Omwana wo alina obubonero buno? Tubeere bamanyi ku bulwadde bwa Reye's Syndrome!

Wali okirabye ng’omwana wo omuto alina omusujja oba omusujja, ate amangu ago enneeyisa ye n’ekyuka, n’asesema ennyo oba n’afuna otulo otungi? Bw’olaba enkyukakyuka ng’ezo, tozibuusa maaso nga za bulijjo. Kubanga, kiyinza okuba akabonero k'embeera etali ya bulijjo naye eyinza okuba ey'akabi eyitibwa "Reye's Syndrome." Katukwogere ku nsonga eno leero.

Obulwadde bwa Reye kye ki?

Mu ngeri ennyangu, obulwadde bwa Reye’s Syndrome mbeera etali ya bulijjo naye nga eyinza okuba ey’amaanyi. Kibaawo ng’obwongo bw’omwana buzimba n’okukola kw’ekibumba ne kukoma mu bwangu oluvannyuma lw’okukwatibwa akawuka, ebiseera ebisinga omusujja, ssennyiga oba ekifuba. Embeera eno etera okulabibwa ng’abaana baweereddwa aspirin okufuga obubonero bw’obulwadde bw’akawuka. Obubonero buno busobola okulabika mu wiiki emu ng’akawuka katandise.

Ani asinga okulwala obulwadde bwa Reye’s Syndrome?

Kino okusinga kitwalibwa ng’obulwadde bw’abaana abato. Kyokka, kiyinza okubaawo ku myaka gyonna. Wabula esinga kulabibwa mu baana abali wansi w’emyaka 18. Embeera eno etegeezebwa naddala mu biseera by’omusana n’eby’obutiti (mu nsi yaffe, mu biseera by’enkuba, ng’endwadde z’akawuka ziyitiridde).

Embeera eno ya bulijjo etya?

Mu butuufu, kati obulwadde bwa Reye’s Syndrome mbeera etali ya bulijjo nnyo. Ng’ekyokulabirako, mu Amerika, abantu babiri bokka be bakwatibwa obulwadde buno buli mwaka.

Ensonga enkulu lwaki kino kituuse kwe kuba nti kati abantu bamanyi nnyo obulwadde buno. Okusingira ddala abazadde bangi bakimanyi nti si kirungi okuwa omwana aspirin okujjanjaba obubonero bw’aba alina omusujja. Ekirala, okugema endwadde z’akawuka nga ssennyiga ne ssennyiga kikendeezezza ku bungi bw’obulwadde buno.

Obulwadde bwa Reye’s Syndrome bukosa butya omubiri gw’omwana?

Oluvannyuma lw’okukwatibwa akawuka, gamba ng’omusujja oba ekizimba, omwana wo ayinza okutandika okufuna obubonero obupya mu nnaku ntono (oyinza okuba nga wiiki emu). Ekisinga obukulu ky’olina okujjukira kwe kuwa mwana wo aspirin olw’obubonero bwe nga tolina magezi ga musawo. Okukola ekyo kiyinza okwongera ku bulabe bw’okulwala obulwadde bwa Reye’s Syndrome.

Obulwadde bwa Reye’s Syndrome buleeta puleesa okweyongera mu bwangu munda mu bwongo bw’omwana, ekiyinza okuvaako enkyukakyuka ez’amangu mu nneeyisa n’obuntu. Teebereza omwana wo omuzannyi era omusanyufu ng’alemererwa mu bwangu eby’okuzannyisa by’ayagala ennyo, oba ng’anyiiga mangu oba okutabuka olw’ebintu ebirabika ng’ebitali bikulu. Enkyukakyuka zino mu muudu ziyinza okuba obubonero obusooka obw’obulwadde bwa Reye’s Syndrome. Bw’otegeera obubonero buno nga bukyali, osobola okutandika amangu obujjanjabi n’oyamba omwana wo okudda engulu.

Bubonero ki obulaga obulwadde bwa Reye’s Syndrome?

Obubonero buyinza okwawukana okusinziira ku muntu, era bwawukana n’okusinziira ku buzibu bw’obulwadde. Obubonero obusooka bwe buno obw’obulwadde obutera okukwatibwa akawuka. Kwe kugamba, omusujja, okulumwa emimiro, omusujja oba enkoko. Oluvannyuma lw’ennaku nga ttaano ku musanvu ng’obubonero buno obw’akawuka bulabika, obubonero obukwatagana n’obulwadde bwa Reye’s Syndrome butandika okulabika. Mulimu:

• Okusesema ennyo.
• Okuwulira nga okooye nnyo era nga otulo .
• Ebintu ng’okweraliikirira, okubulwa okujjukira, okutabulwa, n’okulaba ebirooto .
• Enkyukakyuka mu nneeyisa: obukakanyavu, okunyiiga amangu, okuyomba.
• Okussa amangu.

Enkyukakyuka zino mu nkola y’obwongo zibaawo olw’okunyigirizibwa okweyongera munda mu kiwanga (`(Intracranial pressure)`). Mu kiseera kye kimu, ekibumba nakyo kikosebwa. Singa obulwadde buno bweyongera okuba obw’amaanyi, oyinza n’okulaba obubonero nga:

• Okukonziba.
• Coma mbeera y’obutamanya, efaananako n’okugwa mu tulo otungi.
• Okufiirwa ddala okutegeera.
• Obuzibu mu kuzimba omusaayi.
• Okwongera ku muwendo gwa ammonia mu musaayi.

Ekikulu: Omwana wo bw’alaga obubonero buno obumu oba obusingawo, ka kibeere mu kiseera ky’omusujja gw’akawuka oba nga wayise ennaku ntono ng’omusujja gukendedde, olina okugenda mu basawo amagezi amangu ddala, kubanga buno buyinza okutta obulamu bwe.

Kiki ekivaako obulwadde bwa Reye?

Mu butuufu, ekituufu ekivaako obulwadde bwa Reye’s Syndrome tekinnazuulibwa.

Wabula embeera eno etera okuva ku kuwa omwana alina obulwadde bw’akawuka (nga ssennyiga oba ekifuba) aspirin oba salicylates okufuga obubonero. Ebimu ku bikwata ku kawuka ebiyinza okuvaako obulwadde bwa Reye’s Syndrome mulimu:

• Ssennyiga
• Obulwadde bw’enkoko
• Obulwadde bw’okussa
• Omusujja gwa bulijjo

Obubonero bw’obulwadde bwa Reye’s Syndrome buva ku mazzi okukuŋŋaanyizibwa oba puleesa okweyongera mu bitundu by’obwongo (cerebral edema) n’enkyukakyuka mu kibumba.

Okunoonyereza okumu kulaga nti embeera eno mu kibumba ebaawo olw’okwonooneka kwa mitochondria (`(Mitochondria)`) mu butoffaali. Mitochondria (`(Mitochondria)`) ze, mu ngeri ennyangu, obuuma obutono obukola amasannyalaze obuwa obutoffaali bwaffe amaanyi. Bino bwe byonooneddwa, ekibumba kikosebwa era obubonero ne bulabika. Wabula tekinnategeerekeka lwaki mitochondria zino (`(Mitochondria)`) zoonoonese.

Aspirin Aleeta Obulwadde bwa Reye?

Okunoonyereza kulaga nti aspirin oba ekintu ekiyitibwa salicylate kiyinza okuvaako obulwadde bwa Reye’s Syndrome n’okwongera ku buzibu bw’obubonero. Kyokka, nga bwe kyayogeddwako emabegako, ekituufu ekivaako kikyali kyama. N’olwekyo, kakasa nti oyogera n’omusawo nga tonnaba kuwa mwana wo aspirin ng’alina obulwadde bw’akawuka nga ssennyiga. Soma bulungi akabonero k’eddagala lyonna ly’owa omwana, ng’okakasa nti lituukagana n’emyaka gye n’engeri y’okuliwaamu. Buuza omusawo wo bw’oba ​​olina ekibuuzo kyonna.

Engeri obulwadde bwa Reye gye bukola mu mubiri (Pathophysiology) .

Ebikwata ku ngeri entuufu obulwadde buno gye bukola mu mubiri gw'omwana mu bujjuvu (`(Pathophysiology)`) n'okutuusa kati tebinnategeerekeka bulungi.

Wabula okunoonyereza kulaga nti embeera eno ebaawo ng’obutoffaali bwa mitochondria (`(Mitochondria)`) obwonooneddwa bwegatta n’obulwadde bw’akawuka. Singa aspirin ayingira mu mubiri gw’omwana mu kiseera kino, okwonooneka kw’obutoffaali obuyitibwa mitochondria (`(Mitochondria)`) kweyongera era obubonero bweyongera. Olw’obusimu obuyitibwa mitochondria obwonooneddwa (`(Mitochondria)`), omuwendo gwa ammonia mu musaayi gweyongera. Olwo obwongo ne butandika okuzimba (`(Cerebral edema and intracranial pressure)`). Puleesa ku bwongo bwe yeeyongera ennyo, ebitundu by’amasavu mu nsigo bitandika okwonooneka (`(Fatty degeneration)`), era n’enkola y’obutoffaali bw’obusimu (`(Neurons)`) nayo ekendeera.

Obulwadde bwa Reye’s Syndrome buzuulibwa butya? (Okuzuula obulwadde)

Abasawo bayinza okuteebereza obulwadde bwa Reye’s Syndrome singa omwana aba n’obulwadde bw’akawuka n’oluvannyuma n’alaga obubonero obukwatagana n’obulwadde bwa Reye’s Syndrome, gamba ng’okusiiyibwa n’enkyukakyuka mu nneeyisa (nga okutabulwa, okutabulwa). Olwo bagenda kukola okukebera okw’enjawulo okuggyawo embeera endala eziyinza okuvaako obubonero obufaananako bwe butyo.

Singa omwana wo azuulibwa ng’alina obulwadde bwa Reye’s Syndrome, bujja kugabanyizibwamu emitendera okusinziira ku buzibu bwabwo. Emitendera gino giwandiikiddwa n’ennamba z’Abaruumi okuva ku I (emu - ezitali za maanyi nnyo) okutuuka ku V (ettaano - ezisinga obungi).

Bikebere ki ebikozesebwa okuzuula obulwadde buno?

Omusawo ayinza okukola ebigezo ebiwerako okukakasa nti alina obulwadde buno. Mu bino mulimu:

• Okukebera omusaayi: Kebera omuwendo gwa ammonia mu musaayi n’okukebera obutwa mu musulo.
• Okukebera ebifaananyi: Okukebera obwongo mu MRI oba CT.
• Okukebera ekibumba: Okutwala akatundu akatono ku kibumba okukeberebwa.
• Taapu y’omugongo: Okukebera amazzi ageetoolodde obwongo n’omugongo (amazzi g’omugongo).

Obulwadde bwa Reye’s Syndrome busobola okuzuulibwa mu bukyamu?

Olw’okuba obubonero bw’obulwadde bwa Reye bufaananako n’obw’embeera endala nnyingi, oluusi buyinza okuzuulibwa obubi. Kyokka kino si kya bulijjo. Ezimu ku mbeera eziyinza okuzuulibwa obubi mulimu:

• Obulwadde bw’obwongo (omusujja gw’obwongo) .
• Obulwadde bw'okuzimba omutwe (`(Meningitis)`) .
• Ssukaali (`(Ssukaali)`)
• Eddagala erisukkiridde
• Obutwa (`(Obutwa)`)
• Obulwadde bw’okufa kw’abaana abawere mu bwangu (`(Obulwadde bw’okufa kw’abaana abawere mu bwangu)`)
• Obulwadde bw’obwongo

Obulwadde bwa Reye’s Syndrome bujjanjabwa butya?

Ekigendererwa ekikulu eky’obujjanjabi kwe kukuuma obwongo bw’omwana. Kino kitegeeza okukendeeza ku kuzimba kw’obwongo, okuddaabiriza okwonooneka kw’ekibumba n’enkola z’enkyukakyuka mu mubiri (`(Metabolic injury)`), n’okuziyiza ebizibu by’amawuggwe. Obujjanjabi buyinza okuli bino wammanga:

• Okusobola okwanguyiza okussa, ssaamu ttanka mu payipu y’empewo (endotracheal intubation) oba kwata ku kyuma ekissa.
• Okukuuma omutwe gw’omwana nga guwanvuye.
• Okuwa eddagala okukendeeza ku muwendo gwa ammonia mu musaayi (`(Ammonia detoxicants)`).
• Okuwa eddagala okufuga sukaali mu musaayi (`(Glucose)`).
• Muwe vitamiini K oba plasma okulongoosa omusaayi okuzimba.

Singa omwana wo azuulibwa ng’alina obulwadde bwa Reye’s Syndrome, ajja kuweebwa ekitanda mu ddwaaliro lya Intensive Care Unit (ICU) mu bwangu era obujjanjabi bujja kutandika. Ttiimu y’abasawo ejja kulondoola buli kimu buli kiseera omuli ebbugumu ly’omubiri gw’omwana n’enkola y’ebitundu by’omubiri ebikulu okulaba oba obujjanjabi buno bugenda bulungi.

Waliwo ebizibu byonna ebiva mu bujjanjabi buno?

Abaana abasinga abazuuliddwa n’obulwadde bwa Reye’s Syndrome bawona ddala. Kyokka singa okuzimba obwongo bw’omwana kuba kwa maanyi nnyo, ebizibu ebimu biyinza okuvaamu. Mu bino mulimu:

• Okufiirwa okujjukira (`(Okufiirwa okujjukira)`)
• Ebizibu mu kuyiga (`(Obuzibu okuyiga)`)
• Okubulwa okulaba n’okuwulira
• Obuzibu mu kwogera n’olulimi
• Okukaluubirirwa okutambuza omubiri n’okukola emirimu egya buli lunaku, gamba ng’okwambala.

Mu mbeera nga zino, omwana yeetaaga obuyambi n’okulabirira okw’enjawulo ng’akula.

Omwana anaawona mangu atya oluvannyuma lw’okujjanjabibwa?

Oluvannyuma lw’okujjanjabwa, okuzimba mu bwongo bw’omwana wo bwe kumala okukka, ajja kutandika okuwona. Kiyinza okutwala ennaku ntono okutuuka ku wiiki ntono omwana wo okuwona ekimala okuva mu ddwaaliro. Ttiimu y’abasawo ejja kukutegeeza ku nkulaakulana y’omwana wo.

Kiki kye nsuubira singa omwana wange alina obulwadde bwa Reye’s Syndrome?

Okuteebereza obulwadde bw’omwana kisinziira ku buzibu bw’obulwadde naddala obwongo bw’azimba n’omuwendo gwa ammonia mu musaayi. Singa obulwadde bugenda mu maaso mangu omwana n’agwa mu kkoma, emikisa gy’okuwona giba mitono. Wabula singa obulwadde buno buzuulibwa ne bujjanjabwa nga bukyali, emikisa gy’okuwona giri waggulu nnyo.

Omuwendo gw’abaana abafa abazuuliddwa n’obulwadde bwa Reye’s Syndrome guli nga 21%. Kino kiva ku baana abatakka wansi wa 2% abalina obulwadde bwa stage I (obutono) okutuuka ku 80% ku baana abalina stage V (coma). Okutegeera amangu n’okujjanjabibwa kyongera nnyo emikisa gy’okuwona.

Abaana abafuna obubonero obw’amaanyi obw’obulwadde bwa Reye’s Syndrome bayinza okufuna ebizibu ebiwangaala okutuuka mu bukulu. Ng’ekyokulabirako, okukosebwa kw’obwongo, obuzibu mu nkula y’okutegeera, okusannyalala, okunafuwa kw’ebinywa, n’obuzibu bw’obusimu.

Waliwo eddagala erigere eriwonya obulwadde bwa Reye’s Syndrome?

Tewali ddagala lya njawulo eriwonya kino. Kyokka abaana abasinga batereera ddala, okusinziira ku ngeri gye bazuuliddwamu. Obujjanjabi bugenderera okukendeeza ku bubonero n’okuziyiza ebizibu ebiwangaala oba okufa.

Oyinza otya okwetangira obulwadde bwa Reye's Syndrome?

Kino kye kintu ekisinga obukulu ffenna kye tulina okumanya. Okuva bwe kiri nti waliwo akakwate wakati wa aspirin ne Reye’s Syndrome, obulwadde buno busobola okuziyizibwa nga weewala okuwa abaana aspirin naddala abaana abali wansi w’emyaka 16. Omwana wo bw’aba yeetaaga aspirin okujjanjaba embeera y’obujjanjabi, tomuwanga aspirin nga toyogedde na musawo ku nsonga eno.

Bulijjo soma bulungi ku kiwandiiko ky’eddagala nga tonnaba kuwa mwana ddagala lyonna, kebera oba ddagala lituukagana n’emyaka gyayo, era kebera ebiragiro ku ngeri y’okuliwa. Bw’oba ​​obuusabuusa, buuza omusawo wo oba omukugu mu by’eddagala.

Ddi lwe nnina okulaba omusawo?

Singa omwana wo alaga obubonero bwonna obw’obulwadde bwa Reye’s Syndrome oluvannyuma lw’okufuna omusujja gw’akawuka oba yinfekisoni, oba bw’oba ​​owadde omwana wo aspirin oba eddagala eririmu salicylate nga tolina magezi ga musawo, laba omusawo mu bwangu.

Ddi lwe nnina okugenda mu kitongole ky’abalwadde ab’amangu (ETU) ?

Omwana wo bw’aba alina ekizibu ky’okukonziba (`(Seizures)`), ekitegeeza nti azirika okumala akaseera, asikasika emikono n’amagulu nga tasobola kwefuga, atabuse, oba alaga obubonero bw’okutabulwa, kuba 911 amangu ddala, oba twala omwana wo mu kisenge ky’abalwadde ab’amangu ekikuli okumpi. Okukonziba kutera okumala okuva ku sikonda 30 okutuuka ku ddakiika nga bbiri.

Bibuuzo ki bye nnina okubuuza omusawo wange?

• Omwana wange akyayinza okuba n’obubonero bw’obulwadde bwa Reye’s Syndrome ng’amaze okuva mu ddwaaliro?
• Okuzuula obulwadde bwa Reye’s Syndrome kinaakwata kitya ku biseera by’omwana wange eby’omu maaso?
• Ddagala ki lye sisaanidde kuwa mwana wange ng’alwadde?

Dozi emu eya Pepto-Bismol® esobola okuleeta obulwadde bwa Reye’s Syndrome?

Pepto-Bismol® era erimu ekirungo ekiyitibwa salicylate, ekifaananako ne aspirin. N’olwekyo tekiba kirungi kugiwa baana nga tolina magezi ga musawo. Okuwa aspirin mu kiseera ky’okukwatibwa akawuka nga ssennyiga kiyinza okuleeta obubonero bw’obulwadde bwa Reye’s Syndrome. Kyokka nga bwe kyayogeddwako emabegako, ekituufu ekivaako obulwadde bwa Reye’s Syndrome tekinnamanyika. Bulijjo soma ku lupapula oba buuza omukugu mu by’eddagala oba omusawo nga tonnaba kuwa mwana ddagala lyonna.

N’ekisembayo, obubaka obusinga obukulu

Bw’oba ​​omanyi obubonero bw’obulwadde bwa Reye’s Syndrome n’olaba enkyukakyuka mu nneeyisa y’omwana wo oba obubonero obupya oluvannyuma lw’okukwatibwa akawuka, kirungi okugenda ew’omusawo amangu ddala nga bwe kisoboka. Omwana wo mubeere ng’amanyi ebigema by’agenda okugema. Kino kikulu nnyo naddala mu biseera ng’obulwadde bw’akawuka butera okubeerawo (nga sizoni y’enkuba). Singa omwana wo azuulibwa ng’alina obulwadde bwa Reye’s Syndrome, ttiimu yo ey’abasawo ejja kukumanyisa embeera y’obulamu bw’omwana wo era ekuwe obuyambi obwetaagisa. Ekisinga obukulu kwe kusigala nga mukkakkamu n’okweyisa mu ngeri ey’amagezi.

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