I naute ruhro hi a mak em? Spina Bifida chungchang hi chipchiar takin sawi ila!

He khawvela naute thar a lo luh hian nu leh pa zawng zawng duhthusam ber chu fa hrisel neih hi a ni. Mahse a chang chuan naute hi hriselna lama harsatna tenau tak tak, kan ngaihtuah phak loh pawh neiin kan piang thei a. Vawiin hian nausen thenkhat pian tirh laia an ruhro, chu chu an hnungzang lama lo awm thin natna bik kan sawi dawn a ni. Doctor te chuan hei hi Spina Bifida an ti a . A hming hi a mak deuh viau nachungin hei hi hriat chian a pawimawh hle.

Spina Bifida hi eng nge ni tak tak?

A awlsam zawngin, Spina Bifida hi neural tube defect a ni . Tunah chuan neural tube chu eng nge ni tih i ngaihtuah mai thei. Ngaihtuah teh, naute naupai kar hmasa berah hian naute thluak leh ruhro chu ruhro hnuai lama kal tube te tak te atang hian a lo piang tan thin. Hei hi neural tube an ti a . He tube hi a khar tha lo a nih chuan ruhroah hian gap te tak te, emaw, hawnna emaw a lo awm thin. Chu chu spina bifida kan tih chu a ni. He gap hian vertebrae, spinal cord leh anmahni nena inzawm nerve te a nghawng thei a ni. Thil na tak tak thenkhatah chuan he gap atang hian fluid-filled sac a rawn chhuak thei a ni.

Spina Bifida chi hrang hrang a awm em?

Ni e, he natna hi chi thum a awm a. Pakhat chu a dang nen a danglam vek a ni.

1. Meningocele: Hei hi ruhro (spinal cord) kawngkhar atanga chhuak, tuiin a khat sac a ni. Mahse, he bawm hian ruhro (spinal cord) a pai lo. Hei hi spina bifida chi khat zingah chuan a tam lo ber a ni.

2. Myelomeningocele: Hei hi Spina bifida chi khat na ber leh a awm tam ber a ni. Chutiang a nih chuan, a hawnna atanga chhuak fluid-filled sac hian spinal cord thenkhat leh nerve thenkhat a nei a. Hei hian naute hian harsatna hrang hrang a neih theihna a tipung a ni.

3. Spina Bifida Occulta: Hei hi he natna chi hrang hrang zingah hian a nasat ber leh a tam ber a ni. Hetah hian ruhro (spinal cord)-ah hian gap tlemte awm mah se, sac hmuh tur a awm lo. A tam zawkah chuan heng mite hian symptoms an nei lo. A chang chuan chhan dang avanga spine X-ray lak a nih chuan accident-a hmuhchhuah a ni.

Hetiang natna lan chhuah dan hi engte nge ni?

Mi tin hian natna lan chhuah dan a inang lo thei. Anni chu ruhro (spine) chhunga gap lian zia, khawiah nge a awm tih leh eng chi spina bifida nge a nih tih ah an innghat a ni. A lan chhuah dan tlangpui thenkhat chu:

• Hnung lam natna.
• Kea chak lohna, rilru hahna emaw, hriatna hloh emaw.
• Bowel leh bladder hnathawhna lama harsatna (e.g., incontinence).
• Nausen thenkhat chuan vun mak tak tak, sam hring hring, emaw, a gap awmna hmunah hian bump te tak te (a bik takin Spina Bifida Occulta-ah chuan) an hmu thei.

Mi tu emaw chu case na lo tak tak nei chuan symptoms nei lovin a nung thei mai thei.

Engvangin nge hetiang hi a lo awm? Risk factors te chu engte nge ni?

Spina bifida awm chhan dik tak hi hriat a la ni lo , mahse doctor-te chuan genetics leh environmental factors inzawmkhawm avanga lo awm niin an ngai. Chumi awmzia chu nu pum chhunga a lo than chhoh tirh lamah neural tube hi a lo thang tha lo thei tihna a ni.

Risk factor thenkhat chu hmuhchhuah a ni tawh bawk. Naute i beisei a nih chuan hengte hi hriat chian a tha:

• Folic Acid tlakchhamna: Naupai hriselna atana pawimawh vitamin folic acid ei tlem hi a hlauhawmna lian tak a ni.
• Damdawi thenkhat: Epilepsy ang chi natna atana ei thin antiseizure damdawi thenkhat ang chi thil.
• Nu hriselna dinhmun: Nu hian zunthlum emaw thau lutuk emaw ang chi dinhmun a nei a .
• Naupai tirh laia khawsik sang emaw taksa lum lutuk emaw: Hei hi hot tub hman fo ang chi thil vang a ni thei.
• Chhungkaw chanchin: Chhungkaw zinga mi tu emaw hian hetiang natna hi a nei a nih chuan, emaw, a hmaa naupangin neural tube defect a neih chuan a hlauhawmna chu a sang deuh hlek a ni.

Heng risk factors te hi i doctor nen in sawi dun thei a, naupai hrisel tak neih theihna tura i mamawh thurawn i dawng thei bawk.

Hei hian eng harsatna dang nge a thlen theih?

Complication hrang hrang a awm thei a, a bik takin myelomeningocele ang chi natna khirh tak takah chuan. Chung zingah chuan:

• Kea kal harsatna: Naupang thenkhat chuan kea kal harsatna an nei thei a, an kal thei lo thei bawk.
• Hydrocephalus: Hei hi thluak chhunga cerebrospinal fluid awmkhawm avanga lu a lian chhoh dan a ni. Hei hian a tui tam lutuk chu lakchhuah a, shunt dahna tur operation a ngai mai thei.
• Zirna lama harsatna: Motor skills , hriatrengna, leh harsatna chinfel dan ang chi thilte chu a nghawng thei a ni.
• Paralysis: Ke chu a paralyze vek thei.
• Scoliosis: Spine hi a sir khatah a inher thei.
• Tethered spinal cord: Hei hi ruhro (spinal cord) chu ruh chhungril lama inzawm a nih chuan a ni. A tlangpuiin a thlawna hman tur a ni. Hei hian zai a ngai bawk.

Hetiang taksa lama harsatna neia nun hian naupang a lo puitlin chuan rilru hahna engemaw zat a thlen thei bawk. Chuvangin mental health counselor hnen atanga tanpuina dil emaw, fa inang nei nu leh pate tan support group-a tel emaw hi a pawimawh hle.

Spina Bifida hian puitlingte engtin nge a nghawng?

Spina bifida vei puitlingte hian naupang aiin harsatna hrang hrang an tawk thin. Entir nan:

• Tar chakna (muscle chakna tlahniam, flexibility tlahniam, taksa chakna tlahniam, sensory abilities tlahniam).
• Tethered spinal cord a lo awm leh theihna.
• Constipation emaw pum na emaw.
• Ruh lama harsatna (e.g. osteoporosis , arthritis a lo awm hma , hnungzang natna a pung).
• Vun hriatna hloh, thisen kal tha lo, thawk hah thei lo, hliam awlsam, hliam dam rei lutuk.
• Latex allergy: Latex allergy a ni.
• Thisen sang a sang.
• Sleep apnea ( mut theih lohna ( obstructive sleep apnea leh central sleep apnea ).
• Thau lutuk.

Spina bifida vei hmeichhiate chu naupai thei mah se, naupai hi a buaithlak thei a, chuvangin doctor thurawn zawm a pawimawh.

Engtin nge doctor-te hian he natna hi an hriat theih?

A tam zawkah chuan he natna hi naupai laiin hriat theih a ni (prenatal diagnosis) . Chumi atana hman tur test te chu:

• Alpha-fetoprotein (AFP) thisen test: Hei hi nu thisen test a ni.
• Amniocentesis: Naute chhehvela amniotic fluid sample lakna test a ni.
• Ultrasound scan: Hei hian naute ruhroah thil danglam a awm leh awm loh a enfiah thei a ni.

I naute hian myelomeningocele ang chi natna a vei tih hmuhchhuah a nih chuan doctor-te chuan i naute ruhro chhe tawhna hmun a chhiat belh loh nan C-section neih a rawt thei ang.

Naute a pian hnuah pawh a natna lan chhuah dan a zirin hriat theih a ni. Imaging test CT scan , MRI , emaw ultrasound emaw hmangin ruh leh ruhro enfiah theih a ni bawk.

A châng chuan, spina bifida occulta ang chi natna khirh tak takte hian natna lan chhuahna a nei lo thei a, puitlin thlengin hriat lohvin a awm thei bawk. A chhan dang vangin spinal examination neih laiin accident-in hmuhchhuah a ni fo.

Enkawlnate chu engte nge ni?

Spina Bifida hi a dam kim thei lo.Mahse, natna lan chhuah dan control thei tur leh naupang nun pangngaia nunpui thei tur enkawlna tam tak a awm.

• Surgery: Surgery hi ruhro (spinal cord) chhunga khur awm chu khar nan an ti thin. Natna khirh tak, myelomeningocele ang chi ah chuan ram thenkhatah chuan naupai laiin he surgery hi tih thin a ni. Amaherawhchu, naute pian atanga ni reilote chhungin tih a ni tlangpui. Sac lo chhuak chu lakchhuah a ni a, a khur chu khar a ni a, hliam chu a inzawm khawm a ni. Surgery pawh hi tethered spinal cord an tih condition atan pawh an ti thin .
• Damdawi: Damdawi hi zun leh ril lama harsatna, natna, leh a lan chhuah dan dangte tan pek thin a ni.
• Physical therapy leh occupational therapy: Hengte hian naupangte chetna, chakna leh nitin hna hrang hrang mahni inrintawkna neia a thawh theihna a tichak a ni.

Medical team hian naupang mamawh ang zela enkawl dan tur ruahmanna an siam dawn a ni.

Spina Bifida vei naupang chu a kal thei ang em?

He natna hian kea kal a nghawng dan hi spinal stenosis awmna hmun (a sang emaw a hniam emaw) leh a natna nasat dan azirin a inang lo. Stenosis a san poh leh, kawng bulah ang chi, mahni chauha kal theihna a tlem zawk. Mahse, stenosis a hniam zawk a nih chuan, hip hnaih ang chiah hian, support engemaw zat (e.g., braces, walker ) nen i kal thei mai thei. A nasat loh chuan kea kal hi a nghawng lo thei lo.

Mobility device, wheelchair leh walker te hian nitin hnathawhna hmun nuam zawk leh mahni inrintawkna nei zawka an tih theih nan a pui thei a ni. Medical team hian heng devices te hi thlang turin an pui thei che a, him taka hman dan tur an zirtir thei bawk che a ni.

Nu leh pa angin eng nge ka beisei ang?

Naupang tin hi kan danglam vek. Hei hi Spina Bifida vei naupang tan chuan a dik hle. I fa a lo puitlin hunah hengte hi hre reng ang che:

• Hliam: Naupang taksa peng hrang hrangah hliam tenau emaw, hliam emaw a awm lo thei. Chuvang chuan naupang taksaah hliam a awm leh awm loh enfiah fo a pawimawh.
• Mobility: I fa chu him taka a kal theih nan tanpuina engemaw zat a mamawh mai thei. Wheelchair emaw, kea kal emaw ang chi thilte hian mahni inrintawkna nei zawk turin a pui thei a ni.
• Toilet training: I fa chuan zun emaw, ek chhuah emaw a ngai lo mai thei. Hei hian toilet training chu a ti harsa thei hle. A tul lova thawmhnaw hnim loh nan leh i fate inrintawkna tihchangtlun nan doctor-te hnen atangin thurawn i la thei a ni.

I fain spina bifida a vei a nih chuan an medical team te nen heng zawng zawng hi sawipui rawh. I zawhnate chu an chhang thei a, i mamawh resources nen an inzawm tir thei bawk.

Spina Bifida hi ven theih a ni em?

A ven kim thei lo nain, naupangin spina bifida a vei theihna tur tihtlem dan kawng engemaw zat a awm a:

• Folic acid tling tawk neih: Hei hi a pawimawh ber a ni. Naupai i tum a nih chuan i naupai hmain thla khat tal nitin folic acid pill i ei tan tur a ni. Tin, naupai thla thum chhunga ei chhunzawm zel a pawimawh hle bawk. I doctor hnenah engzat nge i mamawh tih zawt rawh.
• Hot tub emaw sauna emaw hman loh tur: Naupai lai hian i taksa lum lutuk loh tur.
• Diabetes ang chi condition controlling: Zunthlum i neih chuan naupai hmain control tha hle ang che.
• Damdawi chungchang i doctor nena inbiakna: Damdawi eng emaw i ei a nih chuan i naupai hmain doctor nen inbia ang che. A him zawk pawh an pe thei mai thei.

Khawiah nge he thu hi ka hriat belh theih ang?

Condition dang tam tak ang bawkin Spina Bifida chungchang hriat chian leh tualchhung support group nena inzawmna neih hi natna enkawl dan tha ber a ni a, harsatna dang lo thleng tur venna kawng tha ber a ni. Heng hmunte hi i doctor hnenah i zawt thei ang.

A tawp berah chuan heng thilte hi hre reng ang che (Take-Home Message) .

I naute piang thar hian Spina Bifida a vei tih i hriat chuan, chu hun hlimawm chu lungkhamna leh rinhlelhnain a khat nghal thei a ni. I rilruah zawhna maktaduai khat zet a tlan lut thei a, khawi aṭanga ṭan tur nge tih pawh i hre lo mai thei.

Mahse, lungngai suh. Nangmah chauh i ni lo. He thuthang hi a harsat theihzia i medical team chuan an hrethiam a ni. I kalna apiangah i bulah leh i naute bulah an awm ang a, i mamawh enkawlna an pe ang che.

I fate chu a hmaa hriat chhuah leh enkawl vat chuan nun ṭha zawk a neih theih nân kawng thui tak a zawh tih hre reng ang che. Folic acid pawimawhzia midangte zirtir rawh. A chung berah chuan i fa chu hmangaihna leh thlawpna tam tak pe rawh.

` Spina bifida, spinal cord defect, neural tube defect, folic acid, piansualna, myelomeningocele, naupang hriselna