Kizibu okuteeka mu bigambo okuwulira ng’ozuuliddwa ng’olina embeera eruma, eyinza okutta omuntu nga Ankylosing Spondylitis (AS) mu kiseera ekisinga obulungi mu bulamu, ng’okyali muto era ng’ojjudde ebirooto, essuubi, n’enteekateeka. Ku ludda olumu, ogezaako okuddamu okutandika obulamu bwo, ate ku ludda olulala, olina okwolekagana n’okusoomoozebwa ng’okwo. Mazima ddala guno mugugu munene. Kyokka waliwo mu ffe abafunye engeri gye bayinza okubeera obulungi n’embeera eno ne batuuka ku bulamu bwabwe obupya. Leero, twogera ku bantu babiri ng’abo.
‘Nnali ntya nnyo’ – emboozi ya Ivan
Ivan okuva mu buto abadde n’obuzibu mu kutambula. Oluusi yalina okukozesa emiggo n’okumira eddagala eriweweeza ku bulumi okusobola okuyita mu lunaku. Era yatandika okufumiitiriza ku myaka emito okusobola okugumira obulumi buno.
Ku myaka 21, bwe yali asoma ekigezo kya nnansi, Ivan yakitegeera nti obubonero bwe yali amaze ebbanga ng’afuna bwali bufaanagana nnyo n’embeera eyogerwako mu kitabo ky’okusoma ekigezo ekyo. Olw’okuteebereza okwo, yagenda ew’omusawo w’endwadde z’enkizi, omusawo mukugu mu bizibu by’ennyondo n’omugongo. Oluvannyuma lw’okukeberebwa, yazuuliddwa ng’alina obulwadde bwa Ankylosing Spondylitis (AS).
Okutya okwasinga okumujja mu birowoozo n’amawulire gano kwali ku mulimu gwe yalonda.
"Bwe nafuna omulimu gwa nnansi nga nkola mu kitongole ekijjanjaba abalwadde ab'amangu (ETU), nnatya nnyo," Ivan bw'agamba. "Nnali ntya nti singa nfuna obulwadde bwa flare-up, sijja kusobola kukola. Nakitegeera nti bwe mba njagala okukomya ekirooto ky'okubeera omulema mu myaka gyange egy'obukulu 20 okutuukirira, nnina okulabirira obulamu bwange mu ngeri yonna esoboka."
Kale, yatandika okulaba omukugu mu by’empisa mu bulumi eyamuyigiriza engeri y’okuddukanyaamu obulumi nga tafunye ddagala. Era yagezaako obujjanjabi obuyitibwa Acceptance and Commitment Therapy (ACT) . Mu ngeri ennyangu, obujjanjabi buno butuyamba okulekera awo okulwanyisa ebirowoozo byaffe n’enneewulira zaffe mu kifo ky’ekyo ne tubikkiriza.
"Nnagenda mu biseera ebitonotono ebyo eby'obujjanjabi. Naye kyannyamba okuvvuunuka obulumi bw'obwongo n'okwennyamira okumala emyaka egisukka mu kkumi," Ivan bw'agamba. "Nnasalawo okukkiriza embeera eno. Nneebaza omukisa gw'okuvvuunuka okusoomoozebwa kuno n'okubeera n'obulamu obw'essanyu."
Ekitabo kya Viktor Frankl ekya ‘Man’s Search for Meaning’ nakyo kibadde kimukubiriza nnyo okukulaakulanya endowooza eno. Ekitabo kino kyogera ku biseera bye yamala ng’asibe mu nkambi y’Abanazi. Kinnyonnyola engeri gye yawangaala n’ekitiibwa mu kiseera ekyo ekizibu era n’afuna amakulu mu bulamu.
"Bw'okirowoozaako bw'otyo, waliwo abantu ab'amaanyi era ab'ekitiibwa okusinga ffe ababeera n'obulumi obutawona?" Ivan bw’abuuza.
Embeera ya Ivan emaze emyezi 14 kati ng’esonyiyibwa.Endya entuufu, eddagala lye bamulagira, n’okukola dduyiro (akola yoga, asitula obuzito, era akola waakiri eddakiika 75 ez’okukola ‘cardio’ buli wiiki) byonna bimuyambye nnyo mu kudda engulu.
"Ndi musanyufu nnyo okufuna omukisa okukola obulungi n'okuwulira nga nfunye obuwanguzi nga nnansi. Ate era, nsiima AS, mu ngeri emu. Kubanga kinwalirizza okukulembeza obulamu bwange obw'omutwe n'omubiri ku myaka emito bwe gityo."
"Nkyalina obulumi n'okukaluba, naye ndi musanyufu nnyo okubeera mu bulamu bwange leero, nga sirina ndwadde za maanyi ezantawaanya okumala emyaka 10," bw'agamba. Era yeetegekera okutuukiriza ekimu ku birooto bye ebinene: okuwummula omwaka gumu oba ebiri okuva mu bujjanjabi n’obugaali okuyita ku ssemazinga.
‘Nnalowooza nti byonna nsobi yange’ – emboozi ya Tristan
Mu 2013, Tristan yali muyizi mugezi ng’asoma diguli mu by’obutonde (chemistry). Naye mu luggya lw’omwaka ogwo, yatandika okuwulira ng’akooye mu ngeri etategeerekeka. Yali tasobola kuzuukuka ku makya, era n’atandika okusubwa emirimu gy’essomero.
"Nnalowooza nti sirina mpisa. Nnalowooza nti byonna nsobi yange," bw'agamba.
Oluvannyuma lw’ekiseera Tristan we yakitegedde nti yalina embeera eyitibwa non-radiographic axial spondyloarthritis (nr-AxSpA), ekika kya AS. Mu ngeri ennyangu, AS ne nr-AxSpA zombi zizimba omugongo. Mu nr-AxSpA, okwonooneka kw’omugongo tekulabika ku X-rays olw’emitendera egy’okusooka egy’obulwadde. Obulwadde bwe bugenda bweyongera, omugongo mu mugongo gusobola okwegatta. Oluusi, kino kiyinza okukosa ebitundu ebirala, gamba ng’amaaso.
"Ekizibu kiri nti, okuzimba munda mu mubiri gwange bwe kweyongera, mpulira ng'enkola y'obwongo bwange ekendedde. Kiba ng'ekifu ky'obwongo,'" bw'annyonnyola.
"Bwe nnali nsoma kemiko, nnali sisobola kukola mirimu gya laabu. Kyali kyetaagisa okuyimirira okumala ebbanga eddene n'okukwata obulungi ebikozesebwa mu ndabirwamu, naye nnasanga nga kizibu."
Ku nkomerero, yalina okusalawo ekizibu ennyo - okuva mu ssomero.
"Nnali muntu eyalina obwagazi ennyo era nga aloota okukola mu kisaawe kya kemiko. Okufiirwa ebyo byonna kyali kizibu nnyo okugumira," bw'agamba.
Naye Tristan teyakoma awo. Yasalawo okuggulawo oluggi olulala. Wadde nga teyabangako munnabyamizannyo, dduyiro yafuuka ekintu ekikulu mu bulamu bwe. Yatandika okukola hip ne back stretches n’okusitula obuzito obw’ekigero. Naye emmunyeenye entuufu mu nkola ye ey'okukola dduyiro yali kyuma ekiyitibwa vibration plate . Ekyuma kino kireetera ebinywa okukonziba n’okuwummulamu emirundi egiwerako buli sikonda. Kigambibwa nti kyongera amaanyi, okukyukakyuka n’okukendeeza ku bulumi. Tristan agikozesa okumala eddakiika 10 buli ku makya.
"Okukankana okwo ddala kusumulula obugumu mu mubiri gwange. Oluusi nlwana nnyo n'ennyondo zange, naye oluvannyuma lw'okukola kino, mpulira obuweerero obw'amangu."
Oluvannyuma lw’okuwona katono, kye kiseera afune omulimu ogukwatagana n’obulamu bwe obupya. Tristan yeeyigiriza okukola pulogulaamu za kompyuta. Leero, akola gwa kukola pulogulaamu za kompyuta.
Tristan kati akolera wansi wa mukama we ategeera embeera ye n’okusoomoozebwa kw’aleeta.
"Nkyalina obuzibu okukola okuva ku ssaawa mwenda ez'oku makya okutuuka ku ssaawa ttaano ez'ekiro nga buli omu. Emisinde gy'oku makya gye gisinga okukaluba. Naye ndi wa mukisa, kubanga mukama wange antegeera era annyamba."
"Kizibu okukola ku butabeera na bulamu bw'oyagala," bw'agamba. "Nnali muyitirivu, omuntu ow'ekika kya A'. Nze mbadde nnina okukkiriza nti siri sipiidi nga bwe nnali, era nti silina kukola bintu bisukkiridde okusobola okuba omusanyufu."
"Kati nsobola okudda eka ne nnyumirwa akawungeezi akasirifu, n'okunyumirwa okutambulako akaseera katono mu ppaaka. Kyabadde kizibu nnyo okutuuka ku ssa lino, naye engeri gye ntunuuliramu obulamu ekyuse ddala."
| Omuntu | Okusoomoozebwa okukulu okwayolekagana nakwo | Ebigonjoolwa n’eby’okuyiga |
|---|---|---|
| Ivan | Okutya okufiirwa omulimu gwo, emyaka egy’okunakuwala mu birowoozo n’okwennyamira. | Okunoonya obuyambi mu by‟omwoyo n‟abasawo (ACT therapy), okukola dduyiro, okufuga endya, okukkiriza obulwadde n‟okubukozesa ng‟amaanyi. |
| Tristan | Obukoowu obuyitiridde, okuva ku buyigirize n’omulimu gw’ekirooto, okwenenya. | Okufuula dduyiro ekitundu ky’obulamu (vibration plate), okuyiga omulimu omupya, okukyusa endowooza yo ku bulamu, okufuna essanyu mu bintu ebitonotono. |
Emboozi zino zombi zitulaga engeri gye kizibu okubeera n’obulwadde obutawona nga AS. Kyokka, singa abasawo bamuwa amagezi amatuufu, abawa obuyambi mu by’omwoyo, okukyusa mu bulamu bw’omuntu, n’endowooza ey’amaanyi, .Batukakasa nti tusobola okuvvuunuka okusoomoozebwa kuno nga tuli wamu. Bw’oba olina embeera efaananako bwetyo, tolowooza nti oli wekka. Yogerako n’omusawo ofune obuyambi bwe weetaaga.
Obubaka Obutwala Awaka
- Tonenya: Okubeera n’embeera etawona nga AS si musango gwo. Okukikkiriza gwe mutendera ogusooka ogw’okudda engulu.
- Saba obuyambi: Yogerako mu lwatu n’omusawo wo (naddala omusawo w’endwadde z’enkizi) ku mbeera yo. Ate era bw’oba okaluubirirwa okugumira situleesi, totya kunoonya buyambi okuva eri omubuulirizi.
- Dduyiro kyetaagisa: Ku nkola yo eya buli lunaku yongerako enkola y’okukola dduyiro ekkirizibwa omusawo ng’etuukana n’ekika ky’omubiri gwo. Kikulu nnyo okukendeeza ku bulumi n’okukaluba.
- Teekateeka obulamu bwo: Singa ebirooto byo eby’edda oba omulimu kizibu okugoberera n’embeera eno, funa amakubo amapya. Okufaananako Tristan, osobola okufuna omulimu omupya ogukwatagana n’obusobozi bwo.
- Kyusa ennyonyola yo ku ssanyu: Mu kifo ky’okunoonya obuwanguzi obunene mu bulamu, yiga okubeera omusanyufu n’obutonotono. Kijja kuba kikuyamba nnyo ku bulamu bwo obw’omutwe.
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