We yu dɔktɔ tɛl yu se yu gɛt wan sik we dɛn kɔl Primary Biliary Cholangitis ( PBC ), yu kin fil fɔ fred smɔl. Dat na nɔmal tin. Wi no se fɔ liv wit lɔng tɛm kɔndishɔn lɛk dis nɔr izi. Fɔ tɔk am simpul wan, na sik we de pwɛl di bayl dakt dɛn na yu liva. No mɛrɛsin nɔ de yet, bɔt nɔ wɔri. Bɔrku gud tritmɛnt ɛn mɛrɛsin de tide wae kin ɛp yu fɔ kɔntrol dis sik, ridyus de sik, ɛn liv bɛtɛ layf.
Aw dis PBC kɔndishɔn kin afɛkt yu layf?
Di sayn dɛm fɔ PBC kin afɛkt yu ɛvride layf ɛn di tin dɛm we yu de du . Imajin se yu wek na mɔnin wit pen na yu an ɛn yu fut ɛn yu jɔyn dɛn. I kin tan lɛk se yu nɔ go ebul fɔ du ɛni wok na os ɔ na di yad. Fɔ sɔm pipul dɛn, dis sik kin mek i nɔ izi fɔ du dɛn wok fayn ɛn i kin mek i nɔ izi fɔ fɛn tɛm fɔ du tin dɛn we dɛn lɛk fɔ du .
Risach dɔn ivin sho se ivin bifo PBC kam tranga, sɔm kayn sayn dɛm lɛk joyn pen ɛn taya kin gɛt bɔrku impak pan pipul dɛm layf. Dis min se dis sik kin gɛt bɔrku impak pan yu ɛvride layf, yu padi biznɛs wit yu fambul, ɛn yu woke.
Bɔt di tin we impɔtant pas ɔl na dat yu nɔ nid fɔ fɛt dɛn sik ya yu wan. Bɔku we dɛn de fɔ manej dɛn.
Wetin na di tritmɛnt dɛm fɔ PBC?
Bɔku men gol dɛn de fɔ trit PBC.
- Fɔ stɔp ɔ fɔ slo fɔ mek di sik go bifo.
- Fɔ kɔntrol di sayn dɛm (lɛk fɔ it , taya, pen na yu jɔyn).
- Fɔ mek yu nɔ gɛt ɔda wɛlbɔdi prɔblɛm dɛn we kin kam bikɔs ɔf di sik.
Dɛn kin du dis mɔ tru mɛrɛsin dɛn . Yu go nid bak fɔ mek sɔm chenj dɛn na yu layf . Na di kayn tin we kin rili bad, dis min se di liva kin pwɛl bad bad wan ( liva sirosis).), yu kin nid fɔ gɛt liva transplant. Bɔt bɔku pipul dɛn nɔ nid am. Dɛn kin kɔntrol di sik fayn fayn wan if dɛn tek di rayt tritmɛnt.
Di tin we impɔtant pas ɔl na fɔ mek yu dɔktɔ disayd di tritmɛnt plan we go fayn fɔ yu. So, e fayn fɔ tɔk to am opin wan bɔt dis ɛn tɛl am bɔt di diskɔmfɔt we yu de fil.
Di men kayn mɛrɛsin dɛn we dɛn kin yuz fɔ kɔntrol PBC
Bɔku kayn mɛrɛsin dɛn de we dɛn kin gi fɔ kɔntrol PBC ɛn fɔ ridyus di liva we de pwɛl. Yu dɔktɔ go pik di wan we go fayn fɔ yu. Lɛ wi tek smɔl luk pan dɛn mɛrɛsin ya.
| Di Nem fɔ Drug | Fɔ tɔk am simpul wan, wetin i min? |
|---|---|
| Ursodeoksikɔlik asid (UDCA) (Aktigal, Ɔrso) . | Bɔku tɛm, dis na di fɔs mɛrɛsin we dɛn kin gi. i de wok bay we i de mek am izi fכ di bayl fכ muv tru di liva. dis de mek di liva wok fayn εn i de ridyus di liva dεm we de pwεl (ska). |
| Obɛtɛkɔlik asid (Ocaliva) . | Sɔntɛnde dɛn kin gi dis mɛrɛsin wit UDCA ɔ to di wan dɛn we nɔ de ansa UDCA. Dis kin mek bak di liva wok fayn ɛn i kin mek di liva nɔ pwɛl. |
| Budesonide we dɛn kɔl | Dɛn dɔn si se i kin gɛt gud rizɔlt pan sɔm pasɛnt dɛn we dɛn put am togɛda wit UDCA, bɔt dɛn stil de du risach bɔt aw i go sef fɔ lɔng tɛm. |
| Wan klas fɔ drɔgs we dɛn kɔl PPAR Agonists | |
| Ɛlafibranɔ (Iqirvo) ɛn ɔda pipul dɛn. | Dis mɛrɛsin de ridyus di bayl we de kɔmɔt na di bɔdi ɛn i de ɛp bak fɔ ridyus di inflamɛns na di liva. |
| Fenofibrate (Trikɔr) we dɛn kɔl . | We dɛn tek am wit UDCA, dɛn dɔn si se i kin ɛp fɔ ridyus di liva we de swel ɛn di skin it. Pan ɔl we dɛn kin rili gi dis mɛrɛsin fɔ ɔda sik dɛn, dɔktɔ dɛn kin yuz am bak fɔ pipul dɛn we gɛt PBC. |
| Seladelpar (Livdelzi) ɛn ɔda pipul dɛn. | dis de ridyus di bayl we di liva de mek bak. I de ɛp bak fɔ ridyus di lɛvɛl we wan ɛnzaym we dɛn kɔl alkaline phosphatase (ALP) de na di blɔd. We ALP bɔku na sayn fɔ se di liva sik de wɔs. |
Nɔto mɛrɛsin nɔmɔ, bɔt fɔ chenj di we aw pɔsin de liv in layf impɔtant bak!
Yɛs, mɛrɛsin na jɔs pat pan di fɛt. If yu mek smɔl chenj na yu layf, dat kin ɛp yu fɔ kɔntrol di sik dɛn we yu gɛt ɛn fɔ mek yu gɛt wɛlbɔdi.
- Blɛns it: Nɔ it tin dɛn we gɛt bɔku sɔl, shuga, ɛn fat as yu ebul. Put mɔ vɛjitebul, frut, ɛn ɔl di tin dɛn we yu de it.
- Stɔp fɔ drink rɔm ɔltogɛda: Rɔk na pɔyzin to di liva. If yu gɛt PBC, yu fɔ stɔp fɔ drink rɔm kpatakpata . Dis na sɔntin we pɔsin fɔ du.
- Ɛksesaiz: I fayn fɔ aks yu dɔktɔ fɔ layt ɛksesaiz rutin (lɛk fɔ waka ɔ yoga) we go fayn fɔ yu ɛvride. Dis go ɛp fɔ mek yu nɔ taya ɛn yu jɔyn dɛn go ebul fɔ chenj mɔ.
- Gɛt inof rɛst: Wan pan di big prɔblɛm wit PBC na fɔ taya pasmak. So lisin to yu bɔdi. If yu fil se yu taya, tek smɔl tɛm fɔ blo. We yu de plan yu de, mek tɛm fɔ rɛst.
- Di mɛrɛsin fɔ di skin we de it: If yu gɛt skin we de it, nɔ kip am dray. Yuz wan tin we de mek yu bɔdi wam. Nɔ was insay ɔt wata. Tɔk to yu dɔktɔ bɔt dis bak.
Mɛsej we dɛn kin kɛr go na os
- Pan ɔl we Primary Biliary Cholangitis (PBC) na wan sik we de mek yu gɛt lɔng tɛm na di liva, if yu gɛt di rayt tritmɛnt, yu kin kɔntrol am fayn fayn wan ɛn yu kin liv nɔmal layf.
- I rili impɔtant fɔ tek di mɛrɛsin we yu dɔktɔ gi yu di rayt we, di rayt tɛm, ɛn di rayt doz. Nɔ stɔp fɔ tek di mɛrɛsin af-af.
- Apat frɔm di mɛrɛsin dɛn, if yu it tin dɛn we go mek yu nɔ gɛt bɛtɛ rɔm, yu nɔ go drink rɔm kpatakpata, ɛn du ɛksesaiz we nɔ gɛt wan bɔt, dat go ɛp yu bad bad wan.
- Nɔr frayd fɔ tɔk to yu dɔktɔ bɔt ɛni sayn ɔr diskɔmfɔt wae yu kin gɛt. I go ɛp yu.
- Nɔto yu wan de pan dis waka. Yu gɛt famili, padi dɛn, ɛn dɔktɔ dɛn fɔ sɔpɔt yu.
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