Dɛn dɔn no se yu gɛt Primary Biliary Cholangitis, ɔ PBC fɔ shɔt tɛm, ɛn yu jɔs de bigin tritmɛnt? Dɔn yu go mɔs gɛt smɔl kwɛstyɔn na yu maynd, smɔl shem, "Dis mɛrɛsin go rili wok fɔ mi? Di sik go bɛtɛ?" Fɔ tru, dis nɔto fɔ yu nɔmɔ, bɔt na sɔntin we bɔku pipul dɛn we dɛn kin trit fɔ dis kayn sik kin fil. Sɔntɛnde, di fɔs mɛrɛsin we di dɔktɔ gi yu nɔ go wok fɔ yu. Dis na rili nɔmal tin, nɔ wɔri bɔt am. Di tin we impɔtant pas ɔl na fɔ tɔk to yu dɔktɔ opin wan bɔt aw yu de fil ɛn di tin dɛn we de kɔmɔt frɔm di tritmɛnt.
Fɔs, lɛ wi jɔs ɔndastand, wetin na PBC?
Di nem kin tan lɛk se i de mek yu fred smɔl. Bɔt lɛ wi kip am simpul. Praymari Biliary Cholangitis (PBC) na wan sik we de afɛkt di smɔl smɔl bayl dakt dɛn we de insay yu liva . Tink bɔt dɛn bayl dakt ya lɛk paip dɛn na yu bɔdi. Dɛn paip ya kin kɛr bayl, we na wan wata we kin kɔmɔt na di liva we kin ɛp fɔ dayjɛst it.
insay PBC, wi bכdi in yon imyun sistεm de mistek atak dεn bayl dakt dεm ya εn sכmtεm i de pwεl dεm. Dɔn, di bayl wata nɔ kin ebul fɔ flɔ fayn ɛn i kin stɔp insay di liva. Jɔs lɛk we wata paip kin lɔk, di wata kin ful-ɔp na wan ples ɛn ɔltin we de rawnd am kin wet, dis wata kin bigin fɔ pwɛl di liva. If dɛn nɔ trit am, as tɛm de go, dis damej kin mek di liva gɛt skata, we wi kin kɔl sirosis .
Bɔt di gud nyus na dat, bɔku gud mɛrɛsin dɛn de naw fɔ kɔntrol dis sik ɛn fɔ ridyus di bad bad tin dɛn we i de du. Tugɛda wit yu dɔktɔ, yu kin mek wan tritmɛnt plan we go fayn fɔ yu.
Di PBC tritmɛnt joyn - nɔto ɔltin de wok aut wantɛm wantɛm
Dis na sɔntin we wi ɔl nid fɔ ɔndastand. Sɔntɛnde, fɔ trit PBC kin tan lɛk ɛkspiriɛns. Dat min se, bikɔs ɔlman in bɔdi difrɛn, di sem mɛrɛsin nɔ de wok fɔ ɔlman. Di fɔs mɛrɛsin we yu dɔktɔ gi yu nɔ go wok fayn lɛk aw yu go want.
Nɔto yu fɔlt ɔ di dɔktɔ in fɔlt. Na di kayn we aw dis sik de. De impɔtant tin na fɔ mek yu bi aktif mɛmba na yu tritmɛnt tim pan dis joyn.
Wetin dat min? I min se yu fɔ pe atɛnshɔn to di chenj dɛn we de apin na yu bɔdi, di sayn dɛm, ɛn di we aw yu de fil afta yu dɔn tek di mɛrɛsin. Ɛn yu nid fɔ tɛl yu dɔktɔ ɔl dat. Na da tɛm de nɔmɔ i go ebul fɔ ɔndastand if di tritmɛnt de wok ɔ if yu nid fɔ chenj.
Yu PBC tritmɛnt tim - nɔto yu wan de pan dis joyn!
Fɔ manej kɔndishɔn lɛk PBC na tim spɔt. Difrɛn spɛshal dɔktɔ dɛn de we go ɛp yu. Mɛmba se nɔto yu wangren de. Mek wi tek wan luk pan udat tipikli mek dis tim.
| Medikal spɛshal pɔsin / wɛlbɔdi pɔsin | Aw a go ɛp yu? |
|---|---|
| Gastroenterologist (spɛshal pɔsin we de wok na di dijestiv sistɛm) . | Dɔktɔ we spɛshal pan sik dɛn we de na di dijestiv sistɛm, lɛk di liva, bɛlɛ, ɛn intestinal. Dis kin bi di fɔs dɔktɔ we yu go si afta dɛn dɔn no se yu gɛt PBC. |
| Ɛpatɔlɔjis (spɛshal pɔsin we de wok na di liva) . | Dis dɔktɔ no mɔ bɔt di sik dɛn we de na di liva ɛn i de ple impɔtant pat fɔ trit tin dɛn lɛk PBC. |
| Praymari Keya Dɔkta (yu famili dɔktɔ) . | I go mɔs bi se yu bin go to am we yu fɔs bigin fɔ gɛt di sayn dɛn. I go luk pan yu ɔl wɛl bɔdi, wok wit ɔda spɛshal pipul dɛm fɔ asɛs yu wɛl bɔdi. |
| Rediolɔjis (spɛshal pɔsin we sabi bɔt raydioloji) . | Na in kin du spɛshal tɛst dɛn lɛk CT skan ɛn MRI skan fɔ chɛk aw yu liva de ɛn analayz dɛn ripɔt dɛn. |
| Dietitian we dɛn dɔn rɛjista | We yu gɛt liva sik, yu nid fɔ tek tɛm mɔ bɔt wetin yu de it. I go ɛp yu fɔ plan fɔ it fayn fayn it we nɔ go put strɛs pan yu liva. |
| Liva Sɔjɔn | If dɛn nid fɔ tek di liva bayɔpsi fɔ no di sik, ɔ if di sik go bad tumara bambay ɛn dɛn nid fɔ transplant di liva, dɛn nid fɔ ɛp dis dɔktɔ we de du di ɔpreshɔn. |
Aw fɔ tɔk to di dɔktɔ? - Nɔ fɔgɛt fɔ aks dɛn tin ya!
I rili impɔtant fɔ bil gud, trɔst rilayshɔn wit yu Gastroenterologist ɔ Hepatologist so dat yu go ebul fɔ aks yu kwɛstyɔn dɛn we yu nɔ go fred ɔ dawt.
Pripia smɔl bifo una mit.
I go rili ɛp yu fɔ pripia smɔl na os bifo yu go to dɔktɔ.
- Rayt yu sayn dɛm: Rayt dɔŋ na wan jɔnal di ditel dɛm lɛk wae yu gɛt it, taya, ɛn pen, ɛn aw yu de fil.
- Mek wan list fɔ kwɛstyɔn dɛn: Sɔntɛnde yu kin fɔgɛt wetin yu want fɔ aks di dɔktɔ, so rayt ɔl di kwɛstyɔn dɛn we yu gɛt na yu maynd.
- Tɛl yu dɔktɔ bɔt ɔda mɛrɛsin dɛn we yu de tek: If yu de tek ɛni ɔda mɛrɛsin, vaytamɛn, ɔ tradishɔnal mɛrɛsin apat frɔm di mɛrɛsin we yu de tek fɔ PBC, mek shɔ se yu tɛl yu dɔktɔ bɔt am.
Impɔtant pɔynt dɛn we wi fɔ tɔk bɔt
Nɔ shek fɔ aks yu dɔktɔ kwɛstyɔn dɛn lɛk di wan dɛn we de dɔŋ ya. Dɛn tin ya rili impɔtant fɔ yu tritmɛnt joyn.
- "Dɔkta, wetin na di men gol dɛm fɔ dis tritmɛnt? Wetin wi de ɛkspɛkt frɔm dɛn mɛrɛsin ya?"
- " Aw wi go no fɔ tru if dis mɛrɛsin de wok fayn? Us blɔd tɛst ɔ skan dɛn nid?"
- "A jɔs dɔn gɛt dis simptom. Dis kin bi sayd ɛfɛkt fɔ di mɛrɛsin? Wetin a fɔ du?"
- "If dis tritmɛnt nɔ wok fɔ mi, wetin na wi nɛks opshɔn dɛn? "
- "Us chenj a nid fɔ mek na mi it ɛn layf stayl ?"
Mɛmba se, no ‘stupid kwɛstyɔn’ nɔ de. Yu gɛt rayt fɔ aks ɛnitin we yu want bɔt yu bɔdi ɛn yu tritmɛnt. Yu dɔktɔ want mek dɛn tɛl yu.
Dis tɔk to yu dɔktɔ na di bɛst we fɔ mek yu tritmɛnt plan wok. Tel wi evritin wae yu de fil, yu frayd, yu op. Dɔn, una ɔl tu go disayd fɔ du tin dɛn we go mek una gɛt di bɛst rizɔlt.
Mɛsej we dɛn kin kɛr go na os
- Pan ɔl we Primary Biliary Cholangitis (PBC) na sik we de afɛkt di bayl dakt dɛm na di liva, dɛn kin kɔntrol di sik fayn fayn wan wit di mɔdan tritmɛnt dɛm.
- Na nɔmal tin fɔ mek di fɔs tritmɛnt we dɛn gi yu nɔ go wok. Nɔ panik ɛn stɔp fɔ trit yu.
- Mek yu gɛt gud, opin rilayshɔn wit yu tritmɛnt tim, mɔ yu Gastroenterologist ɔ Hepatologist.
- Bifo yu go to dɔktɔ, i go rili ɛp yu fɔ rayt wetin yu de fil ɛn us kwɛstyɔn dɛn yu want fɔ aks.
- Bi wan aktif patisipan pan tritmɛnt disizhɔn. Tɔk bɔt wetin yu de tink ɛn aw yu de fil. Na big trɛnk fɔ yu fɔ wɛl.
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