Yu dɔn ɛva yɛri bɔt neuromyelitis optica , ɔ NMO as wi kin kɔl am fɔ shɔt? Sɔntɛm nɔto so. Na bikɔs i nɔ rili kɔmɔn sik na di wɔl. Bɔt na siriɔs tin we kin afɛkt wi yay ɛn di spɛshal kɔd dairekt wan. So, i rili impɔtant fɔ no bɔt dis. Tide, wi go tɔk bɔt am simpul wan we yu go ɔndastand.
Simply put, wetin na NMO?
NMO gɛt sɔm ɔda nem dɛn. Sɔm pipul dɛn kin kɔl am Nyuromaylaytis Ɔptika Spɛktrum Disɔda (NMOSD), ɛn ɔda wan dɛn kin kɔl am Devic’s Disease. Dis na wan rili strenj tin we kin apin. Wi bɔdi in difɛns sistɛm, di imyun sistɛm, kin mistek bigin fɔ atak wi yon wɛlbɔdi sɛl dɛn. I tan lɛk se wi yon ami de atak wi yon kɔntri. dis atak de mεntal tכk to tu pat dεm na wi sεntri nεv sεstem: di optik nεv, we de kכri infכmeshכn frכm di yay to di bren, εn di spεnal kכd, we de rכn dכn di spayna.
Dis sik kin apin tu men we:
1. Monophasic NMO: Insay dis, di simptom dεm de sho wan wan fכ dez כ wik dεm εn dεn sכlv insay wan atak.
2. NMO we de kam bak: Dis na di kayn we we dɛn kin yuz mɔ. Na ya, di sayn dɛm kin apia ɛn kin stɔp fɔ sɔm tɛm. Bɔt afta dat, afta sɔm mɔnt ɔ ivin sɔm ia, ɔda atak kin apin. De sik kin wɔs wit ɛni atak.
Pan ɔl we di fɔs kayn kin afɛkt man ɛn uman, di sɛkɔn kayn, ɔ NMO we kin kam bak, kin bɔku pan uman dɛn pas man dɛn. I kin afɛkt yɔŋ pikin dɛn bak.
Wetin na di sayn dɛm fɔ NMO?
Di simptom dɛm fɔ NMO de fɔdɔm insay tu men kategori. If yu gɛt ɛni wan pan dɛn tin ya, i rili impɔtant fɔ go to dɔktɔ kwik kwik wan.
| Mɛdikal kɔndishɔn | Ɛksplen ɛn di simptom dɛm |
|---|---|
| Optik nyuraytis | Dis na we di optik nerve na di yay de inflamed. Yu kin fil shap pen insay yu yay wantɛm wantɛm . Dis kin bi afta dat, yu nɔ kin si fayn, ɛn sɔntɛnde yu kin ivin lɔs yu yay kpatakpata. Bɔku tɛm, i kin afɛkt wan yay, bɔt sɔntɛnde i kin afɛkt ɔl tu di yay dɛn. |
| Transvas maylaytis we gɛt di sik | dis na we di spεnal kכd na di spayna de swel. Dis kin mek yu an ɛn fut fil pen, wik, yu nɔ go ebul fɔ waka, ɔ yu nɔ ebul fɔ waka . Yu kin lɔs kɔntrol bak pan yu blad ɛn yu bɔdi. Apat frɔm dat, sɔm sayn dɛn lɛk nɔs, vɔmit, hiccup ɔltɛm, nɛk stif, ɛn ed we de at kin apin bak. |
If yɔŋ pikin dɛn gɛt NMO, dɛn kin sho siriɔs sayn dɛn lɛk we dɛn de chenj dɛn bihayvya, dɛn nɔ kin no natin, dɛn kin gɛt sik we dɛn kɔl kɔma.
NMO na di sem wit MS (Multiple Sclerosis)?
Nɔ, dis na ples usay bɔku pipul dɛn kin kɔnfyus. MS, we tinap fɔ Multiple Sclerosis, na ɔda sik we de afɛkt di nervɔs sistɛm ɛn na di wok we di imyun sistɛm de du. Trade, dɔktɔ dɛn bin de tink se NMO na wan kayn MS. Bɔt naw, risach dɔn sho se dɛn tu sik ya rili difrɛn.
Na sɔm pan dɛn chenj dɛn de :
| Tin | NMO (Nyuromaylaytis Ɔptika) . | MS (Mɔltipul Sklɛrosis) . |
|---|---|---|
| Di spid we di sik kin bigin | Bɔrku tɛm, di sayn dɛm kin rili kwik ɛn i kin rili bad. | Bɔrku tɛm, de sik kin kam sloslo, fɔ lɔng tɛm. |
| Blɔd tɛst dɛn | Wan patikyula blɔd tɛst (antibodi tɛst) de fɔ no if yu gɛt NMO. | Nɔr patikyula blɔd tɛst nɔr de lɛk dis fɔ no MS. |
| MRI skan fɔ di bren | We di sik bigin, i kin tan lɛk se i nɔmal fɔ du MRI skan na di bren. | Insay MS, dɛn kin si chenj dɛn pan MRI skan na di bren. |
| Ɔda tin dɛn we de apin | Di sayn dɛm lɛk fɔ nɔs, fɔ vɔmit, ɛn fɔ hiccups kin bɔku. | Dɛn nɔ kin si dɛn sayn ya na MS. |
Wetin de mek NMO?
Infakt, dɔktɔ dɛn stil nɔ no di rayt kɔz fɔ NMO. No pruf nɔr de fɔ se i kin pas frɔm jɛnɛreshɔn to jɛnɛreshɔn. Bɔt wan tin klia. Bɔrku pipul dɛm wae gɛt NMO gɛt ɔda ɔtoimyun sik dɛm , ɔr dɛn famili mɛmba dɛm gɛt dɛm. Fɔ tɔk am simpul wan, na kɔndishɔn we wi bɔdi in difɛns sistɛm, di imyun sistɛm, kin mistek atak wi yon wɛlbɔdi sɛl dɛm. Dayabitis (Type 1 Diabetes), rεumatoid at, psoriasis, ɛn vitiligo na jɔs sɔm ɛgzampul dɛn fɔ dɛn kayn sik ya.
Aw dɛn kin no di sik?
Afta yu dɔn aks bɔt yu sik, yu dɔktɔ go chɛk yu. Dis go inklud fɔ tɛst aw yu de tink, aw yu de si, aw yu de tɔk, aw yu bɔdi trɛnk, ɛn aw yu de tink.
Apat frɔm dat, dɛn kin du dɛn tɛst ya bak:
- Blɔd tɛst: Mɔ pas 70% pan di pipul dɛn we gɛt NMO gɛt wan patikyula prɔtin, we dɛn kɔl antibodi, na dɛn blɔd. Dɛn kin no dis wit blɔd tɛst.
- Spinal fluid test: Sɔntɛnde i kin nid fɔ tek fluid frɔm di spayna ɛn tɛst am.
- MRI skan: MRI ( magnɛtik rɛsɔnans imej) .) na wan we we yu kin yuz big magnet ɛn kɔmpyuta fɔ tek klia pikchɔ dɛn bɔt di insay pat na yu bɔdi. Dis kin ɛp fɔ si if yu spɛnal kɔd dɔn swel.
- Ay ɛgzam: Dɛn kin sɛn yu to dɔktɔ we de mɛn yu yay, we go du spɛshal tɛst dɛn lɛk OCT (Optical Coherence Tomography) fɔ chɛk fɔ si if di optik nɛv dɔn pwɛl.
Wetin na di tritmɛnt dɛm fɔ NMO?
Dis na di pat we impɔtant pas ɔl. No mɛrɛsin nɔ de fɔ NMO yet. Bɔt tritmɛnt dɛn de we rili fayn we kin ɛp fɔ kɔntrol di sik dɛn ɛn mek dɛn nɔ gɛt atak dɛn tumara bambay.
- Anti-seizure drugs: Bɔku nyu drɔgs de we dɛn jɔs dɔn gri fɔ fɔ NMO. Eculizumab (Soliris), inebilizumab-cdon (Uplizna), ɛn satralizumab-mwge (Enspryng) na sɔm pan dɛn mɛrɛsin ya. Dɛn mɛrɛsin ya de wok bay we dɛn de tɔch di antibodi dɛn we de atak wi wɛlbɔdi sɛl dɛn ɛn stɔp dɛn fɔ wok. Apat frɔm dat, yu dɔktɔ kin gi yu ɔda mɛrɛsin dɛn we de stɔp di imyun sistɛm.
- Stɛroyd: Dɛn kin gi stɛroyd mɛrɛsin fɔ ridyus di inflamɛns na di bɔdi. Dɛn kin gi dɛn tin ya tru wan vein (IV).
- Plasma exchange: Dɛn kin kɔl am bak plasmapheresis, dis tan lɛk blɔd purifya. Wan spɛshal mashin kin separet di plasma frɔm yu blɔd we gɛt bad bad antibodi dɛn, ɛn pul am. Dɔn, dɛn kin ad sɔntin we go tek di ples fɔ di blɔd ɛn put di blɔd we dɛn dɔn klin bak insay yu bɔdi.
Mɛsej we dɛn kin kɛr go na os
- NMO na wan sik wae nɔr kin bɔrku bɔt wae kin gɛt siriɔs ɔtoimyun sik wae kin afɛkt wi yay ɛn wi spayna.
- If yu gɛt sɔm sayn dɛm lɛk aw yu yay de pen wantɛm wantɛm, yu nɔ de si fayn, yu an ɛn yu an dɛn wik ɔ yu nɔ de fil fayn, go to dɔktɔ ɛn nɔ de te.
- NMO na difrɛn sik frɔm MS (Multiple Sclerosis). Wan spɛshal blɔd tɛst kin no difrɛns bitwin dɛn tu.
- Pan ɔl we dɛn nɔ go ebul fɔ mɛn am ɔl, tritmɛnt dɛn de we rili fayn tide fɔ kɔntrol di sik dɛn ɛn fɔ mek i nɔ gɛt atak tumara bambay.
- If yu ɔ pɔsin we yu sabi gɛt ɛni dawt ɔ kwɛstyɔn bɔt dis, duya tɔk opin wan wit yu dɔktɔ.
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