I naute white matter hi a chhia em? Periventricular Leukomalacia (PVL) chungchang hi han sawi ila

I naute hi a hun hmaa piang a nih chuan, emaw, hmasawnna lama harsatna i tawk a nih chuan, hei hi i tan a pawimawh hle. A chang chuan nausen thluak hmun te te te hi a chhe thei bawk. Hei hi periventricular leukomalacia, a tawi zawngin PVL an tih a ni. Hei hian hlauthawng suh, chipchiar takin sawi ila.

PVL chu eng nge ni? A awlsam zawngin i hrethiam ang u.

Okay, PVL (Periventricular Leukomalacia) tih hi eng nge a nih tih i en ang u. I hria em, kan thluak hi taksa peng hrang hrang, a buaithlak hle a, mak tak mai a ni. A peng hrang hrang a nei a. A pawimawh ber pakhat chu ‘white matter’ hi a ni. Hei hi kan thluaka ‘wire’ system ang a ni. Brain cells, chu chu nerve cells (neurons) , chu an inbiak tawn a, thluak atanga spinal cord thlengin an inbiak a, he ‘wire’ system, chu chu (white matter) hmangin thu an inthleng a ni.

Chuvangin, i naute hian periventricular leukomalacia a neih chuan he white matter hmun thenkhat hi a chhiat tihna a ni . He chhiatna hian naute motor skills-ah hmasawnna a tikhawtlai thei a, chu chu an taksa an thunun dan a ni a, chubakah an intellectual skills, chu chu thil an ngaihtuah dan leh an hriatthiam dan a ni. Chu mai pawh ni lovin, he natna vei naute pawhin cerebral palsy tih natna an vei theihna a sang hle bawk.

He hming sei tak ‘periventricular leukomalacia’ hi tlem han then ila, hrethiam ila. Tichuan a chiang zawk ang:

• ‘Peri’ tih awmzia chu ‘a chhehvel’ emaw ‘a chhehvel’ emaw tihna a ni.
• ‘Ventricular’ tih hian thluak chhunga tuiin a khat cavities a kawk a ni. Heng ventricles te hi kan ti bawk .
• ‘Leuko’ tih awmzia chu ‘var’ tihna a ni. Hei hian thluaka thil var (white matter) a kawk a ni.
• Malacia hi tissue chhiat avanga tissue ‘softening’ danglam tak a ni. Hei hi Doctor ten test hmangin an hmu thei a ni.

Chuvangin, a awlsam zawngin, periventricular leukomalacia hi i naute thluaka ventricles chhehvela thil dum (white matter) tihchhiat a ni a, chu chuan a ti nem a ni.

Nausen naupai kar 32 hmaa piang, a nih loh leh nau piang hma lutuk te hi PVL vei theihna chance sang ber an ni. He hlauhawmna hi an naupai kum a tawi deuh deuh a, a nih loh leh an pian hma lutuk chuan a sang chho zel a ni.

I naute hi a hun hmaa piang a nih chuan i rilruah zawhna leh hlauhna sangkhat zet i nei tih ka hrethiam. I naute hriselna leh hmalam hun tur ngaihtuah tam tak i nei ngei ang. Mahse, i naute medical team te hi he dinhmun hrethiam tura pui turin an awm reng a, nang leh i chhungte tanpui leh kaihruai turin an awm reng tih hre reng ang che.

Naute PVL vei hian eng symptoms nge a neih?

Naute hian PVL a vei em tih chu anmahni en mai mai hian hriat nghal a harsa tlangpui. Chu chu pawn lam chhinchhiahna langsar tak tak a awm lo thei tihna a ni . Mahse hun kal zelah PVL hian a hnuaia symptoms pakhat emaw a aia tam emaw a thlen thei a ni. Hengte hi ngaihven reng a pawimawh:

• Motor delays: Thut harsa, crawling, kea kal, emaw taksa peng dik taka hman harsa. Entirnan, naute thenkhat chu an kawr chu uluk taka vawn tir an slow zawk thei a, naute dang aiin an roll over emaw, an thut emaw pawh an slow zawk thei bawk.
• Cognitive delays / (Intellectual disability): Hriatthiamna leh zir thiam lohna. Hei hian thu sawi tlai emaw, thupêk awlsam tak hriatthiam harsa emaw ang chi thilte pawh a huam thei a ni.
• Balance lama harsatna: Balance vawn that harsatna.
• Mit leh hriatna lama harsatna nei.
• Spastic quadriplegia (ke pali-a nghet lo, a dik zawk chuan, ben emaw, inzar emaw harsa) emaw diplegia ( ke pahnih chauh a nghet) – hengte hi cerebral palsy chhinchhiahna pawh a ni thei bawk.

Heng symptoms te hi kum 2 an tlin veleh a lang tlangpui a, hriat reng tur pakhat chu PVL hi naute hrang hrangah a inang lo. Mi zawng zawng a nghawng dan inang vek lo.

PVL awm chhante chu engte nge ni?

PVL awm chhan ber chu naute thluak hian thisen emaw oxygen emaw a hmuh tlem vang a ni , a pian hma emaw, a pian hnu emaw pawh nise. Ngaihtuah teh, kan thluak cell te hian nung leh hnathawh theih nan oxygen leh nutrients an mamawh a ni. Chûngte chu a ṭhat loh chuan chu cell-te chu a chhe vek a ni.

Sawi tawh ang khan naute piang hma (preterm) , emaw, naupai kum atana nau piang (naupai kum atan te te) te hi an hlauhawm ber a ni. Hei hi a chhan chu an thluak a la thang chho zel a, chu chuan an nalh em em a ni. Chuvang chuan an chhiat awlsam zawk.

PVL nena inzawm thil dang thenkhat chu:

• Thluak chhunga thisen chhuak (Intraventricular hemorrhage) .
• Naupai laiin amniotic sac a hun hmaa a rupture .
• Naupai laiin nu nausen pum chhunga natna hrik a awm .

Doctor-te hian engtin nge PVL hi an hriat theih?

I naute hi a hun hmaa piang a nih chuan doctor-te chuan i naute dam chhung ni leh kar hmasa berah special screening test engemaw zat an ti ang.Hengte hi thluak chhiatna eng pawh hriat hmasak nan tih a ni. A châng chuan naute hian a natna lan chhuahna a lan chhuah hma loh chuan test hi tih a ni lo thei a, chu chu a ṭhan chhoh zel loh vang a ni.

PVL dik taka hriat theihna tur test engemaw zat a awm a:

• Brain MRI scan: MRI (Magnetic Resonance Imaging) scan hian i naute thluak thlalak chiang tak, chipchiar tak tak a la thei a. Hei hian thluaka white matter chhiatna pattern a zawng thei a, hei hi PVL nen a inmil a ni.
• Lu ultrasound: Ultrasound hian sound wave hmangin taksa peng hrang hrang thlalak a siam a. Hei hi PVL hriat theihna atana hmanraw hman a ni bawk. I naute hian PVL a neih chuan ultrasound hian thluaka white matter-ah inthlak danglamna a lantir thei a ni.

PVL enkawlna tur engte nge ni?

Tunah hian PVL hi direct treatment leh cure a la awm lo . PVL avanga thluak chhiatna hi a awm reng a ni . Mahse, lungngai suh. I naute natna lan chhuah dan control thei tur leh an nunphung tichangtlung thei tur therapies hrang hrang a awm a . Hengte hian i naute tan hahdamna nasa tak a pe thei a ni. Chûng zîngah chuan:

• Physical therapy: Hei hian i fate chu an chezia, a nih loh leh an taksa thunun theihna tur a siam \ha thei a ni. Hei hian fine motor skills (pencil vawn, button button, pheikhawk hrui khih) leh gross motor skills (thut, khup, kal, leh tlan ang chi) te a huam vek a ni. Naupangin a naupan lai a\anga hetiang therapy hi an dawng a nih chuan eng angin nge a chak theih ang tih han ngaihtuah teh!
• Occupational therapy: Hei hian naupang chu nitin hna thawh dan thar, bungrua hmanga ei leh inchei te, mahni chauha tih dan tur a zir theih nan a pui thin. Hei hi naupang zalenna tihpun nan a pawimawh hle .
• Speech therapy: I fain midang nena inbiakna emaw, inbiak emaw a harsat chuan he therapy hian a pui thei a ni. Thusawi chhuah dan, sentence siam dan, leh hriatthiam dan ang chi thilah a pui thei a ni.
• Assistive devices: Wheelchair, walker, leh crutches te ang chi assistive devices te hian naupang chu a kal theihna tur, a nih loh leh a kal kual theihna a tipung thei a ni. Chûngte chuan naupang chu amahin thil tam tak a tih theih nân a ṭanpui thei a ni.
• Damdawi: Damdawi thenkhat hian taksa ruh (muscle spasticity) a thlen thei.Anni hian symptoms control-naah an pui thei a, chu chu i fain a neih theih damdawi lam thil dang (e.g., epilepsy) control-naah an pui thei bawk. Hengte hi Doctor thurawn hnuaiah chauh hman tur a ni.
• Social services leh zirna lama tanpuina: I fa hian sikul hnathawh emaw, nitin nun kawng dang emaw-ah tanpuina dang a mamawh mai thei. Social worker, educational specialist, leh professional dangte chuan heng ang chi support service leh tanpuina hi an pe thei a ni.

A pawimawh ber chu, heng zawng zawng hi naupang chu a tha thei ang bera, a nuam thei ang bera, a hlim thei ang bera nunpui tura tih a ni.

PVL hi kan veng thei ang em?

PVL venna tur hian direct- a tih theih a awm lo tak zet a ni. A tum ber chu nau neih hmaa nau neih loh tum hi a ni . Hei hi a chhan chu preterm birth hi PVL vei theihna tur risk factor lian tak a nih vang a ni. Nausen piang hmaa neih hlauhawmna i neih chuan, nau piang hmaa nau piang tur specialised medical facility awmna hmuna kal hian he natna hi eng emaw chen chu a veng thei a ni.

Hun hmaa nau neih hi ven theih reng ni lo mah se, naupai laiin hengte hi i tih hian i hlauhawmna chu i tihtlem thei a ni:

• For regular prenatal care , chu chu clinic-ah kal la, doctor pan rawh.
• I hriselna dinhmun, zunthlum , thisen sang, a nih loh leh lungngaihna ang chite chu enkawl rawh.
• Meizial zu te, zu emaw, ruihhlo dang emaw hman loh vek tur a ni.
• Chaw tha tak tak ei rawh .
• Naupai laiin hrisel takin taksa rihna tihpun.
• Nang leh i nausen piang lai tichhe thei natna hrik lakah inveng rawh.
• A theih ang anga stress tihziaawm tum la, rilru hahdam takin awm rawh.

Ka fa hian PVL a nei a nih chuan nakin hun atan eng nge ka beisei ang?

PVL vei naupang zawng zawng hi a inang vek lo. Hei hian naupang pakhat chu naupang dang nen an danglam thei hle tihna a ni . Naupang tana prognosis/outlook hi thil engemaw zatah a innghat a ni. Entirnan, naupangin thluak a tihchhiat nasat dan leh hriselna lama harsatna dang a neih dan te.

Naupang thenkhat chuan symptoms na lo tak tak an nei thei , a nih loh leh symptoms nei lo tak tak an nei thei bawk. Nun pangngaiin an khawsa thei a ni. Mahse, mi dangte chuan taksa leh/ emaw rilru lama harsatna lian tak tak an nei thei a ni . I doctor chuan i nautein chhiatna a tawh dan leh a thanlenna a nghawng theih dan tur ngaihtuahna engemaw zat a pe thei ang che.

Ngaihtuah teh, a châng chuan naupang chu a naupan laiin harsatna lian tak angin a lang thei a, mahse enkawlna dik tak a neih chuan anmahni duhthusam nen dinhmun ṭha zawkah an lut thei a ni. Chuvangin, beiseina bansan suh.

I naute hian engtin nge a nghawng dawn tih chiang taka sawi theih a ni lo . I tih theih ṭha ber chu PVL zirchiangtu leh enkawltu specialist-te biak hi a ni. I fa chu a lo upat deuh deuh chuan, an mamawh ang zela an enkawlna siam theitu specialist team-te ṭanpuina chu nasa takin a hlawkpui ang.

PVL vei dam rei zawng chu engzat nge ni ang?

Hei hi nu leh pa tam tak ngaihtuahawm tak a ni. PVL vei naute tam zawk hi chu nun pumhlum nei tura beisei theih a ni . Mahse, i naute chu thluak chhiatna nasa tak emaw, damdawi lam harsatna dang lian tak emaw a neih chuan , an dam rei zawng chu a rei deuh thei a ni. An dam rei zawng tichhe thei thil thenkhat chu:

• Ei leh in harsatna.
• Taksa che thei lo emaw, che thei lo emaw.
• Thâwk lama harsatna nei.

Hengte hian mi zawng zawng a nghawng lo a, mahse hetiang thil hi fimkhur a tha. Hemi chungchang hi i doctor nen sawiho rawh.

Chuvangin, he thil atang hian kan hriat reng tur thenkhat hi han thlir ila? (In lama hruai tur thuchah)

Nu emaw pa emaw hian naute a pian lai leh a pian hnuah pawh rilru natna tam tak a paltlang thin a ni lawm ni? A bik takin naute chu a hun hmaa piang emaw, NICU (Neonatal Intensive Care Unit) -a dah a ngai emaw a nih chuan, chutih laia phurrit i hriat chu thuin sawi harsa tak a ni. Tichuan, doctor leh test-te nena ni tam tak leh kar tam tak i hman avangin i ngaihtuah aia tam i hmachhawn a ngai mai thei. Engkim hi thunun theih loh ang maiin i inhria thei a, nangmah pawh i mawhpuh thei bawk.

Mahse, he periventricular leukomalacia (PVL) an tih dinhmunah hian tumah mawhphurtu an awm lo . A chhan chu zirchiangtute pawhin an hre chiang lo. Thil pawimawh dang chu PVL hian naupang tin a nghawng dan a inang lo . Chuvangin, i fate a lo thanglian zel angin damdawi lam enkawlna tha ber, thurawn leh puihna tha ber pe turin i fa medical team te nen thawhhona tha tak neih a pawimawh hle.

He zinkawngah hian nangmah chauh i ni lo tih hre reng ang che. I doctor te, nurse te, therapist te bakah i chhungte leh i thiante pawhin an thlawp vek che a ni.

Tin, mahni in enkawl a pawimawh hle bawk . I chak leh hrisel hunah chauh i fa chu i enkawl tha thei ang. I lungngaih apiangin i rintlak tak chu biak thin ang che. A tul chuan counselling zawng hreh suh. I fa tana i inpekna hi a hlu hle.

`Periventricular leukomalacia, PVL, thluak chhiatna, nau piang hma, hmasawnna tlai, cerebral palsy, naupang hriselna