek ɔmon ɔ nɔ de mek ɔmon.

• Fכnshכnal NET dεm: dεn kayn NET dεm ya de mek כmon dεm. So, we di ɔmon we wi de tɔk bɔt de bɔku na di bɔdi, dɛn pipul ya kin gɛt sɔm sayn dɛn lɛk fɔ flash wantɛm wantɛm, fɔ swet, ɛn fɔ blo.
• NET dεm we nכ de wok: dεn kayn NET dεm ya nכ de mek כmon dεm. So, dɛn nɔ kin gɛt ɛni sayn na di fɔs tɛm. di simptom dεm de sho כnli we di NET dεm de gro, put prεshכn pan di כgan we dεn de insay, כ intafεr in wok.

pan tap dat, dεn kin kכl dεn tכmכro dεm ya bak akɔdin to usay dεn de fכm na di bכdi. Dis na di kayn we dɛn we pipul dɛn kin gɛt mɔ.

apat frכm dεn tri men say dεm ya, dεn tכmכro dεm ya kin sכmtεm bak na ples dεm lεk di tayroyd gland, di paratayroyd gland dεm, di pituitary gland dεm, εn di adrenal gland dεm.

Aw dis sik kin bɔku?

Ɔlsay na di wɔl, dis sik kin ambɔg lɛk 6 pan ɔl 100,000 pipul dɛn . Dis min se na sik we nɔ kin bɔku. Bɔt di nɔmba fɔ pipul dɛn we dɛn kin no se gɛt dis sik dɔn bɔku smɔl insay di las ia. Dis kin bi bikɔs advans diagnostik tɛst dɛn naw de alaw fɔ no dɛn tumbu ya kwik ɛn izi wan.

Pan ɔl we dis sik kin ambɔg pipul dɛn we gɛt ɛni ej, i nɔ kin bɔku pan pikin ɛn yɔŋ pipul dɛn. Bɔrku tɛm i kin pasmak pan pipul dɛm wae ol bitwin 50 ɛn 60 ia .

Wetin na di sayn dɛm fɔ dis sik?

Dis na di big prɔblɛm. Bɔku tɛm, dɛn tumbu ya nɔ kin mek ɛni sayn te dɛn gro big fɔ afɛkt di ɔgan dɛn we de nia dɛn. Ivin we di sayn dɛm kin apin, dɛn kin difrɛn difrɛn wan bay di say we di tumbu de. Dɔn bak, dɛn sayn ya kin so fiba ɔda sik dɛn we kin kam wit ɔda sik dɛn so dat i kin izi fɔ mek dɛn mistek kɔl ɔda sik dɛn.

Dis na sɔm pan de sayn dɛm wae pɔrsin kin si:

• Taya
• Bɛlɛ de at
• Rɔnbɛlɛ
• Nɔs ɛn vɔmit
• I nɔ kin izi fɔ yu fɔ blo
• Kɔf (sɔntɛnde wit blɔd) .

Wetin mek dɛn tumbu ya kin fɔm? Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?

Dɔktɔ dɛn stil nɔ no bɛtɛ bɛtɛ wan wetin mek dɛn nyuro ɛndɔkrin sɛl dɛn ya kin bigin fɔ sheb wantɛm wantɛm we dɛn nɔ ebul fɔ kɔntrol. Dat min se dɛn nɔ no di rayt rizin yet.

Bɔt dɛn dɔn si se pipul dɛn we gɛt sɔm kayn jɛnɛtik kɔndishɔn dɛn we nɔ kin apin so ɔltɛm, we dɛn kin gɛt frɔm dɛn mama ɛn papa (syndromes) kin gɛt mɔ risk fɔ gɛt dɛn tumbu ya. dis min se di kכndyushכn kin kכz bay chenj (mכtεshכn) insay sכm jin dεm.

• Multiple Endocrine Neoplasia (MEN): Dis kכndyushכn de mek tכmכro dεm fכm na difrεn gland dεm εn כgan dεm. Pipul dεm we gεt dis kכndyushכn, we dεn kכl MEN tayp 1 (MEN1), kin de pan risk fכ divεlכp pankrεas tכmכro (P-NETs).
• Von Hippel-Lindau syndrome: Dis kכndyushכn de mek yu gεt kansa εn kכmכn tכmכro dεm na difrεn pat dεm na di bכdi.
• Nyurofibromatosis tayp 1: insay dis kכndishכn, tכmכro dεm de fכm pan di skin εn di nεv dεm.
• Tuberous sclerosis complex: Dis kin mek tumor fכm enisay na di bכdi, spεshal wan na di bren.
• Cowden syndrome: Dis sik kin mek bak yu gɛt tumbu ɛn sɔm kayn kansa.

Aw fɔ no di sik? (Diagnosis) .

As wi bin dɔn tɔk, de sayn dɛm fɔ dis sik na so jɛnɛral, e kin tek sɔm tɛm fɔ no. If yu dɔktɔ sɔprayz dis, dɛn go ɔda fɔ du difrɛn tɛst dɛn dipen usay dɛn tink se di tumbu kin de.

Wetin na di stej ɛn gred fɔ wan tumbu?

We dɛn dɔn no se yu gɛt dis sik, di dɔktɔ go tɔk bɔt in stej ɛn gred.

• Stej: Dis de tɔk bɔt aw fa di kansa dɔn skata. Dɛn kin gred am frɔm stej 1 to 4. di mɔ di nɔmba smɔl, na di mɔ di tumbu kin smɔl ɛn i nɔ kin skata. Stej 4 kin min se di kansa dɔn spre to fa fa pat dɛm na di bɔdi (mɛtastatik).
• Gret: Dis de tɔk bɔt aw di sɛl dɛn nɔ de luk ɔnda maykroskɔp ɛn aw dɛn kin sheb kwik kwik wan. Gret 1 ɛn 2 (Well-differentiated) tכmכro dεm de gro sכmtεm, we di gred 3 (Poorly differentiated) tכmכro dεm de gro kwik kwik wan.

Tɔk to yu dɔktɔ fɔ no aw dis stej ɛn gred de afɛkt yu kɔndishɔn.

Wetin na di tritmɛnt dɛn?

Di we aw dɛn de trit yu kin dipen pan bɔku tin, lɛk di kayn tumbu we yu gɛt, in saiz, if i dɔn skata, ɛn yu ɔl yu wɛlbɔdi.

Ɔpreshɔn na di men tritmɛnt ɛn we dɛn kin yuz mɔ fɔ dis. If dɛn ebul fɔ pul di tumbu ɔltogɛda wit ɔpreshɔn, di chans fɔ mek i wɛl.

Bɔt if di tumbu dɛn big ɔ dɛn dɔn skata to ɔda say dɛn, dɛn kin nid fɔ yuz ɔda tritmɛnt dɛn.

• Somatostatin analogs: Dis na wan kayn mɛrɛsin we de stɔp di bɔdi fɔ mek i nɔ mek bɔku pan di ɔmon. Dɛn kin ridyus di simptom dɛm ɛn kɔntrol di grow we di tumbu de gro.
• Kimotɛrapi: .Pawaful mɛrɛsin dɛn we de kil kansa sɛl dɛn.
• Targeted therapy: Dɛn drɔgs ya de target sɔm patikyula jin ɔ protin dɛn we de insay di kansa sɛl dɛn nɔmɔ ɛn atak dɛn, so dat de mek dɛn nɔ de pwɛl di sɛl dɛn we gɛt wɛlbɔdi.
• Radiation therapy: Dɛn kin yuz sɔm patikyula redyushɔn tritmɛnt fɔ dis. fכ egzampl, wan mεtכd we dεn kכl `peptide receptor radionuclide therapy (PRRT)` de yuz wan redioaktiv sכbstans fכ tכk to di tכmכro dεm we de prodyuz כmon εn pwεl dεm.

Aw fɔ liv wit dis sik?

We yu kam fɔ no se yu gɛt NET, yu kin gɛt bɔku kwɛstyɔn dɛn. Yu tink se dɛn go ebul fɔ mɛn dis? Aw mi tumara bambay go tan lɛk?

Di prɔgnosis fɔ dis sik de dipen pan sɔm tin dɛm. Dɛn tin ya na di kayn tumbu, if i dɔn skata, ɛn aw i kin biev fayn we i gɛt tritmɛnt. pan avrej, di fayv ia sכvayv rεt afta dεn no di sik na bכt 39%.

Fɔ dɔn di tritmɛnt nɔ min se ɔltin dɔn dɔn. Bikɔs dɛn tumbu ya kin gro kwik kwik wan ɛn dɛn kin kam bak afta dɛn dɔn trit yu, yu dɔktɔ go de wach yu fɔ lɔng lɔng tɛm.

Aw yu go tek kia ɔf yusɛf?

Dis sik ɛn aw fɔ trit am kin rili afɛkt yu bɔdi ɛn maynd.

• Join sɔpɔt grup dɛm: Fɔ fɛt kansa yu wan at. Ɛspɛshali wae yu gɛt wan sik wae nɔr kin bɔrku lɛk dis, e kin tranga fɔ fɛn pipul dɛm wae ɔndastand yu pen. Aks yu mɛdikal tim bɔt sɔpɔt grup fɔ pipul dɛm wae gɛt dis sik.
• It di it we gɛt fayn fayn tin dɛn fɔ it: Di bad tin dɛn we kin apin we pɔsin gɛt tritmɛnt kin mek i nɔ want fɔ it. Kɔnsul pɔsin we sabi bɔt it fɔ advays bɔt it dɛn we go ɛp fɔ mek yu gɛt trɛnk.
• Gɛt sɔpɔt fɔ yu maynd: Dis joyn nɔr izi lɛk aw yu tink. If yu de fil bad bad wan, nɔ shem fɔ go to pɔsin we sabi bɔt mental wɛlbɔdi biznɛs fɔ ɛp yu.
• Tek tɛm we yu de drink rɔm: Rɔm kin mek sɔm sayn dɛn wɔs, so go to yu dɔktɔ bɔt aw yu de drink rɔm.

Ustɛm a fɔ go to di dɔktɔ?

If yu gɛt NET, no bɔt ɛni chenj na yu bɔdi. Mɔtalman, if yu gɛt blɔd wantɛm wantɛm, yu bɛlɛ de opin, ɔ yu de swɛt, dɛn tin ya kin bi sayn fɔ wan sik we dɛn kɔl carcinoid syndrome. If na so i bi, tɛl yu dɔktɔ wantɛm wantɛm.

Dɔn bak, if yu sik de wɔs, ɔr if i nɔr izi fɔ bia wit di sayd ɛfɛkt dɛm wae yu gɛt fɔ trit yu, go to dɔktɔ.

Ustɛm yu fɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU)?

Sɔm kayn tin dɛn de we NET kin afɛkt di at. If yu si yu leg ɔ yu anklɛ dɛn we nɔ kɔmɔn, ɛn yu nɔ ebul fɔ blo wantɛm wantɛm, go na di ɔspitul we de nia yu in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm.

Fɔ dɔn, e nɔrmal fɔ gɛt bɔrku kwɛstyɔn wae yu lan bɔt wan sik wae nɔr kin bɔrku lɛk dis. If yu tɔk to yu dɔktɔ opin wan ɛn aks ɔl yu kwɛstyɔn dɛn, dat kin ɛp yu fɔ kɔntrol yu wɛlbɔdi.