Kei a koe anō te whakapae iti kei a koe te 'Acute Hepatic Porphyria', te AHP rānei e kīia nei mō te poto? Ina whakaarohia, he mea noa te manukanuka me te mataku, te kore e mōhio he aha te mahi i muri mai, ko wai hei tirotiro. Nā te mea he ahua uaua tēnei, ehara hoki i te mate e kōrerohia pinepinetia ana i roto i tō tātou whenua. Koia te take he uaua ki te kimi kōrero mōna. Engari kaua e manukanuka, me kōrero mārama, me ngāwari hoki tēnei.
Me pēhea te hanga i tētahi tātaritanga tika?
Ko tētahi o ngā wero nui o te AHP ko te tino ōrite o ōna tohu ki ērā o ngā mate maha atu. Hei tauira, ka kitea te mamae nui o te puku, te ruaki, te whakapairuaki, te ngoikore o ngā waewae, me te ngoikore o ngā uaua i roto i te AHP. Inaianei, e hia atu ngā mate ka puta ai ēnei tohu? Nō reira, he uaua ki te whakaaro tonu ko te AHP te take o ēnei. I ētahi wā ka puta ēnei tohu ki ngā wāhanga kāore e pā ana ki te tinana, nō reira ka roa te wā ka mōhio ai he wāhanga katoa ēnei o te mate kotahi.
Ko te mea nui , he tino onge te AHP. Nō reira, kāore pea i te maha ngā wheako o ngā tākuta katoa ki tēnei mate. Ehara i te he o te tākuta, engari ko te āhua o te mate.
I te nuinga o te wā, ka taea e tetahi tākuta te tūtohu i ngā whakamātautau taketake (whakamātautau mimi me te toto) hei tautuhi i te AHP. Heoi, hei tirotiro i aua pūrongo whakamātautau, hei mārama ki ō rātou hua, me te whakatau i te tautuhi "Āe, ko te AHP tēnei," me āwhina pea koe e tetahi tākuta tohunga . Ka tukuna koe e tō tākuta whānau ki tetahi tākuta tohunga, pēnei i:
- Tohunga toto
- Tohunga kai
- Tākuta Whānui
Nō reira, ko tāu mahi tuatahi he kōrero tuwhera ki tō tākuta whānau mō ō tohumate.
Kia rite tātou pēnei i mua i te haerenga ki te tākuta.
He iti noa te wā e noho tahi ai koe me te tākuta. Hei whakautu i ō pātai katoa, hei hoatu hoki i tētahi tirohanga mārama ki te tākuta mō tō āhua i roto i taua wā poto, he mea nui kia whakarite koe i a koe anō. Anei te huarahi hei whakarite.
| Ngā mea me mahi e koe | He aha te mea nui? |
|---|---|
| Waihangahia he rārangi o ō tohumate katoa. | Ahakoa ngā mea kāore e pā ana ki tētahi atu mea pērā i te "mamae puku" me te "ngoikore o te ringa" ka taea te kī he tohu o te mate kotahi. Mā te tuhi ngātahi i ēnei mea katoa, ka māmā ake te mārama o te tākuta ki te āhua katoa. |
| Tuhia ngā taipitopito o ngā rongoā katoa (tae atu ki ngā huaora) e tangohia ana e koe i tēnei wā. | Ka taea e ētahi rongoā te whakaoho i te AHP, nō reira he mea nui kia mōhio tō tākuta mō ngā rongoā katoa e tangohia ana e koe. |
| Kawea mai ō pūrongo whakamātautau hauora o mua. | Ka taea e tēnei te ārai i ngā whakamātautau anō kāore e hiahiatia, me te penapena wā hoki. |
| Tuhia ngā pātai e hiahia ana koe ki te mōhio ki tētahi pepa i mua i te wā. | Mā te harikoa o te tūtaki ki te tākuta ka wareware koe ki ō pātai. Ina tuhia e koe, e kore e wareware ki te pātai i ngā pātai tino nui. |
| Kia maumahara mēnā kei roto i tō whānau ēnei āhuatanga. | He mate te AHP, ā, tera pea he pānga ira tōna, nō reira he mea tino nui ki tō tākuta ngā mōhiohio e pā ana ki te hītori hauora o tō whānau. |
Ngā pātai me pātai atu koe ki tō tākuta
He tika tōu ki te pātai mō tō āhua. Kaua e wehi ki te pātai me te kimi i ngā mea katoa kei roto i tō hinengaro. Ka nui te kaha e homai ana ki a koe kia ora ai koe me tēnei āhua. Anei ētahi pātai nui ka taea e koe te pātai.
Akohia ngā kaupapa matua mō te mate AHP
Mā ēnei pātai koe e āwhina ki te mārama he aha tēnei mate, he aha i puta ai, me pēhea hoki tana mahi.
- He aha rawa te take o tēnei?
- He aha te momo AHP kei a au? Ka taea e te tangata te whai i ngā momo neke atu i te kotahi i te wā kotahi?
- E taea ana rānei tēnei mate te horapa ki aku tamariki?
- He aha te pānga o tēnei mate ki tōku ao?
Mō AHP me tō ate
Ko te tikanga o te kupu 'Hepatic' he "e pā ana ki te ate." Nō reira, he mea tino nui kia mōhio ki te whanaungatanga i waenga i te AHP me te ate.
- Kua pāngia tōku ate e tēnei mate?
- He aha ngā whakamātautau me mahi e au hei tirotiro mēnā kei te tika te mahi a tōku ate?
- He aha ngā mea motuhake me mahi e au hei tiaki i tōku ate? (hei tauira, ngā kai me ngā inu, ngā rongoā me mutu taku tango)
Mō te maimoatanga me te whakahaere
Kia kitea rā anō te mate, ko te mea nui ko te āhua o te noho tahi me taua mate.
- He aha ngā maimoatanga mō tēnei mate?
- Me pēhea te whakahaere i tētahi whakaeke ina puta mai ngā tohu?
- He aha ngā huringa me mahi e au ki taku momo noho me taku kai?
- Āhea ahau me haere mai ki te kite i te tākuta i muri mai?
He tīmatanga noa iho ēnei pātai. Kaua e mangere ki te pātai ki tō tākuta mō ngā pātai katoa e puta ake ana ki tō hinengaro, ahakoa te iti o te āhua.
Karere Tangohia ki te Kāinga
- Nā te mea he mate onge te AHP, ka roa pea te wā hei tautuhi i tōna mate. Nō reira, he mea nui kia manawanui.
- I mua i tō haerenga ki te tākuta, me whakarite pai mā te tuhi i tētahi rārangi o ō tohumate, ngā rongoā e tangohia ana e koe, me ngā pātai e hiahia ana koe ki te pātai.
- Kaua e wehi ki te pātai me te ako mō tō āhua. He tika tōu ki te mōhio ki tō hauora.
- Mahi tahi me tō tākuta, kia tūwhera hoki tō whakaaro. Whaia āna tohutohu kia tika.
- Mā te whakahaere tika me te maimoatanga, ka taea e koe te ora angitu me te AHP. Nō reira kia maia.
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