Thalassemia enkawlna tunlai tak: Betibeglogene Autotemcel (ZYNTEGLO) chungchanga hriat tur

Nangmah emaw, i hmangaih tak emaw Beta Thalassemia vei i nih chuan thisen pek fo a ngai hi a hahthlak zia i hre ngei ang. Mahse, medical science hmasawnna avang hian tunah chuan he dinhmun hi beiseina thar a lo awm ta a ni. Vawiin hian chutiang enkawlna thar, hmasawn tak pakhat chu kan sawi dawn a ni. A hming chu Betibeglogene Autotemcel a ni. Brand name ZYNTEGLO tia hriat lar a ni.

A awlsam zawngin, he Betibeglogene Autotemcel hi eng nge ni?

Hei hi pill leh capsule pangngai a ni lo. Hei hi a bik tak, gene therapy hmasawn tak a ni . Hei hian a tum ber chu beta thalassemia vei taksain thisen zam hrisel, tha taka thawk thei siam chhuah tir hi a ni.

Factory-ah hian kan taksaah thisen sen (red blood cells) siamna tur chhiatna tenau tak a awm niin han ngaihtuah teh. Chu chu thalassemia natnaah chuan a thleng thin. He enkawlna thar hian chu chhiatna chu siam\hatna kawngah a pui a ni. A hlawhtlin chuan thisen pek fo ngaina chu nasa takin a tihtlem thei a ni. Chu chu eng ang thlamuanna nge ni ang, a ni lawm ni?

Engtin nge he enkawlna hi pek a nih?

Hetiang enkawl dan hi a buaithlak deuh a ni. Chuvangin hei hi in lama tih theih a ni lo. Hei hi damdawi inah tih tur a ni a, specialist doctor team enkawlna hnuaiah tih tur a ni.

A pawimawh ber chu he enkawlna hi i cell atanga siam a ni . Ni e, i hnen atanga immune cell lakte chu laboratory-ah thil danglam tak hmangin siam danglam a ni a, thisen sen hrisel siam theihna pek a ni a, chutah chuan vein hmangin nangmah ngeiin i taksaah dah leh a ni. Hei hi technology mak tak a ni tak zet a ni.

He enkawlna hi naupang kum 4 chunglam tan pek theih a ni. Mahse, a bik taka inbuatsaihna leh fimkhur a ngai a ni. I doctor chuan hei hi a hrilhfiah ang che.

Enkawlna i tan hmaa i doctor hnena i hrilh tur thilte

Chutiang enkawlna hmasawn tak i tan hmain i doctor-in i hriselna chanchin kimchang a hriat a pawimawh hle. A hnuaia mi hi i tan a hman theih chuan, chu chu hrilh ngei ang che.

• HIV emaw AIDS ang chi natna i neih chuan .
• Tun hnaia vaccination i dawng tawh a nih chuan , emaw, dawng thuai tur i nih chuan (a bik takin virus nung awmna vaccine).
• He damdawi, damdawi dang, ei tur, dye, emaw, preservatives emaw allergy i neih chuan.
• Naupai emaw naupai tum emaw i nih chuan . (Hei hi a pawimawh hle mai!)
• Nu hnute pe lai i nih chuan .

Enkawl laia fimkhur bik tur thil

He damdawi i ei lai leh i ei hnuah pawh i medical team te hian uluk takin an lo thlir reng ang che a, heng thilte hi i hriat chian a pawimawh hle.

Naupai leh nau neih dan tur

Hei hi fimkhur tak a ngai a ni.

• Hmeichhia tan: He damdawi ei laia naupai hian nau piangsual na tak a thlen thei a ni. Chuvangin, enkawl tan hmain naupai lo tih hriat nan test neih a ni ang. Naupai venna chi khat, condom emaw diaphragm emaw ang chi hi enkawl lai leh enkawlna i chawlhsan hnu thla 6 chhung i hmang tur a ni.
• Mipa tan: Hetiang damdawi ei mipa hian nau pai thei hmeichhia a sex hman chuan condom a hmang tur a ni . Hetiang venhimna hi enkawlna i chawlhsan hnuah thla 6 chhung i hmang chhunzawm tur a ni. Hei hi a chhan chu i kawppui chu naupai a nih chuan nausen piang lai tan harsatna thlen theihna a awm vang a ni. I kawppui naupai nia rinhlelhna i neih chuan i doctor hnenah hrilh nghal rawh.

Thu pawimawh dangte

• Thisen pek loh tur: He damdawi ei lai emaw, chawlhsan hnu engtik lai pawhin thisen pek loh tur .
• Cancer hlauhawmna: He enkawlna hian cancer chi hrang hrang vei theihna a tipung deuh thei a ni. Hei hian hlau suh la, mahse i medical team te nen inbiakna hmangin he hlauhawmna hi inhawng takin awm la, hre reng ang che.
• Damdawi dang: I damdawi ei zawng zawng (vitamin leh herbal remedies te pawh tel) i doctor hnenah hrilh rawh. A bik takin, a hnuaia damdawi te hian he enkawlna hi a inzawm thei a ni.
• Granulocyte-colony tichaktu thil a ni
• Iron chelator damdawi te
• Virus nung vaccine pek a ni

Side effect awm thei te chu engte nge ni?

Enkawlna dang ang bawkin side effect a awm thei bawk. Ṭhenkhat chu report nghal tur a ni a, ṭhenkhat erawh chu a nasat loh tlangpui thung. Chungte chu a hnuaia table atang hian chiang takin kan hre thei ang.

Damdawi i ei palh nia i rinhlelh chuan damdawi in Emergency Treatment Unit (ETU) ah report nghal rawh . Chutiang dinhmun chungchangah chuan Colombo National Hospital-a National Poisons Information Center-ah pawh thurawn dil theih a ni bawk.