Yu pikin dɔn gɛt wan strenj lump? Lɛ wi tɔk bɔt Rhabdomyosarcoma

Na nɔmal tin fɔ fil bad bad wan we yu si sɔntin we nɔ kɔmɔn, lɛk wan lump ɔ swel, na yu bɔdi ɔ na yu smɔl pikin in bɔdi. Na dɛn kayn tɛm dɛn de, wi kin tink bɔt bɔku tin dɛn. Tide wi go tɔk bɔt wan kayn kansa we kin tan lɛk dat, bɔt i nɔ kin bɔku. Dat na rabdomyosarkoma. Pan ɔl we di nem kin tan lɛk se i kɔmplikt smɔl we yu yɛri am, lɛ wi tɔk bɔt am simpul wan.

Wetin na Rhabdomyosarcoma?

Fɔ tɔk am simpul wan, rabdomyosarcoma na wan kayn kansa we kin apin na di sɔft tisu dɛn na wi bɔdi. i kin afekt di mכsul dεm we de atak wi skel (dεn kכl dεm skel m כsul dεm ). I kin mɔs bi pan pikin ɛn yɔŋ pipul dɛm , bɔt i kin afɛkt big pipul dɛm bak. Dɛn se ɛvri ia, bitwin 400 ɛn 500 pipul dɛn na Amɛrika kin gɛt dis sik. Dis min se na kansa we nɔ kin bɔku . Difrɛn kayn rabdomyosarcoma de. Sɔm kayn dɛn kin rili agresiv, dat min se dɛn kin spre kwik ɛn i nɔ kin izi fɔ trit. Wit gud tritmεnt, sכmtεm de kכndyushכn kin go kכmplit (dεn kכl am rεmishכn). Bɔt sɔmtɛm di kansa kin kam bak (dɛn kɔl am kansa rikɔrɛshɔn).

Wetin na di men kayn dis sik?

Bɔku men kayn rabdomyosarcoma de. Lɛ wi tek wan luk pan wetin dɛn bi:

1. Embryonal Rhabdomyosarkoma `(Embryonal Rhabdomyosarkoma)`

Dis na di kayn we we dɛn kin yuz mɔ . I kin apin to pikin dɛn pas big pipul dɛn. I kin apin na say dɛn we de rawnd di ed ɛn nɛk. fכ egzampl, na di mεmbran dεm we de kכba di bren εn di yay sכkεt (we di yay de sכnk). Sɔbtayp dɛn de bak. sכm kin divεlכp insay di כgan dεm we olo lεk di blad εn di vagina (dεn kכl am ``Botryoid Rhabdomyosarcoma''). כda sכbtayp kin divεlכp rawnd di tεstikul dεm (sεl dεm) fכ pikin (dεn kכl am ``Spindle Cell Rhabdomyosarcoma'').

2. Alviola Rhabdomyosarkoma `(Alviola Rhabdomyosarkoma)`

Dɛn kin si dis kayn tin pan big pikin ɛn yɔŋ pipul dɛm, we ol bitwin 20 ɛn 35. I kin apin mɔ na di an, leg, ɔr bɔdi. dis alveolar tכp kin rili siriכs εn i kin spre kwik kwik wan . I kin bigin fɔ skata klos to jɔs afta i dɔn divɛlɔp.

3. Pleomכrfik Rabdomyosarkoma `(Pliomכrfik Rabdomyosarkoma)`

Dɛn kin si dis kayn tin pan big pipul dɛn we dɔn pas 50. Pan ɔl we i kin kam ɛnisay na di bɔdi, dɛn kin si am mɔ na di leg dɛn . I kin kam bak na di an, chɛst, bɛlɛ, ɛn sɔm pat dɛn na di ed ɛn nɛk.

Wetin na di sayn dɛm fɔ rhabdomyosarcoma?

Di sayn dɛm fɔ dis sik kin difrɛn difrɛn wan bay usay di kansa de . Fɔ ɛgzampul, if pikin gɛt tumbu lɛk dis na in yes, i kin gɛt sɔm sayn dɛn lɛk in yes we de at ɛn wata we de kɔmɔt na in yes. If tumbu kam biɛn di yay, i kin tan lɛk se di yay dɔn swel ɛn i kin bɔl. Na sɔm ɔda ɛgzampul dɛn ya:

• If yu gɛt mɔsul na yu an ɔ yu leg: na wan lump ɔ swel we de kam wit pen.
• Abdominal (`(Abdomen)`): bɛlɛ kramp , kɔnstipɛshɔn, vɔmit .
• Blad ɛn urinary tract: Blɔd de na di urine (`(Hematuria)`), i nɔ izi fɔ urinary.
• Nasal cavity: Simptom dεm we fiba di nos bכdi (`(Epistaxis)`), sayn infεkshכn (`(Sinus Infection )`).
• Vagina: Somtin lεk lump we de kכmכt na di pikin in vagina.
• Testicular nodules: Na wan tin we de gro kwik kwik wan rawnd pikin in tɛstikul .

Impɔtant: Sɔmtɛm dɛn kin kam wit dɛn sik ya bikɔs ɔf tin dɛn we nɔ kin rili siriɔs. Tin dεm lεk nos bכdi, vכmit, εn lumps na di bכdi nכ kin bi כltεm bay rhabdomyosarcoma. Bɔt if yu ɔ yu pikin gɛt dɛn sik ya, if dɛn kɔntinyu fɔ de ɔ i tan lɛk se dɛn de wɔs, yu fɔ rili go to dɔktɔ .

Wetin na di tin dɛn we kin mek pɔsin gɛt dis sik?

Rhabdomyosarcoma de kכz bay di jεnεtik mכtεshכn dεm na wi mכsul sεl dεm (immature mכsul sεl dεm) we de mek dεn bi kεnsar εn divayd kwik kwik wan, we de fכm tכmכro. sכm jεnεtik mכtεshכn dεm, lεk di PAX/FOX01 fכs jin, kin mek sכm kayn rabdomyosarkoma. Dɔn bak, pipul dɛm wae gɛt sɔm kayn sik wae dɛn kin gɛt frɔm dɛn mama ɛn papa kin gɛt dis sik. Sɔm pan dɛn tin ya na:

• Li-Fraumeni sindrom we gɛt di sik
• Sindrom we dɛn kɔl Beckwith-Wiedemann
• Nyurofibromatosis we de mek pɔsin gɛt sik
• Sindrom we gɛt di sik we dɛn kɔl Costello
• Kardiofasciocutaneous sindrom `(Kardiofasciokutan sindrom)`

Aw dɛn kin no se pɔsin gɛt rabdomyosarcoma?

We yu ɔ yu pikin go to dɔktɔ, dɛn go aks yu fɔs bɔt di sik dɛn we yu gɛt. Dɛn go aks bak if ɛnibɔdi na yu famili gɛt ɛni wan pan di tin dɛn we pɔsin kin gɛt frɔm in mama ɛn papa we wi dɔn tɔk bɔt, bikɔs dis kin mek yu no aw yu go gɛt di sik. Dɔn dɛn go du dɛn bɔdi ɛgzamin fɔ luk fɔ ɛni sayn fɔ di sik, lɛk fɔ gɛt lumps ɛn swel. Apat frɔm dat, dɛn kin du dɛn tɛst ya fɔ ɛp fɔ no di sik:

• CT skan `(Kɔmpyut Tomografi (CT) skan)` ɔ MRI skan `(Magnetik Rɛsɔnans Imej (MRI) skan)`
• PET skan `(Positron Emission Tomografi (PET) skan)`
• Bon skan
• Lumbar pancture (na tεst we dεn de tek sכm sכm wata frכm di spεnal kכd) .
• Bɔn Mɛrɔ Bayɔpsi
• Bayɔpsi (we dɛn tek wan smɔl pat pan di tisu frɔm di tumbu fɔ mek dɛn chɛk am) .
• spεshal tisu tεst dεm lεk immunohistochemistry
• Saytɔlɔji tɛst dɛn

Yu tink se dɛn kin no dis wit blɔd tɛst?

Nɔ, no dairekt blɔd tɛst nɔ de fɔ no if pɔsin gɛt rabdomyosarcoma. Bɔt yu dɔktɔ we de mɛn yu kansa kin ɔda fɔ mek dɛn chɛk yu blɔd afta dɛn dɔn no se yu gɛt di sik. Fɔ ɛgzampul, dɛn kin du kɔmplit blɔd kɔnt (CBC) fɔ si if di sik dɔn skata to di bon mɛrɔ. Dɛn kin du blɔd tɛst bak we dɛn de du tritmɛnt fɔ si aw yu bɔdi de du di tritmɛnt.

Rhabdomyosarkoma Risk Grup dɛn

We pikin dɛn gɛt rhabdomyosarcoma, di wan dɛn we de stɔdi bɔt di sik kin put di sik insay grup dɛn we gɛt prɔblɛm. dis klasification de bays pan tri men tin dεm: 1. Tumor stej: dכkta dεn de yuz wan sistεm we dεn kכl TNM Staging System fכ no dis. T de tכk bכt di sayz εn di say we di tכmכro de, N de tכk bכt if di kansa dכn spre to di limf no dεm, εn M de tכk bכt if di kansa dכn spre to כda pat dεm na di bכdi. 2. Klinik grup: Dɛn kin no dis afta dɛn dɔn du bayɔpsi ɔ ɔpreshɔn. fכ egzampl, if dεn kin pul di tכmכro kכmplit wan bay bayopsi כ כpεrayshכn, dεn kin kכl am Grup I. dεn grup ya de kכmכt frכm 1 to 4. 3. jεnεtik chenj dεm: If di PAX/FOX01 fכshכn jin mכtεshכn de. Dɛn kɔl dɛn risk kategori ya low risk, intermediate risk, ɛn high risk . Yu pikin in mɛdikal tim de yuz dis risk kategori fɔ plan tritmɛnt, ɛstimat di chans fɔ mek di kansa kam bak afta tritmɛnt, ɛn no wetin fɔ ɛkspɛkt afta tritmɛnt (prognosis).

Di prɔses fɔ no dis risk kategori na smɔl kɔmplikɛt. Sɔntɛm yu nɔ go ɔndastand ɔl di infɔmeshɔn we dɛn yuz wantɛm wantɛm. So, nɔ shek fɔ aks yu pikin in mɛdikal tim fɔ mek dɛn no am klia wan . Dɛn go gladi fɔ ɛksplen ɔltin to yu.

Wetin na di tritmɛnt fɔ rhabdomyosarcoma?

Di tritmɛnt we dɛn kin pik kin difrɛn fɔ di kayn sik. Bikɔs rabdomyosarcoma na sik we nɔ kin apin so ɔltɛm, if yu ɔ yu pikin gɛt dis sik, .Aks yu mɛdikal tim if yu kin tek pat pan klinik trial . Di wan dɛn we de mɛn kansa kin yuz dɛn tritmɛnt ya:

• Ɔpreshɔn
• Rɛdieshɔn Tɛrapi
• Kimotɛrapi (kimotɛrapi) .

Yu tink se dɛn kin mɛn rabdomyosarcoma ɔltogɛda?

Sɔntɛnde, yes, tritmɛnt kin mɛn rabdomyosarcoma . Dɛn kɔl dis ``rɛmishɔn'' fɔ di sik. Dis min se di sayn dɛm kin dɔn ɛn dɛn nɔ kin si ɛni kansa sɛl pan tɛst. Bɔrku tɛm, dis mɛrɛsin kin de fɔ ɔltɛm, bɔt sɔmtɛm, rabdomyosarcoma kin kam bak. Jɛnɛral wan, big pipul dɛn nɔ kin wɛl kpatakpata frɔm dis sik pas pikin dɛn .

Wetin na di layf we pɔsin we gɛt rabdomyosarcoma kin liv?

Nɔr ɛksaktɔl nɔmba nɔr de fɔ aw lɔng pɔrsin wae gɛt rabdomyosarcoma go liv. Bɔt di wan dɛn we de stɔdi bɔt dis kin kip trak fɔ di pasɛnt pan di pipul dɛn we de alayv fayv ia afta dɛn dɔn no se dɛn gɛt rabdomyosarcoma. Dis kayn we aw pipul dɛn kin liv kin dipen pan bɔku tin dɛn, lɛk di kayn sik, di grup we de pan am, ɛn if di sik kin kam bak afta dɛn dɔn trit am . Ɔl togɛda, 70% pan di pikin dɛm wae gɛt dis sik kin alayv fayv ia afta dɛn dɔn no se dɛn gɛt dis sik. fכ big pipul dεm, di fayv ia sכvayv rεt na bכt 20%.

I nɔ mata aw yu de, i impɔtant fɔ mɛmba se dɛn rεt ya fɔ liv na εstimat bay di εkspiriεns wae ɔda pipul dεm wae dεn dɔn trit fɔ rhabdomyosarcoma. If yu ɔ yu pikin gɛt dis sik, na nɔmal tin fɔ mek yu want fɔ no wetin go apin tumara bambay. If na so, yu mɛdikal tim na di bɛst pɔsin fɔ tɔk to bɔt am .

Aw a go kia fɔ mi pikin ɛn misɛf?

Kansa kin gɛt big impak pan yu ɛvride layf. Rabdomyosarcoma nɔ de pan dis. If yu ɔ yu pikin gɛt dis sik, yu kin rili strɛs ɛn taya. Na sɔm advays dɛn we go ɛp insay dis tɛm:

• Tink bɔt Palliative Care: Di sayn dɛm ɛn tritmɛnt dɛm wae de kam wit kansa kin tranga fɔ bia wit. Palliative care na tritmɛnt wae de ɛp fɔ mek yu gɛt bɛtɛ kwaliti fɔ liv, frɔm fɔ ridyus di sik dɛm to fɔ gi sɔpɔt pan aw pɔrsin de fil.
• Tɔk to Child Life Specialist: Kansa kin tɔn pikin in layf ɔpsayd. I kin pul dɛn kɔmɔt nia dɛn padi dɛn ɛn di tin dɛn we dɛn kin du ɛvride. Fɔ liv wit kansa kin bi wan wae de fɔ pikin wae de go tru ɛkspiriɛns wae dɛn padi dɛm nɔr kin ɔndastand. Pikin layf spɛshal pipul dɛn na spɛshal trenin wɛlbɔdi wokman dɛn we de ɛp pikin dɛn fɔ bia wit di ɛkspiriɛns dɛn we dɛn kin gɛt we dɛn de mɛn dɛn.
• Tek smɔl tɛm fɔ blo:Kansa tritmɛnt – ɛn fɔ kia fɔ pikin we gɛt kansa – kin rili taya. If yu de du tritmɛnt, tray fɔ rɛst ɛnitɛm we yu nid fɔ rɛst, nɔto jɔs we yu gɛt tɛm. If yu de kia fɔ pikin we gɛt rabdomyosarcoma, aks yu dɔktɔ bɔt di program ɛn savis dɛn we dɛn kin du fɔ kia fɔ pikin dɛn we dɛn kin gi yu rɛst.
• Tink bɔt Kansa Survivorship: Rhabdomyosarcoma kin kam bak afta dɛn dɔn trit am. If yu de wɔri se di kansa go kam bak fɔ yu ɔ yu pikin, aks yu dɔktɔ bɔt sɔpɔt savis fɔ mek yu nɔ day pan kansa.

Ustɛm a fɔ kɔntak mi dɔktɔ we de mɛn mi kansa?

If yu ɔ yu pikin de gɛt tritmɛnt, kɔntak yu dɔktɔ if di sayd ɛfɛkt dɛn we di tritmɛnt gɛt bad pas aw yu bin de tink . Dipen pan yu sik, yu dɔktɔ kin dɔn gi yu patikyula instrɔkshɔn bɔt di sayn dɛm wae kin sho se yu rabdomyosarcoma de skata ɔr de kam bak. Nɔ shem fɔ tɔk to dɛn bɔt ɛnitin we de mɔna yu.

Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?

Rhabdomyosarcoma na wan sik we nɔ kin apin so ɔltɛm. Sɔntɛm yu nɔ go no bɔku tin bɔt am. Ilɛksɛf yu gɛt dis sik ɔ yu pikin gɛt am, yu kin gɛt bɔku kwɛstyɔn dɛn bɔt wetin fɔ ɛkspɛkt tumara bambay. Na sɔm kwɛstyɔn dɛn we wi fɔ aks dɛn kayn tɛm dɛn de:

• Us kayn rabdomyosarcoma mi/mi pikin gɛt?
• Wetin na di risk grup klasification?
• Us tritmɛnt dɛn yu kin advays?
• Wetin na di sayd ɛfɛkt dɛm we di tritmɛnt kin gɛt?
• Ɛni klinik trial de we wi kin tek pat pan?
• Wetin na di prɔgnosis fɔ mi pikin in sik?
• Us sɔpɔt savis dɛn yu gɛt we go ɛp wi?

Fɔ dɔn, wetin fɔ mɛmba

Rhabdomyosarcoma na wan kayn kansa we nɔ kin bɔku . Masta sabi bukman dɛn stil nɔ no di rayt tin we mek i kin apin. If yu ɔ yu pikin gɛt rhabdomyosarcoma, yu kin fil bad we yu nɔ no bɛtɛ bɛtɛ wan wetin mek i apin. Yu mɛdikal tim ɔndastand dat. Pan ɔl we dɛn nɔ kin ebul fɔ ɛksplen wetin mek yu ɔ yu pikin gɛt rabdomyosarcoma, dɛn kin ɛksplen tin dɛn lɛk aw dɛn kin no di sik, di tritmɛnt dɛn we pɔsin kin gɛt, ɛn aw i kin ebul fɔ tek pat pan klinik trial. Dɛn kin ɛp yu bak fɔ fɛn tin dɛn lɛk sɔpɔt grup ɛn spɛshal kia. Nɔ wɔri, nɔto yu wan de. Rhabdomyosarcoma, kansa, pikin kansa, sɔft tisu kansa, kansa simptom, kansa tritmɛnt, jenɛtik sik