Yu de sɔfa wit siriɔs sik? Mek wi tɔk bɔt Palliative Care!

Sɔntɛnde na wi layf, wi kin gɛt fɔ liv wit sik dɛn we nɔ kin izi fɔ imajin, we kin rili tranga, nɔto so? Dɛn kayn tɛm ya, nɔto jɔs di pen we pɔsin kin fil na in bɔdi, bɔt di maynd kin fil big prɛshɔn ɛn sɔri-at bak. Dis na big chalenj nɔto fɔ yu nɔmɔ, bɔt fɔ di wan dɛn we de kia fɔ yu, yu famili. Tide, wi go tɔk bɔt wan spɛshal kia savis we go gi yu trɛnk, kɔmfɔt, ɛn rilif pan dɛn kayn tɛm dɛn de.

Wetin na ‘Palliative Care’?

Fɔ tɔk am simpul wan, palliativ kia na spɛshal we fɔ kia fɔ pipul dɛn we gɛt siriɔs ɔ krɛse sik . I nɔ de sɔpɔt yu nɔmɔ, bɔt i de sɔpɔt bak di wan dɛn we de kia fɔ yu ɛn ɔlman we yu sik dɔn afɛkt. Di men gol na fɔ mek yu layf bɛtɛ.

Bɔrku pipul kin tink bɔt dis as hospice care, wae dɛn kin gi am wae pɔrsin dɔn day. Bɔt nɔto so i bi. Palliative care na ɔda sɔpɔt wae yu de gɛt apat frɔm di tritmɛnt wae yu dɔn ɔlrɛdi de gɛt. I de pe atɛnshɔn pan yu yone spɛshal kia gol dɛm, we de alaynɛd ​​wit yu valyu dɛm. Nɔ lɛk di kia we dɛn kin kia fɔ na hospice, palliativ kia kin bɛnifit pɔsin we ol ɛni ej, pan ɛni stej we i gɛt siriɔs sik.

Di wɔd 'palliative' kɔmɔt frɔm di Latin wɔd 'palliare', we min "fɔ kɔba wit klos." Tink bɔt am lɛk klos we de protɛkt yu frɔm di damej we yu sik de mek, we de gi yu mɔ kɔmfɔt ɛn sef. Na di sɔpɔt we yu kin gɛt frɔm palliative care.

Udat nid dis palliativ kia?

Dis kin bi ilɛksɛf yu ol, yu prɔgnosis, ɔr if yu de gɛt tritmɛnt fɔ mɛn yu sik. Yu kin gɛt dis kia ɛnitɛm.

Palliative care de fɔ pipul dɛm wae gɛt difrɛn kayn mɛrɛsin. Sɔm pan dɛn na:

• Amyotrofik lateral sklεrosis (ALS) .
• Dis sik we dɛn kɔl Alzaima
• Kansa
• Di bad bad impak dɛm we di COVID-19 sityueshɔn gɛt
• At sik
• HIV ɛn AIDS
• Kidni sik
• Liva sik
• Lכng sik dεm lεk COPD (Chronic Obstructive Pulmonary Disease) εn Emphysema
• Mɔltipɛl Sklɛrosis (MS) .
• Dis sik we dɛn kɔl Parkinson
• Strok

Wetin na di we fɔ gɛt palliativ kia?

Dipen pan di tin dɛm wae de na yu eria, yu kin ebul fɔ gɛt palliativ kia na difrɛn say dɛm:

• Na klinik: Yu kin go to dɔktɔ we de kia fɔ di sik we dɛn kɔl palliativ kia na klinik, jɔs lɛk aw yu go si yu famili dɔktɔ.
• Insay ɔspitul:Ivin wae yu de na ɔspitul, di dɔktɔ dɛm wae de kia fɔ yu kin kam fɛn yu ɛn ɛp fɔ pul yu pen ɔr ɔda sayn dɛm.
• Na os: Yu gɛt di chans bak fɔ gɛt wan-to-wan sɔpɔt frɔm wɛlbɔdi wokman, frɔm di kɔmfɔt na yu yon os.
• Di say dɛn we dɛn kin ɛp pipul dɛn fɔ liv: Bɔku say dɛn we dɛn kin mɛn pipul dɛn we dɔn ol ɛn say dɛn we dɛn kin ɛp pipul dɛn fɔ liv gɛt wɛlbɔdi wokman dɛn we kin gi dɛn kia fɔ mek dɛn nɔ fil bad.

Udat de gi dis palliativ kia?

Di tim dɛm wae de kia fɔ yu bɔdi kin gɛt dɔktɔ dɛm ɛn ɔda spɛshal pipul dɛm wae kin ɛp yu fɔ kɔntrol yu sik dɛm. Dɛn kin ɛp yu bak fɔ dil wit di ad strɛs ɛn rispɔnsibiliti dɛn we kin kam wit siriɔs sik.

Di tim we de kia fɔ yu kin gɛt:

• Dɔktɔ dɛn
• Nɔs dɛn
• Nɔs prɛktishɔn dɛn we gɛt spɛshal trenin
• Di wan dɛn we de ɛp dɔktɔ dɛn
• Soshal woka dɛn
• Spiritual advaysa/chaplen dɛm we de gi spiritual sɔpɔt akɔdin to yu rilijɔn biliv

Aw di sɔpɔt tan lɛk frɔm palliativ kia?

Palliative care kin ɛp pan bɔku we dɛm, apat frɔm yu mɛrɛsin tritmɛnt. Dɛn tin ya kin bi:

• Fɔ mek di sik nɔ kam pan pɔsin
• Edukeshon ɛn advokesi
• Soshal sɔpɔt
• Sɔpɔt we gɛt fɔ du wit Gɔd biznɛs

Fɔ mek di sik nɔ kam pan pɔsin

Palliative care kin mek yu gɛt bɛtɛ sayn dɛm wae de afɛkt yu bɔdi, maynd, ɛn filin. Di palliativ kia tim kin gi yu dairekt kia, ɔr dɛn kin tich yu we dɛm wae yu kin yuse ɛvride fɔ de wɛl.

Palliative care kin ɛp wit di sayn dɛm lɛk:

• Wɔri
• Banbɛlɛ
• Pwɛl at
• Taya
• I nɔ kin want fɔ it igen
• Vɔmit
• Pen ɔ diskɔmfɔt na di bɔdi
• Shot we yu de blo
• Strɛs
• Trobul fɔ slip

Yu palliativ kia tim kin ɛp fɔ pul di sik dɛn we de kam pan pɔsin in we dɛn lɛk dis:

• Ɛksesaiz fɔ blo
• Ɛgzampul dɛn we pɔsin kin du fɔ no sɔntin
• Ɛksesaiz fɔ gayd yu
• Fɔ gi pɔsin mɛrɛsin
• Rilaks ɛgzampul dɛn
• Tips fɔ mek yu slip fayn

If yu nid ɔda kia, di wan dɛn we de gi yu palliative care kin rifer yu bak to spɛshal pipul dɛn.

Edukeshon ɛn Advokesi

Yu palliativ kia tim kin du dɛn tin ya:

• Duya ɛksplen to yusɛf bɔt yu mɛrɛsin.
• Ɛp yu fɔ disayd us kayn tritmɛnt yu want.
• Tɛl yu aw yu sik go afɛkt yu tumara bambay.

Di mɔ yu no mɔ, na di mɔ yu go ebul fɔ disayd fɔ kia fɔ yu we go fayn fɔ yu. Dis tim de ɛp yu bak fɔ tɛl yu ɔda dɔktɔ dɛn bɔt yu valyu, gol, ɛn wetin yu lɛk. Dɔn, yu kin gɛt di kia we yu want.

Soshal sɔpɔt

Palliative care spɛshal pipul dɛm no se yu sik kin afɛkt di wan dɛm wae de nia yu, so dɛn nɔr de sɔpɔt yu nɔmɔ, bɔt dɛn kin sɔpɔt di wan dɛm wae de arawnd yu.

Yu palliativ kia tim kin du dɛn tin ya:

• Kɔnekt yusɛf wit sɔpɔt grup ɛn kɔmyuniti risɔs.
• Ɛp yu famili fɔ tɔk to dɛn, ɔ rifer dɛn fɔ mek dɛn gi dɛn famili advays.
• Sɔpɔt yu padi ɛn fambul dɛn fɔ dil wit di strɛs we dɛn de fil bikɔs ɔf yu sik.

Imajin aw wi neba, Ɔnkul Nimal, bin de wɔri ɛn fil pen we i kam fɔ no se i gɛt kansa. In famili sɛf bin rili sɔri. We di dɔktɔ dɛn bin de trit am fɔ kansa, dɛn bigin fɔ kia fɔ Ɔnkul Nimal we dɛn kɔl palliative care. Dɛn bin ɛp am fɔ kɔntrol in pen, ɛp am fɔ slip fayn na nɛt, ɛn ɛp am fɔ it. Nɔto dat nɔmɔ, bɔt di tim we de kia fɔ am bin ɛp am fɔ ridyus in fred ɛn wɔri, ɛn ɛp am fɔ tɔk to in famili bɔt aw fɔ bia wit dis tranga tɛm. Insay sɔm dez, wan smayl bin de na Ɔnkul Nimal in fes, ɛn i bin rili fil fayn fɔ in famili we dɛn si am de wɛl.

Sɔpɔt we gɛt fɔ du wit Gɔd biznɛs

Dipen pan wetin yu biliv ɛn wetin yu want, palliativ kia kin inklud bak fɔ kia fɔ yu spiritual. We yu de mit ɔltɛm wit wan prist, lida fɔ rilijɔn, ɔ ɔda pɔsin we de advays yu bɔt Gɔd biznɛs, dat go ɛp yu fɔ ɔndastand aw yu sik de afɛkt yu layf.

Ustɛm fɔ bigin fɔ kia fɔ di sik we dɛn kɔl palliativ kia?

Nɔr tɛm nɔr de fɔ no ustɛm pɔrsin fɔ gɛt palliativ kia. Bɔrku pipul kin pik palliative care as soon as dɛn gɛt siriɔs diagnosis. If yu gɛt kia kwik kwik wan, dat kin ɛp yu fɔ plan fɔ tumara bambay.

Tɔk to yu dɔktɔ bɔt if dɛn kin advays yu fɔ kia fɔ yu we yu de kia fɔ yu.

Aw lɔŋ dɛn kin gi pɔsin di kia we de mek pɔsin nɔ fil fayn?

Yu kin go to pɔlitiv kia spɛshal pɔsin fɔ as lɔng as yu si se i go ɛp yu. No limit nɔ de fɔ di nɔmba fɔ di tɛm we yu go si wan.

Wetin na di bɛnifit dɛn we pɔsin kin gɛt we i gɛt palliativ kia?

Palliative care de gi yu pawa fɔ mek gud kia disizhɔn wae de ɛp yu layf fayn fayn wan. I kin ɛp bak fɔ mek di tin dɛn we gɛt fɔ du wit wɛlbɔdi biznɛs bɛtɛ. Risach dɔn sho se palliativ kia gɛt fɔ du wit:

• Impruv di pesin ɛn di pɔsin we de kia fɔ dɛn satisfayshɔn
• Di kwaliti fɔ liv bɛtɛ
• Nɔr kin wɔri pasmak ɛn nɔr kin gɛt pwɛl hat
• Lɔng layf ɛkspɛkteshɔn - insay sɔm kes dɛm

Wetin na di bad tin ɔr di rɔŋ we aw pipul dɛn kin tink bɔt di kia we dɛn kin kia fɔ di sik we dɛn kɔl palliativ kia?

Di big tin we nɔ fayn bɔt di kia we pɔsin kin kia fɔ di sik we dɛn kɔl palliativ kia na dat bɔku pipul dɛn nɔ kin ɔndastand di rizin we mek i du am gud gud wan. Sɔm pipul dɛn kin shem fɔ bigin dis kayn kia bikɔs dɛn kin tink se na fɔ di wan dɛn nɔmɔ we dɔn nia fɔ dɔn dɛn layf.

Bɔt palliative care nɔ min se yu go day. Na fɔ ɛnibɔdi wae gɛt krɛse sik wae de ambɔg dɛn kwaliti fɔ liv.

Aw a go gɛt palliativ kia?

Fɔ gɛt palliative care, yu go nid fɔ gɛt riferal frɔm yu dɔktɔ. Sɔntɛnde, yu dɔktɔ kin tɛl yu fɔ du am. If nɔto so, nɔ fred fɔ briŋ di tɔpik. Say yu go lɛk fɔ lan mɔ bɔt palliative care, aks if yu fit fɔ am fayn, ɛn us risɔs de.

Fɔ liv wit siriɔs sik kin afɛkt yu maynd, bɔdi, rilayshɔnship – ɛn bɔku ɔda tin dɛn na yu layf. Dɛn tin ya we dɛn kin aks fɔ kin rili tranga. Palliative care na fɔ ridyus de bɔrku lod wae kin kam wit siriɔs sik. If yu want fɔ no mɔ bɔt palliativ kia we yu ɔ pɔsin we yu lɛk fɔ gɛt, tɔk to yu dɔktɔ. Yu kin fɛn tin dɛn bak we go gi yu di kɔmfɔt ɛn sɔpɔt we yu nid fɔ liv yu layf di bɛst we.

Di tin we impɔtant pas ɔl fɔ mɛmba (Take-Home Message) .

Wi no se fɔ dil wit siriɔs sik nɔ kin izi. Bɔt nɔto yu wangren de. Palliative care na ekstra risos wae kin ɛp yu ɛn yu famili tru dis tranga tɛm. I kin ɛp yu fɔ ridyus yu pen ɛn diskɔmfɔt, gi yu kolat na yu maynd, ɛn ɛp yu fɔ liv gladi layf.

Mɛmba se dis nɔto sɔntin we dɛn kin jɔs gi we pɔsin day. Yu kin gɛt dis savis frɔm di biginin fɔ yu diagnosis. So, if yu ɔr pɔrsin wae yu sabi fil se yu nid dis kayn ɛp, nɔr frayd fɔ tɔk to yu dɔktɔ. Dis go rili ɛp yu fɔ mek yu layf rilaks ɛn gɛt wɛlbɔdi smɔl!

` Palliative Care, Palliative Care, Kritikal Illness, Kronik Illness, Kwaliti fɔ Layf, Rilif fɔ Simptom, Pen Manejmɛnt