Eddagala lya Amvuttra eriwonya obulwadde obutatera kulabika obunafuya obusimu (hATTR Polyneuropathy) .

Owulira buwunya oba okuwunya mu ngalo n’ebigere? Oba olina obunafu bw’ebinywa n’okukaluubirirwa okutambula? Oluusi, obubonero buno buyinza okuva ku mbeera etali ya bulijjo gye tutawuliddeko. Leero, tugenda kwogera ku mbeera emu ng’ezo n’obujjanjabi obupya obw’okubujjanjaba.

hATTR kye ki? Amvuttra ekola etya?

Mu ngeri ennyangu, hATTR (Hereditary Transthyretin-Mediated Amyloidosis) bulwadde bwa nsikirano. Kibeera mu kibinja ky’endwadde eziyitibwa amyloidosis. Mu ndwadde zino, puloteyina ezimu mu mubiri gwaffe zikyusa enkula yazo, zikuŋŋaanyizibwa mu ngeri ezitali za bulijjo, ne ziteekebwa mu bitundu by’omubiri ebitali bimu.

Mu bulwadde bwa hATTR, puloteyina eyitibwa Transthyretin (TTR) eteekebwa mu ngeri eno. TTR mu butuufu puloteyina nnungi ekolebwa mu kibumba kyaffe era eyamba okutambuza obusimu bwa thyroid ne vitamiini A mu mubiri gwonna. Wabula omuntu alina obulwadde bwa hATTR aba n’enkyukakyuka entono mu buzaale bwa TTR, kwe kugamba, enkyukakyuka. N’ekyavaamu, puloteyina ya TTR ekolebwa eri mu ngeri nkyamu. Puloteeni eno etali nnungi ekuŋŋaanyizibwa era n’eteekebwa mu bifo ng’obusimu, omutima, n’enkola y’okugaaya emmere ng’ebitereke ebiyitibwa amyloid .

Ebintu bino bwe bikuŋŋaanyizibwa okwetooloola obusimu, byonoonese. Kino tukiyita obulwadde bw'obusimu obuyitibwa polyneuropathy . Awo we wava obubonero obwogeddwako emabegako, gamba ng’okuzimba, okuzirika, okulumwa, n’okukaluubirirwa okutambula .

Ekikulu kiri nti ne bw’oba ​​osikira enkyukakyuka y’obuzaale ekwatagana n’obulwadde buno okuva ku muntu w’omu maka, tekitegeeza nti ddala ojja kufuna obulwadde bwa hATTR.

Eddagala lya Amvuttra likola nga likendeeza ku bungi bwa puloteyina eno eya TTR etali ya bulijjo ekolebwa ekibumba. Kino kikendeeza ku kukungaanyizibwa kw’ebintu ebiyitibwa amyloid mu mubiri, ekiyamba okufuga obubonero n’okuziyiza oba okulwawo obulwadde okweyongera.

Omusawo wo era ajja kukuwa amagezi okukyusa mu mmere yo n’okukola dduyiro, wamu n’okujjanjaba obubonero bwo. Okutuuka gye buvuddeko, obujjanjabi bwokka obw’okujjanjaba obulwadde buno bwali bwa kuziyiza bubonero era bwe kiba kyetaagisa, okusimbuliza ekibumba oba omutima. Wabula eddagala ery’omulembe nga Amvuttra kati likusobozesa okufuga obulwadde buno nga likendeeza ku puloteyina ya TTR, nga eno y’esinga okuvaako obulwadde buno.

Eddagala lino okozesa otya?

Amvuttra mpiso eweebwa wansi w'olususu . Kiweebwa omukugu mu by’obulamu, gamba ng’omusawo oba nnansi omutendeke. Kitera okuweebwa emirundi ena omwaka (buli luvannyuma lwa myezi esatu) . Osobola okutegeka okufuna eddagala erigema mu ofiisi y’omusawo wo, mu ddwaaliro, oba wadde awaka.

✨ Clinical nutrition Verified Partner

Clinical vitamins and nutritional supplements

Clinically proven high quality vitamins, minerals and immune nutritional supplements.

Check Availability →

Eddagala lino linoonyezeddwa litya?

Okufaananako n’eddagala lyonna eppya, Amvuttra ebadde egezesebwa mu kugezesebwa okuzuula obulungi bwayo n’obukuumi bwayo. Mu kugezesebwa kuno, ekibinja ky’abalwadde abaafuna Amvuttra baageraageranyizibwa ku kibinja ky’abalwadde abaafuna eddagala lya placebo , obujjanjabi obw’ekifuulannenge nga tebuliimu kirungo kikola. Eno y’engeri gye tuyinza okuzuula oba ddala eddagala lino likola.

Okunoonyereza kuno kwalimu abalwadde abalina obulwadde bwa hATTR n’obulwadde bwa polyneuropathy obuvaamu. Obunafu bw’obusimu bwabwe, amaanyi g’ebinywa, n’obusobozi bwabwe okukola emirimu gya buli lunaku byapimibwa nga bakozesa enkola ez’enjawulo ez’okuteeba.

Okusinziira ku bivudde mu kunoonyereza kuno, abalwadde abaafunye eddagala lya Amvuttra baalongoosa enkola y’obusimu bwabwe n’omutindo gw’obulamu bwabwe. Wadde ng’obubonero bwabwe obw’obusimu bwakendeera n’obubonero ne butereera, abo abaafunye eddagala lino erya placebo baafuna obubonero bweyongera.

Naye jjukira nti ebyava mu kunoonyereza kuno biyinza obutaba bye bimu eri buli muntu. Olina okukubaganya ebirowoozo n’omusawo wo oba eddagala lino likusaanira era oba emigaso gisinga obulabe.

Nnatandika ddi okuwulira ebiva mu ddagala?

Kino si kya mangu. Eddagala bwe litandika okukola mu mubiri gwo mpolampola, oyinza okulaba ng’obubonero bwo bukendedde oba nga bulongooka mu myezi mitono . Ekigendererwa ky’obujjanjabi buno eky’ekiseera ekiwanvu kwe kufuga enkulaakulana y’obulwadde. N’olwekyo, kikulu nnyo okukuuma eriiso ku bubonero bwo.

Gamba omusawo wo okwegendereza ebintu bino:

• Obusobozi bw’okutambula nga toyambiddwa
• Okuzimba n’okuwunya mu bitundu by’omubiri
• Ebiwujjo by’omubiri
• Okufuga puleesa ng’oyimiridde

Ne bw’oba ​​tolaba nkyukakyuka ya mangu, tosubwa okugema mu budde. Omusawo wo ayinza n’okukebera omusaayi mu ngeri ez’enjawulo, sikaani, oba okukebera omubiri gwo okusobola okulondoola enkulaakulana yo.

Ebizibu ebivaamu n’engeri y’okubiddukanyaamu?

Ebizibu ebisinga okulabibwa ku Amvuttra bye bino:

• Obulumi mu mikono oba amagulu
• Obulumi mu binywa
• Okukaluubirirwa okussa

Okugatta ku ekyo, Amvuttra esobola okukendeeza ku muwendo gwa vitamiini A . N’olwekyo, omusawo ajja kukukebera mu musaayi okukebera omuwendo gwa vitamiini A nga tonnafuna bujjanjabi n’okumujjanjaba. Bw’olaba enkyukakyuka yonna mu kulaba kwo naddala obuzibu mu kulaba ekiro , tegeeza omusawo mu bwangu.

Bino si bye byokka ebiyinza okuvaamu ebizibu. Bw’oba ​​olina obubonero obupya obukuleetera okuwulira obubi, tegeeza omusawo mu bwangu.

Wayinza okubaawo obuzibu ku ddagala eddala?

Amvuttra temanyiddwa okuleeta enkolagana yonna ey’amaanyi n’emmere endala, ebyokunywa oba eddagala. Wabula kirungi n’obuulira omusawo wo ku ddagala lyonna, vitamiini, ebiva mu muddo n’ebirungo ebiyamba omubiri gw’omira.