Dɛn dɔn no se yu gɛt Primary Biliary Cholangitis ( PBC ) , ɔ lɛk aw dɔktɔ dɛn kin kɔl am? If na so, yu go mɔs dɔn bigin fɔ gɛt tritmɛnt. Bɔt sɔntɛnde yu kin fil lɛk se di mɛrɛsin dɛn we yu de tek nɔ de ɛp lɛk aw yu tink, ɛn di sik jɔs tan lɛk aw i de? Na nɔmal tin fɔ fil da we de, ɛn nɔ wɔri bɔt am. Tide, wi go tɔk bɔt wetin kin apin if yu PBC tritmɛnt nɔ de wok, aw fɔ no am, ɛn wetin fɔ du nɛks.
Fɔs, wetin na PBC insay simpul wɔd dɛn?
Tink bɔt wi liva as wan pan di big big faktri dɛn na wi bɔdi. wan imכtant wata we dεn prodyuz na dis fכktri dεn kכl am ‘bile’. Dis bayl de ɛp wi fɔ dayjɛst di it we wi de it. dis bayl de kכmכt frכm di liva tru wan rili dilik sistεm we de fכ sכm sכm tכb dεm ( bayl dakt dεm ).
insay wan kכndyushכn we dεn kכl PBC, wan dεfεkt na wi כwn imyun sistεm de atak dεn dilik bayl dakt dεm ya εn mek dεn swel frכm insay. I tan lɛk se wata paip de klos. afta dat, di bayl nכ kin ebul fכ fכlכ fayn fayn wan εn i kin bigin fכ kכmכt insay di liva.
Na di fɔs tɛm, nɔr kin gɛt ɛni sayn fɔ de. Bɔt as dis bayl de bɔku as tɛm de go, i de pwɛl di liva sɛl dɛn ɛn mek skata de. We dis sik kin tranga, dɛn kin kɔl am sirosis . If dɛn nɔ trit am fayn, i kin ivin mek di liva nɔ wok fayn . Na dat mek i rili impɔtant fɔ bigin tritmɛnt kwik kwik wan.
Di fɔs mɛrɛsin we di dɔktɔ gi - UDCA
Wae yu dɔn no se yu gɛt PBC, di fɔs mɛrɛsin we yu dɔktɔ go ɔltɛm bigin fɔ tek na Ursodeoxycholic acid . Sins e hard fo memba di long nem, wi ol de kol am UDCA fo shot.
Wetin dis UDCA mɛrɛsin de du na fɔ ɛp di bayl we dɔn gɛda na di liva fɔ flɔ kɔmɔt izi wan. Dis kin mek di liva nɔ pwɛl. Bɔt wan impɔtant tin de we wi ɔl nid fɔ ɔndastand.
Dis UDCA mɛrɛsin nɔ kin ebul fɔ mɛn PBC ɔltogɛda. Bɔt i kin mek di sik nɔ go bifo kwik kwik wan, i kin kɔntrol di tin dɛn we de pwɛl di liva, ɛn ɛp yu fɔ liv nɔmal layf.
Bɔt di prɔblɛm na dat, dis mɛrɛsin nɔ de wok di sem fɔ ɔlman. Sɔm pipul dɛn nɔ kin gɛt di rizulyt we dɛn kin ɛkspɛkt frɔm am.
Aw yu go no if di mɛrɛsin nɔ de wok?
Stɔdi dɔn sho se lɛk 40% pan di pipul dɛn we de tek UDCA, ɔ lɛk 4 pan tɛn pipul dɛn, nɔ kin gɛt di bɛnifit we dɛn bin de op fɔ gɛt frɔm di mɛrɛsin. Smɔl pipul dɛn kin gɛt sayd ɛfɛkt lɛk we dɛn bɛlɛ kin at ɛn dayarɛa, we kin mek i nɔ izi fɔ kɔntinyu fɔ yuz di mɛrɛsin.
If yu tritmɛnt nɔr de woke fayn, yu kin kɔntinyu fɔ gɛt ɔr gɛt wɔs sik lɛk dis.
| Di sayn we de sho se di sik de | Aw i kin fil |
|---|---|
| Fɔ fil ɔltɛm fɔ taya pasmak | Fɔ fil se yu nɔ gɛt layf ivin afta yu dɔn slip fayn ɛn nɔ du natin. |
| Fɔ skrach di skin | I de it ɔlsay na di bɔdi we yu nɔ go ebul fɔ bia, mɔ na nɛt. |
| Di skin ɛn di yay dɛn we de yɔlɔ | Di wayt dɛn na di yay ɛn di skin kin tɔn yɔlɔ, lɛk aw pɔsin kin gɛt janda. |
| Dray yay ɛn mɔt | Mɔt we de dray ɔltɛm ɛn fil se yu dɔn dray, lɛk san na yu yay. |
| Pen na di ɔp rayt say na di bɛlɛ | wan dכl pen we de kכmכt frכm di liva εria, dat na, na di rayt say na di bכdi, כnda di rib dεm. |
| Di limb ɛn bɛlɛ kin swel | Ɛspɛshali di swel na di leg, anklɛ, ɛn afta dat di bɛlɛ eria. |
Udat kin mɔs nɔ tek UDCA?
Dɔktɔ dɛn dɔn si se sɔm pipul dɛn kin gɛt ridyus rizɔlt frɔm UDCA. Dɛn tin ya na:
- Pipul wae dɔn ɔlrɛdi gɛt sirosis na di liva.
- Pipul dεm we gεt rili hכy lεvεl fכ di liva εnzym dεm we dεn kכl gamma-glutamyl transferase εn alkaline phosphatase na dεn bכdi.
- Man dεm (pan כl we PBC kin bכku pan uman dεm, i kin bכku pan man dεm).
- Uman dɛn we dɛn no se gɛt PBC bifo dɛn ol 45 ia.
Aw yu go kɔnfɔm dis, dɔktɔ?
Ivin if yu sik nɔr de woke, de dɔktɔ nɔr go disayd wantɛm se "di mɛrɛsin nɔr de woke." Wan we de fɔ no fɔ tru.
We yu dɔn bigin fɔ trit yu, yu dɔktɔ go de wach yu ɔltɛm. Dɛn go ɔltɛm ɔda fɔ mek dɛn du blɔd tɛst ɛvri 3 to 6 mɔnt. Bɔt sɔntɛnde, i kin tek wan ia fɔ no fɔ tru if dis mɛrɛsin de rili wok fɔ yu.
Dɛn blɔd tɛst ya kin luk mɔ pan yu liva ɛnzaym lɛvɛl, spɛshal wan Alkaline Phosphatase (ALP) ɛn Bilirubin . If dɛn lɛvɛl ya stil rili ay pas aw i kin bi afta sɔm mɔnt we dɛn dɔn tek UDCA, i kin bi sayn fɔ se di tritmɛnt nɔ de wok lɛk aw dɛn bin de ɛkspɛkt.
If dat apin, yu dɔktɔ kin disayd fɔ ad nyu mɛrɛsin to yu UDCA ɔ tɔk to yu bɔt ɔda tritmɛnt opshɔn.
So wetin a fɔ du?
Dis na di impɔtant tin we yu nid fɔ no frɔm dis atikul.
Fɔ tɔk klia wan ɛn ɔnɛs wan wit yu dɔktɔ.
If yu sik nɔr de bɛtɛ ɔr tan lɛk se yu de wɔs, mek shɔ se yu tɔk bɔt am to yu dɔktɔ di nɛks tɛm we yu si am. Nɔ ayd infɔmeshɔn, tink se, "Dis fɔ bi nɔmal," ɔ tink se i go mɔna di dɔktɔ. Ɛvri smɔl tin we yu fil impɔtant we yu de disayd fɔ du tritmɛnt.
Mɛmba se, jɔs bikɔs di fɔs mɛrɛsin nɔ bin wok, dat nɔ min se ɔltin dɔn dɔn. Mɛdisin dɔn go bifo bɔku tɛm. Mɔr opshɔn ɛn nyu mɛrɛsin dɛn de fɔ ɛp fɔ kɔntrol yu sik. Di tin we impɔtant pas ɔl na fɔ mek yu ɛn yu dɔktɔ wok togɛda.
Mɛsej we dɛn kin kɛr go na os
- PBC na sik we de pwɛl di fayn fayn tiub dɛm we de kɛr bayl go na di liva. If dɛn nɔ trit am fayn, i kin mek di liva pwɛl bad bad wan as tɛm de go.
- UDCA na di men ɛn fɔs layn tritmɛnt fɔ PBC, bɔt i nɔ de wok ikwal fayn fɔ ɔlman.
- If di sayn dɛm lɛk fɔ taya ɔltɛm, yu skin kin it, ɛn yu yay kin yɔlɔ pan ɔl we yu de yuz mɛrɛsin, dat kin min se di tritmɛnt nɔr fayn fɔ yu.
- Fɔ tɔk to yu dɔktɔ bɔt yu sik ɛn aw yu de fil na di bɛst tin we yu go du fɔ yu wɛlbɔdi.
- Ivin if wan tritmɛnt nɔr woke, ɔda we ɛn mɛrɛsin de fɔ mɛn yu sik. So nɔ fred ɔ panik.
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