Yu katilej de mɛlt? Lɛ wi lan bɔt dis strenj sik (Relapsing Polychondritis)?

Sɔntɛnde, yu kin gɛt strenj pen ɛn swel bak na difrɛn pat dɛn na yu bɔdi, nɔto so? Ɛspɛshali na ples dɛn lɛk yu yes ɛn yu nos. Sɔntɛm dɛn tin ya nɔto jɔs random tin dɛn. Tide wi go tɔk bɔt wan sik we dɛn nɔ kin yɛri bɔt, bɔt i rili impɔtant fɔ no bɔt. Dɛn kɔl dis Rilapsing Polychondritis . Pan ɔl we di nem kɔmplikt smɔl, lɛ wi ɔndastand am simpul wan.

Wetin na dis sik?

Fɔ tɔk am simpul wan, Relapsing Polychondritis na wan sik we nɔ kin apin so ɔltɛm we kin afɛkt di katilej na wi bɔdi. wetin kin apin na dat di katilej kin inflam (swεla, rεd, εn pen) εn as tεm de go, di katilej kin atrofi sכmtεm (mεlt εn west). Naw yu go de wɔnda wetin na dis katilej. di kכtilaj na spεshal kכnektiv tisu na wi bכdi. Yu mɛmba, tɔch wi yes, tɔch di fɔs pat pan wi nos. Da pat de we kin chenj smɔl, bɔt we strɔng smɔl na dɛn ples dɛn de, dat na di katilej. Dɛn tin ya kin de na bɔku say dɛn na wi jɔyn, trot, ɛn trakya. Dis `Relapsing Polychondritis` sik kin mɔs afɛkt:

• To di katilej we de na yu yes .
• To di katilej we de na yu nos .
• Yu larynx (di bɔks usay wi de tɔk) de na yu trot .
• Yu briz paip (trachea) .

Dɛn kin kɔl dis sik sɔm ɔda nem dɛm, bɔt dɛn na smɔl mɔ mɛdikal: `Kronik atrofik polikɔndraytis`, `Jɛnɛral ɔ sistɛm kɔndrɔmalasia`, `Meyenburg-Altherr-Uehlinger sindrom`, `Rilaps perichondritis`, `Von Meyenburg sik`. Bɔt di nem we dɛn kin yuz mɔ na `Relapsing Polychondritis`.

Udat go ebul fɔ gɛt dis? Aw i kɔmɔn?

Dis sik kin afɛkt ɛnibɔdi. Bɔt i kin bigin pan pipul dɛn we ol bitwin 40 ɛn 60. We yu tink bɔt aw i kin bɔku, fɔ tru, na sik we nɔ kin bɔku . Akɔdin to di wan dɛn we de stɔdi bɔt dis, i kin afɛkt lɛk wan pan ɔl tu ɔndrɛd ɛn et fayv tawzin (285,000) pipul dɛn. Dis min se i kin afɛkt wan rili smɔl pipul dɛn we de na bɔku pipul dɛn. Na dat mek dɛn nɔ kin tɔk bɔku bɔt dis sik na sosayti.

Wetin mek dis de apin? Wetin na di rizin?

De kwɛstyɔn wae bɔrku pipul kin gɛt na, "Wetin mek dis sik kin apun?" Fɔ tɔk tru, sayɛnsman dɛn stil nɔr dɔn no bɛtɛ bɛtɛ wan wetin kin mek pɔsin gɛt Rilapsing Polychondritis. Bɔt sɔm sayɛnsman dɛn biliv se na sik we pɔsin kin gɛt we i de fɛt insɛf.Naw yu kin de wɔnda, "Wetin na dis ɔtoimyun sik?" Fɔ tɔk am simpul wan, wi bɔdi gɛt wan tin we de mek wi ebul fɔ fɛt di sik. I wok na fɔ protɛkt wi frɔm sik bay we i de fɛt fɔrina jem dɛn. I tan lɛk se wi gɛt wan tim we gɛt sojaman dɛn na wi bɔdi. Bɔt pan sik dɛn we pɔsin kin gɛt we i de fɛt insɛf, wi yon sojaman dɛn kin mistek bigin fɔ atak wi yon sɛl ɛn tisu dɛn we gɛt wɛlbɔdi . insay Rilapsing Polychondritis, dεn tink se di imyun sistεm de atak wi katilej dis we. Bɔt, i nɔ klia yet wetin mek dis kin apin.

Wetin na di sayn dɛm fɔ dis?

Pɔlikɔndraytis we de kam bak nɔto ɔltɛm wan sik we de kɔntinyu. I kin kam ɛn go insay episɔd ɔ flawa. We di sayn dɛn de sho, dɛn kin te fɔ sɔm dez ɔr wik. Dɔn dɛn kin go fa. Bɔt, di sik kin kam bak fɔ lɔng tɛm. Di fɔs sayn dɛm: Fɔ bɔrku pipul dɛm, dis sik kin bigin wit pen, sɔri, swel, ɛn rɛd na wan ɔr tu yes . Impɔtant tin na dat, dɛn sayn ya kin afɛkt di katilej we de insay ɛn ausayd di yes, bɔt nɔto di ialɔb . Sɔntɛnde di yes kin tɔn to flop . Imajin se wan de, yu padi Sunil gɛt wan yes we de pen, rɛd, ɛn swel wantɛm wantɛm. I bin tink se na jɔs alɛji. I bin go insay sɔm dez. Bɔt afta sɔm mɔnt, di ɔda yes kam bak. Dis na aw de sayn dɛm fɔ dis kin bigin fɔ sho. Ɔda sayn dɛn we de sho se yu gɛt dis sik:

• Indentation of the nasal cartilage : Dis kin mek di brij na di nos fɔdɔm, we kin mek i gɛt wan kɔndishɔn we dɛn kɔl sadul nos difɔmiti (di nos kin tan lɛk sadul na ɔs in bak).
• Jɔyn pen : Jɔyn pen , we fiba at at , kin apin.
• Nasal kɔnjɛshɔn .
• Pen na di midul pan di chɛst , nia di brɔst bon .
• Ay pen ɛn rɛd .
• If di insay yes afɛkt: I nɔ de yɛri fayn , i de ring ɔltɛm na di yes (tinnitus) , .Tin dɛm lɛk diziz (vertigo) kin apin.
• I nɔ kin izi fɔ yu fɔ blo: Dis kin apin if di briz paip (trachea) afɛkt. I nɔ kin izi fɔ tɔk kin apin bak if di larynx afɛkt.

Impɔtant: If i nɔ izi fɔ blo, i kin rili bad, so go to dɔktɔ wantɛm wantɛm.

Di sayn dɛm wae nɔr kin bɔrku: Dɛn nɔr kin si dɛn kayn sik ya bɔrku, bɔt sɔm pipul dɛm kin gɛt dɛn:

• Prɔblɛm dɛn we gɛt fɔ du wit di at valv.
• Wan abnɔmal at sawnd (Hat murmur).
• Yu nɔ de si fayn igen.
• Kidni sik.

Usay ? Aw dɔktɔ dɛn kin fɛn dis?

If yu gɛt dɛn sik ya, i go fayn fɔ mek yu go to dɔktɔ. Bɔt nɔr wan tɛst nɔr de fɔ no bɔt Rilapsing Polychondritis. Dat min se, nɔr wan blɔd tɛst ɔ skan nɔ de we go tɛl yu se "dis na Rilapsing Polychondritis." Dɔktɔ go sɔprayz se yu gɛt dis sik if yu dɔn gɛt at le tri pan dɛn sayn ya fɔ lɔng tɛm. Fɔ ɛgzampul, if yu gɛt kɔmbayn sayn dɛn lɛk di katilej na yu yes we de swel, di katilej na yu nos we de swel, ɛn we yu jɔyn dɛn de pen, yu dɔktɔ go tink se na dis. Sɔntɛnde, fɔ ɛp fɔ kɔnfirm di diagnosis:

• Dɛn kin du bayɔpsi bay we dɛn tek wan pat pan di katilej frɔm di yes .
• Dɛn kin du sɔm blɔd tɛst (fɔ pul ɔda mɛrɛsin ɛn fɔ luk fɔ sayn dɛm fɔ inflamɛns).

Wetin na di tritmɛnt fɔ dis?

Bɔt i sɔri fɔ no se, no mɛrɛsin nɔ de fɔ Rilapsing Polychondritis. Dat min se, no mɛrɛsin nɔ de yet. Bɔt dat nɔ min se dɛn nɔ go ebul fɔ du natin. Di men gol dɛm fɔ tritmɛnt na:

• Fɔ pul di simptom dɛm (fɔ ridyus pen, swel).
• Fɔ ridyus di risk fɔ gɛt prɔblɛm dɛn.

Bɔrku tɛm, dɛn kin bigin fɔ trit am wit mɛrɛsin lɛk:

• Kɔlchisin: Dis na mɛrɛsin we dɛn kin gi bɔku tɛm fɔ gaut.
• Kɔtikosterɔyd: Fɔ ɛgzampul , prɛdnison . Dis na pawaful mɛrɛsin dɛn we de ridyus di inflamɛns.
• Dapsone: Dis na mɛrɛsin we dɛn kin yuz fɔ fɛt infɛkshɔn.
• Nɔn-stɛroyd anti-inflammatory drugs (NSAID): Dɛn wan ya kin ɛp fɔ ridyus pen ɛn swel.

If di sik siriɔs smɔl, dɔktɔ dɛn kin gi yu mɛrɛsin lɛk dɛn wan ya:

• Drug dɛm we de stɔp di imyun sistɛm: Fɔ ɛgzampul , sayklofosfamid ɔ azathioprinewetin dεn ya de du na fכ ridyus di aktiviti fכ di imyun sistεm we nכ de wok fayn.
• Methotrexate: Dis na bak wan mɛrɛsin we de stɔp di imyun we dɛn kin yuz fɔ mɛn sik dɛn lɛk at at.

If i rili siriɔs, i kin nid fɔ du ɔpreshɔn:

• Ɔpreshɔn fɔ di at valv: If di at valv dɛn dɔn pwɛl.
• Tracheostomy: If di briz paip dɔn blok bad bad wan, dɛn kin nid fɔ put wan tiub dairekt frɔm di trot insay di winda.
• We dɛn fɔ opin di say we di briz de blo:
• Fɔ put stent: Dɛn kin put smɔl tiub lɛk laryngeal stent na di larynx ɔ trachea fɔ mek i opin.
• Dilashɔn fɔ di aywe: Dɛn kin yuz wan tin lɛk balyɔn fɔ mek di aywe we dɔn smɔl, big.
• Ɔpreshɔn fɔ mek di trakya ɔ di larynx bak .

Yu nɔ tink se dis nɔ go apin?

Bikɔs wi nɔ no di rayt tin we kin mek pɔsin gɛt Rilapsing Polychondritis , i nɔ kin izi fɔ tɔk aw fɔ avɔyd am. Naw, no patikyula strateji nɔ de fɔ mek dɛn nɔ gɛt dis sik .

Dis sik de kil pɔsin? Wetin na di layf we pɔsin kin liv?

Dis kin tan lɛk se yu de mek yu fred, bɔt di layf we pipul dɛn we gɛt Rilapsing Polychondritis kin liv kin fayn . Stɔdi sho se 95% pan di sik pipul dɛn stil de alayv 8 ia afta dɛn dɔn no se dɛn gɛt di sik. Bɔt i kin mek bak prɔblɛm dɛn we kin mek pɔsin in layf de pan denja . If i nɔ izi fɔ blo, i kin rili denja. Risk de bak fɔ mek yu nɔ yɛri ɔ yu nɔ de si fayn fɔ ɔltɛm . So, i rili impɔtant fɔ pe atɛnshɔn to di sayn dɛm ɛn tek di tritmɛnt lɛk aw yu dɔktɔ tɛl yu fɔ du.

Aw lɔng dis go las?

Rilaps Polychondritis na wan sik we nɔ de mɛn . Dis min se i nɔto sik we kin kam ɛn go, bɔt na tin we kin apin to pɔsin in layf ɔl . Bɔt if yu gɛt di rayt tritmɛnt, yu kin ridyus di frɛkuɛns fɔ di sik ɛn ridyus di kayn bad bad sik we dɛn kin gɛt. So, e fayn fɔ tɔk to yu dɔktɔ ɛn mek wan tritmɛnt plan we go wok fɔ yu.

Wetin bak yu kin aks di dɔktɔ?

If yu dɔktɔ se yu gɛt `Relapsing Polychondritis`, yu kin aks kwɛstyɔn dɛn lɛk dis fɔ lan mɔ bɔt am:

• "Dɔkta, aw siriɔs mi kɔndishɔn?"
• "Us mɛrɛsin dɛn we bɛtɛ fɔ mi?"
• "A nid fɔ mek dɛn du spɛshal tɛst pan mi ɔgan dɛm lɛk mi yay, yes, respiratory system, hat, ɛn kidni dɛm?"
• "A fɔ si ɔda spɛshal pipul dɛn (e.g., yes, nos, trot spɛshal, jɔyn spɛshal)?"
• "Enitin de we a kin du pasɔnal fɔ mek mi katilej strɔng, ɔ fɔ slo dis katilej lɔs?"
• "Ɛni nyu risach ɔ klinik trial de we dɛn de du pan dis sik?"

If yu aks dɛn kwɛstyɔn ya, yu go ɔndastand yu sik gud gud wan ɛn tek pat tranga wan pan yu tritmɛnt.

Ustɛm a fɔ go to dɔktɔ kwik kwik wan?

If yu gɛt Rilapsing Polychondritis, i rili impɔtant fɔ kip yu dɔktɔ ɔltɛm . Dɔn bak, if yu gɛt ɛni prɔblɛm fɔ blo, yu chenj yu yay, ɔ yɛri , nɔ wet te yu nɛks apɔntinmɛnt. Go to dɔktɔ kwik kwik wan . Sɔntɛnde, dɛn tin ya kin bi tin dɛn we kin nid fɔ gɛt tritmɛnt kwik kwik wan.

So, wetin na di tin dɛn we wi nid fɔ mɛmba?

Yu kin gɛt sɔm ɔndastandin naw bɔt wetin wi bin de tɔk bɔt, `Relapsing Polychondritis`. Fɔ dɔn, di tin dɛn we impɔtant pas ɔl we wi fɔ mɛmba na dɛn wan ya:

• Rilaps Polychondritis na wan sik we nɔ kin apin so ɔltɛm we di katilej na di bɔdi kin inflam ɛn brok.
• Bɔku tɛm, dɛn kin tɔch di yes ɛn nos, bɔt i kin afɛkt bak say dɛn lɛk di trot, di trakya, ɛn di jɔyn dɛn.
• Dɛn nɔ dɔn fɛn di rayt tin we kin mek dis apin yet, bɔt dɛn tink se na ɔtoimyun kɔndishɔn.
• Pan ɔl we dɛn nɔ gɛt kɔmplit mɛrɛsin, tritmɛnt dɛn de fɔ kɔntrol di sik dɛn ɛn fɔ ridyus di prɔblɛm dɛn we kin apin.
• Bikɔs tin lɛk wae yu nɔr kin ebul fɔ blo kin denja, e fayn fɔ pe atɛnshɔn to de sik ɛn go to dɔktɔ kwik kwik wan.

If yu ɔ pɔrsin wae yu sabi gɛt ɛni wan pan dɛn sik ya, nɔr frayd fɔ go to dɔktɔ ɛn gɛt advays. If yu no ɔl di sik dɛn, dat go ɛp yu fɔ liv fayn layf! Rilaps Polichondritis, Cartilage, Earache, Swelling of the nose, I nɔ izi fɔ blo, Jɔyn pen, Ɔtoimyun sik, Inflameshɔn, Sik dɛm we nɔ kin bɔku