Yu kin fil lɛk se yu ed de tɔn wantɛm wantɛm, yu chɛst de bit, yu yay de blu, ɛn yu de fil lɛk se yu de kam pas? Sɔntɛnde dis kin bi sayn fɔ wan denja at ritm. Tide wi de tɔk bɔt wan pan dɛn kayn tin ya we nɔ kin apin so ɔltɛm bɔt we kin mek i denja. Dɛn kɔl am Torsades de Pointes (wan Frɛnch wɔd, we dɛn kin kɔl "torsades de pointes"). Di nem kin tan lɛk se i strenj smɔl, bɔt i impɔtant fɔ no wetin i min ɛn wetin i kin du.
Fɔ tɔk am simpul wan, wetin na Torsades de Pointes?
dis na di hat ritm we rili fast, we nכ nכmal, εn denja we de stat na di tu lכw chεmba dεm na yu at (vεntrikul dεm). fכ bi prεsis, dis na spεshal tכp fכ fast hat rεt (Ventricular Tachycardia). Nɔmal wan, pɔrsin wae gɛt wɛl bɔdi in at kin bit bitwin 60 ɛn 100 bit pan minit. Bɔt we dis sik apin, di at kin bit 150 to 300 bit insay wan minit .
Dis na denja bikɔs i pɔsibul fɔ mek di at day wantɛm wantɛm we dɛn nɔ wɔn ɛni wɔnin .
If yu luk yu EKG (electrocardiogram), wan patikyula pat de we dɔktɔ dɛn kin si pan dis kɔndishɔn. Na wan patɛn fɔ wev dɛn we de twist bak ɛn go bifo, lɛk kɔyl. Di Frɛnch wɔd "Torsades de Pointes" min "twistin di pɔynt dɛn." I gɛt in nem frɔm di twist nature of di EKG.
Dis kכndyushכn kin apin wit כda prכblεm na di at in ilektrikal aktiviti. Dɛn kɔl am lɔng QT intaval. Fɔ tɔk am simpul wan, di QT intaval na di tɛm we i tek fɔ mek yu at in ɔda chɛmba dɛn bit wan tɛm ɛn afta dat yu fɔ pripia fɔ di nɛks bit. If dis tɛm nɔrmal fɔ lɔng (lɔng QT), ɛkstra bit kin apin, we kin mek Torsades de Pointes.
Wetin na di sayn dɛm fɔ dis sik?
De tin wae de mek yu frayd ya na dat ekzak haf pan pipul dɛm wae gɛt dis sik nɔr kin gɛt ɛni sayn . Di wan dɛn we kin gɛt dis sik kin gɛt dɛn tin ya. Yu fɔ rili tek tɛm wit dɛn tin ya.
| Di sayn we de sho se di sik de | Wan simpul ɛksplen |
|---|---|
| Diziz we pɔsin kin gɛt | I kin apin we di at nɔ de pɔmp blɔd fayn fayn wan, we kin mek di blɔd nɔ de go na di bren. |
| Di we aw pɔsin de blo | Yu kin bigin fɔ fil se yu at de bit fast ɔ i nɔ de bit ɔltɛm. |
| Layt ed we pɔsin kin gɛt | A fil lɛk se a de kam lɔs kɔnshɛns. |
| Fɔ mek pɔsin nɔ ebul fɔ du natin | I kin kam bikɔs di blɔd nɔ de go na di bren fɔ sɔm tɛm. |
| Di at we de mek di at nɔ de wok | Dis na tin we rili denja. Di at kin stɔp fɔ bit wantɛm wantɛm. |
Wetin mek dis kin apin? Wetin na di rizin dɛn?
Tu men rizin dɛn de fɔ dis.
1. di tin dεm we dεn bכn wit: sכm pipul dεn kin bכn wit wan jεnεtik kכndyushכn we dεn kכl `Long QT Syndrome`. Dis min se dɛn gɛt dis sik na dɛn famili. Dɛn pipul ya kin gɛt bɔrku risk fɔ gɛt Torsades de Pointes.
2. Di tin dɛn we kin mek i apin leta: Dis na di wan we kin bɔku pas ɔl. di `QT intaval` kin lכng bay we dεn yuz sכm mεdikeshכn dεm εn di lεvεl dεm fכ ilektrolayt dεm na di bכdi de dכn. Dis kin mek di risk fɔ Torsades de Pointes bɔku.
Mɛrɛsin dɛm wae de mek di risk bɔku:
- Sɔm mɛrɛsin dɛn we de kɔntrol di at ritm (Antiarrhythmics) .
- Sɔm antibayɔtik dɛn
- Sɔm mɛrɛsin fɔ vɔmit (Antimetics) .
- Antifungals dɛn we dɛn kin yuz
- Antisaykotik na mɛrɛsin wae dɛn kin yuse fɔ trit sɔm kayn maynd sik.
- Sɔm mɛrɛsin dɛn fɔ kansa
Impɔtant: If yu de tek dɛn kayn mɛrɛsin ya, nɔ panik. Nɔto ɔlman go gɛt dis sik. Bɔt i rili impɔtant fɔ tɔk to yu dɔktɔ bɔt dis ɛn no bɔt di bad tin dɛn we kin apin to yu.
Wetin na di risk factor dɛm fɔ dis?
Sɔm pipul dɛn kin gɛt dis sik. Dɛn tin ya we kin mek pɔsin gɛt prɔblɛm na:
- Fɔ gɛt wan kɔndishɔn we dɛn kɔl `Long QT Syndrome`.
- Fɔ gɛt ɔda at sik dɛn.
- Fɔ bi uman (uman dɛn de pan ay risk) .
- Bikɔs i dɔn pas 65 ia .
- Tayrɔyd we nɔ de wok fayn.
- Bikɔs i bin dɔn gɛt wan strok.
- Yuz di diuretiks.
- Slɔ at rit (Bradycardia).
- Di smɔl smɔl kalsiɔm, magnɛsiɔm, ɔ potashɔm na di bɔdi.
- Dayarɛa ɔ vɔmit pasmak.
Yu tink se dɛn kin ridyus di prɔblɛm?
Yɛs, yu go mɔs ebul fɔ du am. Sɔm tin dɛn de we yu kin du:
- If pɔsin na yu famili gɛt `Long QT Syndrome`, mek dɛn tɛst yusɛf fɔ am. If yu gɛt am, go to dɔktɔ we de mɛn yu at bifo yu bigin fɔ du ɛksɛsayz.
- Tek tɛm wit di mɛrɛsin dɛn we yu de tek: If yu de tek mɛrɛsin we kin mek di `QT intaval` lɔng, aks yu dɔktɔ if yu kin tek ɔda mɛrɛsin insted. We yu de bigin fɔ tek nyu mɛrɛsin, aks yu dɔktɔ fɔ mek shɔ se i nɔ go mek yu gɛt prɔblɛm wit di mɛrɛsin we yu de tek naw.
- Tink bɔt aw fɔ it: If yu dɔktɔ tɛl yu fɔ du am, mek yu gɛt mɔ kalsiɔm, magnɛsiɔm, ɛn potashɔm.
- Tek yu mɛrɛsin di rayt tɛm: Fɔ mek dis sik nɔ kam bak, yuz di mɛrɛsin jɔs lɛk aw yu dɔktɔ tɛl yu.
- Drink bɔku wata: Mek yu gɛt di rayt wata ɛn sɔl lɛvɛl na yu bɔdi.
- No yu at rit: Lan wetin na nɔmal at rit ɛn aw fɔ mɛzhɔ am.
- If dɛn dɔn gi yu hat monita: If yu dɔktɔ dɔn gi yu at monita fɔ wɛr na os, mek shɔ se yu wɛr am.
Aw dɛn kin du di diagnosis?
di men we fכ no dis na wit `EKG` (Electrocardiogram) tεst. dכkta dεm kin no dis bay we dεn luk di difrεnt `twisted` patεn εn di lכng `QT intaval` we dεn si pan di `EKG`.
Apat frɔm dat, dɛn kin du dɛn tɛst ya bak:
- Blɔd tɛst: Chɛk di lɛvɛl dɛn we di ilɛktrɔlayt dɛn de na di bɔdi, lɛk magnɛsiɔm ɛn potashɔm.
- Echocardiogram: Na skan fɔ luk aw di at de mek ɛn aw i de wok.
- Hat Monitor: Na divays we dɛn kin wɛr fɔ sɔm dez ɛn kɔntinyu fɔ wach aw di at de rit.
Aw dɛn kin trit am?
Di tritmɛnt dipen pan wetin mek di sik de. Pɔsin we gɛt di sik we dɛn bɔn wit Lɔng QT Sindrom go nid fɔ gɛt tritmɛnt fɔ lɔng tɛm pas pɔsin we gɛt wan sik we dɛn kin yuz fɔ tek drɔgs.
| Di kayn tritmɛnt we dɛn kin gi | Tɔk bɔt |
|---|---|
| Di mɛrɛsin dɛn we dɛn kin yuz | |
| Fɔ stɔp di mɛrɛsin we de kɔz di prɔblɛm | Di fɔs tin na fɔ mek di dɔktɔ stɔp di mɛrɛsin we i tink se de mek dis sik. |
| Magnɛsiɔm ɛn/ɔ potashɔm | if di lεvεl dεm fכ dεn sכlt dεm na di bכdi sכm, dεn kin gi dεm insay di bכdi fכ mek dεn kam bak nכmal. |
| Beta-blɔk dɛn | Dɛn kin gi am fɔ kɔntrol di at rit ɛn to di wan dɛn we gɛt `Lɔng QT Sindrom'. |
| Ɔda we dɛn ɛn divays dɛn (Procedures) . | |
| Pesmɛka we de mek pɔsin peshɛnt | Fɔ di wan dɛn we gɛt at rit we rili smɔl, dɛn kin put smɔl tin fɔ mek i kɔntinyu fɔ rit di rayt we. |
| ICD (Difibrilator we dɛn kin put insay pɔsin in bɔdi) . | Dis na tin bak we dɛn kin put insay di bɔdi. We i no se di at ritm we denja, i kin mek ilɛktrik shɔk insɛf fɔ mek di at kam bak to nɔmal. |
| Ilɛktrik Kadiɔvɛshɔn/Dɛfibrilɛshɔn | Insay imejensi, fɔ gi ilɛktrik shɔk to di chɛst fɔ mek di at ritm nɔmal bak. |
Ustɛm a fɔ go to dɔktɔ?
If yu gɛt sɔm sayn dɛn lɛk we yu de pul yu at kwik kwik wan, yu chɛst de pen, yu ed de tɔn, yu yay de blu, ɔ yu nɔ de no natin, go na ɔspitul in Imejɛnsi Dipatmɛnt (ETU) wantɛm wantɛm. Dis na imejensi.
If yu fɔ de na ɔspitul bikɔs ɔf Torsades de Pointes, yu fɔ rili go na os fɔ fala-ɔp insay tu wiks. Bikɔs dis na sik we kin mek yu day wantɛm wantɛm, i rili impɔtant fɔ mek yu kɔntinyu fɔ de ɔnda di dɔktɔ we de mɛn yu at ɔltɛm.
Yu kin aks yu dɔktɔ dɛn kwɛstyɔn ya:
- Dɛn bɔn mi wit Long QT Syndrome, ɔ na mɛrɛsin kin mek a gɛt am?
- Wetin na de chans fɔ mek dis sik apin bak to ɔda pipul dɛn na mi famili?
- Ɔda mɛrɛsin de we a kin tek instead ɔf di wan we mek dis risk?
Wit tritmɛnt, dɛn kin kɔntrol dis sik ɛn yu kin liv gud layf. Bɔt if dɛn nɔ trit am, i kin kil pɔsin. So, i rili impɔtant fɔ fala yu dɔktɔ in instrɔkshɔn dɛn gud gud wan ɛn go na di klinik dɛn di de dɛn we dɛn dɔn sɛtul.
Mɛsej we dɛn kin kɛr go na os
- Torsades de Pointes na wan at ritm we rili fast, we de mek pɔsin in layf de pan denja.
- dis kin bi fכ wan jεnεtik kכndishכn (`Long QT Syndrome`) כ fכ sכm mεdikeshכn dεm εn sכlt dεm we de na di bכdi.
- If yu gɛt sɔm sayn dɛn lɛk we yu de fil pen wantɛm wantɛm na yu chɛst, yu ed de tɔn, ɔ yu nɔ de no natin, na imejensi. Go na di ETU (Imejɛnsi Tritmɛnt Yunit) wantɛm wantɛm.
- Nɔ ɛva stɔp fɔ tek yu mɛrɛsin ɔ chenj di doz if yu dɔktɔ nɔ advays yu.
- If dɛn no se dis sik de, i impɔtant fɔ gɛt tritmɛnt ɔltɛm ɛn fɔ fala am ɔnda dɔktɔ we de mɛn di at.
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