I kut leh ke pawh a kang a, a sen em? Hei hi (Erythromelalgia) a ni thei!

I kut emaw, i ke emaw-ah kangmei chhuak nghal, tuar theih loh i hmu ngai em, i tawng ngai em? Chumi rual chuan a hmun chu a sen a, a chang chuan a na hle bawk. Hei hi thil awlsam tak a ni lo mai thei. Vawiin hian kan sawi dawn a, thil thleng thei lo, mahse mi tam takin an hre lo.

Hei hi eng nge ni (Erythromelalgia)?

A awlsam zawngin (Erythromelalgia) hi a awm lo hle. Hemi a thil thleng chu kan taksa peng thenkhat, a bik takin taksa peng hrang hranga thisen kal chakna a lo pung nghal a ni. Hei vang hian a hmaa kan sawi tawh ang khan symptoms te hi a lo awm ta a ni. Hei hi chronic condition a ni a, dam chhung zawng a daih thei tihna a ni. Hun a kal zel a, heng symptoms te, a bik takin kang natna hi a pung zauh zauh thei a ni. Chuvang chuan hei hi kan hriat chian a pawimawh hle a ni.

Hei hian khawiah nge nghawng a neih ber?

A tam zawkah chuan he natna (Erythromelalgia) hian i ke a nghawng a, a bik takin i ke . Mahse, chu chu a ni lo. Hmun dang pawh a nghawng thei a ni:

• I kut chu
• Hmai
• Palm leh soles te
• A tlem berah chuan beng zung pawh a nghawng thei.

(Erythromelalgia) hi chi hrang hrang a awm em?

Ni e, hei pawh hi chi hrang hrang a awm bawk. Eng nge an nih i en ang u.

1. A bul tanna (Primary Erythromelalgia) .

Hei hi natna hnuaia awm dang a awm loh lai a ni a, he natna (Erythromelalgia) hi a awm ve chauh a ni. Hei hian hmun hnih a nei bawk a:

• Idiopathic Erythromelalgia: Hei hi a tam ber a ni. A chhan chiang tak hmuh a la ni lo.
• Inherited Erythromelalgia: Hei hi kan genes-a mutations avanga lo awm a ni . Heng mutations te hian kan pain signal kal dan a nghawng thei a ni. Hetiang dinhmun hi chhungkuaah pawh a kal thei a, chu chu thlah khat atanga thlah dangah a kai darh thei tihna a ni.

2. Secondary (Secondary Erythromelalgia) a awm thei lo.

Hetiang erythromelalgia hi damdawi lam thil dang avanga lo awm a ni . Chu chu, damdawi lam dinhmun dang i neih tawh avanga side effect angin a lo awm thei tihna a ni. Entirna tlemte chu hetiang hi a ni:

• Autoimmune natna: Entirnan lupus leh multiple sclerosis te hi a ni.
• Essential thrombocythemia: Hei hi thisen lama natna a ni. A awlsam zawngin taksa hian platelet a siam tam lutuk a, chu chu cell chi khat a ni.
• `(Polycythemia vera)`: Hei hi thisen zam (red blood cells) a punna natna a ni bawk.
• `(Raynaud-a phenomenon)`: Hetah hian kut zungtang leh ke ruhte chu khawsik leh rilru hahna lakah an sensitive a, a sen emaw, a sen emaw a lo ni ta a ni.
• `(Thrombocytopenia)`: Hei hi thisen a platelet awm zat tlahniam tihna a ni.
• Neuropathy: Nerve tihchhiatna avanga natna lo awm.

Hei hi eng symptoms nge ni? I han chhui chiang teh ang!

Erythromelalgia natna lanchhuahna lian ber pathum a awm a. Anni chu:

1. Vun lumna sang: A natna hmun chu khawih chuan hmun dang aiin a lum zawkin a hria.

2. Natna: Hei hi mi tam tak tan chuan harsatna lian ber a ni. Mi ṭhenkhat chuan tingling sensation tlem an nei thei a, ṭhenkhat erawh chuan natna nasa tak an nei thei a, chu chu kang natna nen a inzawm a ni . Ṭhenkhat chuan a natna chu kang emaw, hliam emaw angin an sawi.

3. Vun sen: A natna hmun hi pink atanga dark red ah a rawng a inthlak thei.

Heng thil pawimawh tak takte bakah hian thil dang thenkhat hmuh tur a awm bawk:

• Itching: Mi thenkhat chuan kangmei chhuak nen hian itching an nei bawk.
• Symptoms a awm loh laiin vun a vawt: A inflammation leh redness a reh chuan a natna hmun chu khawih chuan hmun dang aiin a vawt zawkin a lang thei.
• Thawmhnaw: A natna hmun chu a tlangpui aia tam a thawk thei.
• Swelling: A chang chuan a hmun chu a hring deuh thei.
• Vun sensitivity, spots: Vun hi khawih chuan a na thei a, a chang chuan spots angin a lang thei bawk.
• Numbness: I kut leh ke chu a bengchheng tih a hriat theih.

Heng symptoms te hi taksa sir khatah emaw a sir lehlamah emaw a awm thei . Tin, mi thenkhat tan chuan an nêm hle laiin, mi ṭhenkhat tan chuan tuar theih loh an ni thei bawk. Mi thenkhat tan chuan heng symptoms te hi naupan lai atanga tan a ni a, thenkhat tan erawh chuan puitlingah chauh a nghawng thung .

Engvangin nge heng symptoms te hi a lo pung nghal (flares)?

Erythromelalgia vei te hian an natna lan chhuah dan a pung nghal zung zung thin. ``Flares`` kan ti thin.`` Hengte hi i taksa lumna a san nghal vat hian a thleng tlangpui . Hêng hun hi han ngaihtuah teh:

• Caffeine awmna in tur in: Tea leh coffee ang chi thil in.
• Dehydrated: Taksain tui a hmuh tlem chuan.
• Zu in: Zu in hman dan.
• Chaw tui tak ei: Chili ei, chaw tui tak ei.
• Exercise: Exercise hahthlak tak i tih hian.
• Stress tih hriat: Pressure emaw lungkhamna emaw i neih hian.
• Hmun lum takah awm: pindan lum takah emaw, pawn lama hmun lum takah emaw awm.

"Ni khat chu party-ah ka kal a, biryani rimtui tak ka ei a, chutah ka ṭhiante nen kan zai a, ka lo haw chuan ka ke pahnih chu a kang ang maiin ka hria. A sen vek a ni. Ka kekawrte chu a tlakbuak niin ka hria. A hnuah chauh doctor pakhatin hei hi (Erythromelalgia) a ni thei tih min hrilh a ni," a ti. - Chutiang thil tawn tawh pawh an awm.

Engtin nge doctor-te hian hei hi an hriat chian?

Erythromelalgia hriat theihna tur test bik a awm lo . I doctor chuan i symptoms a ngaithla ang a, symptom i neih hunah a enfiah ang che a, chutih laia i thlalak te chu a en ang. Sometimes , test neih a ngai a, chu chu condition dang tihbo nan leh i symptoms te chhui chian lehzual nan. Heng test thenkhat hi chu:

• Thisen test: Natna dang awm leh awm loh enfiah thin ang che.
• Genetic testing: Genetic type chungchangah rinhlelhna a awm chuan a kaihhnawih mutations a awm leh awm loh enfiah thin ang che.
• Thermography: Hei hi vun hmun hrang hranga temperature inthlak danglam dan dik taka tehna atana camera bik hmanga test a ni.
• X-ray emaw imaging study dang emaw: A tul chuan hengte hi tih theih a ni bawk.

Tuiah ice dah hi a pawi em? Hei hi a dik lo!

Inflammation a lo thlen chuan, a natna kut emaw, ke emaw chu ice water bawm chhungah dah duhna i nei mai thei . Chhawmdawlna a pe nghâl thei a, mahse hei hi thil ṭha tak a ni lo tak zet a ni . Dik tak chuan, ice water hman hian erythromelalgia symptoms chu a tizual thei tak zet a ni . Chu mai pawh ni lovin, vun hliam a dam loh theihna a sang hle a, a châng chuan cell thihna (necrosis) dinhmun pawh a awm thei bawk . Hengte pawh hi enkawl harsa tak a ni. Chuvangin eng ang pawhin inflammation awm mahse ice water hmang suh.

Chuti a nih chuan hei hi eng enkawlna nge ni ang?

I tana enkawlna tha tur chu i erythromelalgia awm chhan ah a innghat ang.

• Secondary (secondary erythromelalgia) , natna dang avanga lo awm tihna a nih chuan, i natna hnuaia awm chu enkawl a nih veleh i symptoms pawh a tha thei bawk
• Primary erythromelalgia -ah chuan damdawi hman a ni ber.

Eng ang damdawi nge hman thin?

Damdawi ei hi (Erythromelalgia) enkawlna atana hman tlanglawn ber a ni. Heng damdawi tam tak hi a takah chuan natna dang atan hman a ni. Mahse, (Erythromelalgia) natna lanchhuahna control-na kawngah pawh an thawk tha hle.

Entirna thenkhat:

• Anticonvulsants: gabapentin emaw carbamazepine emaw ang chi.
• Antidepressant: amitriptyline emaw venlafaxine emaw ang chi.
• Antihistamines: cetirizine emaw diphenhydramine emaw ang chi te.
• Aspirin: Puitling tan chauhHei hi pek a ni. Naupang tête hnena pek hi a tha lo.
• Thisen sang damdawi: Thisen kal chakna tipung emaw tihhniam emaw.
• Prescription painkillers te pawh a awm bawk.

Eng enkawlna dang nge tih theih ang?

Damdawi ei bakah hian enkawlna dang a awm a:

• Lidocaine infusions: Hei hi natna tidamtu a ni. Kut chhunga vein pakhatah inject a ni.
• Nutritional supplement: Entirnan magnesium leh alpha-lipoic acid te hi a ni.
• Pain management therapies: Hei hian nerve block ang chi thilte a huam a ni.
• Topical medications: Cream te hi vunah hnawih thin a ni.

Damdawi tel lova hahdamna hmuh theih dan a awm em?

Ni e, damdawi bakah hian he inflammation leh natna tihziaawmna tur hian nangmah ngeiin i tih theih tur thenkhat a awm a:

• A natna hmun chu chawi sang rawh: Ke a nih chuan a chungah pillow dah la.
• Hmun lum takah chawlh hahdam rawh: Entirnan, tile floor ang maia hmun lum chunga mu.
• Fan hmang rawh.
• First-aid gel pack lum tak tak, towel te tak tea khuh chu vunah dah la. (Ice direct-a hnawih loh tur!)

Hei hi a thlen loh nan a veng thei ang em? (Invenna) 1.1.

Erythromelalgia venna atan hian kan tih theih tam tak a awm lo tak zet a ni. Mahse, i chhungkuaa mi tu emaw chuan he natna hi a nei a nih chuan i fa pawhin a vei theihna tur genetic test i nei thei a ni.

He natna vei tan hmalam hun eng nge ni ang? (Prognosis) tih a ni.

Flares hian i nunphung a nghawng thei a ni . Mahse, an thihpui tam lo hle . Mi tam zawk chuan nun pangngaiin an hmang thin. Hna an thawk a, an zin kual a, hobby an ngaina hle bawk. Amaherawhchu, a chang chuan enkawlna a hlawhtlin loh chuan nitin hna thawh a harsa thei hle.

Nitin nun hi (Erythromelalgia) vei hi engtin nge a awm?

He natna vei te sawi dan chuan heng symptoms te nen hian rilru natna engemaw zat a awm a:

• Vun chu a tight hle niin a lang: i thawmhnaw hak chuan a rawn hnim che ang maiin.
• Mei alh ang maiin, a nih loh leh tui lum a tla ang maiin: tuar theih loh khawpa kang.
• Razor blade hmanga tan ang mai: natna na tak.
• Ni kang nasa tak ang mai: Ni zung nasa tak avanga i vun a kang avanga i natna ang chi.

Hetiang thil nena nunpui hi thil awlsam a ni lo a, mahse hmachhawn dan tur a awm.

Flare awm lo tur leh nuam taka awm theih nan eng nge i tih theih ang?

I nunphungah hian inthlak danglamna tenau tlemte i siam thei a, chu chuan heng flare te hi a lo awm fo thin tih tihtlem nan leh a lo awm hunah pawh i hlim zawk thei ang.

• Symptoms tipung thei ei leh in te pumpelh: I ei leh in tur fimkhur rawh. Taksa lumna tisangtu thil, caffeine leh eitur rimtui tak takte lakah hlat rawh.
• Exercise i thlan dawnin fimkhur rawh: Vawi khata i taksa lumna tisang lutuk lo tur exercise nem tak thlang rawh. Entirnan, tui chawi te, yoga te, Tai Chi te hi a tha hle.
• Hmun lum takah awm tum ang che: I chhuah chuan khaw lum a tlem laiin kal la, zing lam ang bawkin.
• Inbual hunah fimkhur rawh: Tub tub-a inbual ai chuan shower la rawh. I vun tichhe lo turin tui lum hmang la. Bathroom chhungah window hawn theih chuan a tha zawk.
• Ruahman lawk rawh: Zanah natna lan chhuahna a awm fo avangin, nitin hna pawimawh tak takte chu ruahman rawh.
• Mut hmain inbuatsaih rawh: I khum bulah fan emaw AC te tak te (portable air conditioning unit) dah la. A theih ang anga khum puan te tak te hmang la, a chungah blanket vuah lovin mu rawh.

Rilru hriselna lam pawh ngaihtuah a ngai em?

Aw ni e. Hetiang natna hmuh tur awm lo tak nena nun hian mi thenkhat chu mahni chauha awm leh tanpui ngai lo anga inhriatna a siam thei a ni . Chhungte, \hiante, leh doctor-te pawhin he natna hi an hrethiam lo niin an ngai mai thei. Hetiang hunah hian a beidawng thei a ni .

Mahse, nangmah chauh i ni lo. Erythromelalgia vei tan online-ah support group a awm a. Anmahni i zawm hian nangmah ang bawka tawn tawh midangte nen in inbia thei a, an thil tawn atang hian inzir thei bawk ang che. Chu chuan chakna leh thlamuanna nasa tak a pe ang che.

Chuvangin, hriat reng tur hnuhnung ber (Take-Home Message) .

Erythromelalgia hi a awm lo hle a, mahse a lungchhiatthlak hle thei a, tuar theih loh khawpa kut leh ke a kang leh a sen a ni.

Lungngai suh! Hemi atan hian enkawlna chi hrang hrang a awm a. A châng chuan enkawlna hmanga a lan chhuah dân chu thunun vek a harsa hle a, mahse mi tam tak chuan he natna hi neiin nun hlawhtling, hlim takin an hmang a ni.

A pawimawh ber chu doctor nen i symptoms chungchang sawipui la, diagnosis dik tak neih a, i tana tha tur treatment tan tir hi a ni. Tin, i nunphungah pawh inthlak danglamna tenau te siam a pawimawh a, chu chu symptoms a zual zel loh nan i bei thin. Chak takin awm rawh!

` Erythromelalgia, vun natna, vun sen, natna khirh tak, a lan chhuah na zual, ke na, kut na