We bɔku pipul dɛn yɛri di wɔd ‘anemia ’ , dɛn kin tink wantɛm wantɛm se dɛn nɔ gɛt ayɔn . Na dat mek dɛn kin fil taya ɔltɛm, dɛn kin taya, dɛn kin gɛt diziz, ɛn sɔntɛnde dɛn nɔ kin ebul fɔ slip. Bɔt yu no se insay sɔm kes dɛn we dɛn nɔ gɛt bɛtɛ blɔd, di kɔmɔn tin kin rili apin? insted fכ di ayn we nכ de, di ayron we de insay di bכdi sεl dεm de ‘inkrεs’. Yu nɔ tink se dis tan lɛk se i strenj smɔl? Tide wi de tɔk bɔt wan kayn spɛshal, bɔt nɔr kin rili kɔmɔn, anemia kɔndishɔn we dɛn kɔl sideroblastic anemia.
Fɔ tɔk am simpul wan, wetin na Sideroblastic Anemia?
Fɔ ɔndastand dis, lɛ wi tek tɛm luk wi blɔd fɔs. Insay di rɛd blɔd sɛl dɛn we de na wi blɔd, wan prɔtin de we dɛn kɔl ɛmoglobin . di men wok we i de du na fכ kech di כksijεn we de kam insay di lכng dεm we wi de blo εn kכri am go כlsay na di bכdi. So dis ɔksijɛn impɔtant fɔ mek ɔl di sɛl dɛn na wi bɔdi liv.
naw, fכ mek dis εmoglobin, wi bכdi rili nid di minral ‘ayכn’. Jɛnɛral wan, anemia kin apin we di bɔdi nɔ gɛt ayɛn. So, i nɔ ebul fɔ mek ɛmoglobin.
Bɔt pan Sayderoblastic Anemia, sɔntin difrɛn kin apin. Na ya, no ayɛn nɔ de na di bɔdi. Infakt, ayɛn de pasmak! Di prɔblɛm na dat bikɔs sɔm pan di rɛd blɔd sɛl dɛn we de na wi bon mɛro nɔ fayn, dɛn nɔ kin ebul fɔ yuz dis ayɛn fɔ mek ɛmoglobin.
Imajin wan kichin we gɛt rays, wata, ɛn sɔl fɔ kuk rays, bɔt di rays kuk dɔn brok. Den yu no kin kuk rays. Na so i bi. Insay dis sik, bɔku ayɛn de de, we na wan tin we dɛn nid fɔ mek ɛmoglobin. Bɔt di faktri we de yuz da ayɛn de fɔ mek ɛmoglobin, we na wi rɛd blɔd sɛl dɛn, nɔ de wok fayn. So di ayɛn we dɛn nɔ yuz kin bigin fɔ gɛda insay dɛn rɛd blɔd sɛl dɛn ya we nɔ fayn. wi kכl dεn abnכmal sεl dεm we dεn gεt ayron dis we `(Sideroblasts)`.
Wetin na di sayn dɛm fɔ dis sik?
De sayn dɛm fɔ dis sik kin rili fiba ɔda wan dɛm wae gɛt anemia, so sɔmtɛm i kin izi fɔ kɔnfyus. Ɛn bikɔs di sik kin kam smɔl smɔl, yu nɔ kin ivin no se yu gɛt am. Dis na de men sayn wae yu kin si.
| Di sayn we de sho se di sik de | Tɔk bɔt |
|---|---|
| Bɔdi wik ɛn taya | Fɔ fil se yu nɔ de wok, fɔ taya kwik ivin wit smɔl smɔl wok dɛn. |
| Pale skin | Di pale apinans we yu kin si we di bɔdi nɔ gɛt bɛtɛ blɔd. |
| I nɔ kin izi fɔ yu fɔ blo | Taya we pɔsin kin taya bikɔs i nɔ kin gɛt bɛtɛ ɔksijɛn to di bɔdi. |
| At bit kwik kwik wan (Tachycardia) . | Di at rit ɔ di palpiteshɔn we de go ɔp. |
| Ɛd we de at ɛn we pɔsin kin vɛks | Yu ed kin at ɔltɛm ɛn yu kin vɛks bad bad wan. |
| Chɛst de pen | Sɔntɛnde, i kin gɛt pen na in chɛst. |
Wetin na di men kayn Sideroblastic Anemia?
Dɛn kin sheb dis sik mɔ to tu kayn.
1. Sideroblastic Anemia we dɛn kin gɛt frɔm dɛn mama ɛn papa
Dis na wan sik we nɔ kin apin so ɔltɛm, we pɔsin kin gɛt we i kam pan jɛnɛtiks. Dat min se, i kin pas to pikin tru di jin dɛn we wan pan di mama ɛn papa dɛn kin gɛt. Di kayn we we dɛn kin gɛt mɔ na X-linked Sideroblastic Anemia . Dis kin apin bikɔs wan chenj na wan jin we de afɛkt di we aw dɛn de mek ɛmoglobin. Dis kin mek di bɔdi de tray fɔ tek mɔ ayɔn frɔm it fɔ mek i nɔ gɛt ɛmoglobin. If i siriɔs, i kin pwɛl di ɔgan dɛn lɛk di liva . Dɛn kin no dis kayn we we dɛn bɔn am bifo i ol 30 ia.
2. Di kayn we kin bigin leta (Acquired Sideroblastic Anemia) .
Dis na di kayn we we pipul dɛn kin gɛt mɔ. Di bɛst tin na dat bɔku tɛm dɛn kin mɛn am . Pan ɔl we sɔntɛnde dɔktɔ dɛn nɔ kin no di rayt tin we kin mek pɔsin gɛt dis sik, bɔku men tin dɛn de we kin mek pɔsin gɛt dis sik:
- Sɔm mɛrɛsin dɛn: Ɛspɛshali sɔm mɛrɛsin dɛn we dɛn kin gi fɔ TB.
- Fɔ drink pasmak: If pɔsin drink pasmak fɔ lɔng tɛm, na big tin we kin mek pɔsin gɛt dis sik.
- Pɔyzin kemikal : Fɔ lɔng tɛm we yu de yuz sɔm pɔyzin kemikal dɛn lɛk lid.
- Ɔda sik dɛm: Dis sik kin kam bak wit ɔda sik dɛm lɛk imyun disɔda, tumbu, ɔr mɛtabolik sik.
Sɔntin de we wi nid fɔ pe atɛnshɔn mɔ to na ya. Na lɛk 10% pan di pipul dɛm wae gɛt dis kayn leta (Acquired) kin gɛt blɔd kansa wae dɛn kɔl Lukiemia. So, i rili impɔtant fɔ no dis sik kɔrɛkt wan, fɛn di kɔz, ɛn gɛt tritmɛnt.
Apat frɔm dat, dɛn tu kayn tin ya kin gɛt ɔda sik we dɛn kɔl ɛmokromatosis , we kin mek di ayrɔn we pasmak gɛda na di bɔdi.
Aw fɔ no dis sik kɔrɛkt wan?
Bikɔs di sayn dɛm kin tan lɛk ɔda sik dɛm wae gɛt anemia, e kin tranga smɔl fɔ no bɔt dis sik. So i impɔtant fɔ lisin to yu bɔdi. If yu gɛt wan ɔ mɔ pan di sayn dɛn we wi dɔn tɔk bɔt, duya go to yu dɔktɔ.
Di dɔktɔ go tek tɛm aks yu bɔt yu sik, chɛk yu, dɔn ɔda fɔ du bɔku tɛst fɔ no if yu gɛt dis sik.
- Blɔd Tɛst: Fɔ kɔnt ɔl di blɔd ɛn fɔ stɔdi bɔt ayɛn na di men tin.
- Peripheral Blood Smear: Na ya, dεn de egzamin wan blכd sεmpl כnda maykroskכp fכ si if εni abnכmal ayron-akyumulayt sεl dεm (Sideroblasts) de we wi bin tכk bכt.
- Bone Marrow Biopsy: Sɔntɛnde, dɛn kin nid fɔ tek smɔl sɛmpul pan bon marrow ɛn tɛst am fɔ no if yu gɛt di sik.
- Ɔda tɛst dɛn: If nid de, di dɔktɔ kin tɛl yu bak fɔ mek dɛn du MRI skan ɔ fɔ tɛst yu jɛnɛtiks.
Aw dɛn kin trit am?
Di tritmɛnt we dɛn kin pik kin dipen pan if yu gɛt di kayn we we dɛn bɔn yu ɔ we yu gɛt.
- Trit di Kɔz: If yu gɛt di kayn we aw yu dɔn gɛt am, di fɔs tin we yu fɔ du na fɔ pul di tin we mek yu gɛt am. Fɔ ɛgzampul, if na wan mɛrɛsin de mek yu gɛt di sik, yu dɔktɔ go stɔp da mɛrɛsin de ɛn gi yu ɔda wan. If yu na pɔsin we de drink pasmak, yu go nid fɔ lɛf fɔ drink rɔm kpatakpata.
- Vitamin B6: Stɔdi dɔn sho se vaytamɛn B6, ɔ pyridoxine, kin ɛp fɔ trit ɔl tu di kayn sik. Yu dɔktɔ kin gi yu dis vaytamɛn as sɔpɔtmɛnt.
- Fɔ pul di ayɔn we pasmak: Dɛn kin gi mɛrɛsin fɔ pul di ayɔn we pasmak na di bɔdi. Dɛn kin gi difɛroksamin as injɛkshɔn ɔnda di skin, ɛn dɛn kin gi difɛroksamin as pil. Bɔt dɛn mɛrɛsin ya kin afɛkt di kidni dɛn, so dɛn fɔ yuz dɛn ɔnda dɔktɔ we de kia fɔ dɛn gud gud wan.
- Blɔd Transfyushɔn: If yu bɔdi nɔ gri fɔ tek vaytamɛn B6 tritmɛnt, yu dɔktɔ kin tɛl yu fɔ tek blɔd. Bɔt, dis gɛt wan bad tin. If yu kɔntinyu fɔ gi yu blɔd, di ayɛn we de na yu bɔdi go bɔku, ɛn dis go mek yu liva pwɛl mɔ ɛn mɔ.
- Bone Marrow Transplant: Dis na di tritmɛnt fɔ las tin. Dɛn kin tek am pan siriɔs kes dɛm we nɔr ɔda tritmɛnt nɔr dɔn gi mɛrɛsin.
Mɛsej we dɛn kin kɛr go na os
- Sideroblastic anemia nɔ tan lɛk nɔmal anemia. Wetin de apin ya nɔto we di ayɔn we de insay di blɔd sɛl dɛn de go dɔŋ, bɔt na we i de go ɔp.
- Ivin if yu gɛt sɔm sayn dɛm lɛk fɔ taya ɔltɛm ɛn fɔ pale, nɔ disayd fɔ yusɛf se na jɔs simpul ayɔn we yu nɔ gɛt.
- Dis sik kin kam we pɔsin bɔn wit ɔ i kin kam leta bikɔs ɔf tin dɛn lɛk rɔm ɔ sɔm mɛrɛsin dɛn.
- If yu gɛt sɔm sayn dɛn, go mɔs go to dɔktɔ. Fɔ no yusɛf ɛn fɔ trit yusɛf kin rili denja.
- Sɔm tritmɛnt dɛn de we go wok fayn, lɛk vaytamɛn B6 ɛn mɛrɛsin dɛn we de pul ayɔn. Yu dɔktɔ go disayd di tritmɛnt we go fayn fɔ yu.
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