Yu ɔ sɔmbɔdi na yu famili gɛt Spinal Muscular Atrophy ( SMA ), we na wan sik we kin mek yu mɔsul dɛn wik na yu spayna? If na so, yu dɔktɔ go dɔn gi yu wan mɛrɛsin we dɛn kɔl Risdiplam. Dis na likwid mɛrɛsin we yu de tek. So, tide wi go tɔk bɔt Risdiplam (brand nem: Evrysdi), aw fɔ yuz am, ɛn wetin i kin du, insay wan simpul ɛn klia we.
Fɔ tɔk am simpul wan, us kayn mɛrɛsin dis?
Risdiplam na wan mɛrɛsin we dɛn kin yuz fɔ trit pipul dɛn we gɛt wan sik we dɛn kɔl Spinal Muscular Atrophy (SMA) . i de εp fכ kכntrכl di wik we di bכdi in mכsul dεm de wik sכmtεm bikoz fכ SMA.
Di tin we impɔtant pas ɔl na dat dis nɔto mɛrɛsin fɔ di sik, bɔt i kin ɛp fɔ kɔntrol di sayn dɛm ɛn fɔ mek di pɔsin gɛt bɛtɛ layf.
Dɔktɔ dɛn kin gi yu dis mɛrɛsin bak fɔ ɔda sik dɛn, so if yu gɛt ɛni kwɛstyɔn, aks yu dɔktɔ bɔt am.
Tin dɛn we yu fɔ tɛl yu dɔktɔ bifo yu yuz di mɛrɛsin
Bifo yu bigin dis mɛrɛsin, yu fɔ rili tɛl yu dɔktɔ bɔt dɛn tin ya, bikɔs i rili impɔtant fɔ yu sef.
- Tɛl wi if yu gɛt alɛji fɔ Risdiplam ɔ ɛni ɔda mɛrɛsin, it, ɔ day .
- If yu gɛt bɛlɛ, ɔ yu plan fɔ bɔn pikin jisnɔ, mek shɔ se yu tɔk bɔt am.
- If yu na mama we de gi pikin in bɛlɛ, tɛl yu dɔktɔ bɔt dis bak.
Bay dis infɔmeshɔn, yu dɔktɔ go disayd if dis mɛrɛsin fayn fɔ yu ɔ nɔ rayt.
Aw ɛksaktɔli a kin yuz dis mɛrɛsin?
Bikɔs dis na mɛrɛsin we gɛt wata, yu nid fɔ tek tɛm smɔl we yu de yuz am. Yu go jɔs gɛt di bɛst rizɔlt if yu yuz am fayn.
- Dis na wata we dɛn kin tek bay mɔt. Tek di doz jɔs lɛk aw yu dɔktɔ tɛl yu.
- Fɔ mɛzhɔ di mɛrɛsin, yuz di spɛshal sirinj nɔmɔ we dɛn gi yu wit di mɛrɛsin . Nɔ yuz tin dɛn lɛk ti spɔnj ɔ srɔp kɔp frɔm di kichin.
- Afta dɛn dɔn drɔ di bɔku mɛrɛsin insay di sirinj, dɛn fɔ gi am to di pɔsin insay 5 minit .
- Imajin se yu tek di mɛrɛsin insay di sirinj ɛn go du ɔda tin ɛn i tek pas 5 minit. If dat apin , trowe da doz de fɔ mɛrɛsin ɛn pripia nyu doz . Nɔ gi di ol wan.
- Tek dis mɛrɛsin ɔltɛm afta yu dɔn it .
- Drink sɔm wata afta yu dɔn tek di mɛrɛsin.
- Gɛt di abit fɔ tek yu mɛrɛsin lɛk di sem tɛm ɛvride. Tek am jɔs lɛk aw yu dɔktɔ tɛl yu fɔ tek am.
- Nɔ stɔp fɔ tek dis mɛrɛsin wantɛm wantɛm if yu dɔktɔ nɔ advays yu.
- Nɔ mek dis mɛrɛsin kam pan yu skin ɔ na yu yay. If yu aksidɛntli gɛt am na yu skin, was di say fayn fayn wan wit sop ɛn wata. If i go insay yu yay, was yu yay fayn fayn wan wit wata.
- Sɔntɛnde dɛn kin gi dis mɛrɛsin ivin to pikin dɛn we dɛn jɔs bɔn, bɔt na ɔnda rili strikt dɔktɔ in sɔpɔtishɔn.
| If yu mis wan doz ɔ tek tumɔs | |
|---|---|
| If yu mis wan doz | If yu mɛmba insay 6 awa frɔm di tɛm we yu kin tek yu pil, tek am jɔs lɛk aw yu mɛmba. Bɔt if i dɔn pas 6 awa , skip da doz de ɔltogɛda ɛn tek yu nɛks doz di tɛm we yu de tek am ɔltɛm. Nɔ ɛva tek tu dos wan tɛm. |
| Ovadosage | If yu tink se yu dɔn tek bɔku mɛrɛsin, kɔl di Nashɔnal Pɔyzin Infɔmeshɔn Sɛnta na di Kɔlɔmbɔ Nashɔnal Ospital wantɛm wantɛm . Ɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) na di ɔspitul we de nia yu. |
Tin dɛn we yu fɔ tek tɛm wit mɔ we yu de tek mɛrɛsin
We yu de yuz dis mɛrɛsin, no bɔt dɛn pɔynt ya fɔ mek yu ɛn yu famili sef.
Ɔda mɛrɛsin dɛn
If yu de tek mɛrɛsin fɔ gɛt dayabitis, lɛk mɛtfɔmin , tɛl yu dɔktɔ . Dɔn bak, gi yu dɔktɔ wan kɔmplit list fɔ ɔl di ɔda mɛrɛsin dɛn we yu de tek (inklud di mɛrɛsin dɛn fɔ ɔda sik dɛn, vaytamɛn dɛn, tradishɔnal mɛrɛsin dɛn, ɛn ɛbul prɔdak dɛn). Tɛl yu dɔktɔ bak if yu de smok ɔ drink rɔm, bikɔs sɔm tin kin miks wit dis mɛrɛsin.
We uman gɛt bɛlɛ ɛn we i de bɔn pikin
Dis rili impɔtant. Duya, pe atɛnshɔn mɔ to dis.
- Fɔ uman dɛn: We dɛn de tek dis mɛrɛsin ɛn fɔ 1 mɔnt afta dɛn dɔn stɔp di mɛrɛsinNɔ gɛt bɛlɛ. Dis mɛrɛsin kin ambɔg di pikin we nɔ bɔn yet bad bad wan. If yu tink se yu go gɛt bɛlɛ, tɛl yu dɔktɔ wantɛm wantɛm.
- Fɔ man dɛn: Dis mɛrɛsin kin mek sɔm man dɛn nɔ bɔku pan di swɛt, we kin mek i nɔ izi fɔ dɛn fɔ bɔn pikin. If yu gɛt ɛni kwɛstyɔn bɔt aw yu go ebul fɔ bɔn pikin, tɔk to yu dɔktɔ.
Wetin na di sayd ɛfɛkt dɛn we di mɛrɛsin kin gɛt?
Lɛk ɔl mɛrɛsin, Risdiplam kin mek sɔm sayd ɛfɛkt, pan ɔl we nɔto ɔlman kin gɛt dɛn.
| Di kayn sayd ɛfɛkt dɛn we pɔsin kin gɛt | |
|---|---|
| Sayd ɛfɛkt dɛn we dɛn fɔ ripɔt to di dɔktɔ wantɛm wantɛm | |
| Alɛji we pɔsin kin gɛt | Di sayn dɛm lɛk we yu gɛt skin rɔsh, it, ayv, swel na yu fes, yu lip, ɔ yu tɔng. |
| Sayd ɛfɛkt dɛn we nɔ kin siriɔs, bɔt dɛn fɔ ripɔt to di dɔktɔ if dɛn kɔntinyu fɔ de | |
| Prɔblɛm dɛn we de na di dijestiv sistɛm | Kɔnstipɛshɔn, dayarɛa, vɔmit. |
| Ɔda tin dɛn we pipul dɛn kin du | Kɔf, fiva, mɔt sos, trot we de at. |
Dis list nɔ de inklud ɔl di sayd ɛfɛkt dɛn. If yu notis ɛnitin we nɔ kɔmɔn apat frɔm dɛn tin ya, tɔk to yu dɔktɔ bɔt dat bak.
Aw fɔ kip di mɛrɛsin?
Fɔ mek di mɛrɛsin kɔntinyu fɔ gɛt di kwaliti, dɛn fɔ kip am fayn fayn wan.
- Kip am na say we sef we pikin dɛn nɔ go ebul fɔ rich .
- Kip di mɛrɛsin na frij . Bɔt nɔ friz . Nɔ mek di mɛrɛsin friz.
- Di mɛrɛsin dɔn kam.Kip am insay di ɔrijinal bɔtul.
- Afta 64 dez we yu opin di bɔtul, trowe ɛni mɛrɛsin we lɛf. Nɔ yuz am.
Dis infɔmeshɔn pepa na jɔs sɔmari. If yu gɛt ɛni ɔda kwɛstyɔn bɔt dis mɛrɛsin, duya nɔ fred fɔ tɔk bɔt am wit yu dɔktɔ.
Mɛsej we dɛn kin kɛr go na os
- Risdiplam na tritmɛnt fɔ SMA, bɔt nɔto mɛrɛsin fɔ di sik.
- Yuz di spɛshal sirinj nɔmɔ we dɛn gi fɔ mɛzhɔ di mɛrɛsin, ɛn injɛkt insay 5 minit afta yu dɔn drɔ am ɔp.
- Tek di mɛrɛsin ɔltɛm afta yu dɔn it.
- Nɔ stɔp fɔ tek di mɛrɛsin we yu nɔ gɛt yu dɔktɔ in advays.
- Nɔ gɛt bɛlɛ we yu de tek di mɛrɛsin ɛn fɔ 1 mɔnt afta yu dɔn stɔp. Man dɛn fɔ tɔk bak to dɛn dɔktɔ bɔt aw dɛn kin bɔn pikin.
- Stɔr di mɛrɛsin na frij, opin am, ɛn trowe am insay 64 dez.
- If yu gɛt ɛni prɔblɛm ɔ dawt, nɔ ɛva shem fɔ tɔk to yu dɔktɔ.
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