Yu skin de tik ɛn i de at? Mek wi lan bɔt Scleroderma!

Sɔntɛnde yu kin fil lɛk se yu skin tik smɔl ɛn tayt pas aw yu kin fil? Ɔ yu gɛt pen na yu jɔyn ɔ yu kin stiff mɔnin? Dis na tin dɛn we wi nɔ go pe atɛnshɔn to bɛtɛ. Bɔt dɛn kin bi sayn dɛn bak fɔ wan sik we nɔ kin apin so ɔltɛm we dɛn kɔl Scleroderma . Lɛ wi tɔk bɔt dis smɔl mɔ tide, nɔto so?

Wetin na Sklɛrodama?

Fɔ tɔk am simpul wan, Scleroderma na wan sik we nɔ kin apin so ɔltɛm we di tisu dɛn na yu bɔdi kin tik ɛn at pas aw i kin bi. Bɔku tɛm, i kin afɛkt di skin. Bɔt sɔmtɛm, di sik kin afɛkt ɛni ɔda tisu na di bɔdi.

Dis na rili wan sik we pɔsin kin gɛt we i de fɛt insɛf . Naw yu kin de wɔnda wetin na ‘autoimmune disorder’. Wi bɔdi gɛt wan tin we tan lɛk ami we de protɛkt wi frɔm sik, we dɛn kɔl di imyun sistɛm. Bɔt insay dis sityueshɔn, da sistɛm de kin go rɔng, ɛn instead fɔ fɛt fɔrina jem dɛn, i kin bigin fɔ atak wi yon gud sɛl dɛn. I tan lɛk se wi nɔ ebul fɔ no udat na wi yon ɛn udat na di ɛnimi. Ivin dɔktɔ dɛn stil nɔ ebul fɔ no di rayt tin we mek dis kin apin.

If yu gɛt skleroda, yu imyun sistɛm de gi yu bɔdi in sɛl dɛn sayn fɔ mek tumɔs pan wan prɔtin we dɛn kɔl kolagen . Wi bɔdi rili nid kolagen. na wetin de mek di strכng, hεlty kכnektiv tisu we de sכpכt wi כgan dεm. Bɔt we i bɔku, di skin ɛn ɔda tin dɛn kin tik ɛn gɛt fayv pas aw i kin bi.

Sklerodama na wan sik we nɔ de mɛn . Dis min se yu kin gɛt fɔ liv wit dɛn sik ya fɔ lɔng tɛm, sɔntɛm fɔ di res ɔf yu layf. Dɔn bak, if i afɛkt di tisu dɛn na yu insay ɔgan dɛn, i kin mek yu gɛt prɔblɛm dɛn we go mek yu layf de pan denja. If yu fil lɛk se yu gɛt at atak, i nɔ izi fɔ yu fɔ blo, ɔ yu nɔ ebul fɔ swɛla, kɔl 911 (ɔ yu lokal imejensi nɔmba) wantɛm wantɛm, ɔ go na ɔspitul imejensi rum.

If yu gɛt pen ɔ yu jɔyn dɛn stif, mɔ rawnd yu finga ɛn fut finga dɛn, yu fɔ rili go to dɔktɔ.

Wetin na di men kayn Scleroderma?

Dɔktɔ dɛn kin sheb sklɛrodama to tu men kayn:

1. Localized Scleroderma: ‘Localized’ min se i de insay wan eria. Dis kayn kin afɛkt wan pat nɔmɔ na di bɔdi (bɔku tɛm na di skin). I kin mek pat ɔ strek dɛn na di skin we tik ɛn we tan lɛk waks. di bεst pat na dat sכmtεm di lokalizεd sklεrodεma kin rεsכlv fכ insεf . I nɔ kin ɔltɛm spre bak to ɔda pat dɛn na di bɔdi.

2. 2. .Sεstεmik Sklεrosis: Dis kayn kin afekt כda כgan dεm apat frכm di skin. I kin afɛkt yu respiratory system (di ɔgan we de ɛp yu fɔ blo ɛn smɛl) ɛn yu dijestiv sistɛm (di ɔgan we de tɔn di it we wi de it to ɛnaji). If sklerodama afɛkt yu ebul fɔ blo ɔ tek di tin dɛn we yu nid, yu go gɛt siriɔs prɔblɛm dɛn. I kin ivin kil pɔsin. Sistεmik Sklεrosis gεt tri sכbtayp dεm bak – difεs, limited, εn sayn sklεrosis.

Difyuz Sklerosis we de mek pɔsin gɛt sik

‘Diffuse’ min ‘we de ɔlsay’. pan dis kכndyushכn, difכs sklεrosis kin apin wan wan oba big εria dεm na di bכdi. Fɔ ɛgzampul:

• Chɛst
• Di bɛlɛ we de na di bɛlɛ
• Thighs
• Arm dɛn
• Leg dɛn
• Fes

Dɔn bak, i kin afɛkt sɔm ɔgan dɛn wan tɛm. Dat min se:

• Dijestiv sistεm (Dijestiv sistεm - GI trakt) .
• Kidni dɛn
• At
• Lɔng

Limitɛd Sklɛrosis (CREST sindrom) .

Bɔku tɛm, dɔktɔ dɛn kin kɔl Limited Scleroderma CREST syndrome . Ɛni lɛta na CREST tinap fɔ wan sayn we i kin kam wit:

• C - Calcinosis: di εksyכs kalsiכm dεposit dεm na di skin. I kin apia lɛk smɔl wayt bɔmp na di skin.
• R - Raynaud’s syndrome: Di kכla de chenj εn di finga dεm εn fut dεm de sכmtεm sכmtεm. Dɛn kin tɔn pale, blu, ɔ rɛd we dɛn de na kol.
• E - di εsophageal dysfunction: I at fכ sכlow εn asid rεflaks.
• S - Sklerodaktili: di skin tayt pan di finga dεm, we de mek i at fכ bεnd εn strεt di finga dεm.
• T - Telangiectasias: sכm sכm, rεd כ diskכla spat dεm na di skin. Dɛn tin ya kin tan lɛk spayda wɛb.

Sayn Sklɛrosis we dɛn kɔl

If na Sayn Sklerosis, di sayn dɛm fɔ Limited Sclerosis we wi bin dɔn tɔk bɔt kin apin, bɔt di skin nɔ kin afɛkt . Dat min se yu kin gɛt sɔm pan di sayn dɛm wae dɛn tɔk bɔt na CREST syndrome, bɔt nɔr de si yu skin tik.

Aw kɔmɔn tin na Scleroderma?

Sklerodama na sik we nɔ kin rili apin.Masta sabi bukman dɛn se na lɛk 250 pan ɛvri milyɔn pipul dɛn na Amɛrika gɛt ɔl di tri kayn sik we dɛn kɔl sklerodama. Fɔ dɛn wan ya, lɛk 100,000 pipul dɛn gɛt dis sik we dɛn kɔl systemic sclerosis.

Wetin na di sayn dɛm wae de sho se yu gɛt Scleroderma?

Sɔm pipul dɛm wae gɛt sklerodama nɔr kin gɛt ɛni sayn wae dɛn bigin fɔ gɛt. Bɔt fɔ bɔku pipul dɛn, di men sayn na we dɛn de sho se tik tik, waks pat ɔ strek dɛn de na dɛn skin. Apat frɔm dat, sɔm ɔda sayn dɛn de we kin apin:

• Pen na di jɔyn dɛn
• Stiffness , mɔ we yu wek na mɔnin
• Taya (fɔ fil taya pasmak ɔltɛm) .
• We yu de lɔs yu wet we yu nɔ ɛksplen

De ɔda sayn dɛm wae yu kin gɛt (ɛn usai dɛn kin afɛkt yu) kin dipen pan di kayn sklerɔdama wae yu gɛt.

Simptom dɛm fɔ Localized Scleroderma

Pipul dεm wae gεt lokalizεd sklerodama kin כnli gεt di skin tik . Dis tik kin de na wan eria ɔ i kin apin na pat. I kin afɛkt dɛn say ya na di skin:

• Chɛst
• Bεlε (di εria we de rawnd di bεlε) .
• Arm ɛn leg (Yu an ɛn leg) .
• An ɛn finga dɛn
• Fut ɛn fut finga dɛn

Bɔt, lokaliz sklɛrodama, we kin afɛkt di insay ɔgan dɛn, nɔ kin apin so ɔltɛm .

Simptom dɛm fɔ Sistɛm Sklɛrosis

Sistɛm sklerɔsis kin mek yu gɛt difrɛn kayn sayn dɛm. Dis kin mek bak di skin tik, bɔt bɔku tɛm na big say ɛn pat. Ɛspɛshali na di fes ɛn an. di skin we tik kin bigin na di finga dεm εn di tכd dεm εn afta dat i kin spre כlsay na di bכdi. If yu gɛt Raynaud’s syndrome , di finga ɛn fut finga dɛn na di an we gɛt di sik kin chenj kɔlɔ we yu gɛt kol (bɔku tɛm dɛn kin gɛt wayt, rɛd, ɔ pepul-blu kɔlɔ).

Sεstεmik sklεrosis kin mek yu כda כgan dεm εn tisu dεm bak. Fɔ ɛgzampul:

• di mכsul dεm: Yu de nכm εn swεla, spεshal wan na di an εn fut (di εnd dεm fכ yu limb dεm).
• Jɔyn dɛn: Dɛn kin stif, dɛn kin swel, ɛn dɛn nɔ kin ebul fɔ muv.
• Lɔng: Kɔf ɛn i nɔ izi fɔ blo (dyspnea).
• Di dijestiv trakt: Disfagi, at bɔn, blo, kɔnstipɛshɔn, ɛn dayarɛa.
• At:di at bit we nכ nכmal (arithmia), wata we de kכmכt rawnd di at (pεrikardial effusion), εn di at mכsul de tik (fibrosis).
• Kidni: Kidni nɔ de wok fayn (dis kin mek pɔsin in layf de pan denja).
• di jεnital dεm: Erectile Dysfunction (ED) pan man dεm εn vagina dray na uman dεm.

Wetin kin mek pɔsin gɛt Skleroderma?

Infakt, dɔktɔ dɛn stil nɔ no di rayt tin we kin mek pɔsin gɛt sklɛroda.

Sɔm stɔdi dɔn sho se i kin rɔn na famili te to sɔm mak (we min se i kin pas frɔm mama ɛn papa to pikin dɛn), bɔt i nɔ kin so bɔku dat nɔto inɔf pruf de fɔ pruv fɔ tru se na jenɛtik disɔda .

Di tin dɛn we kin mek pɔsin gɛt prɔblɛm wit di sik we dɛn kɔl Skleroderma

Ɛnibɔdi kin gɛt sklɛroda, bɔt sɔm grup dɛn kin gɛt mɔ risk:

• Uman dɛn kin gɛt dis sik lɛk 4 tɛm pas man dɛn.
• I kin apin mɔ pan pipul dɛm wae ol bitwin 30 ɛn 50. Sklerodama nɔr kin bɔku pan pipul dɛm wae nɔr rich 30 ia.
• Blak pipul dɛn kin gɛt dis sik we dɛn kɔl skleroda. Dɛn kin gɛt dis sik bak kwik kwik wan, dɛn kin gɛt sɔm kayn sayn dɛm wae kin afɛkt di lɔng dɛm, ɛn dɛn kin gɛt mɔr bad bad sik na dɛn skin.

Wetin na di prɔblɛm dɛn we kin apin we pɔsin gɛt Sklɛroda?

Pipul wae gɛt dis sik kin gɛt tu ɔda sik: Raynaud’s syndrome ɛn Sjögren’s syndrome .

Raynaud’s syndrome kin afɛkt di smɔl smɔl blɔd vesel dɛm na yu finga ɛn fut finga dɛm (yu dijit dɛm). Pipul wae gɛt dis sik kin gɛt sɔm kayn sayn dɛm (sɔntɛm dɛn kin kɔl am ‘atak’). Dis na we di blɔd vesel dɛn na yu finga dɛn kin kɔntrakt tu tayt wantɛm wantɛm. Dis kin mek di skin na di finga dɛm we gɛt di sik tɔn to pale, ɔ layt pas yu natura skin kɔlɔ. Sɔntɛnde, i kin ivin tan lɛk se i blu.

Sjögren in sindrom kin mek sɔm pan yu bɔdi gland dɛm nɔ de mek smɔl mɔstɔ – bɔku tɛm na di saliva gland dɛm na yu mɔt ɛn di kray wata gland dɛm na yu yay. Sɔm pipul dɛm wae gɛt Sjögren’s syndrome kin gɛt pen bak na dɛn mɔsul ɛn jɔyn.

Sɔm kayn sklɛrodama kin mek yu gɛt siriɔs prɔblɛm dɛn . Sɔm pan dɛn na:

• Kidni we nɔ de wok fayn
• Pulmonary hypertension (di ay blɔd prɛshɔn na di at we de kɛr blɔd frɔm di at to di lɔng) .
• Pulmonary fibrosis (ska we de na di lכng tisu) .
• Di sik wae de kam pan yu at ɛn blɔd vesel dɛm (prɔblɛm wae de afɛkt yu at ɛn yu blɔd vesel dɛm) .
• Congestive heart failure, na wan sik wae de kam wit at
• Imyun we nɔ de wok fayn
• Gastrointestinal diseases (di kכndishכn dεm we de afekt di we aw di bכdi de proכses it εn abzכp di nyutriεnt dεm) .
• Kansa

Sɔm pan dɛn prɔblɛm ya kin kil pɔsin . If yu notis ɛni nyu ɔ chenj chenj, go to dɔktɔ kwik kwik wan. If yu tink se yu gɛt sɔm sayn dɛn we de sho se yu gɛt at atak, lɛk fɔ mek yu nɔ ebul fɔ blo ɔ fɔ swɛla, kɔl 911 (ɔ yu lokal imejensi nɔmba) wantɛm wantɛm, ɔ go na ɔspitul imejensi rum.

Aw dɛn kin no se pɔsin gɛt Scleroderma?

Dɔktɔ kin no if i gɛt sklerodama bay we i de chɛk in bɔdi ɛn sɔm ɔda tɛst dɛn.

Yu kin nid bak fɔ go to dɔktɔ we de mɛn yu bɔdi , we na dɔktɔ we spɛshal fɔ mɛn sik dɛn we de na di bɔdi we de fɛt di sik. I go chɛk yu ɛn aks yu bɔt di sayn dɛn we yu gɛt. Yu fɔ tɛl yu dɔktɔ wetin na yu sik, ustɛm dɛn bigin, ɛn if i tan lɛk se ɛnitin de mek dɛn wɔs.

Yu go nid bak fɔ mek dɛn du sɔm tɛst fɔ mek shɔ se yu nɔ gɛt ɔda tin dɛn we de mek yu gɛt di sem kayn sik.

Us tɛst dɛn dɔktɔ dɛn kin yuz fɔ no if pɔsin gɛt Scleroderma?

Fɔ no if pɔsin gɛt sklerodama kin bi pat pan wan tin we dɛn kɔl ‘difrɛnshal diagnosis.’ Dis min se yu dɔktɔ go mɔs pul ɔda sik dɛn ɛn du bɔku tɛst fɔ no wetin de mek yu gɛt di sik bifo i kam fɔ no se yu gɛt sklɛrodama. Na sɔm pan di tɛst dɛn we yu go gɛt:

• Blɔd tɛst fɔ si aw yu imyun sistɛm de wok.
• Pulmonary function test fɔ si if yu lɔng ɔ yu respiratory system dɔn afɛkt.
• Bayopsi na we dɛn kin tek smɔl sampul pan di skin ɔ ɔda tisu we afɛkt ɛn tɛst am na lɛbɔtri.
• If yu gɛt dijestiv (GI) simptom, ɛndoskopi na tɛst we de luk dɔŋ yu trot ɔ bɛlɛ wit smɔl kamɛra we dɛn tay pan wan lɔng, tin tiub.

Apat frɔm dat, yu go nid fɔ du bɔku tɛst dɛn fɔ tek pikchɔ dɛn we de insay yu bɔdi. Dɛn tin ya na:

• Ilɛktrokardiogram (ECG) .
• Ekokardiogram (Ekokardiogram - Iko) .
• Wan ɛkstrem rayt na di chɛst
• Wan CT skan (Kɔmpyut Tomografi - CT skan) .

Aw dɛn kin trit Scleroderma?

Nɔr mɛrɛsin nɔr de fɔ sklerodama , bɔt yu dɔktɔ kin ɛp yu fɔ fɛn kɔmbayn tritmɛnt dɛm wae go ɛp fɔ kɔntrol yu sik dɛm ɛn nɔr de ambɔg yu ɛvride layf.

De kayn tritmɛnt wae yu nid kin dipen pan usai yu sik de ɛn aw dɛn kin tranga. Na sɔm tritmɛnt dɛn we dɛn kin yuz fɔ mɛn sklɛroda:

• Di tritmɛnt dɛn fɔ di skin: Yu go nid fɔ yuz krim ɛn mɔstizayza fɔ mek yu skin nɔ dray.
• Immunosuppressants: Dɛn mɛrɛsin ya de stɔp yu imyun sistɛm fɔ pwɛl di wɛlbɔdi sɛl ɛn tisu dɛn.
• Mɛrɛsin fɔ kɔntrol sɔm patikyula sayn dɛm: Fɔ ɛgzampul, yu kin nid fɔ tek mɛrɛsin fɔ kɔntrol yu blɔd prɛshɔn, fɔ mek i izi fɔ blo, fɔ kɔntrol di kidni dɛm we nɔ de wok fayn, ɔ fɔ mek yu nɔ gɛt di sik we yu de digest.
• Fizik tritmɛnt: Pɔsin we de mɛn yu bɔdi kin ɛp yu fɔ mek yu bɔdi muv fayn fayn wan.
• Fɔtotɛrapi: Dis kin min fɔ yuz brayt, fɔs ɔltra vayolɛt (UV) layt fɔ trit di sik dɛn we de na di skin. Dis kin ɛp fɔ trit di skin we tik.
• Stem sel transplant: Sɔm pipul dɛn we gɛt siriɔs sik kin nid fɔ transplant stem sɛl. Dis min se dɛn fɔ chenj di blɔd sɛl dɛn we dɔn pwɛl wit di sɛl dɛn we gɛt wɛlbɔdi.

If a gɛt Scleroderma, wetin a fɔ ɛkspɛkt?

Yu fɔ ɛkspɛkt fɔ manej skleroda ɛn in sik dɛn fɔ di res ɔf yu layf . Pan ɔl we no mɛrɛsin nɔ de fɔ ɔltɛm, bɔku pipul dɛn kin fɛn tritmɛnt ɛn chenj dɛn layf we kin mek dɛn nɔ gɛt bɛtɛ impak pan dɛn layf ɛvride.

Sɔntɛnde, fɔ liv wit sik we dɔn te, kin mek yu at pwɛl bad bad wan. Aks yu dɔktɔ bɔt sɔpɔt grup ɔr ɛdyukeshɔn chans fɔ ɛp yu fɔ kɔntrol yu strɛs ɛn maynd wɛl bɔdi.

Yu tink se dɛn kin mek dɛn nɔ gɛt Scleroderma?

Bikɔs wi nɔ no di rayt tin we kin mek i gɛt dis sik, no we nɔ de fɔ mek dɛn nɔ gɛt skleroda .

Aw a kin kia fɔ misɛf? (Fɔ kia fɔ yusɛf) .

Apat frɔm di tritmɛnt dɛn we yu kin gɛt, yu kin ebul fɔ kɔntrol sɔm sayn dɛn bay we yu mek sɔm chenj dɛn na yu layf ɛvride. Sɔm pan dɛn tin ya na:

• Fɔ fala wan fayn it ɛn ɛksɛsayz plan we go fayn fɔ yu.
• Fɔ avɔyd fɔ du bɔku tin dɛn we yu nɔ de fil fayn.
• Protɛkt yu skin bay we yu drɛs fayn fɔ di say we yu de ɛn put gud kwaliti sanskrin we yu de go na do.
• Go to dɛntist (dental care provider) fɔ klin yu tit ɔltɛm ɛn chɛk-ap.

Ustɛm a fɔ go to mi dɔktɔ?

Sklerodama kin mek yu gɛt difrɛn kayn sayn dɛm, so sɔmtɛm i kin at fɔ no am fɔs. If yu gɛt nyu pen ɔ ɔda sayn dɛn, mɔ if dɛn de wɔs, go to dɔktɔ. Ivin if ɔda tin de mek yu gɛt di sik, yu dɔktɔ kin no di tin we de mek yu gɛt dis sik ɛn tɛl yu aw fɔ trit yu fɔ kɔntrol am.

If i tan lɛk se yu sklɛroda tritmɛnt nɔ de wok fayn, ɔ if yu sik chenj ɔr de wɔs – mɔ if dɛn afɛkt yu ebul fɔ blo ɔ swɛla – tɔk to yu dɔktɔ.

Ustɛm a fɔ go na di Imejɛnsi Tritmɛnt Yunit (ETU) ?

If yu gɛt hat atak simptom , lɛk we yu de fil pen na yu chɛst, i nɔ izi fɔ blo, ɔ if yu fil lɛk se yu nɔ ebul fɔ swɛla, kɔl 911 (ɔ yu lokal imejensi nɔmba) wantɛm wantɛm, ɔ go na ɔspitul imejensi dipatmɛnt.

Us kwɛstyɔn dɛn a fɔ aks mi dɔktɔ?

Nɔ fɔgɛt fɔ aks dɛn kwɛstyɔn ya we yu go si di dɔktɔ:

• A gɛt Scleroderma ɔ ɔda sik?
• Us kayn Scleroderma a gɛt?
• Us kayn tritmɛnt a nid?
• Us prɔblɛm dɛn a fɔ no mɔ bɔt?

Wetin na di layf we pɔsin we gɛt Scleroderma kin liv?

Bɔrku pipul dɛm wae gɛt dis sik nɔr kin gɛt prɔblɛm wae kin mek dɛn day .

Bɔt if yu gɛt sistɛm sklɛrosis, we kin afɛkt di ɔgan dɛn we de insay yu bɔdi, yu kin gɛt siriɔs prɔblɛm dɛn. Yu dɔktɔ go tɛl yu wetin fɔ ɛkspɛkt ɛn if yu gɛt bɔku prɔblɛm dɛn we go kil yu.

Yu tink se Skleroderma na siriɔs sik?

Lɛk ɛni sik we nɔ de mɛn, sklɛrodama na wan impɔtant, siriɔs sik.. Dis na bikɔs yu go mɔs gɛt fɔ dil wit di sayn dɛm fɔ di res ɔf yu layf. Bɔt dat nɔ min se Scleroderma go rul yu layf. Ɔlman in ɛkspiriɛns difrɛn. Tɔk to yu dɔktɔ bɔt wetin yu de fred, dawt, ɛn tin dɛn we de mɔna yu.

Sklerodama kin bi wan sik wae de mek yu fil bad fɔ liv wit. Bikɔs dɔktɔ dɛn nɔr shɔ wetin kin mek yu gɛt am ɛn nɔr gɛt wan saiz tritmɛnt, e kin tek sɔm tɛm fɔ fɛn tritmɛnt wae go kɔntrol yu sik dɛn fayn fayn wan. Yu dɔktɔ go ɛp yu ɛvri step na di rod.

Trust yu gut filin, ɛn trɔst wetin de fil ‘nɔ rayt’. Ivin smɔl chenj na di sayn dɛn kin bi sayn fɔ prɔblɛm we yu dɔktɔ nid fɔ chɛk. Nɔr frayd fɔ aks kwɛstyɔn ɛn sheb yu tink bɔt yu sik ɔr tritmɛnt.

Fɔ liv wit wan sik we nɔr de dɔn kin mek yu taya bad bad wan. Tek tɛm gi yusɛf sɔm rɛspɛkt ɛn rɛkɔgnishɔn fɔ di tranga wok we yu de du fɔ mɛn yu sik dɛn.

Sɔm impɔtant tin dɛn we yu fɔ mɛmba (Take-Home Message) .

Okay, wi don tok plenti boht Scleroderma naw. Fɔ dɔn, na sɔm pan di impɔtant tin dɛn we yu fɔ mɛmba:

• Sklɛrodama na wan sik we nɔ kin apin so ɔltɛm, we di bɔdi kin mek tumɔs kolagen, we kin mek di skin ɛn sɔm tɛm dɛn di ɔgan dɛn we de insay di bɔdi tik.
• Tu men kayn dis de: lokalizεd εn sistεmik. di sistεmik tכp denja sכmtεm biכs i kin afekt di intanεt כgan dεm bak.
• Di sayn dɛn we pɔsin kin gɛt kin difrɛn. Di men wan dɛn na we di skin kin tik, di jɔyn dɛn kin pen, taya, ɛn di sik we dɛn kɔl Raynaud’s syndrome.
• Pan ɔl we no mɛrɛsin nɔ de fɔ ɔltɛm, tritmɛnt dɛn de we go ɛp fɔ kɔntrol di sik dɛn. Tɔk to yu dɔktɔ ɛn mek wan tritmɛnt plan we go wok fɔ yu.
• Fɔ no di sik kwik kwik wan ɛn fɔ trit yu, rili impɔtant, so if yu gɛt ɛni wan pan dɛn sayn ya, mek shɔ se yu go to dɔktɔ.
• Bikɔs dis na sik we kin de fɔ lɔng tɛm, i impɔtant fɔ mek yu kɔntinyu fɔ gɛt trɛnk na yu maynd. If nid de, aks fɔ ɛp frɔm sɔpɔt grup dɛn.

Nɔ wɔri, nɔto yu wan de. If yu gɛt di rayt no ɛn advays bɔt mɛrɛsin, yu kin liv fayn fayn wan wit dis sik.

` Sklerodama, Sklerodama, Skin tik, Imyun sik, Kכlagen, Raynaud in sεndrכm, Sεstεmik sklerכsis, Skin sik dεm